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:rolleyes:<_<:lol: Hi All, Just signed up about a few minutes ago. I'm 52, have 4 children and 10 grand children. I was diagnosed in 93, so have had time to perfect the diet. The food is not that bad and it sure beats getting sick every time you eat something that you shouldn't. I had the opposit problem, I was an overweight celiac. My doctor refused to test me for a time because he said I didn't fit the profile. Lately I have been following the low carb diet and have been doing really well, have a few more pounds to lose and of course the tortillas and such is off limits, but all in all it's not bad. Just thought I would introduce myself, and am looking forward to getting to know everyone. I find making most of my own food from scratch helps, it's a lttle time consuming but it is well worth the effort. Judy
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Hi Judy, welcome to the boards. I was diagnosed in Feb "04, so I am still getting used to the diet. I have also found that cooking from scratch helps me. I don't even mind that it takes time, as I am a 39 year-old stay-at-home mom of two teens. They help out quite a bit, so I have more time than other women to enjoy my kitchen. I have been following the Weight Watcher's plan, trying to take off excess pounds. It works quite well for me! I am glad you found a plan that works for you!

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Hi Judy,

Welcome to the board! I am a 32 year old mother of three (ages 5, 8 & 9) and all four of us are gluten intolerant. I was diagnosed last November, my children last March. I am also an overweight Celiac and was refused testing for almost two years because of it. I have lost 8 lbs since starting the gluten-free diet. I am also dairy free. I have not started any weight loss diets, since it still feels like I am already having to deprive myself of foods I like. After I get totally grounded in the gluten-free lifestyle, then I will try harder to loose the excess weight. Until then I am just accepting myself the way I am. I am just so glad to know that I am not the hypochondriac that some doctors made me feel like I was. There is a real reason why I felt sick since I was 4 years old!! I wish I had found out sooner, but at least I know now, and my children won't have to go through what I did.

How are your children and grandchildren? Are any of them showing symptoms, or have been diagnosed? Just curious to see how the genetic thing affected your family.

God bless,

Mariann

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Judy,

Hello and welcome! Just a question, since you are also a Celiac that put on weight, how did your weight change once going gluten-free? Or did it? If so, how long did it take?

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Hello, Judy! You should have lots of useful information for us! I'm Kristina and I am rather young and have been on the diet for just over a year now, yay!

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Welcome to Judy. I am currently waiting for test results from enterolabs to comfirm that I have this. My health history goes back to birth and I was 55 last Thursday. I have a diagnosis of chronic fatigue/fibromyalgia/sinus/allergy/low thyroid and IBS. All of those may have been from undiagnosed celiac disease. Don't know about the rest of my family but I suspect it may be present in some of them (brothers, maybe my kids) but it's up to them to get tested. My father had chron's but now I wonder if he had this and we didn't know it. I've been gluten free for almost a month at my doctors suggestion (I never would have thought of this)with some mistakes I'm sure. I lost 40 lbs since going on Armour thyroid last August (the only benefit I saw) but lost another 5 lbs since going gluten-free. Not bad as long as I don't keep losing. I'm down to an ideal weight now. Hugs, Carol B

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Welcome Judy!

I'm new to the gluten-free lifestyle, only 3 weeks! I feel so much better when I make no mistakes, but I'm sure I still will for awhile! I am 56, 2 daughters, and 4 grandkids. I suspect one brother to be Celiac, also, as he has the same type of digestive disorders as I. The oldest brother died of colon cancer, and I wonder if he was an asymptomatic Celiac, causing the cancer. We'll never know. And one daughter may be, as she has Lupus. But, I suppose until she has signs, she won't get tested.

I probably have has celiac disease for over 20 years, as have been diagnosed with Colitis and then IBS. My first blood test 8 years ago was neg. so I didn't have a biopsy until last month. Another bloot test was neg. again since then! But, I do feel better when gluten-free, so sure I'm on the right track! I also have scars on my knees and elbows, indicating DH, but never had them biopsied.

Join us when you can! I'm sure you'll be a big help here!

Nita

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Hi Everyone, Thanks t everyone who answered my post. I can understand how over whelming it can be when you are finally diagnosed. On one hand it is so wonderful to finally define that you are not a hypochondriac that something is definitely wrong, but on the other hand there is an entire food group that is off limits. I myself went thru a stage where I was angry so I'd end up sabotaging myself. I'd get my condition under control then eat something that was guranteed to do me damage. I finally made the descision to get my attitude under control and I found substitutes for my favorites.I have been heavy for awhile and going gluten free didn't do anything to help. So far I have lost 35 pounds on the low carb with about 25 to go. Am thinking of adopting Carbohydrate Addicts Diet for maintenance as I miss my goodies and this allows you a reward meal as long as you stay lc for the rest of the day. You just have to eat it within an hour. Sounds screwey, but I guess it works. I'm not at maintenance level yet, so we'll see. Do any of you have a favorite vendor that you use? I had been using Miss Robens And Gluten Free Pantry. But my grocery store has gotten the flours and everything so when I get to the point where I can indulge again maybe I won't have to do mail order. My 2 youngest grandbabies I think are gluten intolerant. Both Daughters are breast feeding and have weaned themselves off gluten and the babies are thriving finally. So it's good that my daughters took responsibility to do something about it. Hope weveryone hasa good day, Cybergran10

