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Who's Celiac Was Triggered By Gallbladder Removal?


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#1 shellbean

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Posted 05 May 2006 - 03:19 PM

Did any of you first notice you had a problem with celiac right after gallbladder removal? I had my gallbladder removed Sept of last year and that is when all my problems really began. I had a huge gallstone to get stuck in the duct and they had to remove the gallbladder. I didn't have a choice at that point. The doc told me I could die if they didn't do the surgery. Well, after the surgery I have been miserable. They ran every test imaginable and couldn't figure out what was wrong with me. I researched several things including celiac disease and decided to try the diet on my own. It was a huge improvement for the first month but once I started my new less stressful job the pains and brain fogs came back. My pains feel like someone is stabbing me right at the area where the laporoscopy was done (the gallbladder area). Is that about the same area celiac pains are located? It's always in the same spot and I wasn't sure if that is how celiac disease is or if I have something else wrong. I have been gluten free for about 2 months now (trying to but I'm afraid I get contamination alot because I'm still learning). I did go off the diet last night just to test myself to see if it was just coincidence that the diet first helped me or if I stopped hurting only because I quit my stressful job and I paid the price. I guess I need to stop second guessing my self and accept the fact that I can't eat gluten. I stupidly ate a fast food meal just to test myself and all day today the pain (in the gallbladder area) has been unreal, my vision has been very blurry, my whole body aches and itches like crazy (i think I have the DH possibly), and the brain fog is horrible. I can't hardly get words out of my mouth without it sounding all jumbled. I have been having diahrea and constipation alternately too. I just want opinions to see if this is "normal" celiac problems or if this is all just related to my gallbladder removal. I know abdominal surg can trigger celiac symptoms. If any of you noticed your celiac symptoms after gallbladder removal, how was it like for you the first year after surg?
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#2 ravenwoodglass

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Posted 05 May 2006 - 04:08 PM

Did any of you first notice you had a problem with celiac right after gallbladder removal? I had my gallbladder removed Sept of last year and that is when all my problems really began. I had a huge gallstone to get stuck in the duct and they had to remove the gallbladder. I didn't have a choice at that point. The doc told me I could die if they didn't do the surgery. Well, after the surgery I have been miserable. They ran every test imaginable and couldn't figure out what was wrong with me. I researched several things including celiac disease and decided to try the diet on my own. It was a huge improvement for the first month but once I started my new less stressful job the pains and brain fogs came back. My pains feel like someone is stabbing me right at the area where the laporoscopy was done (the gallbladder area). Is that about the same area celiac pains are located? It's always in the same spot and I wasn't sure if that is how celiac disease is or if I have something else wrong. I have been gluten free for about 2 months now (trying to but I'm afraid I get contamination alot because I'm still learning). I did go off the diet last night just to test myself to see if it was just coincidence that the diet first helped me or if I stopped hurting only because I quit my stressful job and I paid the price. I guess I need to stop second guessing my self and accept the fact that I can't eat gluten. I stupidly ate a fast food meal just to test myself and all day today the pain (in the gallbladder area) has been unreal, my vision has been very blurry, my whole body aches and itches like crazy (i think I have the DH possibly), and the brain fog is horrible. I can't hardly get words out of my mouth without it sounding all jumbled. I have been having diahrea and constipation alternately too. I just want opinions to see if this is "normal" celiac problems or if this is all just related to my gallbladder removal. I know abdominal surg can trigger celiac symptoms. If any of you noticed your celiac symptoms after gallbladder removal, how was it like for you the first year after surg?


Celiac definately seems to effect the gallbladder as well as many other systems. Are you following a low fat diet in addition to the celiac diet? Please do stop challenging with the gluten but also check with your GI to make sure you are not also needing attention because of the gall bladder removal. Some people will form stones in the bile duct even after the gallbladder is removed. also what is your new job? Any chance of contamination from that? For example when newly diagnosed I went to work as a sub teacher and poisoned myself repeatedly with chalk for the board.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#3 Guest_BERNESES_*

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Posted 05 May 2006 - 05:43 PM

I'm having my gall bladder out may 17th and have been posting about it and i KNOW that there is at least one, if not two, people on this board whose Celiac's was triggered by gall bladder removal. A bodily trauma will do it- birth, surgery, a virus. But get checked out and make sure you aren't still having problems from the surgery.
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#4 Guinevere

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Posted 05 May 2006 - 06:11 PM

