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:rolleyes:<_<:lol: Hi All, Just signed up about a few minutes ago. I'm 52, have 4 children and 10 grand children. I was diagnosed in 93, so have had time to perfect the diet. The food is not that bad and it sure beats getting sick every time you eat something that you shouldn't. I had the opposit problem, I was an overweight celiac. My doctor refused to test me for a time because he said I didn't fit the profile. Lately I have been following the low carb diet and have been doing really well, have a few more pounds to lose and of course the tortillas and such is off limits, but all in all it's not bad. Just thought I would introduce myself, and am looking forward to getting to know everyone. I find making most of my own food from scratch helps, it's a lttle time consuming but it is well worth the effort. Judy
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Hi Judy, welcome to the boards. I was diagnosed in Feb "04, so I am still getting used to the diet. I have also found that cooking from scratch helps me. I don't even mind that it takes time, as I am a 39 year-old stay-at-home mom of two teens. They help out quite a bit, so I have more time than other women to enjoy my kitchen. I have been following the Weight Watcher's plan, trying to take off excess pounds. It works quite well for me! I am glad you found a plan that works for you!

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Hi Judy,

Welcome to the board! I am a 32 year old mother of three (ages 5, 8 & 9) and all four of us are gluten intolerant. I was diagnosed last November, my children last March. I am also an overweight Celiac and was refused testing for almost two years because of it. I have lost 8 lbs since starting the gluten-free diet. I am also dairy free. I have not started any weight loss diets, since it still feels like I am already having to deprive myself of foods I like. After I get totally grounded in the gluten-free lifestyle, then I will try harder to loose the excess weight. Until then I am just accepting myself the way I am. I am just so glad to know that I am not the hypochondriac that some doctors made me feel like I was. There is a real reason why I felt sick since I was 4 years old!! I wish I had found out sooner, but at least I know now, and my children won't have to go through what I did.

How are your children and grandchildren? Are any of them showing symptoms, or have been diagnosed? Just curious to see how the genetic thing affected your family.

God bless,

Mariann

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Judy,

Hello and welcome! Just a question, since you are also a Celiac that put on weight, how did your weight change once going gluten-free? Or did it? If so, how long did it take?

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Hello, Judy! You should have lots of useful information for us! I'm Kristina and I am rather young and have been on the diet for just over a year now, yay!

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Welcome to Judy. I am currently waiting for test results from enterolabs to comfirm that I have this. My health history goes back to birth and I was 55 last Thursday. I have a diagnosis of chronic fatigue/fibromyalgia/sinus/allergy/low thyroid and IBS. All of those may have been from undiagnosed celiac disease. Don't know about the rest of my family but I suspect it may be present in some of them (brothers, maybe my kids) but it's up to them to get tested. My father had chron's but now I wonder if he had this and we didn't know it. I've been gluten free for almost a month at my doctors suggestion (I never would have thought of this)with some mistakes I'm sure. I lost 40 lbs since going on Armour thyroid last August (the only benefit I saw) but lost another 5 lbs since going gluten-free. Not bad as long as I don't keep losing. I'm down to an ideal weight now. Hugs, Carol B

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Welcome Judy!

I'm new to the gluten-free lifestyle, only 3 weeks! I feel so much better when I make no mistakes, but I'm sure I still will for awhile! I am 56, 2 daughters, and 4 grandkids. I suspect one brother to be Celiac, also, as he has the same type of digestive disorders as I. The oldest brother died of colon cancer, and I wonder if he was an asymptomatic Celiac, causing the cancer. We'll never know. And one daughter may be, as she has Lupus. But, I suppose until she has signs, she won't get tested.

I probably have has celiac disease for over 20 years, as have been diagnosed with Colitis and then IBS. My first blood test 8 years ago was neg. so I didn't have a biopsy until last month. Another bloot test was neg. again since then! But, I do feel better when gluten-free, so sure I'm on the right track! I also have scars on my knees and elbows, indicating DH, but never had them biopsied.

Join us when you can! I'm sure you'll be a big help here!

Nita

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Hi Everyone, Thanks t everyone who answered my post. I can understand how over whelming it can be when you are finally diagnosed. On one hand it is so wonderful to finally define that you are not a hypochondriac that something is definitely wrong, but on the other hand there is an entire food group that is off limits. I myself went thru a stage where I was angry so I'd end up sabotaging myself. I'd get my condition under control then eat something that was guranteed to do me damage. I finally made the descision to get my attitude under control and I found substitutes for my favorites.I have been heavy for awhile and going gluten free didn't do anything to help. So far I have lost 35 pounds on the low carb with about 25 to go. Am thinking of adopting Carbohydrate Addicts Diet for maintenance as I miss my goodies and this allows you a reward meal as long as you stay lc for the rest of the day. You just have to eat it within an hour. Sounds screwey, but I guess it works. I'm not at maintenance level yet, so we'll see. Do any of you have a favorite vendor that you use? I had been using Miss Robens And Gluten Free Pantry. But my grocery store has gotten the flours and everything so when I get to the point where I can indulge again maybe I won't have to do mail order. My 2 youngest grandbabies I think are gluten intolerant. Both Daughters are breast feeding and have weaned themselves off gluten and the babies are thriving finally. So it's good that my daughters took responsibility to do something about it. Hope weveryone hasa good day, Cybergran10

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    • Here's another thing.  Feeling deprived?  Order two of the same item.  I was hungry by the time dinner arrived! 
    • The doctors just made me feel like I was crazy because they did not have a clue of what was wrong with me. I did a stool test (positive) and I did a genes test (positive for two gluten sensitive genes, one in each chromosome).  Blood test are not so foolproof, if you read the comments/experiences in such topic you will see the problems. Biopsy can give a false negative if taken from an undamaged area. If you have medical problems that go away once on a gluten free diet then gluten is the problem. The medical establishment profit from managing your medical problems and big pharma makes money by pushing pills so we need to be careful because they won't benefit if a gluten-free diet solve your problems. Since I started a Gluten free diet I have been free of the following: (all related to Celiac)  Irregularity, Intestinal noise, Irregular stool, Tooth enamel defects, Rash in upper arms, Abdominal swelling, depression, fatigue, irritability, lactose intolerance, 
      loss of memory, dandruff, uncontrollable bladder, suicidal thoughts, unable to sleep, Canker sores/ Mouth ulcers, high blood pressure, and probably others that I did not realize. I was at the end of my rope, thanks to Google and the people that are able to talk about this I was able to get my life back. I am passionate about this because I know how bad its can get. 
    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)   Oh, I checked your ship.  You must eat in the diningroom if you have special dietary needs.
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