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Vision


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23 replies to this topic

#16 **Sunni**

 
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Posted 08 January 2011 - 01:42 AM

I have also had problems with my eyes, I have noticed especially in the early to mid morning. Feels like I cannot focus and when looking into the mirror it's as if my eyes aren't dilating. Could this be related to a rxn to a breakfast food? Has anyone else had a similar vision prob.?
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#17 MelindaLee

 
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Posted 08 January 2011 - 06:44 PM

About 3 years ago I had a short episode where it seemed like I was looking through a black and white calidascope. It only lasted about 20 minutes. When I saw my eye dr. I told her, as I was on a medication that can cause eye problems (due to arthritis). She said is was a "visual migraine". About a year ago, I had another episode like this, so thought nothing of it until my left arm and nose and lips went numb. I ended up at the ER (had to rule out stroke and heart attack) and was diagnosed with a migraine again. I had to follow up with a nuerologist. He recommended getting off birth control, which I did. This summer they found my celiac, so I have been gluten-free since August. In October I had a bad dining experience where I was very ill right after, so I know I had gluten. One week to the day later, I had another "visual migraine" with the numbness. I called the neurologist as I didn't automatically equate it to the gluten. Once he learned of my celiac diagnosis, he accused me of cheating on the diet. It was only then I made the connection with the gluten exposure. My visual migraines have been as simple as the black dots that float, to feeling like I was looking through a distorted window. "Tunnel vision" is often part of this as well. Hopefully this gives you some ideas of what to check out with your physicians.
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#18 Bella001

 
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Posted 10 January 2011 - 11:29 AM

Has anyone had problems with their vision? I have never noticed this before I was diagnosed, but since my diagnosis in feb 2006 my eyes have been doing weird things. Today, I went to my children's conferences at the high school. I went into the bathroom and when I was washing my hands, I couldn't focus on the mirror in front of me. It felt weird. I walked toward the door and it was only then that I realized that what I thought was the mirror was an opening in the wall. The mirror was really by the door several feet away. I had the same experience earlier in the week with a mirror. I felt like I had no depth perception. Isn't this weird?



One of my problems before going gluten free was my night vision getting really bad. Add rain to it and I couldn't drive with glasses on. My Mom was with me one night and she had to finish driving us home. Since going gluten free my eyes have improved a great deal. I don't even need glasses to drive at night now.
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#19 seriously confused

 
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Posted 24 August 2011 - 03:04 PM

I was dx'd with optic neuritis and they thought MS, but now gluten free it has all gone away!



This is where I'm at. I was diagnosed over 8 years ago with MS. Had optic neuritis th first year, then nothing. I got diagnosed with Celiac last year but am positive that I have had it since I was a teenager(which was before the MS). I just had my second MRI and they phoned to say they dint find anything. So I am wondering if I don't have MS and maybe it was the Celiac that resembled MS symptoms. The biggest problem I have is when I went to my doc questioning the MS diagnoses, she said there was no question whether or not it was ms, even after I asked her about the connection between the two. So when I go now, she is probably going to say the same thing.......I wish there was a Celiac specialist around here that I could talked to......This is the next best thing..
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#20 ravenwoodglass

 
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Posted 24 August 2011 - 04:03 PM

This is where I'm at. I was diagnosed over 8 years ago with MS. Had optic neuritis th first year, then nothing. I got diagnosed with Celiac last year but am positive that I have had it since I was a teenager(which was before the MS). I just had my second MRI and they phoned to say they dint find anything. So I am wondering if I don't have MS and maybe it was the Celiac that resembled MS symptoms. The biggest problem I have is when I went to my doc questioning the MS diagnoses, she said there was no question whether or not it was ms, even after I asked her about the connection between the two. So when I go now, she is probably going to say the same thing.......I wish there was a Celiac specialist around here that I could talked to......This is the next best thing..


How were you diagnosed with MS? Did you have a spinal tap that was positive for it or did they diagnose based on symptoms or a previous MRI that showed white lesions? If you were diagnosed with a positive spinal tap with MS then as far as I know you unfortunately have MS. MS isn't always a disease that has constant symptoms though so perhaps it could be in an 'off phase' after the eye symptoms resolved. I don't know I am far from an expert with MS.
There is a neurological celiac form that is called gluten ataxia. That can make you very off balance. That can cause lesions and symptoms that are similiar to MS but the spinal fluid will be clear of the debris that comes with MS.
Doctors unfortunately don't know a great deal usually about celiac's impact on the brain. There is quite a bit of stuff out there on everything from gluten ataxia to glutens relationship to some mental illnesses but most doctors have no knowledge of this. Sometimes printing out peer reviewed studies from places like the NIH can help them understand why your questioning.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#21 AVR1962

 
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Posted 25 August 2011 - 11:44 AM

One of my vry first signs two years ago was vision problems. Went to eye doc and nothing was wrong with my eyes. That didn't explain the blurry vision and sometimes double vision. At it's worst I was having vertigo, just real weird stuff happening like a white wall behind a person would make it hard for me to see the person, going down a escalator my eyes seemed to focus on the lines in the steps which were very bright. And my depth perception was off so when I would drive I felt like I was squeezed between two lines and it felt like I could easy go over the line. I actually ended up hitting a curb at a corner at a fairly good speed and flattened a tire.
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Yesterday is not ours to recover but today is ours to win or lose!

Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.

#22 yepunsarang

 
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Posted 05 September 2011 - 10:33 AM

I've also had an experience where my eyesight improved.. I went to the eye doctor, and he exclaimed that my prescription went down and what did I do?! Well, the only thing I changed was going on the gluten free diet! :D
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#23 ncallier

 
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Posted 27 April 2012 - 12:33 PM

Went to the eye doctor, nothing wrong I have 20/20 eye sight, but my eyes do the weirdest things. I don't know if I'm blacking out, but, a lot of the times my sight will nearly completely black, I can only see about around the middle of my sight, I have no idea what this is but when I'm not dealing with that, my eye sight is vivid as ever!

-Ash



Please know that I have no medical experience or knowledge!! I do, however, have 2 relatives with macular degeneration, and that's how they explain what their vision is like.

Also, when I had ovarian cysts, I had migraines with auras, then my vision would do something similar to yours. I hope neither of these is your problem!! Hope everything readjusts for you soon!
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English lady

#24 Christine0125

 
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Posted 27 April 2012 - 12:57 PM

I had optic neuritis after the birth of my son 6 years ago. I had an MRI and 2 follow on MRIs in the next 2 years with no signs of MS. The doctor indicated that 20% of the time there is no known reason and I likely fell into that category. I have just been diagnosed with celiac in the last 2 months and my gut tells me that it was the celiac that caused the eye problems. I'm relieved because I felt like I had an MS cloud hanging over my head for the last several years. I'm feeling so much better overall on the gluten free diet and it's nice to have answers to several unexplained symptoms.
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