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I Need Help Asap!
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Hi,

I have been gluten free for almost 3 years now and have been feeling much better until the last 2 weeks.

We are remodeling a new house(new for us) and my activity level has increased. I have noticed increasing pain in my legs and joints, which came to a head yesterday with severe pain in my right knee to the point of not being to walk very well. I saw my MD today and all he could come up with is arthritis and gave me an Rx for Ultram which is not doing anything. My husband has some leftover Vicodin from a dental problem, which is making the pain go away, but I can't continue on this. I am unable to take any NSAIDS because of severe GERD ( Advil, Aleve, Ibuprofen, etc.) Knowing my history of food intolerances I suspect this is the problem. I have intolerances to wheat, dairy, garlic, egg whites, and corn. I have been recently been eating

a lot of eggs and drinking a lot of V8 smoothies which has high fructose corn syrup. I have been avoiding these for a day but the pain is still severe as ever. I read somewhere that HFCS (high glucose corn syrup) can cause severe joint pain, but I can't find it on google. I would appreciate hearing from anyone who can help me. In the past eggs and corn haven't bothered me which is why I was eating them. Do you think I was overdoing it or am I now doomed to have arthritis pain? Any thoughts would be appreciated.

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my brother gets severe cramping in his feet, so bad it brings tears to his eyes. he was told it could be hes dehydrated and needs more potassium, so he started drinking about 8 glasses of water a day and at least one banana, its only been a little over a week and he said its helping?

I guess it can't hurt to try it

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I would definitely make sure to always avoid your intolerances, but with the house remodel, please look into seeing an orthopaedist, who can see if there is a joint problem. I'm guessing that your doc didn't take any x-rays or look into anything specific. You definitely shouldn't be dx'ed with arthritis without the bloodwork to show that you have it, or a referral to a rheumatologist to manage it.

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I take MSM/glucosamine/chondroitin for joint pain. Whenever I run out, it comes back. Joint pain was the symptom that triggered my trying to figure out what my problem was, then I started losing a pound per week and really needed to figure out what was going on. I couldn't bend my left knee without pain. At first I thought it was a candida infection. Hmm, guess that would have been a little easier than this :(

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I take MSM/glucosamine/chondroitin for joint pain. Whenever I run out, it comes back. Joint pain was the symptom that triggered my trying to figure out what my problem was, then I started losing a pound per week and really needed to figure out what was going on. I couldn't bend my left knee without pain. At first I thought it was a candida infection. Hmm, guess that would have been a little easier than this :(

Thanks to all who have responded to this, I will try all of your suggestions. Just wanted to let you know that I am feeling a little better today but it still hurts. It's hard to find foods to eat when you have so many intolerances. The York test said to try to eat these foods one by one every 4 days and that is what I did in the past, but being busier I slipped up and was eating one or two every day, except for wheat that is.Also we have been eating out a lot, but the restaurant is very careful for me and I haven't had a problem in the past.

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Hi,

I have been gluten free for almost 3 years now and have been feeling much better until the last 2 weeks.

We are remodeling a new house(new for us) and my activity level has increased. I have noticed increasing pain in my legs and joints, which came to a head yesterday with severe pain in my right knee to the point of not being to walk very well. I saw my MD today and all he could come up with is arthritis and gave me an Rx for Ultram which is not doing anything. My husband has some leftover Vicodin from a dental problem, which is making the pain go away, but I can't continue on this. I am unable to take any NSAIDS because of severe GERD ( Advil, Aleve, Ibuprofen, etc.) Knowing my history of food intolerances I suspect this is the problem. I have intolerances to wheat, dairy, garlic, egg whites, and corn. I have been recently been eating

a lot of eggs and drinking a lot of V8 smoothies which has high fructose corn syrup. I have been avoiding these for a day but the pain is still severe as ever. I read somewhere that HFCS (high glucose corn syrup) can cause severe joint pain, but I can't find it on google. I would appreciate hearing from anyone who can help me. In the past eggs and corn haven't bothered me which is why I was eating them. Do you think I was overdoing it or am I now doomed to have arthritis pain? Any thoughts would be appreciated.

Are you doing any drywall work? Drywall and mud (drywall compound for seams) are NOT gluten free. Try to avoid the dust if you are doing any of this it could be causeing your problem. Also for some of us the nightshade family can cause joint discomfort, eliminating potaotes, tomatoes and peppers helps for me.

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Are you doing any drywall work? Drywall and mud (drywall compound for seams) are NOT gluten free. Try to avoid the dust if you are doing any of this it could be causeing your problem. Also for some of us the nightshade family can cause joint discomfort, eliminating potaotes, tomatoes and peppers helps for me.

