Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Burning Tongue, Mouth Sores
0

10 posts in this topic

This is going to sound so crazy...... About 2 months ago I developed sores on my tongue and the roof of my mouth. Soon after my tongue began to burn (as if scalded with hot water, but all the time). I also have a red strip down the middle of my tongue and the tip of my tongue is all red. My internal med Dr. had no idea what was wrong so she told me to gargle with Maalox and referred me to a dermatologist. In the meantime, I decided to try the gluten free diet just for a few days (my mom has celiac, so I thought I'd give it a whirl). My mouth felt better. I began eating gluten again and three days later I went to the dermatologist.

The dermatologist was fascinated and said he rarely sees this condition. He called it Median Rhomboid Glossitis. The normal "bumps" on your tongue get red and inflamed. He drew blood, tested for Anemia, B12 deficiency, Lupus and Celiac (only because I told him that my Mom had it and I had noticed some improvement). A week went by, still on the gluten and the pain worsened. It got so bad that I couldnt even talk without immense pain.

The Dr.said all the tests were negative. He prescribed some special mouthwash to numb my mouth and told me to wait it out. I started the self-imposed gluten free diet again 3 days ago and my mouth is improving again. I also have more energy. I will give it awhile to see if the tongue clears up (it still looks funny with the red stripe, but doesnt burn and sores are gone).

Is this crazy or what? Anyone else have this? Would being off gluten for 4 days prior to the blood test cause a negative? I just have a gut feeling about this. The Dr's will never believe me.

0

Share this post


Link to post
Share on other sites


Ads by Google:
This is going to sound so crazy...... About 2 months ago I developed sores on my tongue and the roof of my mouth. Soon after my tongue began to burn (as if scalded with hot water, but all the time). I also have a red strip down the middle of my tongue and the tip of my tongue is all red. My internal med Dr. had no idea what was wrong so she told me to gargle with Maalox and referred me to a dermatologist. In the meantime, I decided to try the gluten free diet just for a few days (my mom has celiac, so I thought I'd give it a whirl). My mouth felt better. I began eating gluten again and three days later I went to the dermatologist.

The dermatologist was fascinated and said he rarely sees this condition. He called it Median Rhomboid Glossitis. The normal "bumps" on your tongue get red and inflamed. He drew blood, tested for Anemia, B12 deficiency, Lupus and Celiac (only because I told him that my Mom had it and I had noticed some improvement). A week went by, still on the gluten and the pain worsened. It got so bad that I couldnt even talk without immense pain.

The Dr.said all the tests were negative. He prescribed some special mouthwash to numb my mouth and told me to wait it out. I started the self-imposed gluten free diet again 3 days ago and my mouth is improving again. I also have more energy. I will give it awhile to see if the tongue clears up (it still looks funny with the red stripe, but doesnt burn and sores are gone).

Is this crazy or what? Anyone else have this? Would being off gluten for 4 days prior to the blood test cause a negative? I just have a gut feeling about this. The Dr's will never believe me.

It's not crazy! I am not just sensitive to gluten, I have many food intolerances/allergies and a common symptom I have is sores in the mouth and tongue. For me I find a big difference when I stay away from all processed foods, dairy, sugar, gluten, corn, etc. I don't seem to get the sores in my mouth when I am eating a fresh all whole foods diet free of chemicals, preservatives, and other food additives.

0

Share this post


Link to post
Share on other sites

Wow--that's interesting. I used to get a burning feeling in my mouth--like the whole inside of my mouth was on fire. That has not happened once since I went gluten-free. I do believe it is connected.

0

Share this post


Link to post
Share on other sites

My son had something called a geometric tongue before going gluten free. It just looked like sores all over his tongue. He was too young to complain about it, though. It's clear now that he's gluten-free. That is a symptom I have read about in various places.

0

Share this post


Link to post
Share on other sites

I have the same thing. I have had mouth sores for 10 years and used to go down inside me throat while in my mouth and now they are only on my tongue. I suffered with them for four years then about 6 years ago my asthma/Allergy specialist presribed Paddock 10mg Troche. They helped them. You suck on three tablets a day for a couple of days then they disappear. You must remember though after you have these attacks to change your toothbrush so that it doesn't come back. If you are wondering what they are, they are to treat fungus. Now it probly isn't a fungus but a reaction from the celiac disease. People who have this disease get mouth sores. These pill are a miracle worker and the best part is they have no taste. I have these tablets with me all the time just in case I start to get them. I now only get them every 2-3 months and then I use this treatment and they go away. I have been recently diagnosed with Celiac and my great uncle (who died from not treating his celiac) used this treatment, too. I hope this works because when I was got them I couldn't go to school for 2 weeks at a time. They are a life saver. Make sure they are the tablets because they can come in powder form and the tablets work better. Also they won't have any side effects because they are not absorbed in the blood stream.

Once again the medication is Paddock 10mg---use 3 times daily till it is all cleared up...also when you have these attacks stay away from salty foods, fruit, juice. Altoids and Chloraseptic spray help with itchness and burny feeling. Altoids help with the treatment from the tablets and Choraspetic spray helps keep the tongue numb.

Get some fast...,

Ashley

undefined.

0

Share this post


Link to post
Share on other sites




It's not crazy! I am not just sensitive to gluten, I have many food intolerances/allergies and a common symptom I have is sores in the mouth and tongue. For me I find a big difference when I stay away from all processed foods, dairy, sugar, gluten, corn, etc. I don't seem to get the sores in my mouth when I am eating a fresh all whole foods diet free of chemicals, preservatives, and other food additives.

