Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


Photo
- - - - -

Anyone Else With Keratosis Pilaris?


  • Please log in to reply

22 replies to this topic

#16 ravenwoodglass

 
ravenwoodglass

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 13,790 posts
 

Posted 09 December 2007 - 05:29 AM

I think the twitching eye is caused by something called Peripheral Neuropathy - can anybody confirm? It also feels like something in my stomach is twitching, too. When I stopped eating gluten, the twitching greatly subsided, but has not stopped. Does anybody out there feel twitching inside their abdomen? Does the Peripheral Neuropathy go away with time?


This would not be PN. Peripheral Neuropathy affects the arms and legs and usually presents as a pins and needles sensation that can progress to a burning that is hard to relieve.
However this could definately be nerve related due to celiac, but it sounds more like a misfiring. It should resolve gluten-free but you can hurry it along by picking up a sublingual B12 and taking it on a daily basis. That will help those little synapses fuction better. The fact that it seems to be getting a bit better gluten-free is a good sign that it will resolve. Nerves can and do heal, depending on the amount of damage it can take a while though. It doesn't sound like yours has progressed to far. My nerves were so damaged that I had trouble walking, talking and had lost reflexes in my legs 40 years ago. After 6 months gluten-free I could walk unaided and after 2 years I had regained nerve function back in my legs along with reflexes and for the most part my memory.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

Celiac.com Sponsor:

#17 Cath4k

 
Cath4k

    Community Member

  • Advanced Members
  • PipPipPip
  • 42 posts
 

Posted 09 December 2007 - 07:13 AM

My 16 yo dd has had these all her life and they have cleared up since she has gone gluten/casein free. She is just left with some scars which I think will eventually fade. My 4 yo ds also has them and they are almost cleared, too. When either of them get glutened in any amount, the bumps come right back.

It is annoying because I have had both the pediatrician and an allergist tell me they were harmless and the kids should eventually outgrow them. Yet, even Wikipedia acknowledges there is a connection with food allergy - particularly gluten and dairy! (Both of these kids have tested intolerant to gluten and casein.)

Cathy
  • 0

#18 woolwhippet

 
woolwhippet

    Community Member

  • Advanced Members
  • PipPipPip
  • 65 posts
 

Posted 09 December 2007 - 12:34 PM

Yes--my arms are smooth now! How bizarre.
  • 0
~Ill for 5 years with progressive symptoms: anxiety, brain fog, joint pain, "D", and the noisiest stomach you've ever heard, and a lovely itchy rash on my buttocks, scalp, and sometimes thighs. ~ Family history of Celiac disease (Uncle, cousins, grandmother) ~ Blood work showed some antibodies but not enough to be dx celiac ~ Dq7 & Dq4. ~ I can't call myself Celiac but I know gluten is bad for my body.

#19 joto

 
joto

    New Community Member

  • Members
  • Pip
  • 1 posts
 

Posted 07 January 2008 - 04:17 AM

Hi all, I just stumbled across this forum as I've been searching the web for ideas how to help my 2yo daughter's keratosis pilaris which is really severe. I hadn't considered gluten intolerance. Is it at all possible she could have kp as the only or main symptom? Or would she have other problems that we'd have noticed before? She's had kp since she was a few months old but I've only just found out what it is. The dermatologists' advice is not helpful but the diagnosis is because having a label for it has at least enabled me to research it and find forums where people are discussing it! I had started to experiment with her diet by eliminating dairy which some people seem to have found makes their kp better, but I hadn't considered gluten. I wonder if it's worth a try.

