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Alert! Csa Guide Misinformation!


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10 replies to this topic

#1 Guest_LilKLJ_*

 
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Posted 02 June 2006 - 08:14 AM

For those of you who purchase and/or reference the CSA Gluten-Free product listing, be WARY!! On page 189, I found beer listed as a gluten-free product for Chipotle. When I asked the CSA execs to send out a warning to people, they ignored my request and claimed that the information had been changed for future issues of the product guide.

The fact that a blatent gluten-containing food such as beer is put in the guide and no one there second guessed it or caught it is scary to me. I am using my guide with a grain of salt.. I've always been a label reader... but I thought this guide could help me as well as family members purchase gluten-free foods. I am worried about what else CSA didn't catch.

katelynn
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#2 hez

 
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Posted 02 June 2006 - 11:28 AM

When I was first diagnosed I bought this guide (last year). I found it to be expensive and not very helpful. I realized much of what I needed could be found on the internet or by making a phone call. I was not impressed.

Hez
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#3 jerseyangel

 
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Posted 02 June 2006 - 11:42 AM

I did the same thing! I bought it last summer--I have looked up a few things, but most of the brands in there are not available in my area. The best source of info about products, in my opinion, is either here or contacting the companies directly. The second is kind of a pain, but you get the most up to date info that way. I looked up page 189 in my copy, and it was not the restaurant section. And the restaurant in question was not listed at all in mine. I thought that they mailed out updates, but in the 10 months I've had the guide, I have received none. And I did pay 1 year's dues!
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Patti


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"Bloom where you are planted"--Bev

#4 VydorScope

 
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Posted 02 June 2006 - 11:46 AM

I plan to get the Clan Thompson Food SmartList for Pocket PC (brand new! I helped beta test it!), I have been impressed with them so far, and they seem stay on top of the updates. Its $59 for it with a years updates.
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#5 ms_sillyak_screwed

 
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Posted 02 June 2006 - 12:17 PM

What is CSA Gluten-Free product listing?

Sounds like it was written by a few too many beer drinking guys, or perhaps they were drunk when they wrote it? HA! It's all about the almighty dollar.

Perhaps I've become skeptical -- well I'm more cynical -- I was NEVER like that until I came down with celiac disease. I don't believe anyone for their word anymore. History has proven almost everyone lies and gets away with it. This is a prefect case in point.
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#6 debmidge

 
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Posted 03 June 2006 - 01:18 AM

We had purchased the CSA product guides for 3 years and while they are ok, the products that they show as gluten-free cannot be found in the NJ area; most of the supermarkets noted in the CSA book are not in NJ either, so while it might be a good publicaton for the mid-west or west coast, it is not the proper publication for NJ area. So I stopped buying it this year. I am very interested in Clan Thompson....how long (in hours) does it take to download when you buy it for the first time?
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Husband has Celiac Disease and
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006
It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

#7 VydorScope

 
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Posted 03 June 2006 - 05:32 AM

We had purchased the CSA product guides for 3 years and while they are ok, the products that they show as gluten-free cannot be found in the NJ area; most of the supermarkets noted in the CSA book are not in NJ either, so while it might be a good publicaton for the mid-west or west coast, it is not the proper publication for NJ area. So I stopped buying it this year. I am very interested in Clan Thompson....how long (in hours) does it take to download when you buy it for the first time?


The beta version for Pocket PC that I tasted was only a couple of megs, so un a dialup should take around 15 mins, 30 mins at extrem worst. Dunno how big the full version is. But you you email them they can tell you. They are very helpful. For average 56k dialup you can use about 3 mins per megabyte as a rule of thumb. For averag 28k you can use 5mins per meg. Thouse are rough ideas only, not exact, but getyou ball park at least.
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#8 ms_sillyak_screwed

 
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Posted 03 June 2006 - 11:35 AM

What is CSA Gluten-Free product listing?


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#9 VydorScope

 
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Posted 03 June 2006 - 11:56 AM

Dunno nuting about it, but Google gives this:

http://www.csaceliac...ductListing.php
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#10 ms_sillyak_screwed

 
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Posted 04 June 2006 - 10:18 AM

What is CSA Gluten-Free product listing?


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#11 jerseyangel

 
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Posted 04 June 2006 - 10:30 AM

Ms. SS--Vincent posted a link to it above. It is a 3-ring notebook of current gluten-free foods, as reported by the manufacturers--put out by the Celiac Sprue Association. I bought it shortly after I was diagnosed. I had no idea where else to get info--I had not yet found this board, and my doctor was no help. I would not buy it again--it is far from a complete list and a lot of the stores are not in my area. It was of some help in the beginning--and the list of company phone numbers did come in handy a few times. I think I paid $35 for it, and another $25 for dues to become a member. I am dissapointed, though, as they told me they printed updates and would mail them out to members. In the entire year I was a member, I did not get one update.
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Patti


"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev




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