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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Pain In The Upper Right Quadrant
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9 posts in this topic

Hi just found out 2 weeks ago that i have celiac disease...

last nite i began have some pain at the upper right quadrant(underneath the right ribs)...was wondering if this have anything to do with havin celiac.

i'm havin my biopsy and colonscopy, this week so would like to know what is goin on now.

thankx

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I have the same pain and my doctors are not sure what it is from.... you should mention it to your doctor to see what he/she says.

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I have the same pain and my liver panel was normal. I'm waiting for my referral for my new GI to go through. I let you know if anything comes of it.

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i acutally asked my dr. wat it could be from or was it related to having celiac...and all he said was, maybe?...

so i'm goin to have to rely on you guys for some help...

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All of you may want to ask about your gallbladders. They can do a nuclear medicine study that tracks the emptying of the gallbladder. I had to have an emptying study on my stomach and gallbladder prior to the celiac diagnosis. I had the upper right quadrant pain right around and under the ribs. I had my gallbladder removed as a result of the tests and I am sooooo happy! My stomach also does not work well, but it is better after the gluten-free diet.

Your gallbladder is one of those organs that is not really needed, if you are having problems with it. Four small scars and the pain is gone. E-mail if you want more info.

Good luck

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I really do not recommed the neuclear medicine test if you do not REALLY need to have it. It is pure TORTURE!!!

I had this test before my diagnosis. They thought that my gall bladder probably needed to come out (wasn't the gall bladder it was Celiac Disease).

For the study you are injected with this radioactive dye stuff. THEN here comes the TORTURE...you must lay COMPLETELY still for 3 hours underneath this machine that is pressed up against your stomach that takes constant pictures of the dye. You get a 5 min break in the middle to drink some fatty milk and eat a cookie(yep good idea for people with celiac). Then it's straight back to laying on a cold hard metal table for the rest of your 3 hours. TORTURE I tell you!! Not even able to scratch your nose!! I do not recomend it at all!! Be VERY sure it is necessary before you do it.

-Jessica :rolleyes:

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I think it may be related to my gall bladder, too. Can you have normal liver function and still have problems with your gall bladder? What I've read about gall bladder disease seems to fit my situation but I'm not clear how the two are related as far as making a dx is concerned.

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I have had my gall bladder checked through ultrasound and it was ok. I think my problem is inflammation of my soft cartaledge around my ribs because the pain improved after being on an anti-inflammatory medication, of course my pain was on both sides and I am being checked and treated for Lupus which is an inflammatory disease!

I only suggested to see your doctor because I didn't want to scare the daylights out of you :D

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I had a sonogram of my liver and gall bladder this past week. It was painless, and showed the tech whether or not I had gall stones. (I had none, thank God!) The funny thing is, that it did show that my intestines were inflamed in that section. The doctor had told me that "all tests" came back negative, and that I "do not have a gluten problem", so I ate a sandwich the day before the sonogram. No gluten=feel great, gluten=inflamed intestines. DUH! I do have a problem with gluten! I'll be getting Dr. Fine's test this summer. What I'm getting at, is the pain in the upper right side under the ribs could very well be caused by an irritated or inflamed intestine. Good luck at figuring it out.

