I have never posted here but read often. My son had a positive blood test for gluten back in January. His nurologist did the test because he was complx partial seizures and we wanted to rule other rhings out and the celiac test came back positve. I put in on the diet right away and he was doing great. He always had constipation since birth and we did not know why. After starting the diet he was having dailey bms. Now we are having problems again. he just went 9 days without a bm. Finally I got him to go last night because I told him if he did not go we were going to the er. I give him fiber pills 2 times a day I do not know what else to do. Has anybody else seen this. We see gi doc on Monday.
Ah yes.... Happy New Year to all, Red Bridge style... LOL
Posted 07 June 2006 - 09:37 AM
Jennifer, is it a behavioral problem that he won't go, or is he really constipated? I know that some children, especially those who have been painfully constipated in the past, develop behavioral movement holding. Another possibilty is that he is having a hard time processing casein (milk). That can lead to constipation. I hope you get things figured out soon. It sounds like you've had a hard enough time already.
My problem was always constipation, and I know how miserable it is. After going gluten-free for about 6 days, I got it back (hadn't had it in a while), and that was really frustrating because it seemed as though i should be getting better, not worse.
I ended up seeing a nutritionist and he put me on a diet that consisted of slow cooked brown rice, lots of cabbagy style veggies, nuts and seeds and fruits, and of course, some supplements. After a couple days, my constipation subsided. I don't know if it was all the fiber-food I was eating, or if it was replenishing my intestinal bacteria or what, but I'm glad that it is over, at least for now.
the other thing I found out through trial and error, is that dairy products constipated me quite badly. When I quit those, I got better.
Is he getting enough water to go with the fiber pills?
Also, you mention that he went when you told him he was going to the er if he didn't. That seems it may be behavioral. Maybe he doesn't understand that going more often is normal. Maybe he's like my son and is so busy with fun things he just doesn't want to take the time to go. I'd try talking with him about it. You don't mention how old he is, but even three year olds can tell you a lot more of when they're thinking than we give them credit for.
We just figured out that dairy is making our daughter constipated. you might try eliminating this.
If you're looking for info on how to get started on the gluten-free diet, check out this List for Newly Diagnosed. Self - Pain free since going gluten-free 9/05 (suffered from unexplained joint pain entire life), asthma improving, allergies improving, mysterious rash disappeared (probably DH) Husband - Type 1 diabetic, Negative bloodwork Son - Elevated IgA, Very high IgG, 2 negative biopsies - HLA DQ2 and DQ8 positive, Amazing dietary response since 1/06 Daughter - Congenital Heart Defect (2 surgeries), Reflux, choking issues, eczema, egg allergy - HLA DQ2 positive, Good dietary response (via me because of nursing) since 9/05 "All things happen for good for those who love God..." Romans 8:28
Accidental gluttening can cause constipation for me. Also if he was able to go when you said he would have to go to the ER, he may just be afraid to go. My boys are 7 and 4(don't have celiac), but they sometimes hold it all day until evening. I tell them to go if I think they need to, because they are just lazy. Your son may be afraid to go if he associates it with pain.
I can so relate to this. My son was diagnosed last year with Celiac and his primary symptom was constipation. When we went gluten free I assumed that he would feel better. My father is also a celiac but suffered with D and once gluten free for a few weeks, he felt much better. This did not happen for my son. After about a month gluten free, he did have daily bowel movements but at least once a month, he gets hit with another bout of constipation. It always baffles us because he is only 5 and his diet it very controlled and really does not change (I am not a very creative cooker so my meals tend to repeat , and I know they are gluten free). I do not believe he is being contaminated as we just recently had his blood tested again and it was negative for antibodies. He takes a stool softener everyday (mirolax) and I give him Yummi Bear Fiber everyday. His bowel movements are usually now soft to loose and very heavy and then out of no where, they just stop. And he will go up to a week without going. He will start with the frequent running to the bathroom saying he has to "poop" and then nothing happens. I feel as though his life revolves around pooping. He missed the beginning of his Pre K graduation this week because he was on the toilet (I don't know why the teacher did not wait for him).
We will be seeing his gastro. ped. next week. He said that he is concerned that he is still not completely well but it could just be that his body is not compleley recovered from when he was so sick. As far as behavioral issues are concerned, my doc also said that children tend to hold back the bowel movement when they feel pain. So if it somewhat hard for the child to go, and as it is passing he or she feels pain, they will kind of close of the muscles not letting it pass. I insisted that it looks like he is pushing not holding back and the doc said it is sometimes hard to tell the difference because they start out pushing and then stop from the discomfort.
Another parent on this forum, once replied to me, saying that his daughters gastro. ped. said that when a person is extremely constipated and backed up, the colon gets stretched. Therefore, once the person is better, the colon then needs to heal and get back to normal. I don't know how true this is, I never asked my doctor.
I suffered with lifelong chronic constipation. Even after my Enterolab celiac disease diagnosis and then milk intolerance test results influenced me to abstain from gluten and dairy, I STILL suffered from constipation. I 'went' everyday, but never had normal soft stools ... UNTIL I learned that untreated celiac disease depletes magnesium, which controls smooth muscle (intestines) contractions. Without adequate magnesium all the fluids and fiber in the world didn't help my constipation. While consuming LOTS of fiber, but inadequate magnesium. I twice experienced impacted stools. However with magnesium supplementation (magnesium aspartate NOT oxide which is not easily absorbed), I FINALLY have normal (soft) stools. Here's a good link about magnesium depletion and supplementation:
For more info on Magnesium, do a google search or search on this site (where I got that link). BURDEE
Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D and T3 thyroid supplement to maintain immunity.
Thank you all for replying my son is 9 and still constipated. THe GI doc gave us miralax again after I told him that we took it for about a month and a half and it did nothing other than cause leakage.