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Fda Warning For Adhd Drugs


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50 replies to this topic

#31 chrissy

 
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Posted 31 May 2006 - 08:46 AM

ursula---i have done eliminating in my diet and i have had counceling several times over the years------neither of which helped a whole lot. i am going to try some eliminating again. i'm going to go try those tests now.
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Christine

15 year old twins with celiac, diagnosed dec. 2005
11 year old daughter with celiac diagnosed dec 2005
17 year old son with celiac gene

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#32 Ursa Major

 
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Posted 31 May 2006 - 09:06 AM

Hmmm...my numbers were

AQ= 38
EQ=24
SQ= 54


That's interesting! Not all women with AS are good with technology, some are gifted in languages instead (I am both, but I am not even your 'average' Aspie, either).

You might want to get tested, you may have AS.
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I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

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#33 chrissy

 
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Posted 31 May 2006 - 09:15 AM

ok, here are my scores

AQ=14

EQ=49

SQ=38

i seem to be pretty sociable, normally empathetic, but not very systematic-----still seems to fit ADD to me.
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Christine

15 year old twins with celiac, diagnosed dec. 2005
11 year old daughter with celiac diagnosed dec 2005
17 year old son with celiac gene

#34 kabowman

 
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Posted 31 May 2006 - 11:00 AM

Vincent, my oldest son, 15, is dislexic, disgraphic, and ADHD (docs office has ADD but he gets very hyper when he isn't totally absorbed into something or when the meds wear off). He has been on meds for 4 years now - we won't ever go back. He is The Poster Child for these meds because he made such a turnaround.

He would go into the hallway at school and just cry because at half a work load was too much, public school is not set up for someone who is very visual. Next year, he is taking 2 art classes, computer programming, and a landscape architecture class with his required courses. Part of the problem, until HS, all his teachers were willing to do anything to help him - turn it in late, stay after school and they would help, etc.

He didn't/could barely read until he was 10, now he reads non-stop - almost obsessively. The pyschologist and the tester don't suspect AS - his dad does but he really doesn't have most of the symptoms. He can be social whenever he choses to - kind of like me.

Now, I am hoping that he will learn to cope without drugs sometime in the near future but we aren't there yet. Two years ago he also started on anti-depresants which helped tremdously!!!

We are now, going through re-testing, per his doctor's advice based on new problems in high school which I can't tell if they are depression or LD related. They didn't find anything on the first set of his recent tests so ran some more - we should get the report within a week.
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-Kate
gluten-free since July 2004

Other Intolerances:
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#35 VydorScope

 
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Posted 31 May 2006 - 01:47 PM

Vincent, my oldest son, 15, is dislexic, disgraphic, and ADHD (docs office has ADD but he gets very hyper when he isn't totally absorbed into something or when the meds wear off). He has been on meds for 4 years now - we won't ever go back. He is The Poster Child for these meds because he made such a turnaround.


I have yet to see an ADD cause where you do no see dislexica, statitiscly something like 80% of child/adults with ADD/ADHD are dyslexic. Makes you wonder about the connection.....

As for lable of ADD vs ADHD, the last revsion of the DSM (or the pone befor that... forget which it happened in) has actaully combined them. So theres not realy ADHD vs ADD any more.

...he gets very hyper when he isn't totally absorbed into something ...now he reads non-stop - almost obsessively.


"Hyperfocus" (like you describe) is a clasic sign of ADD/ADHD, which is humorus when you stop and think about it. :)

Now, I am hoping that he will learn to cope without drugs sometime in the near future but we aren't there yet. Two years ago he also started on anti-depresants which helped tremdously!!!


Is he in therapy to learn coping skills? Or "Behavior Modification" as we used to call it. :) If not then it could be alot harder, unless you are teaching him those skills in place of a doctor or ADD/ADHD Coach. The brain is a very amazing creation, while it cant realy be repaired, it can learn to compensate very well. Most childern can learn to cope leading ppl to think they grow out of it, which is not possible.

ursula---i have done eliminating in my diet and i have had counceling several times over the years------neither of which helped a whole lot. i am going to try some eliminating again. i'm going to go try those tests now.



