Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Where To Get Blood Tests Done?
0

9 posts in this topic

:huh: Hi,

It's been a whlie since I've been here,but I'm glad to be back. Reading and learning here has been so helpful to me. I took myself off gluten 2 yrs. ago bec. someone suggested it might help me.I was suffering from constant gas,bloating,cramps,and constipation.Going gluten-free seemed to help but i didn't give me enough relief.

I went to a new GI dr. in Oct. and he listened to me list of symptoms and said I have IBS w/C.He gave me Zelnorm and that was it.I came home and researched what to do to help the IBS.The diet I found has made me feel so much better.

So I asked my dr. to do a new blood test to see if maybe I don't have celiac disease.(prev. tests were neg. but I had been gluten-free) Anyway,I ant to be sure this is done rt.

I see that certain labs are suggested as being better able to give accurate results.Does anyone know how I can have my blood work checked there? The dr.'s nurse said I could have it done anywhere,but not in his office.

Hope someone has some ideas.Thanks so much,Suzy

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi Susz. Do a search for Enterolabs or celiac testing. Enterolabs has a non invasive stool test that is MUCH MORE reliable than the blood tests are. What sort of diet are you on? Hugs, Carol B

0

Share this post


Link to post
Share on other sites

Enterolab isn't covered by insurance (at least not most) and also isn't accepted by most mainstream medical doctors. So if you do get a diagnosis from Enterolabs, most doctors do not accept it(yet, maybe never?). If you have problems with either of those things, then it is not for you.

-Jessica :rolleyes:

0

Share this post


Link to post
Share on other sites

That brings up another question. Why do we need a doctors blessing or diagnosis if we know for sure through the stool test that is what we have? I know it's expensive but I keep hearing how reliable it is and to me that means everything.

:-) Hugs, Carol B (just curious, not putting anyone down)

0

Share this post


Link to post
Share on other sites




Hi all

Thanks for your helpful ideas.

I had Entrolab do my gene tests,but wasn't brave enough to do the stool test.

Since I have been doing so well lately I am questioning whether I really have celiac disease. The IBS idiet I am on is what I term the

A.F.M.C.C.C.IF(AVOID FATS,MILK,CAFFEINE,CHOCOLATE AND USE CAUTION W/INSOLUBLE FIBER--insoluable fiber needs to be cooked and eaten only w/soluable fiber) diet.

I am now adding gluten products so I can be retested.

It seems so strange to me that I can now eat these things w/out having a reaction.

Really makes me wonder if I only have IBS.

I figured I'd just do this challenge fr 3 months and then have blood work done to see.

Now I am wondering if I should go ahead and have the stool test done,or if since I am doing so well to just go w/the blood tests.

I saw that there are 4 or 5 places that are reliable for having the tests done,but none are near me.

Was just wondering if there is a way to have the blood drawn locally and sent to them(then again I know nothing about medical stuff so don't know if this is feasible)

0

Share this post


Link to post
Share on other sites

I just saw the post on WHY you need a formal diagnosis. So HOW does one do that if they have negative blood tests but a positive stool test from enterolabs and their doctors don't accept it? I won't have any problems since my doctor put me up to this in the first place. Just wondering about others and why doctors won't accept Enterolabs. He is a doctor (Dr. Fine) and it seems pretty reliable. Maybe others can find a new doc that will accept it. We go through this on my thyroid group. Trying to find a doctor that thinks outside the box and listens to the patients. Just curious. Hugs, Carol B

0

Share this post


Link to post
Share on other sites

One reason there is so much skepticism about Dr. Fine's tests (and I'm still a skeptic), is that he doesn't not publish studies for peer review or share his process with the medical community. The responses from him that have been posted on the question that I have read imply the belief that other doctors should just believe him without going through the peer review process. The cynic in me thinks he's doing this for business reasons, to keep other labs from being able to do this testing and take business away from him, but that may not be the case at all.

European doctors, who are much more advanced in studying this disease, are starting to develop stool tests themselves, and are using a peer reviewed and scientifically accepted way of going about it, so there may be other stool tests available in the future, and it may possibly vindicate Dr. Fine's tests.

0

Share this post


Link to post
Share on other sites

Is it possible he's to busy doing what he's doing to take the time for peer reviews? Treating thyroid with Armour is the same way. Doctors don't accept it. Or guaifenesin for Fibromyalgia. Dr. Paul R. St Amand hadn't been through the peer reviews either (he wrote the book on this treatment). However I was a part of a support group with many women who had improved by his treatment and didn't care about peer reviews. In my book if something works, that's proof positive. Don't even get me started in my UNBELIEF in the placebo affect. LOL Hugs, Carol B

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,667
    • Total Posts
      921,670
  • Topics

  • Posts

    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,666
    • Most Online
      3,093

    Newest Member
    epalmer9
    Joined