[danikali]

Hi,

Well, thanks to Rachel, I have figured out another cause for many (hopefully all) of my remaining symptoms. The most important one is my weird nerve/migrane headache is gone for the first time in a lonnnnnnng time, and it disappeared the first day that I took corn and everything derived from it out of my diet. But I have a question regarding vitamans. On the loooooong list that I have for things to avoid with avoiding corn, it has vitamans on there. My question is, even if my vitamans say 'corn free' could they still have corn in them?

Okay, haha this might sound like a stupid question, but I have a bladder infection and really want to get back to taking my cranberry pills regularly to avoid this, and it DOES say corn free, but I just want to be sure because if I'm as sure about this as I think I am, then I want to stay away from any possibilites.

Also, any other helpful info. that you may have on products/meds./etc. would be great, if you could just throw it out there.

Thanks!

[Green12]

dani, great idea for this thread!

I am finding it confusing to compile a list of corn free products and etc. (some contradictory information and not a whole lot of thorough sources at least with what I have researched) ............and then to make them corn AND gluten free, even more challenging.

I found this link when I was investigating about meds and supplements:

http://www.cornallergens.com/products/corn...e-medicines.php


Keep in mind this information is for corn free, not necessarily gluten free as well.

[Rachel--24]

Dani, this is what I would recommend...and this goes for any elimination diet...not just corn. I wouldnt take any meds/supplements for a couple weeks unless you're 100% sure they are corn/gluten free. The capsule is often vegetarian or corn based. I remember reading somewhere that when you are starting an elimination diet...especially corn since its in everything...its best not to take pills unless you absolutely require them. I wouldnt worry about taking vitamins right now.

Since you dont know whether you're corn intolerant or not you really have to eliminate ALL corn in order to know for sure. You could be intolerant to other things as well and supplements have a bunch of stuff in them that can cause reactions. If you end up free of symptoms then add in your cranberry pills and see if you still feel good but make sure you dont add other stuff in at the same time cuz you could get confused. When trying new things eat it or take it (if its a pill) for a few days and if you still feel fine then assume its safe and then do the same for the next thing you want to add in.

[danikali]

Okay, this is so confusing to me. Well, I took out all corn, as best as I could and my stomach is getting better everyday. I haven't had pain in my stomach or gas and I am (so far) tolerating everything that I eat. I'm eating lots of fruit, rice cakes, fish, meat and lots of fresh veggies that I'm washing EXTREMELY WELL and the fruit I'm eating is only in peals, for now anyway. I haven't had heartburn at night or anything. Well, at least since Monday, but this is all a big deal because when I was on the SCD diet, these things were still happening at least once a day. Okay, so today I added in the cranberry pills because they really do help with the bladder infections that I always get (unless taking the pills) and now that stupid migrane/weird nerve headache is back! The pills say free of corn, gluten, soy, dairy, starch, sugar, salt, pretty much everything. But there is vegetable cellulose in it, and two other things I forgot. SOMETHING in there is causing these headaches. But what else can I do about these stupid bladder infections? I can't take any pills then...no cranberry, no grapefruit seed extract, no acidopholis, which all says free of all of the things I mentioned before! So frustrating!

[Rachel--24]

I dont think I would trust that the pills are corn free. I've been noticing lots of foods that are labeled corn free that actually have one or more corn derived ingredient. Enjoy Life products all state they are corn free even though most of them have xanthan gum in them. From what I've read on the corn forum all xanthan gum in the US is from corn.

I got sick from a cereal that was labeled corn free but had salt and I got blisters in my mouth, burning and tingling, headache, blurred vision, palipations, gas and acid reflux after eating it. The only ingredients were soghrum (sp?) flour and salt. There is also some relationship between soghrum and corn so not all soghrum is safe from what I've read....but the point is the cereal claimed to be corn-free.

