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Burning Tongue, Mouth Sores
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This is going to sound so crazy...... About 2 months ago I developed sores on my tongue and the roof of my mouth. Soon after my tongue began to burn (as if scalded with hot water, but all the time). I also have a red strip down the middle of my tongue and the tip of my tongue is all red. My internal med Dr. had no idea what was wrong so she told me to gargle with Maalox and referred me to a dermatologist. In the meantime, I decided to try the gluten free diet just for a few days (my mom has celiac, so I thought I'd give it a whirl). My mouth felt better. I began eating gluten again and three days later I went to the dermatologist.

The dermatologist was fascinated and said he rarely sees this condition. He called it Median Rhomboid Glossitis. The normal "bumps" on your tongue get red and inflamed. He drew blood, tested for Anemia, B12 deficiency, Lupus and Celiac (only because I told him that my Mom had it and I had noticed some improvement). A week went by, still on the gluten and the pain worsened. It got so bad that I couldnt even talk without immense pain.

The Dr.said all the tests were negative. He prescribed some special mouthwash to numb my mouth and told me to wait it out. I started the self-imposed gluten free diet again 3 days ago and my mouth is improving again. I also have more energy. I will give it awhile to see if the tongue clears up (it still looks funny with the red stripe, but doesnt burn and sores are gone).

Is this crazy or what? Anyone else have this? Would being off gluten for 4 days prior to the blood test cause a negative? I just have a gut feeling about this. The Dr's will never believe me.

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This is going to sound so crazy...... About 2 months ago I developed sores on my tongue and the roof of my mouth. Soon after my tongue began to burn (as if scalded with hot water, but all the time). I also have a red strip down the middle of my tongue and the tip of my tongue is all red. My internal med Dr. had no idea what was wrong so she told me to gargle with Maalox and referred me to a dermatologist. In the meantime, I decided to try the gluten free diet just for a few days (my mom has celiac, so I thought I'd give it a whirl). My mouth felt better. I began eating gluten again and three days later I went to the dermatologist.

The dermatologist was fascinated and said he rarely sees this condition. He called it Median Rhomboid Glossitis. The normal "bumps" on your tongue get red and inflamed. He drew blood, tested for Anemia, B12 deficiency, Lupus and Celiac (only because I told him that my Mom had it and I had noticed some improvement). A week went by, still on the gluten and the pain worsened. It got so bad that I couldnt even talk without immense pain.

The Dr.said all the tests were negative. He prescribed some special mouthwash to numb my mouth and told me to wait it out. I started the self-imposed gluten free diet again 3 days ago and my mouth is improving again. I also have more energy. I will give it awhile to see if the tongue clears up (it still looks funny with the red stripe, but doesnt burn and sores are gone).

Is this crazy or what? Anyone else have this? Would being off gluten for 4 days prior to the blood test cause a negative? I just have a gut feeling about this. The Dr's will never believe me.

It's not crazy! I am not just sensitive to gluten, I have many food intolerances/allergies and a common symptom I have is sores in the mouth and tongue. For me I find a big difference when I stay away from all processed foods, dairy, sugar, gluten, corn, etc. I don't seem to get the sores in my mouth when I am eating a fresh all whole foods diet free of chemicals, preservatives, and other food additives.

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Wow--that's interesting. I used to get a burning feeling in my mouth--like the whole inside of my mouth was on fire. That has not happened once since I went gluten-free. I do believe it is connected.

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My son had something called a geometric tongue before going gluten free. It just looked like sores all over his tongue. He was too young to complain about it, though. It's clear now that he's gluten-free. That is a symptom I have read about in various places.

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I have the same thing. I have had mouth sores for 10 years and used to go down inside me throat while in my mouth and now they are only on my tongue. I suffered with them for four years then about 6 years ago my asthma/Allergy specialist presribed Paddock 10mg Troche. They helped them. You suck on three tablets a day for a couple of days then they disappear. You must remember though after you have these attacks to change your toothbrush so that it doesn't come back. If you are wondering what they are, they are to treat fungus. Now it probly isn't a fungus but a reaction from the celiac disease. People who have this disease get mouth sores. These pill are a miracle worker and the best part is they have no taste. I have these tablets with me all the time just in case I start to get them. I now only get them every 2-3 months and then I use this treatment and they go away. I have been recently diagnosed with Celiac and my great uncle (who died from not treating his celiac) used this treatment, too. I hope this works because when I was got them I couldn't go to school for 2 weeks at a time. They are a life saver. Make sure they are the tablets because they can come in powder form and the tablets work better. Also they won't have any side effects because they are not absorbed in the blood stream.

Once again the medication is Paddock 10mg---use 3 times daily till it is all cleared up...also when you have these attacks stay away from salty foods, fruit, juice. Altoids and Chloraseptic spray help with itchness and burny feeling. Altoids help with the treatment from the tablets and Choraspetic spray helps keep the tongue numb.