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    • Thank you everyone! Good to know I am not alone with this. I am asking for a referral to a new cardio. Hopefully it will all go away the longer I am gluten-free. It started up in February/March after a gluten challenge and mostly vanished until July when I had a lot of shortness of breath. It absolutely was CRAZY just a few days after the glutening. I was gasping for breath and the beats were all over the place just walking through a parking garage and I was only mildy anemic at the time.   But it seems to "quiver" and do funny things for a bit still. I sort of theorized maybe it was inflammation in the heart because after this last glutening, my head felt like it was in a vice and my eyes would sting or get stabbing pain hurt (that is finally going away thankfully...knock on wood).  The head/eye pressure I learned also happens to my sibling who has celiac and his naturopath told him that sometimes the brain gets inflamed. Hopefully I can meet the new cardio soon and feel confident that he is taking me seriously. It is sort of difficult to feel confident in the opinion of a doctor that your ticker is ok when they are not really listening and end up making you cry. LOL. A friend of mine in the mental health field recently listened to my story of doc after doc and test after test and said that it was akin to the folk story of blind men describing an elephant. A group of blind men all feel one part of an elephant (tusk, tail, ear, tail) and then compare notes only to find they all disagree.  In some  versions they argue intensely. In other versions they have to collaborate and listen to each other in order to "describe" an elephant.    
    • Good afternoon! I am new to this board and fairly new to researching Celiac Disease, although I had a general idea what it was. My health has become a huge mystery to me, and it's one that I am desperate to solve. The biggest issue right now is horrible, life affecting fatigue. I have been dealing with it for several years now- as many as 5 to 6. It has gotten progressively worse, and nothing at all helps. Sleep apnea has been ruled out. Intestinal issues are something I have dealt with for almost two decades. I'm 45, but I've already had two colonoscopies as well as two endoscopies. My first endoscopy was as a child for persistent, severe stomach pain. My last colonoscopy and endoscopy was two years ago. The only thing that has come from those is an Irritable Bowel type condition and GERD, which is pretty bad. My bowel movements have always been crazy. They can be very normal and healthy to completely crazy. I've had periods of persistent diarrhea to occasional constipation, which is a fairly new thing within the last year. Last week, I went from having diarrhea that morning to hard, round balls of stool by that evening. My most common stools here lately, though, are not quite diarrhea, but more fluffy, large piles. Gas is an ongoing, daily issue for me. I have copious amounts of gas every day no matter what I eat or drink. Most of the gas in non-odorous but it can be very loud. I am currently on a total of 60 mg of Ritalin per day just to function. I often add energy pills, purchased from places such as GNC, because the Ritalin isn't working. Yesterday, I took both doses of Ritalin and two energy pills, and I passed out on the couch after work. I work from 7:30am to 3:30pm, and my work day is nothing too crazy. I try to keep very consistent sleep hours and could easily sleep to 1:00pm or longer if I don't have to get up for something. I sometimes have short periods of energy in the mornings, but that is usually over by noon. The quality of my life is greatly affected. I don't want to go anywhere or do anything because I am way too tired. I'm trying to keep up with my exercising, but that is also a struggle.  I have a history of clinical depression for practically all my adulthood, but it has been very well managed for the last four years. The fatigue is currently causing a great deal of depression, but it is very different from the clinical depression that I use to deal with. When I don't feel sleepy and tired, I don't feel depressed. When the fatigue sets in, I feel very irritable and sad. I realize that the stimulants can cause irritability, but I don't feel irritable or sad when I'm not feeling fatigued.  I've only recently began to explore that the fatigue and the intestinal issues could be related. I have always accepted that I have a sensitive, cooky digestive track. The increasing, unrelenting fatigue is what has lead me to exploring the possibility that everything could be related. I did have blood work last November. My doctor did not test for anything Celiac Disease specific, but she did do a Vitamin D, ferritin level and overall metabolic panel. All of that is normal. My thyroid level is also normal, and I do take thyroid hormone because I had half of my thyroid removed 11 years ago due to what turned out to be a benign thyroid tumor.  I just saw my doctor two weeks ago, and she increased the dosage of my Ritalin. That has not helped at all. She has never mentioned Celiac Disease to me before. I made an appointment for this Friday afternoon to talk about it, but I keep wondering if I'm even heading in a direction that makes sense. I decided to post here for some guidance. I'm sorry this has been so long. I'm not really into cutting something totally out of my diet just to see what happens. I also feel like that if I have something that is poisoning my system, I need a real clinical diagnosis of that. I feel like maybe I'm grasping at straws now and imagining a correlation that isn't there. I am not looking for a quick fix, but right now I have no idea what needs to be fixed. I am open to any information and/or suggestions. Thanks so much!   Jennifer
    • Celiac disease sufferers or those who embrace a life without gluten can check out Canada's Gluten-Free Market when it makes stops in London and ... View the full article
    • I too have heart palps, flutters, skips whatever you want to call them. Ecg shows nothing. I was told by my doctor it is due to my low iron which is due to celiac. They pretty much went away after being gluten-free. But occasionally do come back. I've actually been having them for the past 3 days. But I was glutened with really severe reaction about a week ago so not sure if its due to that. Or if iron is low right now. I am on supplements but it still goes up and down. I hear you about doctors. It seems if you don't do research yourself or ask questions they don't say or do or test for anything. 
    • For a number of years pre diagnosis I had irregular heartbeats - anything from a fluttering type thing to seemingly skipping one or more beats to rapid beats to something like a short drum riff. I had multiple ECG's which didn't find anything odd. It never did it when I was at the doctors or getting the ECG's. Sometimes it seemed to pound very hard & rapid, at these times I discovered if I just laid down flat on my back, it would restore normal rhythm almost instantly. These things happened at random whether I was at rest, sitting, standing, running or working hard. It was always short lived -- lasting only 1 to several seconds, perhaps the longest was close to a minute. I too have little faith in docs as I've had my share of being blown off, to misdiagnoses. The whole heart thing quit after I had been gluten-free for a while but if I get glutened, it returns.
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