I had my gallbladder out a year before i realized i had celiac. but, in retrospect i feel i have had celiac most of my life and ignored it feeling that i was just having digestive problems. i did find out 1 year after going off gluten that i became lactose intolerant. giving that up made things better. i also am a vegetarian and that made a huge difference in my overall health -stop to think... what do animals eat - grains?????

lastly, probiotics sound like they're in order here. find something enteric coated. also take b vitamins, especially b12.

these are just beginning advice, there's so much more but you sound like you're in a fragile place so go easy on yourself and it would probably be a good idea to drink alot of water to help flush out toxins.

don't let the pain go too long, especially if it feels like it is getting worse.

good luck and keep posting!!

guin
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#5 judy05

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Posted 05 May 2006 - 06:37 PM

Did any of you first notice you had a problem with celiac right after gallbladder removal? I had my gallbladder removed Sept of last year and that is when all my problems really began. I had a huge gallstone to get stuck in the duct and they had to remove the gallbladder. I didn't have a choice at that point. The doc told me I could die if they didn't do the surgery. Well, after the surgery I have been miserable. They ran every test imaginable and couldn't figure out what was wrong with me. I researched several things including celiac disease and decided to try the diet on my own. It was a huge improvement for the first month but once I started my new less stressful job the pains and brain fogs came back. My pains feel like someone is stabbing me right at the area where the laporoscopy was done (the gallbladder area). Is that about the same area celiac pains are located? It's always in the same spot and I wasn't sure if that is how celiac disease is or if I have something else wrong. I have been gluten free for about 2 months now (trying to but I'm afraid I get contamination alot because I'm still learning). I did go off the diet last night just to test myself to see if it was just coincidence that the diet first helped me or if I stopped hurting only because I quit my stressful job and I paid the price. I guess I need to stop second guessing my self and accept the fact that I can't eat gluten. I stupidly ate a fast food meal just to test myself and all day today the pain (in the gallbladder area) has been unreal, my vision has been very blurry, my whole body aches and itches like crazy (i think I have the DH possibly), and the brain fog is horrible. I can't hardly get words out of my mouth without it sounding all jumbled. I have been having diahrea and constipation alternately too. I just want opinions to see if this is "normal" celiac problems or if this is all just related to my gallbladder removal. I know abdominal surg can trigger celiac symptoms. If any of you noticed your celiac symptoms after gallbladder removal, how was it like for you the first year after surg?


My symptoms were triggered by thyroid surgery in 2000. I had pain in my gallbladder area and my dr said it had to come out. When I saw the surgeon he did a HIDA scan and it showed that the GB was normal. My GI doc encouraged me to go on a gluten-free diet which helped but the pain continued. He treated me with Fiber Pills
(Citracel) and said the pain was from "gas" in the intestine, which he said a lot of us have. The pain does eventually go away and the fiber is good for diarrhea and constipation. I have had a lot of the same problems as you and I didn't feel a whole lot better until I gave up Dairy. The only time the pain comes back is if I get contaminated. The pain starts on the right side and radiates around to the back. Please stay on the diet, take some fiber, give up dairy and you will soon be feeling much better. 2 months really isn't long enough for some of us who have been sick for a long time, I think it was 8-9 months for me, everyone is different. These are normal celiac symptoms, hang in there it does get better!
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The one resolution, which was in my mind long before it took the form of a resolution, is the key-note of my life. It is this,always to regard as mere impertinences of fate the handicaps which were placed on my life almost at the beginning. I resolved that they should not crush or dwarf my soul, but rather be made to blossom, like Aaron's rod, with flowers-Helen Keller



Judy- Gluten Intolerant

#6 shellbean

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Posted 05 May 2006 - 07:15 PM

