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Feeling Really Down
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Hello everyone. This is my first post to this board. I have been Gluten Free for about 2 years now. My diet is going very well, although it is a bit difficult to handle at times for me because I am also an insulin dependent diabetic for the last 25 years. All the rice/potato/corn is very high in glycemic content and can cause large spikes in blood sugar levels. I have become healthy enough in the last year to control my blood sugar levels pretty well through going to the gym, walking, golfing, etc, but life has become so routine! I'm only 29 years old and I live like a hermit. My co-workers don't understand my situation, and my social outlets have become non-existant. I am trying to date and it is so hard to explain to potential dates all of my health problems. Eating out is just not really a possibility it seems. I am allergic to so many things besides gluten (fish/seafood, nuts, seeds of all kinds, onions, spices, coconut, raspberries, etc.)

I would be interested in hearing if others out there have multiple allergies (I bet there are a bunch) and how you go about eating out, travelling, whatever else. I'm too young to be living like a hermit! Later, -Mike

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you may want to investigate other grains. buckwheat is low GI, and is supposed to be particularly good for diabetics. millet, quinoa, teff, and other kinds of rice (brown and wild) both have much lower GI's than white rice. of course, having enough protein and fat with the starches will lower the glycemic load of the dish as well. other complex carbs, like beans, could work if you focus on the particular beans that have more protein and fiber - like black beans and kidney beans. lentils also are fairly low glycemic. and beans with avocado make a good filling dish.

it's GREAT that you've gotten off the meds, and can control it through lifestyle choices. I'm sure that - with some practice and a lot of effort - you'll find that you CAN go out and do things. you may need to let go of your coworkers and friends _understanding_ your dietary restrictions, but as long as they can take "no, I can't eat that" for an answer, they don't particularly have to _understand_. perhaps your coworkers would go golfing with you? golf can be a great social activity.

I'm sure there are other social outlets that you can find that could help, though it may be a bit like starting from scratch, which I know is tough, and takes a lot of courage. what about art classes or music classes? community college classes in a favorite subject? an outdoor group that goes for walks/hikes? a new hobby? just some thoughts...

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    • Hi Sarah, I agree with cyclinglady, your doctor doesn't seem to understand celiac disease.   Maybe you can check on Google for a local celiac support group.  Ask them if they know of any good celiac doctors in your area. The usual testing process for celiac is 12 weeks of eating gluten and then a blood test followed by an endoscopy later.  You are right, if you weren't eating gluten before the test it was not reliable. Welcome to the forum!  
    • Hi lolobaggins, Yes, it is not unusual to have symptoms that come and go after going gluten-free.  Edema (swelling) can also be a symptom of an allergic reaction.  Fatigue is not fun but remember your body is trying to heal a major organ, your gut.  So some rest might be a good idea.  The immune system response is going to keep going for several weeks to several months.  Each little bit of gluten kicks the immune response off again and extends the healing time.  So it's helpful to be very careful with your diet. Meats, vegetable, and nuts are good foods to eat at the beginning.  And whole foods rather than processed foods.  Dairy is often a problem until the villi are healed.  After a few weeks if things are going well you can try to add one new food a week and see how things go.  But take it slow and easy.  The fewer foods/ingredients we are eating the easier it is to identify problem foods. Welcome to the forum!
    • Welcome to the club that you never wanted to join!  (I plagiarized that from someone else here but can't recall who so I can't give credit to them.) Anyway, there is a steep learning curve to being gluten free.  It takes time to learn to read labels.  It takes time to heal (like months to YEARS).  Symptoms can wax or wane.  You just have to keep moving forward.  Give yourself time to heal and do not worry about the gym right now.  It will come back later, I promise (from a gal who cycles, swims, and runs).   Read our Newbie 101 section pinned at the top of the "Coping" section.  It contains valuable tips about cross contamination and hidden sources of gluten.  Read, read, read, the internet from reliable sources (not crazy bloggers).   You will feel better soon.  
    • Ha!    That happens to me all the time!!!!!  It drives me crazy!
    • "Accidentally marked them soy free".  Are you kidding?  That's fraud!  Consumer Reports just issued a huge report this month on supplements.   Yes, everyone thinks they are all "natural" and therefore safe.  Doctors and nurses recommend them all the time, but they can do a lot of damage.  Anyone can start making them in their bathroom and there's literally no regulation.   Geez, it is safer to buy food products (no gluten ingredients listed) from companies like Kraft and ConAgra because they are regulated more!  http://www.consumerreports.org/cro/magazine/2016/09/index.htm What about the probiotics?  Columbia University tested about 20 of them and found that over half had gluten in them.....enough to make celiacs  remain sick. https://www.sciencedaily.com/releases/2015/05/150515083232.htm Think twice about taking supplements.  Make sure you really medically need supplements.  I prefer certified gluten-free if I need to take them and I take nothing right now because all my labs are okay!  You have been on the gluten-free bandwagon for many years (member here for years).  Your doctors should be looking at other things that might be making you sick still.  Something is wrong!   That's my two cents!    
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