Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Feeling Really Down
0

3 posts in this topic

Hello everyone. This is my first post to this board. I have been Gluten Free for about 2 years now. My diet is going very well, although it is a bit difficult to handle at times for me because I am also an insulin dependent diabetic for the last 25 years. All the rice/potato/corn is very high in glycemic content and can cause large spikes in blood sugar levels. I have become healthy enough in the last year to control my blood sugar levels pretty well through going to the gym, walking, golfing, etc, but life has become so routine! I'm only 29 years old and I live like a hermit. My co-workers don't understand my situation, and my social outlets have become non-existant. I am trying to date and it is so hard to explain to potential dates all of my health problems. Eating out is just not really a possibility it seems. I am allergic to so many things besides gluten (fish/seafood, nuts, seeds of all kinds, onions, spices, coconut, raspberries, etc.)

I would be interested in hearing if others out there have multiple allergies (I bet there are a bunch) and how you go about eating out, travelling, whatever else. I'm too young to be living like a hermit! Later, -Mike

0

Share this post


Link to post
Share on other sites


Ads by Google:

OUCH reading this hurts my eyes...can you change the font size it's very very small!!

0

Share this post


Link to post
Share on other sites

you may want to investigate other grains. buckwheat is low GI, and is supposed to be particularly good for diabetics. millet, quinoa, teff, and other kinds of rice (brown and wild) both have much lower GI's than white rice. of course, having enough protein and fat with the starches will lower the glycemic load of the dish as well. other complex carbs, like beans, could work if you focus on the particular beans that have more protein and fiber - like black beans and kidney beans. lentils also are fairly low glycemic. and beans with avocado make a good filling dish.

it's GREAT that you've gotten off the meds, and can control it through lifestyle choices. I'm sure that - with some practice and a lot of effort - you'll find that you CAN go out and do things. you may need to let go of your coworkers and friends _understanding_ your dietary restrictions, but as long as they can take "no, I can't eat that" for an answer, they don't particularly have to _understand_. perhaps your coworkers would go golfing with you? golf can be a great social activity.

I'm sure there are other social outlets that you can find that could help, though it may be a bit like starting from scratch, which I know is tough, and takes a lot of courage. what about art classes or music classes? community college classes in a favorite subject? an outdoor group that goes for walks/hikes? a new hobby? just some thoughts...

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,144
    • Total Posts
      919,570
  • Topics

  • Posts

    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,177
    • Most Online
      1,763

    Newest Member
    lolobaggins
    Joined