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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Anyone Else With Keratosis Pilaris?
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23 posts in this topic

I've tried everything on my bumps, even those really expensive creams and prescription stuff. Finally I gave up and just went back to using Cetaphil. After being gluten free for over a month now I noticed my bumps are almost completely gone! Is it possible for keratosis (chicken skin) to be related to gluten intolerance? Anyone else see an improvement in their skin?

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Yes!!! I used to have them all over the backs of my upper arms and on my knees and it is much better than it used to be. Arms are cleared up completely.

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Totally gone!!! My elbows feel like a baby's elbows now!!! I also stopped getting mystery blisters on my hairline and neck ... I don't think they're dh since they are only on my hairline and neck, but I guess it's possible, but they didn't itch.

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is THAT what it's called???!!! lol! yeah mine have completely cleared up being gluten-free. I still have some scarring from some of the bumps that I scratched til they bled... Had it on face, upper arms, upper legs and chest

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Mine and my son's have cleared up. It is also a good way to tell if we have been glutened, because it comes right back if we have accidently eaten gluten.

L.

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I'm glad others have had the same experience! It gives me hope that it will stay cleared up as long as I remain gluten free. I used to think I had such ugly skin, and would wear long sleeves and pants to cover it up. Now it looks nice and it doesn't get all itchy like it used to.

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Do any of you know if there are other things that can cause Keratosis Pilaris? My 9 yo son has it, but 2 doctors have said it's not diet related and he tested negative on the celiac panel. He already eats very little gluten, since we are mostly gluten-free in our house, but his skin is really bad.

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my daughter is completely gluten-free, but her legs and backs of her arms still have this... It seems to be related to ingrown hairs and the type of skin she has... we have to get her to exfoliate EVERY time she bathes and moisturize. Otherwise it looks really really bad.

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I hadn't thought about it, but yeah, mine have gone away completely too!

Nat

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There is also a condition called hyperkeratosis folliculitus. (spelling could be off) It is caused by the body's inability to digest fat properly.

L.

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I never thought about it either, but mine is gone too! I never wore sleeveless shirts because of it, and it is gone now. I actually just felt my arms while reading this post! Funny....

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i'm going to have to look at my girls arms and see if they are any better. i could have sworn that once i read that it was caused by an allergy, but i've never been able to find that info again----so maybe i was remembering wrong.

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hey guys i was just wondering, how long did it take before u noticed your keratosis pilaris had cleared up? i have it but i dont know if im gluten intolerant. im going to try a gluten free diet anyway just to see if it works but im wondering how long before i should expect (if any) improvements on the bumpy arms. please any info im desperate for these red bumps to go away!

also, does anyone know if peanut butter is gluten free? one of the ingredients im concerned about is partially hydrogenated veg oil. also, what about margarine? i keep reading different things about these foods! im new here so maybe theres a section about what foods are gluten free and which ones arent, perhaps someone can point the way?

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I've tried everything on my bumps, even those really expensive creams and prescription stuff. Finally I gave up and just went back to using Cetaphil. After being gluten free for over a month now I noticed my bumps are almost completely gone! Is it possible for keratosis (chicken skin) to be related to gluten intolerance? Anyone else see an improvement in their skin?

I am gluten intolerant (my sister is diagnosed Celiac, but I'm not tested yet) and I had these Keratosis pilaris all over my legs (especially thighs), back and real bad on the backs of my arms/forearms. Gluten made my body itchy and these bumps itched too, so I was in a constant state of itching for 25+ years. 3 days after being gluten free and the Keratosis pilaris is almost completely gone by themselves. Lotion, corn huskers and neutrogena lotion couldn't even soften them. It seems that when gluten attacks from my inside, nothing put on my rashes, DH or other stuff can help

With one week gluten free, I am fighting, among other things, a twitching eyelid (like Dreyfus on the Pink Panther movies, not that bad though). I think the twitching eye is caused by something called Peripheral Neuropathy - can anybody confirm? It also feels like something in my stomach is twitching, too. When I stopped eating gluten, the twitching greatly subsided, but has not stopped. Does anybody out there feel twitching inside their abdomen? Does the Peripheral Neuropathy go away with time?

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I have heard this is caused by a vitamin A deficiency. Being a celiac you are usually deficient in fat soluble vitamins.

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I think the twitching eye is caused by something called Peripheral Neuropathy - can anybody confirm? It also feels like something in my stomach is twitching, too. When I stopped eating gluten, the twitching greatly subsided, but has not stopped. Does anybody out there feel twitching inside their abdomen? Does the Peripheral Neuropathy go away with time?

This would not be PN. Peripheral Neuropathy affects the arms and legs and usually presents as a pins and needles sensation that can progress to a burning that is hard to relieve.

However this could definately be nerve related due to celiac, but it sounds more like a misfiring. It should resolve gluten-free but you can hurry it along by picking up a sublingual B12 and taking it on a daily basis. That will help those little synapses fuction better. The fact that it seems to be getting a bit better gluten-free is a good sign that it will resolve. Nerves can and do heal, depending on the amount of damage it can take a while though. It doesn't sound like yours has progressed to far. My nerves were so damaged that I had trouble walking, talking and had lost reflexes in my legs 40 years ago. After 6 months gluten-free I could walk unaided and after 2 years I had regained nerve function back in my legs along with reflexes and for the most part my memory.