Dear Ravenwoodglass,

I wish you could know how a felt when I read your answer, it was like a bolt of lightening. You have made my day. I have been working with drywall, sweeping up the floor after the painters finished a room. Everyday I have had to wash my hair because it was stiff with dust. I never knew this. May God bless you for letting me know. The drywall is just about finished and I will be vacuuming tomorrow but now I will take the necessary precautions. I know my MD will never believe this!

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Very interesting about the drywall!! We just moved into a house built in 1916 (finally, we bought it 5 years ago and have been renting it out till we could sell our other house!), anyway, we'll be doing a lot of renovation. I'll be sure to stay away when any drywall work is being done. Is plaster gluten free? I'm wondering if I need to be concerned with the plaster dust that's all over my house right now from tearing out the old bathroom (not original, but we're going to make it look that way now).

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Oh my--I just thought of something, too. Right around the time I got sick enough to quit my job, we had our basement finished! There was tons of drywall dust--and it got everywhere! I remember distinctly literaly falling over while painting some bookshelves down there while the dust was still all over the floor (and probably still in the air). M-m-m, it all comes together.....I never knew about the drywall, either!

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Oh my--I just thought of something, too. Right around the time I got sick enough to quit my job, we had our basement finished! There was tons of drywall dust--and it got everywhere! I remember distinctly literaly falling over while painting some bookshelves down there while the dust was still all over the floor (and probably still in the air). M-m-m, it all comes together.....I never knew about the drywall, either!

I was wondering if anyone has any documentation about the problem with the drywall mud and dust. I can't figure out why it is affecting my legs and not my digestive system. I would like to read about it and also give something to my MD.

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    • Based on the information you have posted today, the most likely probable reason for your being ill is that you are getting glutened!  Here is a biggie....does your hubby brush his teeth prior to kissing you?  Seriously, it can happen, but going out to eat a lot.....that is just as bad!  
    • I got glutened last summer.  Heck, I do not even know what glutened me, but I suspect two products that my gluten-free hubby never consumed (he is my canary).  My symptoms were so different from when I was diagnosed (just had anemia then).  My GI thought I had SIBO or something else, but I asked for a celiac panel.  Yep, I had been Glutened!  Took me three months to recover and another three to regain lost weight.  Yeah, I picked up another health issue on the way (hives, rashes, swelling, itching, ab pain, vomiting, and fainting.)   I did not eat out for one year!  Only this summer, I did.  Was it worth the risk?  You bet!  Three weeks in Europe.  Fortunately,  7 days was on a cruise and Celebrity did a great job.  Italy was so celiac-savvy and I did my research and found places recommended by other celiacs in Spain, France and Poland.  If not, we bought cold food at the market and had a picnic.   I am home.  Will I eat out?  Probably not.  I have a busy Fall ahead of me (High School....football, marching band, volunteer positions, house projects, and work).  I can not afford to be sick.   Ah, I will eat out this Thanksgiving break.  My favorite restaurant is 100% gluten free in Tucson, AZ.   Maybe I will discover another gluten-free restaurant closer to home! 
    • I do est out occasionally - but not indiscriminately.  I am careful to choose places that under stand gluten free.  And places that the food is naturally gluten-free, helps, too.  Celiacs can't just eat something that should be gluten-free and hope it is.  We have to use some common sense and ask questions.  
    • You are right that the next step is an endoscopy, which still is the "gold standard" in diagnosing celiac disease.   However, for various reasons the endoscopy is not done because financial contraints  or long wait times (up to a year!), or too ill to proceed.   You have two positives.  You only need one positive to move forward.    The TTg tests  do not need to be positive for a diagnosis (which requires a positive on an antibodies test which you had and an endoscopy).  My TTg tests were negative and I only had a positive on the DGP IGA, yet biopsies revealed a Marsh Stage IIIB (moderate to severe damage. http://www.cureceliacdisease.org/screening/ Unless your PCP is a celiac expert (unlikely), I would insist on a GI consult.   Please find one who is celiac-savvy.   keep eating gluten daily until all testing is complete (biopsies done).  You never know if lab results are going to get lost.  Besides any celiac testing requires the patient to be on a gluten diet.  In the meantime, keep on researching.  Only YOU can be your best health advocate!  
    • I'm having some issues, that I didn't really even know I was having until the blood work showed them. Retracing my steps, I eat very strictly gluten free at home. I eat too much dairy (which is not only a problem for many celiacs, it is also not an anti-inflammatory). The husband and I have eaten out a lot over the last three years of my diagnosis. I guess I have not been overly cautious as I should have been, which I'm guessing could be my problems (although I am seeing the GI doctor tomorrow). So, I'm wondering if anyone here no longer eats out ever? Were you eating out and realized you were still doing yourself damage? 
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