Also not everyone with corn intolerance reacts to salt or xanthan gum so I'm thinking alot of companies dont acknowledge these as corn ingredients. The cereal thing was the only major reaction I've had since starting the corn-free diet. I had the same reaction 2 weeks ago from a cake mix that had baking powder and xanthan gum in it.

I've went through 2 cartons of corn free milk and I've had about a quart of ice cream and I havent gotten any of the symptoms I listed above. Its obviously not related to dairy...these reactions have got to be from corn.

[Green12]

danikali, on Apr 27 2006, 10:47 AM, said:

But what else can I do about these stupid bladder infections? I can't take any pills then...no cranberry, no grapefruit seed extract, no acidopholis, which all says free of all of the things I mentioned before! So frustrating!

I don't know if this is corn safe or not, but I wonder if you could have the straight cranberry juice, nothing else added. I used to have one tbsp. (2 times a day) mixed in water just as a system flusher.

[danikali]

I think you guys are right. The ingredients have things that you would think would be corn derived but it says corn free. But when we get symptoms back from using them, then there is something wrong with the picture.

I'm not going to take any supplements anymore. At least for a few weeks. And Julie, that's a good idea about the straight cranberry juice, where do you get that? What if I ate like a half a cup of actual cranberries once or twice a day? Do you think that would work?

Anyway, I looked through my food diary that I've been writing in since the begining of January, and it's crazy because I have never gone more than one day without something with corn in it. And everyday that I've had bad symptoms, I had something like almond milk, or rice milk, or a potato and fish with salt all over it, or some candy. It's so interesting.

[TCA]

I'm starting to wonder if my daughter has some problems with corn. I'm going throught things and everything has corn!!!! Any ideas for a trial besides the obvious meat and veggies? I hav eto go out of town for a wedding this weekend, so I thought I might start Monday. She gets everything through me since she's nursing. She's on soooo many meds, though and she has to have them for reflux and heart issues. Any ideas?

[danikali]

TCA, on Apr 27 2006, 03:42 PM, said:

I'm starting to wonder if my daughter has some problems with corn. I'm going throught things and everything has corn!!!! Any ideas for a trial besides the obvious meat and veggies? I hav eto go out of town for a wedding this weekend, so I thought I might start Monday. She gets everything through me since she's nursing. She's on soooo many meds, though and she has to have them for reflux and heart issues. Any ideas?

Well, I would say make sure that you wash the veggies reaaaaaaaalllly good and if you get them frozen, make sure there is nothing added to them, of course not even salt. I just went shopping yesterday to a small market and noticed all of their frozen veggies had at LEAST salt added to them. Some even with other ingredients! Also, what about fruit, with peels, like oranges, bananas, mangoes, kiwi, watermelon, etc. And applesauce that only has apples in the ingredients. No citric acid or vitaman C. And unsalted rice cakes, and potatoes. These are all of the things that I'm eating. These are the natural things that I'm sure about and feel best with for now. But Rachel is eating other things. She knows more than I do about this so I'm sure she'll give you some other ideas.

[Rachel--24]

TCA, on Apr 27 2006, 02:42 PM, said:

I'm starting to wonder if my daughter has some problems with corn. I'm going throught things and everything has corn!!!! Any ideas for a trial besides the obvious meat and veggies? I hav eto go out of town for a wedding this weekend, so I thought I might start Monday. She gets everything through me since she's nursing. She's on soooo many meds, though and she has to have them for reflux and heart issues. Any ideas?

I would think it would be impossible to test the corn intolerance if shes on alot of meds. I would bet every one of them has corn in it. The last few months I wasnt getting any corn from my diet at all....except maybe from wax on vegetables. All of my symptoms were coming from my supplements and thyroid meds because once I stopped taking everything I started feeling better immediately. Thats why it was so difficult for me to figure out....I just wasnt thinking about what could be in my meds.

danikali, on Apr 27 2006, 02:40 PM, said:

I'm not going to take any supplements anymore. At least for a few weeks. And Julie, that's a good idea about the straight cranberry juice, where do you get that? What if I ate like a half a cup of actual cranberries once or twice a day? Do you think that would work?

Dani, you could have a problem with cranberries, sulfites, salicylates or any number of things. Those are all things that would be in your supplement. Thats why its important to not take too many things while on the elimination diet....you'll get confused. I would avoid the supplements completely.....maybe try fresh cranberries instead and see if that works for you.

[Rachel--24]

I just want to say that corn is EVIL.

When I look back at my journals I'm highlighting everything that had corn derivatives in it. On the days that I had full blown reactions I had written "GLUTENED" on the page. Of course I had no idea how I got glutened.....just assumed that I did. Now I can see that on every one of those days everything I ate had some corn derived ingredient in it.

My symptoms were so bad on those days...mostly neurological. I always got chills so bad and my feet and hands would go numb and tingle. Sometimes my ears would buzz. I remember one time being asleep and totally out of it but my ear (that was lying on the pillow) was hurting and buzzing really bad...I was trying to move around to make it stop but everytime I put it back on the pillow I would get "zapped". Because I was so "out of it" I was thinking that there was a mouse or something in my pillow trying to get into my ear! This went on all night but at the time it was no laughing matter. All my joints were swollen and sore in the morning. My eyes would also get a sticky type film over them when I would get a reaction. No doctor could ever figure that one out....they'd never seen anything like it but my tears would be sticky...like syrup. Its amazing how one thing can cause so many disturbances to the brain, muscles, eyes...I actually dont think there was a single part of my body that wasnt affected by this. Every part of my head would hurt to even touch it and my whole body tingles and itches. My face and mouth burn and sting like crazy. Yup.....corn is definately glutens evil twin! Does anyone else get reactions like this?

[TCA]

I am very aware of how meds contain so much corn, I just don't know how to avoid it. I did call her allergist today and we have an appt. to get her tested for corn allergy next week. I figure that is a start. She reacts so violently to all formulas and the one common thing I see in all of them is corn of some form. Something just keeps telling me to pursue this, so I am. I don't know how on earth to avoid the corn in her meds since they're all liquids since she's a baby and they add corn syrup to make them taste better. I guess I'll wait until after the appointment next week and then see how things go. Did either of you test positive for a corn allergy?

[Green12]

TCA, on Apr 27 2006, 07:41 PM, said:

I am very aware of how meds contain so much corn, I just don't know how to avoid it.

TCA, have you checked out the Avoiding Corn forum at delphi? When I was doing my own research I came across several threads about infants with corn allergies, or suspected corn allergies, and there might be some helpful information and contacts for you.

http://forums.delphiforums.com/AvoidingCor...+Reading+%3E%3E

Quote

I'm not going to take any supplements anymore. At least for a few weeks. And Julie, that's a good idea about the straight cranberry juice, where do you get that? What if I ate like a half a cup of actual cranberries once or twice a day? Do you think that would work?

dani, I used R.W Knudsen Just Cranberry Juice, found at most health food stores. I saw on one of the safe foods lists that Knudsen was an ok brand for one flavor of juice for sure, I don't remember what flavor, but it said to check labels for other flavors to see if they are safe. I'm looking at a bottle right now and the ingredients are just filtered water and cranberry juice concentrate. I don't know what the concentrate means but maybe it is safe.

I heard about boiling cranberries and then straining them to make your own juice, that might work too. They are very very tart, I don't know about eating them straight - but maybe that is a personal preference.

Hope this helps!

[Green12]

Rachel--24, on Apr 27 2006, 07:05 PM, said:

I just want to say that corn is EVIL.

When I look back at my journals I'm highlighting everything that had corn derivatives in it. On the days that I had full blown reactions I had written "GLUTENED" on the page. Of course I had no idea how I got glutened.....just assumed that I did. Now I can see that on every one of those days everything I ate had some corn derived ingredient in it.

