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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Are There Any Other Celiacs That Are Overweight?
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96 posts in this topic

Wow! I am so glad to hear about others that are in my boat.. I am 5'8" and currently weigh 285 pounds! :( I just started the gluten-free diet a couple of weeks ago... I am still trying figuring out what I can and can't eat... I am just hope that now that I am on gluten-free that I might lose some weight... I just have to be careful, I seem to be now eating everything in sight...I don't know why but i seem to be hungry all the time!

I am going to the grocery store today and I am going to get some fruits and veggies for me to snack on instead of chips (I have found Lays Stax...and they are addictive!)

I am also thinking of cutting out a lot of sweets... I think I am going to try to do only what I can cook for now... especially for dinner... like meat and veggies and a small amount of starch...either rice or mashed potatoes..but do like a little bit of the starch and then most of the meal the meat and veggies... like 1/2 meat, 1/2 veggies and a little pasta or rice or mashed potatoes....

any advice?

Thanks!!

--Maya

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Cut out the junk food, sugar and processed foods, even if they are gluten-free. Eat foods with protiens and natural fats plus green vegetables. These foods digest more slowly and you won't feel as hungry. Natural, whole foods are the best. It will take awhile for your body to adjust to eating less. It is really surprising how little food your body really needs. I used to eat constantly but now only eat a tiny fraction of what I used to eat and never feel hungry. I weighed well over 250lbs. I probably weighed closer to 260 or 265 but 250 was the last time I weighed myself when I was overweight. I now weigh 160.

All the dieting in the world is useless if you do not EXERCISE! I used to get exhausted just walking ten feet. Now I can walk for hours and a five mile bike ride is just a warm-up for me. I started lifting weights about four months ago and now do it every other day.

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HI everyone,

Just a quick note to tell you I have dropped 7 pounds in the past 15 days. I gave up gluten-free processed foods (bread, grains, beans) and have been eating a PALEO (caveman) diet. I feel so much better and I quit reacting to whatever was in the processed foods. I am not itching anymore and my stomach has calmed down.

I also bought a diet and exercise tracking program for my PALM, which is absolutely fabulous ! I use it to write down all foods and drinks every day. It keeps track of calories, carbs, protein, fat, saturated fat, and fiber. I also enter exercise and activities to track calories burned.

all the best - have a good week everyone -

kathleen

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I too am one of the overweight celiacs, my sister was one of the ones who got so very thin. When going gluten free, she gained and I lost. I lost 60# in the beginning and felt so much better. Gluten free flours are so much heavier and more calories. I eat lots of rice and I guess I need to cut back on that too. I have gained some of the weight back and I wont let that happen to me again. My sweetie tells me I am not fat, that I am fluffy, but I dont want to be fluffy. The most important thing is I am not sick all the time anymore. I have some bad days, but they are good compared to 4 years ago. Deb

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I too am one of the overweight celiacs, my sister was one of the ones who got so very thin. When going gluten free, she gained and I lost. I lost 60# in the beginning and felt so much better. Gluten free flours are so much heavier and more calories. I eat lots of rice and I guess I need to cut back on that too. I have gained some of the weight back and I wont let that happen to me again. My sweetie tells me I am not fat, that I am fluffy, but I dont want to be fluffy. The most important thing is I am not sick all the time anymore. I have some bad days, but they are good compared to 4 years ago. Deb

I lost 30 lbs before I was diagnosed with Celiac, and could actually comfortably fit into some of my clothes. In the past 6 months I have gained back the 30 pounds (plus 10). I know that a lot of my problem is depression.

I have a real problem with portion control. It would be nice to be able to freeze leftovers for extra meals, but I will eat a 4 serving meal by myself. I have found a lot of gluten free snacks. Instead of treating myself to one a few times a week, I will treat myself to many on a daily basis. I have managed to stick to a gluten-free diet, but I feed myself to make myself feel better.

I don't know how I am going to make it throug my first gluten-free Christmas season. People bring treats into the office almost on a daily basis. I am going to feel so deprived.