It can give you a false negative if you went gluten free before you blood tests!

0

Share this post


Link to post
Share on other sites

OMG! I though this was my own post when I read this!!!!! I had this exact same thing in febuary, soars, followed by a burning tounge, making it hard for me to even talk! I went to the helath center at school and they just told me type II herpes: canker soars...these were not canker soars!!! It would come and go and eventually a friend recommended to try going gluten-free, it worked! I havent been diagnosed though...and I still have occasional redness on my tounge and litte dots that look like soars, but nothing like what i had before.....

0

Share this post


Link to post
Share on other sites

I believe there is absolutely a connection!! I've had the tongue, mouth & throat sores for most of my 38 years of life. A couple of times diagnosed as canker sores or a herpes virus, then fishered tongue, & geographic tongue. I have Crohn's Disease, & after lots of specialists & GI Dr's etc it was told to me that it makes perfect sense....as we now know that celiacs and IBD often go hand in hand, and that they affect your intestinal tract-which starts in the mouth! It also goes to show, if that's what your tongue looks like, imagine what the rest of your body is going thru as a response to what we are consuming!

0

Share this post


Link to post
Share on other sites

OMG this is a wake up for me too, I have had terrible mouth sores for years now, they come and go but they are all over my mouth along my gums, top of mouth under tongue and on tongue.

My doctor keeps giving me antibiotics to swish and spit and it never works I keep telling him, and toothpaste and mouthwash can agrivate it.

I am also B12 insufficient and anemic. My doctor treats every symptom i have as a seperate and exclusive thing but I think he needs to put these things together to come up with a comprehensive diagnosis.

0

Share this post


Link to post
Share on other sites

I first had geographic tongue around age 10. Doc told my mom (who is 100% celiac and in denial)some people just have it and it wasn't a big deal. 25 years later... no more geographic tongue, mouth sores, or burning tongue!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,916
    • Total Posts
      919,623
  • Topics

  • Posts

    • Depression / anxiety issues
      Hi all.  Still feeling the same way this past week. I'm thinking of dropping dairy starting from today, I don't know if I have a problem with it or not, but I drink 2 coffees a day with milk. I'm just constantly tired all the time, and getting trough the day is pretty hard, I noticed a couple of weeks ago that my sleep was improving but the last couple of days I have been waking up at least 3 times during the night, then when I get up in the morning it feels like I have been hit by a bus, like I haven't slept at all. I keep waking up during the night needing to drink water as I feel dehydrated, I don't know why as I drink 2-3 litres of water everyday 
    • No actual diagnosis/genetic results.
      About 30% of people have a gene for Celiac.  They don't all have it because only about 1% of the population has Celiac.   It is quite possible she has something else that is causing her trouble.  Sometimes eliminating gluten helps that problem, like FODMAPS.   If it were me, I would keep her strictly gluten-free for a year or so.  See if anything develops.  Then I would try her back on small doses of gluten.  If it is something like FODMAPS, she may be able to tolerate some gluten after a while.  I would do that for 3 months .  If she is having issues I would then get her tested with a full Celiac panel and, if positive, an endoscopy.  Even if the panel is negative, if she is having issues, I would pursue more testing, ends, colonoscopy, etc. For schools to take a gluten-free or any special diet seriously, you will need a doctors note.  I am assuming US might be different in other countries.
    • No actual diagnosis/genetic results.
      Hi- new here but have been reading a lot of posts (Long post, last two paragraphs have actual question)  my four year old daughter probably has celiac but I don't know if I'll ever get a definitive diagnosis at this point.    Backstory: growth Delays, GI issues and a few other symptoms as a baby/young toddler. Did not have blood work done but went straight to biopsy which was negative. Always still had suspicions that gluten bothered her.    Started developing more symptoms around 3, by 3.5 they were pretty bad and her dr recommend eliminating gluten. (Blood in stool, rashes, low grade fever, joint pain, stomach pain and bloating, behavior issues) Everything cleared up quickly! Yay. Still had occasional gluten because I was under the impression it was "just an intolerance" and her symptoms kept up/got worse with each exposure. (Developed vomitting as most recent symptom) So I wanted to know if it was celiac. Can't do blood or biopsy since she's been mostly off gluten for months by this time.  I really was hoping to have a concrete answer and diagnosis, So we did genetic testing recently. It came back positive for half of DQ2 (beta subunit). Her dr isn't giving her official diagnosis but says "she is at a fairly low risk" but with her symptoms doesn't that mean she has developed it??!   Either way he says to keep her off gluten but I don't understand why he won't diagnose? Right now I am just telling people (besides family) that she has it because it's too hard to explain it all but do you think an actual diagnosis would be beneficial in any way? Should I push the issue with her dr? 
    • Awaiting Biopsy Results
      Thanks for the advice and encouragement, Gemini. I appreciate having additional insight into my situation. Celiac being the cause of my health issues makes more and more sense the more I learn about it, and eliminating gluten sounds more and more like the right choice for me.
    • Did Jennifer Esposito Leave Town Amid $43 Million Gluten-Free Bakery Lawsuit?
      The topic of this forum is "Celiac Disease - Publications & Publicity," so certainly it fits in here, and in fact, this topic is designed specifically to handle any media coverage that relates to celiac disease and/or the gluten-free diet.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,961
    • Most Online
      1,763

    Newest Member
    foodabc
    Joined