Jo
(worried mum of kp sufferer just starting to explore and learn about food intolerances!)
  • 0

#20 marseemoe

 
marseemoe

    New Community Member

  • Members
  • Pip
  • 1 posts
 

Posted 29 December 2012 - 07:56 AM

I have the same problem...twitching. it started when i was about 13. It first started in my abdomen. It was a constant thing. Now I have it in my arms legs eye head basically all over. I never considered that i may have an allergy.. i also have a severe case of KP. Has anyone tried sulfur? I here it works for kp

I am gluten intolerant (my sister is diagnosed Celiac, but I'm not tested yet) and I had these Keratosis pilaris all over my legs (especially thighs), back and real bad on the backs of my

arms/forearms. Gluten made my body itchy and these bumps itched too, so I was in a constant state of itching for 25+ years. 3 days after being gluten free and the Keratosis pilaris is almost completely gone by themselves. Lotion, corn huskers and neutrogena lotion couldn't even soften them. It seems that when gluten attacks from my inside, nothing put on my rashes, DH or other stuff can help


With one week gluten free, I am fighting, among other things, a twitching eyelid (like Dreyfus on the Pink Panther movies, not that bad though). I think the twitching eye is caused by something called Peripheral Neuropathy - can anybody confirm? It also feels like something in my stomach is twitching, too. When I stopped eating gluten, the twitching greatly subsided, but has not stopped. Does anybody out there feel twitching inside their abdomen? Does the Peripheral Neuropathy go away with time?


  • 0

#21 kareng

 
kareng

    HO! HO! HO!

  • Moderators
  • PipPipPipPipPipPip
  • 14,312 posts
 

Posted 29 December 2012 - 07:59 AM

I have the same problem...twitching. it started when i was about 13. It first started in my abdomen. It was a constant thing. Now I have it in my arms legs eye head basically all over. I never considered that i may have an allergy.. i also have a severe case of KP. Has anyone tried sulfur? I here it works for kp


Just to let you know, this thread is 5 years old. These posters are probably not active any longer.
  • 0

santa-dance.gif

 

Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 


#22 Allisonivy89

 
Allisonivy89

    New Community Member

  • Members
  • Pip
  • 2 posts
 

Posted 05 January 2013 - 07:20 PM

hey guys i was just wondering, how long did it take before u noticed your keratosis pilaris had cleared up? i have it but i dont know if im gluten intolerant. im going to try a gluten free diet anyway just to see if it works but im wondering how long before i should expect (if any) improvements on the bumpy arms. please any info im desperate for these red bumps to go away!

also, does anyone know if peanut butter is gluten free? one of the ingredients im concerned about is partially hydrogenated veg oil. also, what about margarine? i keep reading different things about these foods! im new here so maybe theres a section about what foods are gluten free and which ones arent, perhaps someone can point the way?


HI!

I just started Gluten-Free for about a month (with some minor hiccups) and for a period of time my arms cleared up completely. Granted I was on vaca and I dont know if the sun/warm weather had something to do with it. However, these next couple weeks will tell.

On a stickier note (concerning the Peanut Butter) I have removed PB from my diet since starting gluten free. I did this because I was experiencing discomfort after eating it. The peanut is a legume which has "similar traits to grains in their make-up; they contain phytates which inhibit nutrient absorption and cause inflammation" - source: http://www.livingpal...the-paleo-diet/

Maybe you should try avoiding peanuts/PB for a couple of weeks to see if there is any difference :)
  • 0

#23 kareng

 
kareng

    HO! HO! HO!

  • Moderators
  • PipPipPipPipPipPip
  • 14,312 posts
 

Posted 05 January 2013 - 07:37 PM

HI!

I just started Gluten-Free for about a month (with some minor hiccups) and for a period of time my arms cleared up completely. Granted I was on vaca and I dont know if the sun/warm weather had something to do with it. However, these next couple weeks will tell.

On a stickier note (concerning the Peanut Butter) I have removed PB from my diet since starting gluten free. I did this because I was experiencing discomfort after eating it. The peanut is a legume which has "similar traits to grains in their make-up; they contain phytates which inhibit nutrient absorption and cause inflammation" - source: http://www.livingpal...the-paleo-diet/

Maybe you should try avoiding peanuts/PB for a couple of weeks to see if there is any difference :)


You are replying to someone who hasn't been on here in 6 years, FYI.
  • 0

santa-dance.gif

 

Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 





0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: