Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

What Do You Do When You Get Glutened?


coco-loco

Recommended Posts

jknnej Collaborator

I take Zofran or Phenegran. Zofran is more expensive so I take it when I can't lay in bed. I take Phenegran and it works pretty well cus' it knocks me out and when I feel that bad I'd rather be sleeping, anyway!

Don't take the Ipecac or whatever syrup. It will keep you vomiting until you are just dry heaving and nauseated for days afterward. Not worth it by any means.

Usually I just lie in bed and sleep it off.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 56
  • Created
  • Last Reply
ms-sillyak-screwed Enthusiast

WARNING IMODIUM liquid is NOT GLUTEN FREE

I was reactive to the liquid IMODIUM so I called IOpen Original Shared Link and guess what-- Imodium liquid is NOT free of GLUTEN. BEWARE! It has SOY in it also and SPLENDA is in the liquid.

The woman was very very nice, and told me that CORN is what they use as a binder.

So for us celiacs that are at the stage of the disease with seconary food allergies to CORN. This product although we think it is helping us, we might be doing more unseen damage to our bidy with the corn. AND The liquid had GLUTEN!

CALL the number yourself and speak up.

Link to comment
Share on other sites
penguin Community Regular
WARNING IMODIUM liquid is NOT GLUTEN FREE

I was reactive to the liquid IMODIUM so I called IOpen Original Shared Link and guess what-- Imodium liquid is NOT free of GLUTEN. BEWARE! It has SOY in it also and SPLENDA is in the liquid.

The woman was very very nice, and told me that CORN is what they use as a binder.

So for us celiacs that are at the stage of the disease with seconary food allergies to CORN. This product although we think it is helping us, we might be doing more unseen damage to our bidy with the corn. AND The liquid had GLUTEN!

CALL the number yourself and speak up.

Sorry? I found this confusing...

Please correct me:

it has gluten from wheat, barley, rye, or oats

It has corn

It has soy

It has sucralose (splenda)

If it does have gluten from WBRO, which component is it in? The only sketchy thing I saw was flavors?

Link to comment
Share on other sites
ms-sillyak-screwed Enthusiast

I called the 1800 # on the IMODIUM web site.

I asked the lady the ingredients in the Imodium liquid and then the pills. She looked up the liquid and said

LIQUID IMODIUM - CONTAINS GLUTEN (from wheat and grains) she said there is also a flavoring that contains gluten. And SPLENDA is the sweetener they use and IS CROSS CONTAMINATED with SOY.

PILLS IMODIUM - CONTAINS CORN. That was as far as I got. I didn't ask about SOY I was so upset.

I used my time with her educating her on the simple things important to know. And, I went deeper in hopes my converstation was recorded and logged into the "EARS". I asked her to write down a title of a book, that the brains in their labs should read called "DANGEROUS GRAINS..." I told her of a large grass roots movement happening around the USA of people with celiac disease, their families and friends to provoke change and awareness to big business, drug companies and our government.

And how we are going to demand ingredient labels like on food, but for drugs, beauty products, skin care and everything else... just like us not knowing IMODIUM LIQUID has GLUTEN in it.

I spoke to her about how millions and millions of people with celiac disease rely on Imodium, and how we have believe their product to be a safe drug to use with celiac disease when in fact they are making use sick(er).

Think about this long and hard. Think of the impact this has had on our health.

Tomorrow I'm going to call my compound RX guy and ask if he can make it, caps or liquid without the poison in IMODIUM.

Link to comment
Share on other sites
beelzebubble Contributor

it's nausea that predominates for me. i have diarrhea too, but the nausea and stomach pain are what floors me. i've found that nothing works better for me than herbal tea with lots of honey and some lemon. it usually takes about an hour to work, but then i'm significantly better for at least the next few hours. then i just keep drinking tea and eating mild things like homemade chicken soup and i'm, if not okay, at least not ready to off myself.

:)

Link to comment
Share on other sites
Generic Apprentice
If you look at my post, you'll see that Ive suffered alot with celiac disease (accidentally). What kind of "seizures' do you have? Because I think I was having them, but Im not sure. I wanted a hospital, but, didnt think it would help. Suffered terribly falling to the floor off the toilet bowl--couldnt even keep my head/body up. I was crying and basically freaking out.

Skin flared up with cystic acne, had constant dizziness, feeling like I had to black out if I wasnt laying in bed. And-----the nausea!!!!!! OMG!!!!! a nightmare

Can you share more info about what you (or anyone else) do during and after a CA?

Alot of people have recommended ginger. Never tried it, not sure about it. Immodium helps alot, lots of brown rice, baked potato and water helped me.

Look foward to hearing from you guys!!!!

Please check out my recent post.......thanks! I'd love for more people to read it and share.

erica

It sounds like you were severely dehydrated. I also get that way and have to go the E.R. Some times I start to hallucinate and actually passs out, also.

Link to comment
Share on other sites
Girl Ninja Newbie

If I end up with bad D I use dark chocolate. The cocoa in 2 bars of quality dark chocolate is generally enough to clear it up. If not, repeat in a few hours. Conversely, if you are even the least bit C you should definitely avoid dark chocolate.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

    2. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    3. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    4. - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    5. - mishyj posted a topic in Coping with Celiac Disease
      3

      Why?



  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,219
    • Most Online (within 30 mins)
      7,748

    SoCalSuzy
    Newest Member
    SoCalSuzy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Aussienae
      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
    • mishyj
      My daughter has celiac disease and has had for a long time. She fell loses strictly gluten-free diet and recently got rid of all cutting boards in any gluten in her house at all. She just had a stool test and it came back showing of gigantic response to gluten in her diet. What could be going on since she doesn't eat any gluten and is very careful about any kind of hidden glue? Help!
×
×
  • Create New...