New Parent With Sick Child
Posted 08 June 2004 - 09:09 AM
birth.. he has Gluten and Lactose intolerence or allergy not sure which and a doctor says he has IBS.
but told me to give him only meat and veggies. nothing else but only he is saying it is that he has IBS. He stays tired and has joint pain often and loose bowels 24/7.
He is also very moody. I've seen him for the last 3 years get worse. wanting to vomit with most of his bowel movements. I live in West Virginia I've been to DC and Charlottsville Va. for treatment and not getting the help I think he needs..He doesn't understand all about this and I tell him he wouldn't be sick if he stayed on this diet. If some one has a doctor that is close or has any advise please fill me in.
Posted 08 June 2004 - 04:12 PM
My suggestion is to keep pushing your doc to test for celiac disease. The thing that sucks is that you have to keep your son on a diet that includes gluten, in order to get accurate results. However, in the meantime you can help him to feel a little better by trying a few things. My son's doc actually suggested fatty foods. I know it sounds a little crazy, but it worked wonders. Foods like mashed potatoes with a dollop of butter, or buttered veggies, mac and cheese, something like that. The extra fat is more difficult for the stomach to digest, so the system slows down and becomes less painful and it can help the body absorb some other nutrients from the foods and help him form less loose stools.
This doesn't work for everyone, but at this point anything is worth a try right? I know the first time I suggested this to someone I thought I was going to be told I was crazy, but several parents on this site said their docs had suggest the same thing and that it does work well.
Good luck and I hope this is helpful to you.
Son has been gluten-free since December 2001
Posted 17 June 2004 - 08:41 AM
My son has adapted extreemely well. He wont cheat at all - and will Even Wash his hands if he touches something that has gluten in it.....There are lots of regular products that are gluten free - finding out what those are - are a challenge, but makes it worth the while in The end.
Son - age 11 Sean, dx 4/03
daughter - age 4.5 Hope dx 7/04
In memory of husband Bob - undiagnosed celiac disease that lead to lymphoma - March 5, 2003
Posted 17 June 2004 - 10:54 AM
I promise you there are kids in your son's school who have food allergies and can't eat the birthday cupcakes either--my daughter has a stash of Reese's PB cups for celebrations at school. Some of the other kids even buy them especially for her! And yesterday I had to stop one of her friends from eating all of her gluten-free pizza at a pool party! (He said it tasted like chicken--you know how 11 year old boys are!) My point is, life will normalize, or at least become a gluten-free normal. I was fairly freaked out at first, too. Both of my children were in the hospital at the same time for their biopsies--side-by-side hospital rooms for back-to-back biopsies--unbelievably stressful! I haven't always been this calm! But you will be okay. Keep in touch here. I know it 's saved me from going off the deep end.
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users