Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Anyone Celiac And No One Else?
0

7 posts in this topic

Hey, I just thought of something...

Is anyone else here a Celiac with NO ONE else in their family ever having been???

We are looking back on both sides of the family and NEVER any digestive problems or cancers of ANY kind on either side. Wierd!

Isn't Celiac genetic/hereditary??? How do you get it otherwise?

donna

0

Share this post


Link to post
Share on other sites


Ads by Google:

Same here Donna. However, from what I have read, Celiac Disease RECOGNITION is on the rise. Its possible that people in your family have had some of the symptoms, but never sought help from it.

Also the incidence is 1/20 for brother/sister/parents, but 1/40 for aunt/uncle/grandparent. Because of this, you may be the only one (like me) who "got lucky"!

Eileen

0

Share this post


Link to post
Share on other sites

No one else in my family is aware of having celiac. Since there are SO MANY silent celiacs, it could be that someone has it, but doesn't know it, or that it's a recent "addition" to your family's genetic makeup.

0

Share this post


Link to post
Share on other sites

My husband Ric who is half Greek, and became gluten intolerant in his 50s. No one in is family that we know of has Celiac. We think it may have been triggered by over use of antibiotics. He was seeing a dermatologist for many years who kept switching his meds. After getting no results from doctors, I found this web site and he tried a gluten-free diet with great results. This acne also cleared up! Thank you Celiac.com and all it's supportive members.

Evelyn

0

Share this post


Link to post
Share on other sites




My 19 year old sister just started the diet and she says she never knew how sick she felt uuntil after starting the diet and feeeling SO much better. You could always have people in your family tested or just have them start the diet and see what happens if you are really curious.

0

Share this post


Link to post
Share on other sites

My parents and brother have been tested -- and don't have it. Nobody in my family is known to have it or has symptoms like it except for me. However, my grandmother on my mother's side...who came from Switzerland has osteoporosis (a long-term symptom) and has always been REALLY thin...thinner than I ever was. I think she has it, but don't know for sure. Anyway, it's not worth getting tested when you're already 80 years old...you can't turn around osteoporosis, scoliosis, thinness, and all the other things once they've progressed so far....techinically nobody in my family has it, but both grandparents on my mother's side are European (Swiss and Swedish), so it makes sense I would have it. I personally believe that my grandmother has it, but based upon solid testing, nobody in my family has it.

No one else in my family is aware of having celiac. Since there are SO MANY silent celiacs, it could be that someone has it, but doesn't know it, or that it's a recent "addition" to your family's genetic makeup.

I concur with Tarnalberry...my parents don't have it, my brother doesn't have it, and the only one who possibly has celiac disease in my family is my grandmother. Perhaps an older relative had SILENT celiac disease...after all, back in the day they didn't test for it...or even know about it (did they?).

-celiac3270

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,670
    • Total Posts
      921,685
  • Topics

  • Posts

    • So my heart has been doing weird stuff post gluten challenge. Skips beats, arrhythmias, chest pain. It was getting a bit better then worse again in July.   My cardiologist has done 2 stress tests, halter monitor, and we have not caught anything other then harmless pvc's. But I KNOW this is not right for my heart and it has gone wacky out of sync and we never catch it on a damn test. All of my doctor's were connected out of a larger practice, so the GI, cardio, neuro, and primary care can all see the mountains of tests I had and think I am a nutcase the moment I walk through the door. I will admit that I informed the old GI about the DGP test being positive and I sent over some info on the test as they were basically using TTG and old gliadin tests, and they were receptive. But for the most part, I do not trust doctors. I was once told I was in false labor when I actually had 13 gallstones and an infection in my bile duct. I have more horror stories, as we all do. So, my protein and RBC were low in the hospital but all up to good levels now so it is not a vitamin deficiency. My heart has already skipped multiple beats today. The other day, it again went out of rhythm for just 20 seconds or so. I am not drinking coffee or alcohol because of the acidity, so it is not that. I was glutened on August 24th and probably once in July. Does anyone have weird heart issues that vanish eventually? If so, how long does it take? I am an over-thinker, which has its pros and cons. I know we are at an increased risk for CAD which is not really my concern right now. My gut is inflamed, my thyroid is inflamed and my adrenal gland was effected by all of this. I sort of wonder if an exposure to gluten causes some kind of myocarditis, an inflammation that would not be picked up a sonogram per se, and may eventually vanish with a gluten free diet. Has anyone ever had experience with myocarditis? I did a lot of reading on Roemheld syndrome, gastro-cardio syndrome, which is basically a set of cardio symptoms resulting from your gut. Praying it is just that! I just feel like now that I have a diagnosis, I need to rebuild a team of doctors that I feel have my back. This is a sucky disease that can have a lot of ill effects and I need a team I feel is intelligent, supportive and willing to research. I already have a new GI and a great Endocrinologist. I am seriously contemplating a new cardio and neuro as they both talk to me like I am a 12 year-old with "hysterical girl syndrome".
    • I was not officially diagnosed with narcolepsy when I was younger and still haven't.  However, even in my junior high and high school years and on through my college years staying awake was always a struggle for me.  maybe the gluten was a factor back in junior high and just didn't realize it.    There were times in church and other times I would just BAM fall asleep without warning.  Frustrating and somewhat embarrassing to say the least.  Now that I have been off gluten for close to a year now, the "feeling" of needing to sleep is becoming less and less.  Still have periods of sudden sleepiness, but not as often any more.
    • when they first came out, I read the ingredients on them, and they don't seem to contain malt.  But the company, at that time specifically posted on the website that they  are not gluten-free.  So I don't drink them.
    • Rum is naturally gluten free, but in cases where it is flavored, spiced, etc. you have to be careful where they might add a malt in the natural flavorings. I been using Admiral Nelsons coconut rums in cooking for finishing off stir frys, and adding a bit of flavor to caramelized ingredients for a few years now, I have never had issues with those. As for the Morgan, I would be careful with the spiced version as they might use a malt based ingredient in it. I did a bit of research and like you found no conclusive evidence to if it contains gluten or not. The plain rum from them is listed on many and been tested by several groups and has come up gluten free. On a side note if your a celiac or have intestinal damage I would avoid alcohol or drink in moderation. I personally only use it in cooking.
    • Hi, It seems they advertise it as a malt beverage.  Malt is made from barley normally, so it would not be gluten-free.  Unless they specify the malt is corn malt, it is always assumed to be barley malt per FDA labeling regs.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,669
    • Most Online
      3,093

    Newest Member
    Cjplmon
    Joined