Thanks so much for the advice. I am going to hang in with the diet. I know I don't have a choice now. :( I hate to say "I'm glad I'm not alone" because i don't wish this on ANY one but it is so nice to know I'm not imagining what I am feeling and that so many others are experiencing this and that I have a place to go to talk. My job is in accounting at a company that works out of an old building so there is no telling what I could be contaminating myself with (forgive the bad spelling--brain fog!! :lol: ) I have to still learn what else has gluten in it besides food too. Like shampoos etc. but I guess it just takes some time. My doc did run another ultrasound to see if more stones formed but they didn't find any. They did a cat scan to make sure nothing was damaged during the surgery and all looked okay. I have had a problem with blockages in the large intestine and they told me the bowel seems to get "hung up" right around the surgery sight. Maybe that is part of the pains. I will definitely get some fiber supplements (I KNOW I need that) and I'll try going low fat again (which I was on when I had the surgery). I will stop the dairy....oh so hard.....:(...and see what happens. Since BM trouble is involved those seem to be the best remedies. What are probiotics? I feel I have had celiac my whole life too because growing up, I had alot of trouble with the symptoms they say children with celiac have. I'm going to a seminar next weekend where a doc that specializes in celiac disease is giving at a local hospital so maybe I'll gain more insight there too. And one last question for the women.......when my time of the month hits, I am in so much agony, almost like getting gluttened. Does that happen to you too? What is a good remedy to help with that? Thanks again for the help. You all are the best!!!! :)
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#7 judy05

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Posted 05 May 2006 - 07:32 PM

Thanks so much for the advice. I am going to hang in with the diet. I know I don't have a choice now. :( I hate to say "I'm glad I'm not alone" because i don't wish this on ANY one but it is so nice to know I'm not imagining what I am feeling and that so many others are experiencing this and that I have a place to go to talk. My job is in accounting at a company that works out of an old building so there is no telling what I could be contaminating myself with (forgive the bad spelling--brain fog!! :lol: ) I have to still learn what else has gluten in it besides food too. Like shampoos etc. but I guess it just takes some time. My doc did run another ultrasound to see if more stones formed but they didn't find any. They did a cat scan to make sure nothing was damaged during the surgery and all looked okay. I have had a problem with blockages in the large intestine and they told me the bowel seems to get "hung up" right around the surgery sight. Maybe that is part of the pains. I will definitely get some fiber supplements (I KNOW I need that) and I'll try going low fat again (which I was on when I had the surgery). I will stop the dairy....oh so hard.....:(...and see what happens. Since BM trouble is involved those seem to be the best remedies. What are probiotics? I feel I have had celiac my whole life too because growing up, I had alot of trouble with the symptoms they say children with celiac have. I'm going to a seminar next weekend where a doc that specializes in celiac disease is giving at a local hospital so maybe I'll gain more insight there too. And one last question for the women.......when my time of the month hits, I am in so much agony, almost like getting gluttened. Does that happen to you too? What is a good remedy to help with that? Thanks again for the help. You all are the best!!!! :)


I'm past menopause so I can't relate to that. I do know that when I was pregnant I vomited every day for 9months. i only gained 14 pounds and my little girl weighed in at ten pounds, had a lot of heartburn too, it now makes sense to me. We're all still learning, I just learned tonight that drywall paste and dust are not gluten free and I have been making myself sick for the last two weeks. This is a great board, we're all in this together. Just remember Citracel fiber tabs are gluten-free but the powder isn't. Good luck!
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The one resolution, which was in my mind long before it took the form of a resolution, is the key-note of my life. It is this,always to regard as mere impertinences of fate the handicaps which were placed on my life almost at the beginning. I resolved that they should not crush or dwarf my soul, but rather be made to blossom, like Aaron's rod, with flowers-Helen Keller



Judy- Gluten Intolerant

#8 shellbean

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Posted 05 May 2006 - 07:45 PM

I just learned tonight that drywall paste and dust are not gluten free and I have been making myself sick for the last two weeks.


Oh boy. So things that have gluten like that can affect you even though it's not entering your body? I was thinking only stuff you ate or things like lotions or makeup that stays on your skin for a period of time, or things you mix with your saliva (like envelopes) were the only hazzards. And the learning continues......:blink: :) This is getting tougher by the minute!! :lol:
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#9 nogluten!

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Posted 05 May 2006 - 07:54 PM

My stomach seemed to get much more sensitive after having the gallbladder removed, but i also think i've always had celiac.
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Posted 06 May 2006 - 05:39 AM

For example when newly diagnosed I went to work as a sub teacher and poisoned myself repeatedly with chalk for the board.


Are you serious? I mean, I'm sure you are, but there'ss gluten in chalk???????? I teach two nights a week and we have a chalkboard.....and I always feel nauseous after class. That's crazy!

Shellbean- my symptoms definitely feel worse around the time I get my period. I don't know why that is, but I've heard other people say it too.

