Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I Need Help Asap!
0

10 posts in this topic

Hi,

I have been gluten free for almost 3 years now and have been feeling much better until the last 2 weeks.

We are remodeling a new house(new for us) and my activity level has increased. I have noticed increasing pain in my legs and joints, which came to a head yesterday with severe pain in my right knee to the point of not being to walk very well. I saw my MD today and all he could come up with is arthritis and gave me an Rx for Ultram which is not doing anything. My husband has some leftover Vicodin from a dental problem, which is making the pain go away, but I can't continue on this. I am unable to take any NSAIDS because of severe GERD ( Advil, Aleve, Ibuprofen, etc.) Knowing my history of food intolerances I suspect this is the problem. I have intolerances to wheat, dairy, garlic, egg whites, and corn. I have been recently been eating

a lot of eggs and drinking a lot of V8 smoothies which has high fructose corn syrup. I have been avoiding these for a day but the pain is still severe as ever. I read somewhere that HFCS (high glucose corn syrup) can cause severe joint pain, but I can't find it on google. I would appreciate hearing from anyone who can help me. In the past eggs and corn haven't bothered me which is why I was eating them. Do you think I was overdoing it or am I now doomed to have arthritis pain? Any thoughts would be appreciated.

0

Share this post


Link to post
Share on other sites


my brother gets severe cramping in his feet, so bad it brings tears to his eyes. he was told it could be hes dehydrated and needs more potassium, so he started drinking about 8 glasses of water a day and at least one banana, its only been a little over a week and he said its helping?

I guess it can't hurt to try it

0

Share this post


Link to post
Share on other sites

I would definitely make sure to always avoid your intolerances, but with the house remodel, please look into seeing an orthopaedist, who can see if there is a joint problem. I'm guessing that your doc didn't take any x-rays or look into anything specific. You definitely shouldn't be dx'ed with arthritis without the bloodwork to show that you have it, or a referral to a rheumatologist to manage it.

0

Share this post


Link to post
Share on other sites

I take MSM/glucosamine/chondroitin for joint pain. Whenever I run out, it comes back. Joint pain was the symptom that triggered my trying to figure out what my problem was, then I started losing a pound per week and really needed to figure out what was going on. I couldn't bend my left knee without pain. At first I thought it was a candida infection. Hmm, guess that would have been a little easier than this :(

0

Share this post


Link to post
Share on other sites
I take MSM/glucosamine/chondroitin for joint pain. Whenever I run out, it comes back. Joint pain was the symptom that triggered my trying to figure out what my problem was, then I started losing a pound per week and really needed to figure out what was going on. I couldn't bend my left knee without pain. At first I thought it was a candida infection. Hmm, guess that would have been a little easier than this :(

Thanks to all who have responded to this, I will try all of your suggestions. Just wanted to let you know that I am feeling a little better today but it still hurts. It's hard to find foods to eat when you have so many intolerances. The York test said to try to eat these foods one by one every 4 days and that is what I did in the past, but being busier I slipped up and was eating one or two every day, except for wheat that is.Also we have been eating out a lot, but the restaurant is very careful for me and I haven't had a problem in the past.

0

Share this post


Link to post
Share on other sites
Hi,

I have been gluten free for almost 3 years now and have been feeling much better until the last 2 weeks.

We are remodeling a new house(new for us) and my activity level has increased. I have noticed increasing pain in my legs and joints, which came to a head yesterday with severe pain in my right knee to the point of not being to walk very well. I saw my MD today and all he could come up with is arthritis and gave me an Rx for Ultram which is not doing anything. My husband has some leftover Vicodin from a dental problem, which is making the pain go away, but I can't continue on this. I am unable to take any NSAIDS because of severe GERD ( Advil, Aleve, Ibuprofen, etc.) Knowing my history of food intolerances I suspect this is the problem. I have intolerances to wheat, dairy, garlic, egg whites, and corn. I have been recently been eating

a lot of eggs and drinking a lot of V8 smoothies which has high fructose corn syrup. I have been avoiding these for a day but the pain is still severe as ever. I read somewhere that HFCS (high glucose corn syrup) can cause severe joint pain, but I can't find it on google. I would appreciate hearing from anyone who can help me. In the past eggs and corn haven't bothered me which is why I was eating them. Do you think I was overdoing it or am I now doomed to have arthritis pain? Any thoughts would be appreciated.

Are you doing any drywall work? Drywall and mud (drywall compound for seams) are NOT gluten free. Try to avoid the dust if you are doing any of this it could be causeing your problem. Also for some of us the nightshade family can cause joint discomfort, eliminating potaotes, tomatoes and peppers helps for me.

0

Share this post


Link to post
Share on other sites
Are you doing any drywall work? Drywall and mud (drywall compound for seams) are NOT gluten free. Try to avoid the dust if you are doing any of this it could be causeing your problem. Also for some of us the nightshade family can cause joint discomfort, eliminating potaotes, tomatoes and peppers helps for me.

Dear Ravenwoodglass,

I wish you could know how a felt when I read your answer, it was like a bolt of lightening. You have made my day. I have been working with drywall, sweeping up the floor after the painters finished a room. Everyday I have had to wash my hair because it was stiff with dust. I never knew this. May God bless you for letting me know. The drywall is just about finished and I will be vacuuming tomorrow but now I will take the necessary precautions. I know my MD will never believe this!

