Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

What Did You Find Most Difficult About The Gf Diet
0

What have you found most difficult about Celiac Disease   53 members have voted

  1. 1. What have you found most difficult about Celiac Disease

    • Difficulty of the Diet -- it's difficult to stay gluten-free
      10
    • Restrictions of the Diet -- there's so much less I can eat
      10
    • Symptoms -- I hate being sick all the time
      13
    • Dealing With People -- friends/family/chefs/doctors don't get it
      10
    • Emotions -- dealing with the emotions of a new lifestyle/diet
      7
    • Nothing -- I was a natural from the start!
      3

Please sign in or register to vote in this poll.

17 posts in this topic

Just interested what everyone found most difficult -- there isn't any question that I need answered, but I was just interested. Thanks for voting!

-celiac3270

0

Share this post


Link to post
Share on other sites


Ads by Google:

I was a "nothing." I do not like being sick, and learning that I can feel good like others made it very easy to avoid gluten!

0

Share this post


Link to post
Share on other sites

Beer!

0

Share this post


Link to post
Share on other sites

I was a 'symptoms'. Even after I learned my 'symptoms' were celiac related and began to avoid gluten, I had many gluten 'slips' which kept the symptoms recurring. I LOVE following the gluten free diet so I can finally heal and resolve those pesky 'symptoms'. However, I've learned the hard way about cross-contamination in 'deli's, in restaurants, and in my own kitchen! :o I've also learned not to assume health products like vitamins or toothpaste are safe. Both my vitamin C supplement and my own toothpaste contained gluten. I just recently learned about the toothpaste. :angry: So maybe the most difficult part about the gluten-free diet for me was the steep learning curve of discerning which foods and products are gluten based and/or contaminated. Hopefully, I can soon go from a 'symptoms' to a 'nothing'. Since I substituted a safe brand of toothpaste, I have been feeling better and better every day. I just experienced my first dinner after which I had NO bloating or cramping pain. So this is what 'normal' feels like ... :P

BURDEE

0

Share this post


Link to post
Share on other sites

Oops.. I put down restrictions, but I really am hating the symptons, kinda read it fast and thought it was asking just about the diet, lol.

And if it was just about the diet, I'd say everything!! But.. I'm new, I'll learn. Like all you ol' timers have, LOL. :D

0

Share this post


Link to post
Share on other sites




Loss of spontaneity. Every trip has to be planned out.

richard

0

Share this post


Link to post
Share on other sites

This was kind of a tough one for me. Initially it was the emotions, I was devastated and cried a lot. Then my best friend said..."hey, you can still have steak, seafood, chocolate and wine! What else could you ask for?" :D I guess she had a good point. Then I bought the book Wheat Free Worry Free by Danna Korn, and it was AMAZING..really helped me with the emotions, and still does at times.

Right now I would have to say that the hardest thing is lack of spontaneity. Working full time (and then some), shuffling 2 kids to afterschool activities and sports, etc...I can't just pick up a pizza on rushed nights. Often I will for them, and then skip the meal for myself or make a salad or a yogurt. There are still times that I wish I did not have to plan every ounce of food in the house.

Eileen

gluten-free since 5/10/04 (Mother's day! LOL)

0

Share this post


Link to post
Share on other sites

I have two that sort of tied, but in the end I voted for symptoms.....that's the worst and is the source of my second problem: anxiety and emotions....thanks for replying so quickly...I realize that most Celiacs hate the symptoms, and many also have anxiety or great emotions....I was just wondering which outweighed which...etc....and I got my answer....thank you again.

-celiac3270

0

Share this post


Link to post
Share on other sites

I voted EMOTIONS.

0

Share this post


Link to post
Share on other sites

I voted for difficulty staying on the diet.. and by that I mean the more unintentional ingestions. I have been trying to be gluten-free since last thanksgiving. But I am still symptomatic much of the time, I think eggs may be the culprit there... It was about 6 years that I was having the symptoms all the time, and the depression was unbearable. I figure it will take some time to heal the extensive damage that has been wrought but sometimes it's really hard staying patient. I am sure you are all familiar with struggling to resit beloved glutenous temptations only to have some other gluten source blind-side you later on. Sometimes it seems a wasted effort.. But I know it's really not because I feel worlds better emotionally. And in time I am sure I will physically too.

Well, this was a cathartic vote...Thank you.