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    • Weird Reaction
      Hi Richard Glad you are feeling better!   Sorry - DX is an abbreviation for diagnosis.   Thanks so much  for the info about MSG, broccoli and IBS.  Like you say, there is v. little bad press about broccoli. My aunt, who is a farmer's wife, put forward another theory that it might not have been the broccoli itself but rather some insecticide a farmer sprayed on it.   I just can't bring myself to try organic broccoli however...  Thankfully cauliflower is fine.  I just can't figure it out as I thought they were the in the same vegetable family?  So maybe it is MSG. Regarding anemia, there can be a link with iron anemia and anxiety. http://www.livestrong.com/article/471225-iron-anxiety/ And I was definitely breathless before my diagnosis; I remember finding myself  walking up a hill behind a  huge crowd of friends on a church walk, and many of them were at least 20 years older than me, and wondering why I was in last place! My B12 levels were very low at DX and I found B12 supplements helped enormously with anxiety.   I remember drinking Berroca and feeling so much better within hours of drinking it, on more than one occasion, before even understanding the link. I have just been told however that I can't take any more iron because my hemoglobin is on the high side.  It is a good thing my doctor was monitoring my supplementation as I gather too much iron can be dangerous.  Have you been told to supplement by your doctor?  If you are supplementing make sure you get your levels monitored. All the very best - and welcome to the forum!    
    • Weird Reaction
      Thank  you Flowerqueen and Cristiana for your replies. I'm actually feeling much better today. I got my appetite back yesterday lunchtime (a few hours after I typed the original post) and managed to keep in/hold down some chicken and lettuce!!! I also had a "fat" coffee (as I call it) before work with MCT Oil and butter (your probably going "yuk" right now but it's really nice...really haha) and started feeling a bit better after that. The nausea went away almost immediately after that although just the thought of having all that fat nearly made me sick but I just wanted to get back to normal asap. I usually have a lot of fat in my diet anyway which is normal for me so the coffee choice isn't unusual. Plus it was also the third day which was when I started feeling better after the first time. I didn't eat til lunchtime and I was good and hungry by then so I knew I was coming out of it. That nausea and trembling feeling is something I don't want ever again. I think after the workout and tearing down muscle tissue (which is a form of stress) and then not being able to hold the nutrients in for repair affected my nervous system. My theory only but to me it makes sense. Although Vitargo also comes in flavors I always get the Natural / Unflavored one so the barley is the only ingredient. As for there being something wrong with that particular batch, well, you be on to something there. Also I'm not knocking the product because as I said, I have used it before and it did exactly what it was supposed to do. But, I will never have it again. Cristiana, my last blood test revealed I had slight anaemia which really surprised me with the amount of red meat I've eaten during my life and the anxiety thing is also new as I'm usually a happy, positive person. Life is good but after this recent reaction I think it is an indirect cause of the glutening. I'm also surprised at how sensitive I've become to it and how quickly. Also what is DX? I also follow a FODMAP eating plan (I can give you more info if you haven't heard of it) which also eliminates certain foods. It's a plan directed mostly at IBS but is well worth looking into if you are suffering any gut health, digestion issues or any ailment you may have which you can't get to the bottom of. Broccoli was one of the foods which I have cut back on and I've eaten HUGE amounts of broccoli so it is a superfood for some but apparently not for others. (I even think I read somewhere it has MSG naturally in it) It's hard to find any bad articles on broccoli so this also really surprised me. It also answered a few other questions I had. Many, many thanks again to you both for your replies. It actually settled me just reading them. I'm glad I found these forums so I don't think i'll be a stranger around here for long.   Richard
    • Confused
      Okay, I get that you are not going to follow the advice from some stranger on the internet, but please read the links that I gave you.  Your doctor is not following the standard level of care.  I am dead serious.  I have Kaiser.  My own GP doesn't have a clue about celiac disease, but my Kaiser GI does.  Please, I urge you to get properly diagnosed.  All celiac testing requires you to be on a gluten diet.  If you go gluten free even for two weeks (it will take time to get the referral and appointment), it will mess up the tests.  Your GI will put you back on a gluten diet (called a gluten challenge) for 8 to 12 weeks.    Chances are (almost 100%) you will feel more miserable!  That will just delay your diagnosis.   Symptoms not bad you say?  I had pretty severe anemia, but no tummy issues.  Two months after my diagnosis, I fractured my back DOING NOTHING!  Yep, I have osteoporosis from undiagnosed celiac disease and I am an athlete!   Please take this seriously!    
    • Silent Celiac or Non-digestive symptoms
      Oh, you might learn how to tell if you had been glutened.  I just had anemia as my main symptom.  I did not have any tummy issues at all.  I was in shock when my doctor even suggested testing me for celiac disease!   Glutenings can vary as we are all different.  For some it is just a few days, others a few weeks and others months (that would be me).  My last official glutening as supported by follow-up antibody testing lasted for three months.  Guess what?  I had vomiting, abdominal pain, the works!  Funny how celiac disease can change and evolve over time.   Welcome to the forum!  Have some patience and learn all that you can.  The good news is that you can feel better and no medications are required!  
    • Confused
      Thank you for the information. I've been not sure if I should eat gluten or not right now. Dr. said I should watch what I eat when I emailed him the question. My symptoms aren't very bad (I understand that doesn't matter for celiac disease), so I can definitley tolerate the food. But I have been starving myself the last few days due to not knowing what the heck is going on. Thanks again.
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