Tthe gluten free lif has a long learning curve, but it's well worth it. And the people on this board are so wonderful and knowledgeable, it helps so much to have other people in your position.
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#11 ravenwoodglass

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Posted 06 May 2006 - 05:53 AM

Are you serious? I mean, I'm sure you are, but there'ss gluten in chalk???????? I teach two nights a week and we have a chalkboard.....and I always feel nauseous after class. That's crazy!

Shellbean- my symptoms definitely feel worse around the time I get my period. I don't know why that is, but I've heard other people say it too.

Tthe gluten free lif has a long learning curve, but it's well worth it. And the people on this board are so wonderful and knowledgeable, it helps so much to have other people in your position.


The way I got around this was by using disposable nonpowdered gloves and having someone else wipe the chalkboard down. The worst classes for me were the ones where the kids would do sentences on the board then go back to their seats and copy them with chalk covered hands on to paper to hand in. There may be non-gluten chalk out there and you may want to grab a package or two and call the manufacuror until you find one thats safe and then carry it with you. And wash, wash wash your hands. They put this poison in so much and unfortunately I think as more of us give up gluten in food it will be put into more and more stuff that they don't have to tell us it is in. Oh and be sure to watch out for the white glue that we use so much also. It's no wonder out school age kids get so much CC,
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#12 TCA

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Posted 06 May 2006 - 06:01 AM

My grandmother passed last Sept, but I now think she had celiac. She had thyroid problems all her life and had it removed in the 1940's. My grandfather died in 84 and her health plummeted. She lost down to under 100 lbs, she had to have her gallbladder removed, she had D all the time and vomitting spells. She lived another 21 years, but was never really healthy again. I think the stress of losing my grandfather triggered the celiac.

Please get the pain checked out by a doctor. Celiac can cause pain, but yours sounds so centralized that it could be a problem from surgery and I'd hate for something to be missed. We all complain about doctors, but sometimes we need them!

Also - be very careful with the health and beauty supplies, especially hand lotion. If you're putting soemthing on your hands with gluten in it, then touching food, you might as well each a cheeseburger! My daughter got sooo sick from Curel lotion until we figured out what it was.
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If you're looking for info on how to get started on the gluten-free diet, check out this List for Newly Diagnosed.
Self - Pain free since going gluten-free 9/05 (suffered from unexplained joint pain entire life), asthma improving, allergies improving, mysterious rash disappeared (probably DH)
Husband - Type 1 diabetic, Negative bloodwork
Son - Elevated IgA, Very high IgG, 2 negative biopsies - HLA DQ2 and DQ8 positive, Amazing dietary response since 1/06
Daughter - Congenital Heart Defect (2 surgeries), Reflux, choking issues, eczema, egg allergy - HLA DQ2 positive, Good dietary response (via me because of nursing) since 9/05
"All things happen for good for those who love God..." Romans 8:28

#13 jaten

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Posted 06 May 2006 - 06:24 AM

I've been reading this thread with interest, although it doesn't fit my circumstances. I was diagnosed with Celiac in Dec '05. I just had my gallbladder removed earlier this week. I didn't have stones, my gallbladder just didn't function at all...0%. In my case, the Celiac seems to have triggered the lack of gallbladder function since the damaged small intestine didn't release the enzyme to trigger my gallbladder.
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#14 JenAnderson

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Posted 06 May 2006 - 06:35 AM

I haven't had my gallbladder removed, but after my daughter was born, the Dr thought that I might have gallstones. They did an endoscopy and said that the lining of my stomach was inflamed. (they didn't go any farther than the stomach <_< . After my son was born, my celiac blew up. I was really really sick for 8 months before the Dr told me to try going gluten free.
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Jennifer Anderson

Celiac Disease-since 2003
Asperger's Disorder/OCD
Daughter-11- Asperger's Disorder
Son-7-Celiac Disease
Husband-Normal
Now allergic to eggs, dairy, peanuts, corn, rice, tomatoes, potatoes, and soy (11/2009)

#15 mommida

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Posted 06 May 2006 - 08:50 AM

From articles I have read there is a 30% higher risk for Celiacs to have gall bladder problems. Some articles say that early on in Celiac that the gall bladder does not function properly (sorry I forgot the percentage of malfunction).
I have been looking into this because I think I am actually having full blown gall bladder attacks. When you have the pain, have you touched your skin over the pain? Does it feel colder than the rest of your skin? I really don't want to have any surgery, because most people seem to say they still have problems.
L.
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