I think it is time to seek out some professional help. :(

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I dont know about professional help hun--you just need to start concentrating on the good things about knowing that you are gluten intolerant. I feel it is so much better to know what is wrong with me then to be going through life thinking its all in my head. When people at work bring things in, I just smile and say, no thanks! Patients bring us donuts all the time, I just tell the others which one to eat for me. You have to quit thinking that food is all there is to life, cause it isnt. You cant concentrate on what has been taken away from you, you must concentrate on what was given back to you. I have a life now--I can make plans--I dont live in the bathroom anymore! You just have to set your mind to the fact that we cant go back. Deb

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Karen don't give up, you will get through this. :D

so many of us understand....

sonja

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Hi, I have just been told that i am a celiac but I'm not convinced as i have been overweight all my life and I do not have the skin issue i have been reading about associated with celiac. While i have battled stomach issues all my life but not to the extent that i have been reading about. The Dr. did a biopsy and said i had it...but i am reluctant to make such a huge change in my eating habits until i am sure...is it possible to have this even though i am overweight and dont get violently sick everytime i eat gluten???

please advise

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Hi, I have just been told that i am a celiac but I'm not convinced as i have been overweight all my life and I do not have the skin issue i have been reading about associated with celiac. While i have battled stomach issues all my life but not to the extent that i have been reading about. The Dr. did a biopsy and said i had it...but i am reluctant to make such a huge change in my eating habits until i am sure...is it possible to have this even though i am overweight and dont get violently sick everytime i eat gluten???

please advise

If your biopsy was positive, you have it. Sorry.

I have it and I had no symptoms at all.

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Yes, it can be overwhelming at first to learn how to ship and prepare gluten-free meals. A couple of things that make it easier:

find a nutritionist who knows about Celiac Disease. This will be the best money you have ever spent (and maybe it's free, if covered by your health insurance). He/she can help you plan out meal ideas, appropriate foods, etc. I am not sure where you live, but I can recommend someone in NY City if you are close to here.

find a support group in your area. there are many such groups across the country. Meeting with other celiac disease patients can be very helpful.

I, too, have been slightly overweight for most of my adult life (10-20 pounds). After going on the gluten-free diet, i dropped about 16 pounds. I have gained back 4 of those now, but am hoping to lose another 10-15 pounds total. I am part of an EMAIL weight-loss group for celiacs. If you want more info, let me know.

I know what it's like to be overwhelmed by all the things in your life. Just remember to make and take the time for yourself first - especially while you are pregnant. This is very important! Even if it means ordering groceries online and having them delivered or hiring someone to do your housecelaning, DO IT ! (Our local super store delivers for a $6.00 charge. It's a pretty good deal, considering the amount of time I would normally spend in the store. I haven't used their service yet, but am hitting that point now. I did hire housekeepers, however, and that has been the SMARTEST thing I have ever done!)

all the best,

Kathleen

Kathleen.. I would also like to have th information about the EMAIL weight-loss group for celiacs.. MtLady
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I have to agree, positive biopsy, means you are positively celiac!

Come here for support, this place is GREAT!

Monica

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Hi, I have just been told that i am a celiac but I'm not convinced as i have been overweight all my life and I do not have the skin issue i have been reading about associated with celiac. While i have battled stomach issues all my life but not to the extent that i have been reading about. The Dr. did a biopsy and said i had it...but i am reluctant to make such a huge change in my eating habits until i am sure...is it possible to have this even though i am overweight and dont get violently sick everytime i eat gluten???

please advise

I didn't realize I had symptoms until I stopped eating gluten. So many "minor" things went away that I realized I had actually been feeling horrible for several years but things had changed so slowly that I had just adapted to everything. I had issues with dermagraphism (kinda like contact hives) and my boss suggested I might be allergic to wheat. Since I'd also recently had other allergic type reactions (throat swelling, face swelling) I went to an allergist and asked about food allergies. He insisted that if I had a problem with any food I would know it. I started doing some internet research on wheat allergies, found celiac.com and decided that I didn't really fit the profile. But then I started reading these postings. So many people have posted about so many things that were similar to experiences I had been having that I stopped eating gluten.

Within 3 days I knew that I would never willingly eat gluten again. I also am overweight and only have minor digestive issues, but the changes in my mood, my ability to think, headaches... all returned to how I used to feel 5 years ago. I consider the changes in my allergy levels, pain levels, dermagraphism, tummy problems etc. all just bonus.

And since I haven't said it yet, I want to thank everyone that posts here. Especially people that rant. For some reason those rants seem to have a lot of unexpected information and evoke a lot of "hey, me too"s.

Thank you

Jeanna

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Hi, I have just been told that i am a celiac but I'm not convinced as i have been overweight all my life and I do not have the skin issue i have been reading about associated with celiac. While i have battled stomach issues all my life but not to the extent that i have been reading about. The Dr. did a biopsy and said i had it...but i am reluctant to make such a huge change in my eating habits until i am sure...is it possible to have this even though i am overweight and dont get violently sick everytime i eat gluten???

please advise

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I went gluten free last December. My appetite normalized. Then about 17 weeks ago, I reduced my intake to start a weight loss diet. I couldn't get weight off before no matter how little I ate, and I was always starved. Now, I've lost 34 lbs, and it has been relatively easy. I'm not uncomfortably hungry.