Chrissy, have you tried to eliminate food addivtes such as dyes, and the like? They are TOUGH to aviod, but an allergy to htem has often been mistaken for ADHD, and no amount of meds will help that.
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#36 chrissy

 
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Posted 31 May 2006 - 02:29 PM

i think what i am going to try is the elimination diet that they often suggest to nursing mothers--------i think it gets down to pretty bare bones to begin with. i am going to read up on it. do any of you know any good sites that i can look up any other instructions for a good elimination diet?
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Christine

15 year old twins with celiac, diagnosed dec. 2005
11 year old daughter with celiac diagnosed dec 2005
17 year old son with celiac gene

#37 Ursa Major

 
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Posted 31 May 2006 - 02:49 PM

Vincent, I don't have dyslexia (quite the opposite), but I have dyscalculia instead (like dyslexia, but with numbers, directions, math, time, money instead). I am not sure what is more difficult to compensate for. If it is possible to get lost, I will do it! Fortunately, a strategy I developed a few years ago worked at least for getting lost. The night before I go somewhere, I get out the maps and write down my route, in every tiny little detail, and visualize it well. Usually I do fine (unless there is a detour :( ). I got a cellphone just so I can call somebody when I am lost again!

When I get directions from somebody, I have them tell me what landmarks to look out for when I get to where I need to turn. There is no point of anybody telling me to 'go north', or west, or whichever direction. I never have any clue where any of them are!

And boy, do I hyperfocus (it's also a classic symptom of AS)! I totally lose track of time and space regularly. I'll be sitting at the computer, totally absorbed in whatever I am doing, and don't notice it getting totally dark around me until my husband gets home, wondering if anybody is home! And he'll get mad because I forgot to cook supper, accusing me of doing it on purpose.

Or I'll read an interesting book, and when I look up, it's 5:00 AM, and I have read all night, without meaning to (that one is a bummer if I have to go somewhere in the morning).

Chrissy, you obviously can't have AS, your scores don't support that hypothesis at all. But it was worth checking into, anyway. Good luck with your elimination diet. By the way, have you ever tried cutting out sugar entirely (as well as all artificial sweeteners)? Pure, unrefined honey and maple syrup are fine.
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I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

#38 VydorScope

 
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Posted 31 May 2006 - 03:49 PM

Vincent, I don't have dyslexia (quite the opposite), but I have dyscalculia instead (like dyslexia, but with numbers, directions, math, time, money instead). I am not sure what is more difficult to compensate for. If it is possible to get lost, I will do it! Fortunately, a strategy I developed a few years ago worked at least for getting lost. The night before I go somewhere, I get out the maps and write down my route, in every tiny little detail, and visualize it well. Usually I do fine (unless there is a detour :( ). I got a cellphone just so I can call somebody when I am lost again!

When I get directions from somebody, I have them tell me what landmarks to look out for when I get to where I need to turn. There is no point of anybody telling me to 'go north', or west, or whichever direction. I never have any clue where any of them are!

And boy, do I hyperfocus (it's also a classic symptom of AS)! I totally lose track of time and space regularly. I'll be sitting at the computer, totally absorbed in whatever I am doing, and don't notice it getting totally dark around me until my husband gets home, wondering if anybody is home! And he'll get mad because I forgot to cook supper, accusing me of doing it on purpose.

Or I'll read an interesting book, and when I look up, it's 5:00 AM, and I have read all night, without meaning to (that one is a bummer if I have to go somewhere in the morning)


Direction issues is comong to both dyslexia and dyscalculia. I use a GPS to get around in places that I do not know. :) When I was being tested the physco-doc remarked at how I sovled all the math (an other non-verbal tasks) problems verably instead of using pen/paper/etc... its noted in her report. I dunno how I do it, I just talk (literly) through a math problem and have an answer. Teachers HATE that btw. :D

The funny hting was they tell you to hold up your hand, and the one that looks like an L is the left... WELL DUH! That not gonna work when your Dyslexic! :lol: To this day I cant tell you which one is an L :lol:

The thing with the book, OMG so true... what is it about books that are soooo engaging?!? much more then any movie!

My wife will tell you the parts about forgeting supers/etc apply 100% to me too.. the worst part about it... I usally cant tell you what I was doing! heh. She complains that she has often fallen asleep wiating for me to come down and tuck her in LOL. Or she will tell me that supper is ready, and I will say "okay be right there" and mean it... then I wander down what I honestly thing is a min or to later.. she and ,my son are done eating, have cleaned up and everything hehe. :lol:
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#39 Guhlia

 
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Posted 31 May 2006 - 04:50 PM

AQ - 41
EQ - 22
SQ - 22

Ursula - should I be worried? Is there treatment available for AS? Right now, due to insurance situations, it is impossible for me to get tested. Any advice would be greatly appreciated. I've been previously diagnosed w/ Borderline Personality Disorder and ADD.
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#40 Ursa Major

 
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Posted 31 May 2006 - 05:55 PM

AQ - 41
EQ - 22
SQ - 22

Ursula - should I be worried? Is there treatment available for AS? Right now, due to insurance situations, it is impossible for me to get tested. Any advice would be greatly appreciated. I've been previously diagnosed w/ Borderline Personality Disorder and ADD.


