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Not Sure If I Am A Celiac
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And wheat free. I'm starting with a month off of dairy and then moving on to wheat. My question: are eggs a protein or dairy item? If they are a protein, why do they give me pain?

-Sher

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Why? I don't know...but a lot of people who are Celiacs have mentioned on this board that they feel great pain after eating eggs...as a matter of fact, that seems very common among Celiacs....don't know why, though....I just know that you're not alone in "egg-pain".

-celiac3270

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I've had serious chest pains that aren't related to my heart or lungs, and my doctor is running some tests. I've had an endoscopy with no significant results. Not sure if she is considering celiac or not, but I'm to go off of wheat beginning next month. I'm scared. I'm scared that I won't be able to cut it all out.

Anyway, thanks a lot for the info. If nothing else, it may explain why I am feeling so bad right now. I thought I was being safe with scrambled eggs for breakfast.

;)

-Sher

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I've had serious chest pains that aren't related to my heart or lungs, and my doctor is running some tests. I've had an endoscopy with no significant results. Not sure if she is considering celiac or not, but I'm to go off of wheat beginning next month. I'm scared. I'm scared that I won't be able to cut it all out.

Anyway, thanks a lot for the info. If nothing else, it may explain why I am feeling so bad right now. I thought I was being safe with scrambled eggs for breakfast.

That was one of my concerns, as well: cutting out ALL the gluten, because I knew that even a tiny bit would throw me off. When you look at it that way, it may seem challenging, and at the beginning, you might not be able to elimate everything at once...for example, at the beginning, I thought that eliminating wheat, rye, and barley was sufficient; not realizing that there was malt to contend with, as well as a slew of questionable ingredients. Therefore, to make sure you're on target when you start, look at the forbidden ingredients list on this site (it's at the site index). That's what actually got me on track, or I would possibly, to this day, not be doing it right.

I haven't heard of chest pains as a common symptom, but all of us are unique. I had a barrage of bad symptoms. The most disruptive, painful, and displeasant for me were nausea, cramping, and vomiting. Then, I also had a tremendous amount of bloating and a distended stomach. Finally, I had occasional diarrhea, tons of gas, and floating/stinky bowel movements....all common symptoms of Celiac. Since then, I'm less gassy, the bloating is gone, and all that's left is occasional (but more infrequent) diarrhea and some cramping/vomiting, but that's nearly gone, if not gone.

Don't worry about diet restrictions...the most important thing in the beginning is staying entirely gluten-free...and the beginning is when you have the least food choices. You'll find, though, that you quickly find more and more options as you go along. Especially with the use of this site and with the advice from any other Celiacs you may know in person or be able to talk to over the phone, you can eliminate the trial and error tasting of gluten-free products and find the tastiest gluten-free recipes. Now, if you're going gluten-free in a month, I'm not sure if you want it, but whenever anyone is about to start or has just started the gluten-free diet, I have a list of some really delicious products that I copy from a word document where I've saved it and post for them. If you'd like that list early so that you can have good choices from the start, let me know....I don't usually visit the Pre-Diagnosis section since I can't interpet blood results, nor offer anything about testing besides encouragement :) . Therefore, if you want the list, PM me or send me an e-mail and I'll either send it back in a reply or post it as a reply to one of your threads.....it's really overwhelming at first, but now it's second nature to me...after only about 19 weeks it's becoming harder to imagine life without Celiac. Plus, I haven't had any temptation for any gluten-filled food since the start of the diet. You'll be fine, but good luck, anyway. I'll try to help in any way I can...as I always try.

-celiac3270

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I am finding there are alot more choices out there than I thought. I have come to the conclusion that eggs must leave my diet. If I eat eggs for breakfast I will be sick all day. I thought I would try eggbeaters until someone pointed out one of the ingrediants is a laxative, don't need that!

Most mainstream and fast food restaurants have dietary information on their web pages so I basically decide what to eat before I go.

I found that if I try to keep it simple it is so much easier then I can gradually add things as I learn what my body can tolerate.

Don't worry you aren't alone! I am in my first week and I have made a few mistakes. I thought Jack in the box potato wedges were ok until I was half way through and realized they were battered!

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    • hey! Wondering if I can get some good info/help from you guys! I just signed up for this website couple weeks ago. Whenever I would Google things this was always the first to pop up and I always found info on things I googled. I am pretty new to the gluten free thing. I had a hernia surgery back in Jan and after that I kept throwing up after eating, the DR. told me it was probably acid reflex caused from surgery but all the meds I tried nothing helped. I went back and was told to cut gluten out. I have been doing so since. When I first started I felt like I had it under control and didn't throw up for 3 weeks, now I find it happening more often. I do buy gluten-free things and read labels to the best I can. My frustration comes from not knowing what its from. How do you know if its from the day before or what you just ate? I hate not knowing. Especially when I haven't had gluten (or so I think) I have been keeping a journal but I just find it so hard. I get this feeling in my stomach and can feel it in my throat. Sometimes I puke once sometimes 5 times! Yesterday for lunch I made an omlet with chicken mushrooms and feta cheese. I threw up almost 20 min after. I have also tried the no dairy thing and it doesn't seem to make a difference so I don't think dairy is an issue as well.
    • I have been on a gluten-free diet for exactly one-year. During that time, I have had no stomach issues or problems when I inadvertently ingested gluten. The other day, I had GI discomfort (no vomiting or diarrhea) and my blood pressure spiked t0 200/98 (normally 119/75). As my GI discomfort subsided, my pressure crept back to normal. This took about 16-hours. I know that I ingested something with gluten, which I had thought was gluten-free.  It never bothered me before. Should I expect that the longer I'm gluten-free, the more susceptible I will be to having a pronounced reaction to inadvertent gluten exposure? Has anyone else had similar experiences with blood pressure spikes?
    • If this is helpful: My local public library had a copy of Breaking the Vicious Cycle by Elaine Gottschall.  There is a Facebook group, I believe it is easily found by searching SCD Diet, and it's a closed group.  If you go directly to the official website of Breaking the Vicious Cycle, there's lots of information for free available, including the basics about the intro diet and beyond.  I would go to the original source of this diet rather than go to other groups/books who have perhaps veered away from Elaine Gottschall's fundamentals. Best wishes to you!
    • AdrienJ, thank you so much! I dream of traveling more one day. I have spondylitis too. I'm so glad that a gluten free and casein free diet is helping you feel your best!
    • Hi Lisa, I completely understand why you didn't do a biopsy on your daughter.  I went through the appendix thing myself...not fun!  I was diagnosed with just bloodwork and no biopsy, but did have the full panel.  I would go back to your PCP and ask for a full panel to include TTG, EMA and DGP tests.  Since she was already willing to test you, I'm sure she would be willing to order these.  Good luck!
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