Get some fast...,

Ashley

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It's not crazy! I am not just sensitive to gluten, I have many food intolerances/allergies and a common symptom I have is sores in the mouth and tongue. For me I find a big difference when I stay away from all processed foods, dairy, sugar, gluten, corn, etc. I don't seem to get the sores in my mouth when I am eating a fresh all whole foods diet free of chemicals, preservatives, and other food additives.

It can give you a false negative if you went gluten free before you blood tests!

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OMG! I though this was my own post when I read this!!!!! I had this exact same thing in febuary, soars, followed by a burning tounge, making it hard for me to even talk! I went to the helath center at school and they just told me type II herpes: canker soars...these were not canker soars!!! It would come and go and eventually a friend recommended to try going gluten-free, it worked! I havent been diagnosed though...and I still have occasional redness on my tounge and litte dots that look like soars, but nothing like what i had before.....

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I believe there is absolutely a connection!! I've had the tongue, mouth & throat sores for most of my 38 years of life. A couple of times diagnosed as canker sores or a herpes virus, then fishered tongue, & geographic tongue. I have Crohn's Disease, & after lots of specialists & GI Dr's etc it was told to me that it makes perfect sense....as we now know that celiacs and IBD often go hand in hand, and that they affect your intestinal tract-which starts in the mouth! It also goes to show, if that's what your tongue looks like, imagine what the rest of your body is going thru as a response to what we are consuming!

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OMG this is a wake up for me too, I have had terrible mouth sores for years now, they come and go but they are all over my mouth along my gums, top of mouth under tongue and on tongue.

My doctor keeps giving me antibiotics to swish and spit and it never works I keep telling him, and toothpaste and mouthwash can agrivate it.

I am also B12 insufficient and anemic. My doctor treats every symptom i have as a seperate and exclusive thing but I think he needs to put these things together to come up with a comprehensive diagnosis.

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I first had geographic tongue around age 10. Doc told my mom (who is 100% celiac and in denial)some people just have it and it wasn't a big deal. 25 years later... no more geographic tongue, mouth sores, or burning tongue!

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    • Welcome!   You were smart to think about cross contamination.  Although it is great that there are so many gluten-free options out there, in the beginning it is best to try a whole foods diet, until your son feels a bit better.  The learning curve for the gluten-free diet is steep.  It is better for you to get everything down before letting others feed him.   When I was diagnosed, my hubby had been gluten free for 12 years.  I thought I knew the drill and converted right over to those gluten-free goodies I baked him.  Turned out, like many of us, I had some food inolerances not related to gluten but as a result of gut damage.  So, additives like Xantham gum made me think I was getting glutened, but I was not.  So, again, try to stick to naturally gluten free foods that are less processed for a while.  When you do venture out, I use "find me gluten free" and read the reviews from celiacs (not a person who thinks gluten-free is a way to lose weight! )   Here are some great tips from out Newbie 101 thread:  
    • I have the same problem. Was told it was psoriasis but no treatments worked even injections. I was daignosed celiac in may, and noticed a year ago the palm of my hand would itch intensely then get small blisters. I believe they are both dh. Have been gluten-free since diagnosis but still have issues with both areas. Thankful digestive issues cleared but would love to know how long before they clear up? I hope we both get feed back and best wishes to you!
    • Yes it most certainly could be a false negative, and I would bet you a dozen donuts that it is (gluten free, of course.   )  At the very least you can be sure it is related to gluten.  These gluten rashes take forever to clear up.  I don't know about you, but whenever I start to doubt my gluten intolerance, I just look at my skin, and the old blood stains on my sheets, and I am reassured that it's not all in my head, and I need to avoid gluten as if it were a bucket of battery acid.
    • Hello, My fiance and I are going to Singapore for our honeymoon next year and I was wondering if anyone knew any cafes/restaurants etc that have gluten-free dishes? We previously went two years ago and enjoyed ourselves so much that we definitely wanted to go back our our honeymoon. Catch is I got diagnosed as being gluten intolerant a few months ago, negative for Coeliac though. If I eat gluten I have bad nausea, bloating, diarrhea etc. Not pretty for a honeymoon :-) I am more than happy to eat fruit at breakfast and make do with steamed rice at dinner etc but if anyone has any ideas on anywhere I can safely eat that would be much appreciated. I don't care how much it costs! Also is it possible for me to bring packaged gluten-free food into Singapore from Australia? I am not sure on the rules. Thank you!!
    • Went in and talked to the manager of our pm and asked about the gluten free pizza, and he told me he can't guarantee its 100% gluten free because of the flour in the air from the other crusts being made.  I value the honesty.   The other employee also mentioned changing gloves.   I was thinking wow great, until I walked out and got to thinking about cross contamination from everyone grabbing the toppings out of the same bins and spreading the sauce with the same utensils.    My son was just diagnosed this week so we are new to the whole lifestyle.   So any help or info is greatly appreciated.    Thanks  
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