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The 27th Annual Csa Conference
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The 27th Annual CSA Conference - October 21-24, 2004

27th Annual CSA Conference

http://www.csaceliacs.org/conference.php

Conference Objectives:

This conference will enable attendees to:

Appreciate patient-centered education and promote self-management of celiac disease and dermatitis herpetiformis

Develop and enhance life-long skills in areas like coping with change, stress-relief, personal goal-setting, etc.

Gain new knowledge of the increase of incidence, and the complexities of symptoms, diagnoses, research and treatment of celiac disease

Understand the role of human and plant genetics, the environment, and exposure to triggering proteins as they relate to celiac disease and dermatitis herpetiformis.

Designed For:

Individuals and their families who are interested in health and diet issues relating to celiac disease. Includes opportunities for networking and offers CEU's for physicians and other health-care professionals.

Registration Fees:

To be announced.

Exhibits:

Product vendors will display and sell products, provide samples, and accept orders during posted hours. CSA Central will offer CSA materials and special conference promotions as well.

To Receive a Brochure:

To be placed on the mailing list for a CSA conference brochure, you are invited to send an e-mail request to celiacs@csaceliacs.org; a faxed request to 402-558-1347; a personal request toll free to 877-CSA-4CSA; or a written request to CSA Office, P.O. Box 31700, Omaha, NE 68131-0700

Regional Conferences

The national CSA organization assists with regional and state conferences. National educational conferences are scheduled generally in the fall-usually in October. State and regional conferences are encouraged to be held in the spring.

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I was just curious if anyone was planning on attending the CSA conference. It is in Oklahoma City, OK this year. It is not terribly far from me, and I am thinking about going.

I was just kind of wanting to know if anyone else was going, and also for those who have been to one before maybe you can share some information as to what goes on there. The website doesn't have much information on it yet. I was curious if it was worth the time to go.

-Jessica :rolleyes:

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I would love to go. Where is it? How much is it? I would love some details. :D

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It is in Oklahoma City, OK. Registrations fees haven't been announced yet. All that the information that is available is in my above posts, it came from the CSA Website. Hope that helps.

-Jessica :rolleyes:

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    • Hi Beachgrl, It won't hurt anything to go gluten-free now, except the possibility of getting a diagnosis of celiac disease.  When i went gluten-free, it seemed like the initial changes were spread over about 6 weeks.  I had gut spasms for that time.  And other changes, all for the better.  Initial recovery from celiac damage can take up to 18 months, so it can be a slow thing.  Some people get better much faster of course, because we are all individuals and not identical. Going gluten-free for celiac disease is a lifetime commitment though, and some people have a hard time doing that without a diagnosis.  Even minor amounts of gluten can cause us to react, so it is best to eat a very simple diet of whole foods at first.  Avoid dairy and processed foods.  I hope it works out for you.  I know some people with Crohns disease eat gluten-free and find it helps them.  Gluten is a tough thing to digest for all people, but most don't have an immune reaction to it like celiacs do.  
    • Honestly, I would not trust the school to provide a gluten-free meal except for fruit, salads, veggies, etc. I sub in a school cafeteria and I swear everything is breaded or on bread. Utensils are shared. They're very clean but unless you have a very knowledgeable person in there, I just wouldn't chance it. I found a slim Jim type snack that says gluten-free on it. If you want to give me your email or FB account, I can send you some very valuable info on 504's though. They carry the student right through college. I kept a copy of what a friend wrote about her daughter being in a sorority and just how the 504 helped immensely. But, I would definitely get one and still be prepared to pack a lunch. All our meals are delivered frozen and we just hear them up. If your school actually fixes food, that's different. 
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    • Hi Nobody, Welcome to the forum!  I noticed you said you have been avoiding wheat products.  That's good, but are you avoiding rye and barley also?  Wheat, rye, and barley are the 3 grains that cause reactions in celiac patients.  About 10% also react to oats. If you haven't had the full celiac antibodies test panel, it might be worthwhile getting that done now.  The ttg is just a basic test and is generally followed up by an endoscopy or the full celiac panel. I wouldn't worry a lot about getting cancer.  That doesn't happen often. It is possible some of the other grains you might be eating are contaminated.  A group did a test on several off the shelf products a few years ago that would not normally be thought of as having gluten and found some actually did have low levels of gluten.  Things like corn meal for example.    
    • I can not help you with the the 504 plan, but I do know that I would do it.  My daughter is 15 and so far has tested negative for celiac disease, but in the event she does test positive, she will need a 504 plan to help keep her safe.  I am sure other parents will chime in.  This topic has come up repeatedly.  Until then, try a search with the forum.  Lots of people have posted with their comments and experiences.   As far as lunch is concerned, my kid has not purchased a school lunch since the 1st grade.  She says they are gross.  (Poor me!).  But, I would not trust the school to provide a gluten-free lunch.  Sure, they are required by law, but let's face it, who is working in the kitchens, ordering, etc?  I am on a University campus and have called out food service for not following gluten-free safe practices!    I would pack a lunch, at least until her health has stabilized.  The 504 plan is great for extra trips to the bathroom and hand washing.  It provides some protection in the classroom.   Keep advocating for her Mom!  You are doing a great job!  
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