My symptoms were so bad on those days...mostly neurological. I always got chills so bad and my feet and hands would go numb and tingle. Sometimes my ears would buzz. I remember one time being asleep and totally out of it but my ear (that was lying on the pillow) was hurting and buzzing really bad...I was trying to move around to make it stop but everytime I put it back on the pillow I would get "zapped". Because I was so "out of it" I was thinking that there was a mouse or something in my pillow trying to get into my ear! This went on all night but at the time it was no laughing matter. All my joints were swollen and sore in the morning. My eyes would also get a sticky type film over them when I would get a reaction. No doctor could ever figure that one out....they'd never seen anything like it but my tears would be sticky...like syrup. Its amazing how one thing can cause so many disturbances to the brain, muscles, eyes...I actually dont think there was a single part of my body that wasnt affected by this. Every part of my head would hurt to even touch it and my whole body tingles and itches. My face and mouth burn and sting like crazy. Yup.....corn is definately glutens evil twin! Does anyone else get reactions like this?

Rachel, those are definitely some symptoms!

I have always gotten reactions from eating gluten-free foods that resembled getting glutened for me, but I just assumed that it was maybe something didn't agree with me, or I blamed the sugar because of the candida thing- or I thought I must just be allergic to EVERYTHING. Now I realize all of these products have many corn derivatives and maybe that has been the problem, that even though I was eating gluten free I was getting corned.

I get blisters in my mouth, feel sleepy almost immediately (sometimes I even fall right asleep like my system just shuts off), feel a slight pooling of mucous in my throat, and my brain gets a little foggy. But for the most part my symptoms are delayed, the next couple of days I get really really moody and irritable and I have temperature extremes, sometimes I am bone cold and my fingernails and toenails are blue, other times I have hot flashes and irregular sweating. I always get really really swollen all over the body from an enormous amount of fluid retention. The more I ingest the food the worse things get, more swelling, acne, itchy scalp and skin, digestive disturbances, dry mouth, my entire body will hurt and I can hardly breathe. But the worst symptom for me is angioedema, an anaphylactic type rash or skin outbreak that is similar to hives/blisters all over the body and they are so painful.

I guess it varies from individual to individual.

[Rachel--24]

Julie,

You also get alot of the same symptoms I get. I've had the fluid retention for 3 years now and before I restricted my diet it was really bad. All of my regular weight had been replaced by fluid and I'd wake up covered in lines and imprinted with whatever material I was wearing. Back then I was really messed up and had bruises all over and my hair was falling out. I actually get every symptom you listed...mouth blisters, irritabilty, brainfog, chills or hot flashes, and like you they get worse the more the foods are consumed.

I dont get the mucus in my throat or the rash though...my worst symptom is chemical sensitivities that get worse whenever I eat something wrong.

The fluid retention is crazy....I've actually felt myself fill up with fluid and I could see myself getting puffier. It happened once after mac & cheese and another time after pizza.

Maybe we have both been dealing with the same problem all this time.

TCA, on Apr 27 2006, 06:41 PM, said:

I am very aware of how meds contain so much corn, I just don't know how to avoid it. I did call her allergist today and we have an appt. to get her tested for corn allergy next week. I figure that is a start. She reacts so violently to all formulas and the one common thing I see in all of them is corn of some form. Something just keeps telling me to pursue this, so I am. I don't know how on earth to avoid the corn in her meds since they're all liquids since she's a baby and they add corn syrup to make them taste better. I guess I'll wait until after the appointment next week and then see how things go. Did either of you test positive for a corn allergy?

I didnt test postitive for corn allergy last year when I was tested. I need to look at the results to make sure corn was on there....I'm sure it was though because it was all the main foods that were tested.
Thats great that she's being tested though....maybe it will give you some answers. I just dropped off my thyroid perscription at the compounding pharmacy tonight. My doctor wrote it for gluten free, corn free and dye free. If your daughter ends up allergic they can reformulate her meds to be free of corn or anything else.