Well, some other common things Aspies get misdiagnosed with are: Borderline Personality Disorder, Schizophrenia and Bipolar.

Your scores on the AQ and EQ could indicate AS instead. Hey, AS is not a disorder, really, it is a DIFFERENCE. I'd rather have AS any day than somebody telling me I have Borderline Personality Disorder (whatever their crazy definition for that one is).

No, there is no treatment for AS, as it really isn't a problem. The problem is other people, who expect me to be like them! They think if somebody hates socializing, refuses to do small talk, won't sweet talk anybody, won't lie, loves their computer (and prefers it to people), hates parties, hates dressing up, doesn't care about gossip and fashion etc., that person MUST be ill! Which is ridiculous. But there is therapy that teaches you how to cope better, manage social situations better, and how to deal with stress.

The good thing about knowing it's AS is, that now I don't believe I am crazy any more because I am so different. Aspies have some great strengths! They are often very creative, they're very loyal, they don't cheat or lie, they're tenacious, they see a project through even if it means staying up night and day without eating or sleeping, they believe in justice and fair play, they love finding out facts (and know a great deal of them), they're not shallow, they mean what they say and say what they mean (no beating around the bush here B) ). Too bad that some people will declare honesty to be rude, and I don't have a clue I've offended them by not playing their social cat and mouse game (heck, I don't have a clue how to do that!).

So, should you be worried? I don't think so. Just be aware that you've tested within the autism scores, do some research and see if the profile fits you. It will likely explain many things, and you'll look at the world with different eyes.

By the way, what a sweet child you have in your avatar!
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I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

#41 Guhlia

 
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    Ah yes.... Happy New Year to all, Red Bridge style... LOL

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Posted 31 May 2006 - 06:09 PM

Ursula, I sent you a PM. Thank you.
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#42 Claire

 
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Posted 31 May 2006 - 07:36 PM

For VydorScope -

What is the source of your information that ADHD can be proven with a brain scan?

Having encountered any number of children and adults with this 'diagnosis' I have yet to see anyone who has been 'tested'. The diagnosis is generally subjective - based on behavorial manifestations.

I would appreciate you sharing the source of your information. Thanks. Claire
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#43 Smunkeemom

 
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Posted 31 May 2006 - 07:41 PM

For VydorScope -

What is the source of your information that ADHD can be proven with a brain scan?

Having encountered any number of children and adults with this 'diagnosis' I have yet to see anyone who has been 'tested'. The diagnosis is generally subjective - based on behavorial manifestations.

I would appreciate you sharing the source of your information. Thanks. Claire

I have heard from a nurologist that they can do a brain scan (CT) for it and see changes, but it's not a diagnostic tool, it's kinda like there are actual chemical differences in the brain of a bipolar person but they don't do CT to confirm that diagnosis, it goes more by symptoms and behavior.
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#44 chrissy

 
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Posted 01 June 2006 - 04:18 AM

my husband has also seen an article in a magazine (time or newsweek maybe?) that showed actual brain scan pictures and showed how the brain looked different in a person with ADHD.
christine
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Christine

15 year old twins with celiac, diagnosed dec. 2005
11 year old daughter with celiac diagnosed dec 2005
17 year old son with celiac gene

#45 VydorScope

 
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Posted 01 June 2006 - 05:08 AM

For VydorScope -

What is the source of your information that ADHD can be proven with a brain scan?

Having encountered any number of children and adults with this 'diagnosis' I have yet to see anyone who has been 'tested'. The diagnosis is generally subjective - based on behavorial manifestations.

I would appreciate you sharing the source of your information. Thanks. Claire



I dont have a link presently, but there have been several articals (as others have mentioned already on it several times in this thread). Just as with celiac disease the "gold tool" is the stupid outdated unrelible bisopy, the "gold" standard for ADD dx is school history, family history, and behavior studies of the subject. Most psychologists/physchartists do not have access to brain scans/training/etc. If you want that kind of dx you need to get with a neorologist who speicalizes in these cases, which is not the normal path, and in my expernece insurance coverage is minimal at best. Given the reality of medical care being didicatated by insurance coverage, and so called "gold standards", I would be surprised if you found many that got dx'd this way.

I am sure if you realy are intrested in seeing them, Google can find them. Or check the archives of the major sceince mags.



Just to show you how spending 20 seconds looking, this is the first link I found in Google..

http://add.about.com...inattentive.htm

(note only skimed it fast... serach returned a very large number of results from varios docs and instutions plus the normal "YOUR EVIL IF YOU BELIVE IN ADD" total crap sites.
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