Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Swollen Extremities And Joint Pain?
0

9 posts in this topic

I woke up Monday morning with hands and feet seriously swollen and serious joint pain. I can't get my rings off and it is causing concern. The swelling has not gone done - if anything it has gotten a little worse. My wrists, shoulders, and knees are killing me. I can't close my hands due to the swelling.

Is this a Celiac reaction to gluten?? Does anyone else get this? How do I make the swelling go down? It is painful and Tylenol is not helping much.

I ate nothing questionable so I am at a loss as to what is going on.

Any help or advice would be appreciated.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I have never heard of a reaction like that due to Celiac.

You need to call your doctor immediately!!!!!

0

Share this post


Link to post
Share on other sites

You do need to call your doctor, but I want to tell you that I had the same problem before I stopped eating gluten, especially after I was particularly active. It even happened if I used my hands a lot, like if I did an intensive art project or decorated a cake or something like that--my hands and wrists would balloon up and be very painful. I had to stop wearing my wedding ring. Please call your doctor, though, because it could be related to your blood pressure or some other problem and could be more serious than a gluten reaction. Let us know!

0

Share this post


Link to post
Share on other sites

See your doctor as soon as possible. That kind of swelling is sometimes indicative of serious problems. The sooner you know what caused it, the sooner you can do something about it.

0

Share this post


Link to post
Share on other sites

CALL THE DOCTOR!! I agrree with everyone else. There are some serious conditions that have that symptom(Lupus, another autoimmune disease), and you really shouldn't be waiting around to see what happens. Get to the doctor as soon as you can. Swelling is your body's way of letting you know something is going on and you need to listen to your body.

-Jessica :rolleyes:

0

Share this post


Link to post
Share on other sites




Thanks for the quick replies. After spending so many years jumping to go to a doctor looking for an answer to my problems, Celiacs, I am now very hesitant to go to a doctor - feeling like I have become a hypochondriac :P

I did make it to the doctor yetserday. It seems we have Fifths Disease running around my area and the doctor thinks that is what I have. It is typically a disease you get during childhood, but very bad if you are pregnant. We checked and I am not pregnant. In theory, this should go away by the end of the week. If it does not, I will be getting all kinds of blood tests to find out what else it could be. You've mentioned a few good options like Lupus that I would prefer not to have thought about, but better to know the possibilities.

Thanks!

0

Share this post


Link to post
Share on other sites

Have you had your thyroid Checked?

You Should

0

Share this post


Link to post
Share on other sites

I too have swollen hands. Diagnosed Oct. '03 with celiac disease and have been on a gluten free diet. So far have had negative results from rheumatoid arthritis test. Also have gained a lot of weight but am not retaining water.

0

Share this post


Link to post
Share on other sites

Dempscd,

Well I am over the Fifth's Disease thing. My daughter and every child and parent that we were in contact with got sick with Fifth's. Nasty little disease since you are contageous when you don't know you are sick.

My hands still swell up in the mornings, but nothing like when I was sick. And my hands still ache at times. I'm tempted to go back to the doctor to have him run a few tests, just to be sure. Turning on and off faucets nearly kills me, so I leave leaking fauctes all over the house - not good. This is all new since I got sick with Fifth's which makes me wonder if something else is going on too.

A lot of people seem to think the swelling could be signs of some other diseases, so you might want to get checked out further. Ticks are a serious problem around my area, one of the little buggers just gave me a painful bite the other day. So I think that is one of the things I will need checked.

Good luck and post if you find an answer to the swelling.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,697
    • Total Posts
      921,781
  • Topics

  • Posts

    • It only takes a minute to make a difference. Celiac disease has been overshadowed by the gluten-free diet fad. Getting diagnosed and staying healthy is no piece of cake – those of us who have celiac disease struggle to stay healthy. We need better. We need to be understood. We need a cure. View the full article
    • If you are one of the approximately 2-3 million Americans with celiac disease, ZyGluten™ may be taken before you eat out at a restaurant or a friend\'s house, as it may help break down any gluten cross-contamination that you might encounter. View the full article
    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,702
    • Most Online
      3,093

    Newest Member
    Gigi Fagon
    Joined