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:rolleyes:<_<:lol: Hi All, Just signed up about a few minutes ago. I'm 52, have 4 children and 10 grand children. I was diagnosed in 93, so have had time to perfect the diet. The food is not that bad and it sure beats getting sick every time you eat something that you shouldn't. I had the opposit problem, I was an overweight celiac. My doctor refused to test me for a time because he said I didn't fit the profile. Lately I have been following the low carb diet and have been doing really well, have a few more pounds to lose and of course the tortillas and such is off limits, but all in all it's not bad. Just thought I would introduce myself, and am looking forward to getting to know everyone. I find making most of my own food from scratch helps, it's a lttle time consuming but it is well worth the effort. Judy
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Hi Judy, welcome to the boards. I was diagnosed in Feb "04, so I am still getting used to the diet. I have also found that cooking from scratch helps me. I don't even mind that it takes time, as I am a 39 year-old stay-at-home mom of two teens. They help out quite a bit, so I have more time than other women to enjoy my kitchen. I have been following the Weight Watcher's plan, trying to take off excess pounds. It works quite well for me! I am glad you found a plan that works for you!

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Hi Judy,

Welcome to the board! I am a 32 year old mother of three (ages 5, 8 & 9) and all four of us are gluten intolerant. I was diagnosed last November, my children last March. I am also an overweight Celiac and was refused testing for almost two years because of it. I have lost 8 lbs since starting the gluten-free diet. I am also dairy free. I have not started any weight loss diets, since it still feels like I am already having to deprive myself of foods I like. After I get totally grounded in the gluten-free lifestyle, then I will try harder to loose the excess weight. Until then I am just accepting myself the way I am. I am just so glad to know that I am not the hypochondriac that some doctors made me feel like I was. There is a real reason why I felt sick since I was 4 years old!! I wish I had found out sooner, but at least I know now, and my children won't have to go through what I did.

How are your children and grandchildren? Are any of them showing symptoms, or have been diagnosed? Just curious to see how the genetic thing affected your family.

God bless,

Mariann

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Judy,

Hello and welcome! Just a question, since you are also a Celiac that put on weight, how did your weight change once going gluten-free? Or did it? If so, how long did it take?

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Hello, Judy! You should have lots of useful information for us! I'm Kristina and I am rather young and have been on the diet for just over a year now, yay!

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Welcome to Judy. I am currently waiting for test results from enterolabs to comfirm that I have this. My health history goes back to birth and I was 55 last Thursday. I have a diagnosis of chronic fatigue/fibromyalgia/sinus/allergy/low thyroid and IBS. All of those may have been from undiagnosed celiac disease. Don't know about the rest of my family but I suspect it may be present in some of them (brothers, maybe my kids) but it's up to them to get tested. My father had chron's but now I wonder if he had this and we didn't know it. I've been gluten free for almost a month at my doctors suggestion (I never would have thought of this)with some mistakes I'm sure. I lost 40 lbs since going on Armour thyroid last August (the only benefit I saw) but lost another 5 lbs since going gluten-free. Not bad as long as I don't keep losing. I'm down to an ideal weight now. Hugs, Carol B

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Welcome Judy!

I'm new to the gluten-free lifestyle, only 3 weeks! I feel so much better when I make no mistakes, but I'm sure I still will for awhile! I am 56, 2 daughters, and 4 grandkids. I suspect one brother to be Celiac, also, as he has the same type of digestive disorders as I. The oldest brother died of colon cancer, and I wonder if he was an asymptomatic Celiac, causing the cancer. We'll never know. And one daughter may be, as she has Lupus. But, I suppose until she has signs, she won't get tested.

I probably have has celiac disease for over 20 years, as have been diagnosed with Colitis and then IBS. My first blood test 8 years ago was neg. so I didn't have a biopsy until last month. Another bloot test was neg. again since then! But, I do feel better when gluten-free, so sure I'm on the right track! I also have scars on my knees and elbows, indicating DH, but never had them biopsied.

Join us when you can! I'm sure you'll be a big help here!

Nita

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Hi Everyone, Thanks t everyone who answered my post. I can understand how over whelming it can be when you are finally diagnosed. On one hand it is so wonderful to finally define that you are not a hypochondriac that something is definitely wrong, but on the other hand there is an entire food group that is off limits. I myself went thru a stage where I was angry so I'd end up sabotaging myself. I'd get my condition under control then eat something that was guranteed to do me damage. I finally made the descision to get my attitude under control and I found substitutes for my favorites.I have been heavy for awhile and going gluten free didn't do anything to help. So far I have lost 35 pounds on the low carb with about 25 to go. Am thinking of adopting Carbohydrate Addicts Diet for maintenance as I miss my goodies and this allows you a reward meal as long as you stay lc for the rest of the day. You just have to eat it within an hour. Sounds screwey, but I guess it works. I'm not at maintenance level yet, so we'll see. Do any of you have a favorite vendor that you use? I had been using Miss Robens And Gluten Free Pantry. But my grocery store has gotten the flours and everything so when I get to the point where I can indulge again maybe I won't have to do mail order. My 2 youngest grandbabies I think are gluten intolerant. Both Daughters are breast feeding and have weaned themselves off gluten and the babies are thriving finally. So it's good that my daughters took responsibility to do something about it. Hope weveryone hasa good day, Cybergran10

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    • I found when I went gluten free I started eating more dairy and that gave me worse stomach aches and bloating than the gluten did. So now I have to avoid gluten and dairy.  Maybe you have a similar problem with something you are eating.  I hope you feel better soon.  
    • Hi! I received my "official" celiac diagnosis last week. I had an endoscopy last month that was originally looking for ulcers and h. pylori, but they did some biopsies of my duodenum since they were in the neighborhood and the biopsy came back "consistent with Celiac's disease" and later. They urged me to get my blood checked and follow up with my primary doctor. My blood work came back negative, but my doctor was confident it's Celiac so told me to stay away from gluten. I've been completely gluten free (or to the best of my knowledge) for 2 weeks now, and my results are mixed. At first, I felt great! My stomach was no longer CRAZY bloated once I stopped eating pasta and bread, my acne started healing, and the red rash on the back of my arms started to fade. That was the first few days. Lately, though, my acne is once again flaring up and I've been SO EXHAUSTED. I feel so tired all the time. Even now I have fatigue in my head, limbs, and I could hardly walk or move my body earlier today. I'm overweight and I like to go to the gym, but what used to be an easy workout for me is kicking my ass! I used to go to the gym and tear it up: HIIT on the treadmill followed by 40 minutes of heavy weight lifting. Now I can hardly finish 3 reps in my first set without feeling like a nap. I can't run anymore because my body feels clumsy and heavy. Also, I'm still bloated. I don't suffer from painful, acute bloating, but I struggle to pass gas and I look like I have pregnant belly. I think I'm also retaining water all over my body, and I'm not sure if that's normal? For whatever reason, I have this belief that water is mainly retained in the core and not arms, legs, and face. Anyway, I'd love to hear what you have to say/what you've experienced. Is this typical to first going gluten free?
    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
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