Newly Diagnosed Daughter
Posted 20 June 2004 - 04:42 PM
Posted 20 June 2004 - 05:32 PM
Welcome to the board! First I want to reassure you that yes, it is normal for her to still have diarrhea. It can take a while to heal and for the intestines to start absorbing properly again, and also she is probably not 100% gluten free yet. There is so much to learn in dealing with this disease and learning all the places where gluten can be lurking.
Don't beat yourself up for any mistakes that happen over the first few months. It can be a difficult life altering experience learning the ins and outs of a gluten free lifestyle and you will have to learn by mistakes. We have all been there and it can take a while to get used to it. Be thankful that your daughter has been diagnosed at a relatively young age and that although she has other health problems that cannot be "cured", at least this one can be fixed by a dietary change.
Feel free to ask any question you need answers to. There are many knowledgable and caring people here on this board and we all need to stick together for support. It might also help to find a local Celiac support group in your area (if there is any) and get hooked up with that. There is nothing quite like having other people you can get together with and share information face to face!
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 22 June 2004 - 05:47 AM
Thank you so much for your words of encouragement and support. I'm going through a really tough time right now, I feel instead of getting better she's getting worse, is that possible? Yesterday was especially bad and I feel for her. I'm trying to eliminate milk, cheese, sour cream, etc. to see if that could be causing her to be worse. Trying to make simple meals w/o spices, using olive oil, fresh veggies, fruit and meat. Hoping today will be better. Thanks again.
Posted 22 June 2004 - 03:26 PM
Having said that, I would agree with your instinct to make more "simple" meals that she may have an easier time with right now. Also, until you get the hang of the diet (label reading, etc.), it will help you avoid unintentional gluten ingestion.
Let us know if we can help. Also, the cooking part of this forum can have some good recipes/cooking ideas if you are interested.
Good luck. Kim.
Posted 23 June 2004 - 09:35 AM
Posted 23 June 2004 - 12:27 PM
Posted 23 June 2004 - 02:44 PM
I hope that your daughter starts improving very soon. This board has been great for me, too, and I wanted to let you know about another site as well. I hope I am writing the link correctly...let me know if you cannot get to it...it should be http://forums.delphi...celiac/messages
You have to sign up for it, but it is free. There is great support there also, as well as a lot of recipes and lists of gluten-free products. I just found out how to get to the product list today and it was wonderful to figure out what things I can use. Let me know if you try it and have trouble getting to the list and I will help you.
LISA in Wilkesboro
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