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My 16 yo dd has had these all her life and they have cleared up since she has gone gluten/casein free. She is just left with some scars which I think will eventually fade. My 4 yo ds also has them and they are almost cleared, too. When either of them get glutened in any amount, the bumps come right back.

It is annoying because I have had both the pediatrician and an allergist tell me they were harmless and the kids should eventually outgrow them. Yet, even Wikipedia acknowledges there is a connection with food allergy - particularly gluten and dairy! (Both of these kids have tested intolerant to gluten and casein.)

Cathy

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Yes--my arms are smooth now! How bizarre.

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Hi all, I just stumbled across this forum as I've been searching the web for ideas how to help my 2yo daughter's keratosis pilaris which is really severe. I hadn't considered gluten intolerance. Is it at all possible she could have kp as the only or main symptom? Or would she have other problems that we'd have noticed before? She's had kp since she was a few months old but I've only just found out what it is. The dermatologists' advice is not helpful but the diagnosis is because having a label for it has at least enabled me to research it and find forums where people are discussing it! I had started to experiment with her diet by eliminating dairy which some people seem to have found makes their kp better, but I hadn't considered gluten. I wonder if it's worth a try.

Jo

(worried mum of kp sufferer just starting to explore and learn about food intolerances!)

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I have the same problem...twitching. it started when i was about 13. It first started in my abdomen. It was a constant thing. Now I have it in my arms legs eye head basically all over. I never considered that i may have an allergy.. i also have a severe case of KP. Has anyone tried sulfur? I here it works for kp

I am gluten intolerant (my sister is diagnosed Celiac, but I'm not tested yet) and I had these Keratosis pilaris all over my legs (especially thighs), back and real bad on the backs of my

arms/forearms. Gluten made my body itchy and these bumps itched too, so I was in a constant state of itching for 25+ years. 3 days after being gluten free and the Keratosis pilaris is almost completely gone by themselves. Lotion, corn huskers and neutrogena lotion couldn't even soften them. It seems that when gluten attacks from my inside, nothing put on my rashes, DH or other stuff can help

With one week gluten free, I am fighting, among other things, a twitching eyelid (like Dreyfus on the Pink Panther movies, not that bad though). I think the twitching eye is caused by something called Peripheral Neuropathy - can anybody confirm? It also feels like something in my stomach is twitching, too. When I stopped eating gluten, the twitching greatly subsided, but has not stopped. Does anybody out there feel twitching inside their abdomen? Does the Peripheral Neuropathy go away with time?

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I have the same problem...twitching. it started when i was about 13. It first started in my abdomen. It was a constant thing. Now I have it in my arms legs eye head basically all over. I never considered that i may have an allergy.. i also have a severe case of KP. Has anyone tried sulfur? I here it works for kp

Just to let you know, this thread is 5 years old. These posters are probably not active any longer.

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hey guys i was just wondering, how long did it take before u noticed your keratosis pilaris had cleared up? i have it but i dont know if im gluten intolerant. im going to try a gluten free diet anyway just to see if it works but im wondering how long before i should expect (if any) improvements on the bumpy arms. please any info im desperate for these red bumps to go away!

also, does anyone know if peanut butter is gluten free? one of the ingredients im concerned about is partially hydrogenated veg oil. also, what about margarine? i keep reading different things about these foods! im new here so maybe theres a section about what foods are gluten free and which ones arent, perhaps someone can point the way?

HI!

I just started Gluten-Free for about a month (with some minor hiccups) and for a period of time my arms cleared up completely. Granted I was on vaca and I dont know if the sun/warm weather had something to do with it. However, these next couple weeks will tell.

On a stickier note (concerning the Peanut Butter) I have removed PB from my diet since starting gluten free. I did this because I was experiencing discomfort after eating it. The peanut is a legume which has "similar traits to grains in their make-up; they contain phytates which inhibit nutrient absorption and cause inflammation" - source: http://www.livingpaleo.com/foods-to-avoid-on-the-paleo-diet/

Maybe you should try avoiding peanuts/PB for a couple of weeks to see if there is any difference :)

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HI!

I just started Gluten-Free for about a month (with some minor hiccups) and for a period of time my arms cleared up completely. Granted I was on vaca and I dont know if the sun/warm weather had something to do with it. However, these next couple weeks will tell.

On a stickier note (concerning the Peanut Butter) I have removed PB from my diet since starting gluten free. I did this because I was experiencing discomfort after eating it. The peanut is a legume which has "similar traits to grains in their make-up; they contain phytates which inhibit nutrient absorption and cause inflammation" - source: http://www.livingpaleo.com/foods-to-avoid-on-the-paleo-diet/

Maybe you should try avoiding peanuts/PB for a couple of weeks to see if there is any difference :)

You are replying to someone who hasn't been on here in 6 years, FYI.

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