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Not Sure If I Am A Celiac
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5 posts in this topic

And wheat free. I'm starting with a month off of dairy and then moving on to wheat. My question: are eggs a protein or dairy item? If they are a protein, why do they give me pain?

-Sher

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Why? I don't know...but a lot of people who are Celiacs have mentioned on this board that they feel great pain after eating eggs...as a matter of fact, that seems very common among Celiacs....don't know why, though....I just know that you're not alone in "egg-pain".

-celiac3270

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I've had serious chest pains that aren't related to my heart or lungs, and my doctor is running some tests. I've had an endoscopy with no significant results. Not sure if she is considering celiac or not, but I'm to go off of wheat beginning next month. I'm scared. I'm scared that I won't be able to cut it all out.

Anyway, thanks a lot for the info. If nothing else, it may explain why I am feeling so bad right now. I thought I was being safe with scrambled eggs for breakfast.

;)

-Sher

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I've had serious chest pains that aren't related to my heart or lungs, and my doctor is running some tests. I've had an endoscopy with no significant results. Not sure if she is considering celiac or not, but I'm to go off of wheat beginning next month. I'm scared. I'm scared that I won't be able to cut it all out.

Anyway, thanks a lot for the info. If nothing else, it may explain why I am feeling so bad right now. I thought I was being safe with scrambled eggs for breakfast.

That was one of my concerns, as well: cutting out ALL the gluten, because I knew that even a tiny bit would throw me off. When you look at it that way, it may seem challenging, and at the beginning, you might not be able to elimate everything at once...for example, at the beginning, I thought that eliminating wheat, rye, and barley was sufficient; not realizing that there was malt to contend with, as well as a slew of questionable ingredients. Therefore, to make sure you're on target when you start, look at the forbidden ingredients list on this site (it's at the site index). That's what actually got me on track, or I would possibly, to this day, not be doing it right.

I haven't heard of chest pains as a common symptom, but all of us are unique. I had a barrage of bad symptoms. The most disruptive, painful, and displeasant for me were nausea, cramping, and vomiting. Then, I also had a tremendous amount of bloating and a distended stomach. Finally, I had occasional diarrhea, tons of gas, and floating/stinky bowel movements....all common symptoms of Celiac. Since then, I'm less gassy, the bloating is gone, and all that's left is occasional (but more infrequent) diarrhea and some cramping/vomiting, but that's nearly gone, if not gone.

Don't worry about diet restrictions...the most important thing in the beginning is staying entirely gluten-free...and the beginning is when you have the least food choices. You'll find, though, that you quickly find more and more options as you go along. Especially with the use of this site and with the advice from any other Celiacs you may know in person or be able to talk to over the phone, you can eliminate the trial and error tasting of gluten-free products and find the tastiest gluten-free recipes. Now, if you're going gluten-free in a month, I'm not sure if you want it, but whenever anyone is about to start or has just started the gluten-free diet, I have a list of some really delicious products that I copy from a word document where I've saved it and post for them. If you'd like that list early so that you can have good choices from the start, let me know....I don't usually visit the Pre-Diagnosis section since I can't interpet blood results, nor offer anything about testing besides encouragement :) . Therefore, if you want the list, PM me or send me an e-mail and I'll either send it back in a reply or post it as a reply to one of your threads.....it's really overwhelming at first, but now it's second nature to me...after only about 19 weeks it's becoming harder to imagine life without Celiac. Plus, I haven't had any temptation for any gluten-filled food since the start of the diet. You'll be fine, but good luck, anyway. I'll try to help in any way I can...as I always try.

-celiac3270

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I am finding there are alot more choices out there than I thought. I have come to the conclusion that eggs must leave my diet. If I eat eggs for breakfast I will be sick all day. I thought I would try eggbeaters until someone pointed out one of the ingrediants is a laxative, don't need that!

Most mainstream and fast food restaurants have dietary information on their web pages so I basically decide what to eat before I go.

I found that if I try to keep it simple it is so much easier then I can gradually add things as I learn what my body can tolerate.

Don't worry you aren't alone! I am in my first week and I have made a few mistakes. I thought Jack in the box potato wedges were ok until I was half way through and realized they were battered!

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    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
    • Thanks cyclinglady & manasota! I appreciate it. I came to give an update...... I'm still 99% itch free. I get a "place" like a bug bite once in a while that itches and I just use the prescription steroid cream on it & that takes care of the itch. My rash is healing up rapidly everywhere. Almost clear skin now! Yaaaaayyyyyyyyyy! Now for a rundown of the "treatment". For 20 days I took a 100mg doxycycline twice a day. Then we upped it to two 100mg doxy twice per day. I took those for 5 days & made rapid progress and the itching stopped. The doxy was getting my tummy though. It was getting really rough despite my eating yogurt. So on day 6 and day 7, I took two 100mg doxy in the am but in the pm I just took 1 of them. On day 7, I was nauseous for hours on end. So since I was still doing well without itching and the rash was healing everywhere, I decided to cut back some more. On days 8, 9, & 10 I have only taken two 100mg doxy in the am and none at night. I'm doing good and my tummy is much, much happier! No more nausea!  I'll update as things go along.
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