Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Soy Intolerance
0

57 posts in this topic

I *think* I may be soy intolerant. My most obvious symptom is a depression that comes out of absolutely nowhere. I get ANGRY or I despair for no reason. I want to hurt myself or inanimate objects.

I used to feel like this every night--go to bed depressed, then wake up fine in the morning. After going gluten-free, that stopped, except for three major times. those three times I could trace it back to soy oil, soy lecithin, and cross-contamination from a facility that also uses soy.

The soy oil by far gave me the worse reaction. Immediate stomachache, smelly, painful gas, reflux, headache/depression/fatigue that lasted several days. The soy lecithin and soy CC only gave me neurological symptoms of depression, headache, and fatigue, although it's possible I can blame some gas on it too. And possibly acid reflux.

0

Share this post


Link to post
Share on other sites


Ads by Google:

How can you know if its the gluten or /and the soy? Most of the time they are both in a product. I am suspecting soy also. What product can I try thats just one or the other?

I react to soy much the same as to gluten. And in fact, soy can destroy the villi as well.

0

Share this post


Link to post
Share on other sites

You might try some tofu, or some edamame beans.

0

Share this post


Link to post
Share on other sites

I recently confirmed my intolerance to soy. My heart rate slowed, fatigue, shortness of breath, headaches, dizziness. Its been 8 days since I ingested soy. It is pretty dibilitating. I have to eat a small snack or meal every couple of hours to supplement my energy. I am also loading up on b-vits, c-vit, & calcium to replenish what I can what my body isn't absorbing. I am slowly losing my patients with myself over my recovery time. Life was good and active then it came to a halt with this soy reaction. no work & no school.

Anyone have similar experiences? Tips? Or how long it took you to recover?

0

Share this post


Link to post
Share on other sites

I recently confirmed my intolerance to soy. My heart rate slowed, fatigue, shortness of breath, headaches, dizziness. Its been 8 days since I ingested soy. It is pretty dibilitating. I have to eat a small snack or meal every couple of hours to supplement my energy. I am also loading up on b-vits, c-vit, & calcium to replenish what I can what my body isn't absorbing. I am slowly losing my patients with myself over my recovery time. Life was good and active then it came to a halt with this soy reaction. no work & no school.

Anyone have similar experiences? Tips? Or how long it took you to recover?

A reaction can last days, weeks, or longer, depending on how much you consumed, and your state of health in general.

It's pretty miserable, but seems to just need to run it's course?

You might try adding coconut oil to your diet? It feeds your brain just like glucose and has anti-inflamatory/healing properties. A dose of at least 2-3T per day has helped me. I add it to my morning coffee, use it like I would butter on cooked veggies, and use it to cook with. I really like the organic extra virgin Nutivia brand, which I buy online.

Look it up. You might be surprised how beneficial it is in your diet.

Some people find that taking a long soaking bath in epsom salts helps pull toxins from the body too.

Good luck. I hope this passes soon for you.

0

Share this post


Link to post
Share on other sites




Does anyone else find that they react to soy flour much worse than tofu etc? Soy flour (in biscuits/cakes etc) has a really quick reaction with me - I get some similar reactions to my coeliac ones - bloating/gas etc, but I think things like tofu/gluten-free tamari are OK...

I've seen that soy has a high risk of cross contamination in the fields as it is grown in rotation with wheat. If you're bothered by soy flour, maybe that could be the problem? I wish I had those at home test strips...

0

Share this post


Link to post
Share on other sites

For those of you that are also reactive to soy, what do your reactions look like?

I'm starting to suspect that I'm reacting even stronger to soy than I am to gluten, and DANG does soy hide in a lot of places!

Does anyone have a soy-free chocolate recommendation? I can handle giving up wheat pasta, but CHOCOLATE?? <_<

For me soy brings almost immediate gastro reactions. MISERY! Mostly very unpleasant gas and stomach cramping. I am more reactive to soy than gluten. Its really difficult to find gluten-free goodies that don't contain soy. I mainly stick to whole, natural foods that I prepare myself. For gluten-free foods my favorite is udi's. Great breads, cookies, and other goodies.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,144
    • Total Posts
      919,568
  • Topics

  • Posts

    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
    • Thanks cyclinglady & manasota! I appreciate it. I came to give an update...... I'm still 99% itch free. I get a "place" like a bug bite once in a while that itches and I just use the prescription steroid cream on it & that takes care of the itch. My rash is healing up rapidly everywhere. Almost clear skin now! Yaaaaayyyyyyyyyy! Now for a rundown of the "treatment". For 20 days I took a 100mg doxycycline twice a day. Then we upped it to two 100mg doxy twice per day. I took those for 5 days & made rapid progress and the itching stopped. The doxy was getting my tummy though. It was getting really rough despite my eating yogurt. So on day 6 and day 7, I took two 100mg doxy in the am but in the pm I just took 1 of them. On day 7, I was nauseous for hours on end. So since I was still doing well without itching and the rash was healing everywhere, I decided to cut back some more. On days 8, 9, & 10 I have only taken two 100mg doxy in the am and none at night. I'm doing good and my tummy is much, much happier! No more nausea!  I'll update as things go along.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,176
    • Most Online
      1,763

    Newest Member
    Red Butt in hemet
    Joined