0

Share this post


Link to post
Share on other sites

Very interesting about the drywall!! We just moved into a house built in 1916 (finally, we bought it 5 years ago and have been renting it out till we could sell our other house!), anyway, we'll be doing a lot of renovation. I'll be sure to stay away when any drywall work is being done. Is plaster gluten free? I'm wondering if I need to be concerned with the plaster dust that's all over my house right now from tearing out the old bathroom (not original, but we're going to make it look that way now).

0

Share this post


Link to post
Share on other sites

Oh my--I just thought of something, too. Right around the time I got sick enough to quit my job, we had our basement finished! There was tons of drywall dust--and it got everywhere! I remember distinctly literaly falling over while painting some bookshelves down there while the dust was still all over the floor (and probably still in the air). M-m-m, it all comes together.....I never knew about the drywall, either!

0

Share this post


Link to post
Share on other sites
Oh my--I just thought of something, too. Right around the time I got sick enough to quit my job, we had our basement finished! There was tons of drywall dust--and it got everywhere! I remember distinctly literaly falling over while painting some bookshelves down there while the dust was still all over the floor (and probably still in the air). M-m-m, it all comes together.....I never knew about the drywall, either!

I was wondering if anyone has any documentation about the problem with the drywall mud and dust. I can't figure out why it is affecting my legs and not my digestive system. I would like to read about it and also give something to my MD.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,671
    • Total Posts
      914,356
  • Topics

  • Posts

    • Smoothie King
      I have had one or two and was fine.  I don't have an issue with dairy.  If I remember right, most smoothies are gluten-free.
    • Lower left abdominal, left pelvic & other random pains
      I can not say as I have never gone to one or researched the topic.    I would bet that an acupuncturist would be a better choice.  I found it helpful with pain management for a shoulder injury.  It allowed me to heal faster and to do all the things physical therapy therapist wanted me to do without using drugs.  But, finding the root cause of your pain is more important in the long run.  
    • Teeth And Gum Problems
      At age 32, I was told I had severely receding gums and my dentist thought it was very odd. I had the burning mouth syndrome. I could barely eat anything with salt. Then I grew ill. I started to eat soda crackers and water and even that was causing pain in my stomach. One day my boss said, "maybe you have celiac disease."  I'd never heard of it. I stopped eating gluten and got tested. Of course, my tests came back negative, probably because I had not been eating gluten. My gastroenterologist couldn't figure it out and told me to stop looking at the Internet. Over time and without the gluten my inflamed gums, sore mouth and overall mouth sensitivity disappeared, as did my pain in my stomach, my joints and even my dry eye disease. Years passed and I started eating gluten again, ended up in the hospital with severe asthma. The allergist suggested another round of tests and we found I have celiac disease. Recently, I've been under a lot of stress and reached for my go to comfort food, bread. My gums are so inflamed that they even broke open. How stupid of me. But yes, gum inflammation is definitely a severe side effect of gluten for me. My whole mouth hurts and my teeth are now beyond sensitive. My tongue is getting that burning sensation back too. I'm pretty sure my throat is swollen as it is hard to swallow. I'm not quite sure why in the world I would do this to myself when I know what happens. Stay away from gluten folks!!! I know better. Shame on me.  
    • Lower left abdominal, left pelvic & other random pains
      UPDATE: I got my Celiac Disease (celiac disease) tests back and they were all negative which comforts me and also kind of confuses me more. They ran several Celiac tests and are mailing me all the paperwork. Next visit is with the Gastroenterologist at the beginning of March. I kind of feel so discouraged that I don’t have a diagnosis yet but relieved and selfish at the same time. Ironically a few days ago I ran into an old friend/colleague of mine and she has Non-celiac gluten sensitivity (NCGS) and had the exact same symptoms as me, which was a ray of hope that this might be the issue, but I’ve still not been “officially” diagnosed.  Eliminating the gluten from my diet has helped in eliminating almost all of my bloating and most of the other random pains too, but this lower left abdominal dull ache is still bothering me. My friend/colleague expressed that her aches in that location took several months to eventually feel better. I think I’ve also noticed that dairy and a few other of the cross-reactive foods do actually bother me and I will be needing to cut them out till I heal as well. My friend/colleague thought that after a month, at which point my GI Doc appointment will be, that I should notice some sort of pain difference in my lower left abdomen as long as I don’t get cross-contaminated by accident if I am actually suffering from NCGS. Since I still seem to exhibit some occasionally bloating, gas, diarrhea, constipation and my lower left dull ache but nothing else still makes me wonder. No fever. No blood in stool. No acute pain. No vomiting. No nausea. No shortness of breath. No loss of appetite. No headaches. Not tired. Don’t drink nor smoke. And when I sleep on my back the dull ache seems to vanish. And the PCP ruled out other organ issues that they normally check for. Hoping the GI Doc will do an ultrasound or sonogram, upper GI, endoscopy or colonoscopy or whatever, but I’m confused because if I don’t have celiac disease isn’t it true that none of these tests will detect NCGS? After taking my wife to the ER recently for what she thought was a heart attack which was, thankfully, only a hiatal hernia, that has left us with over a 10k hospital bill. Not sure how much insurance will cover yet and our money tree burned down years ago. So disappointed that there’s still no test for NCGS. My aches all seemed to have reached a pinnacle within a week or less last Thanksgiving. Is that how fast everyone else’s symptoms manifested as well? Thank you.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      59,694
    • Most Online
      1,763

    Newest Member
    KSvancity
    Joined