I eat a lot of vegetables, salads, choose low fat meats such as fish or chicken, also include some fresh fruits. I have yogurt, popcorn, and even corn chips on occasion. I splurge on peppermints on occasion or coconut macaroons.

I suspected a gluten intolerance for a long time, but just couldn't make myself try the gluten free diet. I didn't want to accept it. Now, I wish I had done it years ago. I wouldn't have lost my health over it and have so far to go to try to get it back.

I read that there was an e-mail group for celiacs trying to lose weight. Anyone know what it is. I'd love to have that kind of support.

Since you tested positive, there really isn't any way of getting around it. However, there is hope since they may be coming up with a pill that will help us eventually. Personally, I'll never go back to eating wheat, even if this pill does come out. Well, o.k., I'll take it once every few months so I could have pizza. I miss pizza. <_<

Dx with fibromyalgia 10 years ago (Probably really due to the gluten, most of my pain is gone now)

Dx Hypothyroid abpit 4 years ago

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Hi. I'm new to the forum and have been reading many postings about folks suffering with diarrhea and having difficulty gaining weight. My case is actually the opposite. I have spent many years trying to maintain my weight. I have had terrible constipation that I've been hospitalized for, this was usually followed by weeks of diarrhea. :( I have recently been diagnosed with Celiacs and am slowly trying to learn about the disease and eat gluten free. :blink: Are there any of you out there who are overweight and constipated instead of underweight w/diarrhea?

I am very concerned about how to change my lifestyle to fit in gluten-free eating. It seems like a full time job. I live in a rural area, commute 1 hour each way to work at a fast paced law firm, eat lunch on the run, go to graduate school at night, am a newlywed of 6 months and am 3 months pregnant. :blink: How do you all find the time to shop for these special foods online or at health food stores, make bread from scratch, eat gluten-free lunches, dinners, etc.??? Obviously I want to be completely gluten-free as soon as possibly to help grown a healthy, happy baby in my belly. Help....

Jules

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I went gluten free last December. My appetite normalized. Then about 17 weeks ago, I reduced my intake to start a weight loss diet. I couldn't get weight off before no matter how little I ate, and I was always starved. Now, I've lost 34 lbs, and it has been relatively easy. I'm not uncomfortably hungry.

Congrats!! :-)

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I've been suffering from constant pain, bloating, feet swelling, heartburn, constipation/diarrea, high blood sugar, high triglycerides, anemia, headaches, dizzyness, black outs, vomiting, constant nausea, swollen tongue, itchy rashes and hives, liver and spleen pain and swelling. I've had so many tests done where they said nothing was wrong with me ~ and all docs have tried to put me on antidepressants and a weight loss plan. All weight loss plans have failed ~ I even gain when I'm not really eating at all.

I was JUST diagnosed last week with Celiacs with a "leaky gut" (?) ... anyway I'm 40 and while I'm sad I can't have cake and cookies anymore... I'm actually thrilled to know what is actually going on! From my research, all these symptoms could disappear if I avoid gluten ~ wow!! It seems so easy. Then I start reading labels, and this diet might be tougher than I thought. BUT, I'm going to do it because I'm so curious what feeling good feels like :)

I'm also happy to find this thread and others who are like me ~ I'm loving reading all this information and support!!

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Welcome, hope that you're on your way to feeling great soon! I use sparkpeople for weight loss and LOVE it! My ID is nahum1_7 on there. I've lost almost 20 pounds since going gluten free June 2, though I also had to give up dairy and soy too. But as long as I don't get glutaminated I 'm feeling so much better! ((((hugs))))) have a great blessed day!

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I have the same problem. I have always been overweight regardless of how much I eat. wheat makes me very constipated. I almost never get diarea. May be once every 5 or 6 years if that.

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I'm overweight and suffer from constipation as well. I also have rheumatoid arthritis and I'm stunned to find out there is such a strong link between celiac and RA! I'm so glad to have "refound" this group after being away from the boards for so long.

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I was diagnosed May 21st. The only way I have lost weight was that I went on the paleo diet 2.5 weeks ago. I lost 5 lbs., but cheated this weekend because I went to a wedding and had some wine. I have been overweight since I was 12 with a few exceptions. Weight Watchers does work. I chose Paleo beacause I would have to eliminate dairy and soy, neither of which I have a problem with. This week I'm having trouble with motivation.

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