It's nice to whine to people who can actually commiserate!! :lol:

~ S

0

Share this post


Link to post
Share on other sites

I'm with Richard -- definitely loss of spontana..spontanaei....spontananeity....grrr...

I have to plan everything now, and long road trips are a challenge. On the bright side, we've found who our truest friends are. My son's friends got on the web, bought a bunch of stuff from Ms. Roben's and stocked their cupboards with it. Isn't that cool?

0

Share this post


Link to post
Share on other sites

I'm with Richard, too--both my daughter, age 11, and I have celiac disease, and our family outings are still about as stress-filled as they were when we had a newborn in the family! I've been dx'd a while, and had things pretty well covered for myself, but it's a whole other ballgame when you have to be prepared for "food emergencies" away from home with a child. We just take a full cooler everywhere we go these days, no more popping in to this restaurant or that. Definately takes a lot of forethought!

0

Share this post


Link to post
Share on other sites

I thought dealing with people was the most difficult thing. I am a college student and my friends and dining services were so hard to deal with sometimes. They wanted to help, but I usually ended up left out or feeling so different and alienated from everyone else. Traveling with sports teams was a nightmare as well. It just made the adjustment that much harder and take that much longer.

0

Share this post


Link to post
Share on other sites

It's really difficult to eat in a restaurant unless you pick Mexican or Chinese or Japanese. They seem to put wheat starch and flour in everything. Cybergran10

0

Share this post


Link to post
Share on other sites
It's really difficult to eat in a restaurant unless you pick Mexican or Chinese or Japanese. They seem to put wheat starch and flour in everything. Cybergran10

It is difficult....and all you can eat is the boring stuff that you eat all the time: it's not any different when I eat out: it's the same steak or chicken or potato that I'd have had at home, anyway....and like Richard (lovegrov) said, nothing is spontaneous or new or different......it seems to be the same: I don't find that the hardest part, but it can get rather annoying....then again, I'm 13....so if I live a LONG time, I could have another 80 years of meat, potatoes, and gluten-free noodles...with no new sauces or toppings....ugg. I agree with Richard, and I think he, and everyone else (dana_g, ryebaby0) explained it pretty well....you can't just say "that restaurant looks interesting, let's go there." I guess the positive thing is that I never really ate out much even before the diet.

I thought dealing with people was the most difficult thing. I am a college student and my friends and dining services were so hard to deal with sometimes. They wanted to help, but I usually ended up left out or feeling so different and alienated from everyone else. Traveling with sports teams was a nightmare as well. It just made the adjustment that much harder and take that much longer.

Again, I don't find dealing with people the hardest, but I really dislike explaining to everyone. Anywhere what I eat with other people I feel like the oddball....the different one....the weird one....not so much at restaurants (cause I can meat and potatoes and a vegetable....w/o any sauces or contaminants...and look like everyone else), but if everyone else is eating pizza and I'm eating something else, I feel somewhat self-conscious.....sounds like what you said, Melody... :) ...I dislike talking about it with other people or explaining unless I have to...and when I have to, I try to keep it short and to the point.

Thanks for replying...and voting...even though the votes were spread out, it seems like everyone thinks the same way about things....like eating out and symptoms.

-celiac3270

0

Share this post


Link to post
Share on other sites

it's interesting, the thing with dealing with other people about it... I haven't had that problem, and I don't know how much is the people I've known, or the area I've grown up in, but everyone has some allergy or some dislike... "I can't have nuts", or "I destest tomatoes", or "I'm vegetarian (or vegan)", or "I can't have cheese", or "I can't stand fish", or "I don't like spicey foods", or something. Everyone has very different tastes, maybe I've been around a wider variety of that, though. ;-)

0

Share this post


Link to post
Share on other sites

Yep.....I think it just depends on the person, as well...for example, some people are more self-conscious about things, some people have understanding people around them, etc....I think it depends partially on environment and partially on the person....

In many cases, it's not that I have problems with other people, but that I feel different...when I'm eating with others who aren't really aware of celiac disease...

-celiac3270

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,367
    • Total Posts
      917,518
  • Topics

  • Posts

    • Need help with "positive" blood test results
      You'll want to keep an eye on all your vitamin levels, as absorption problems are quite common with gastritis. You've probably already looked it up, but this is the WebMD page on gastritis. http://www.webmd.com/digestive-disorders/digestive-diseases-gastritis  It's not the best article as they mention 'treating' it with antacids which is pretty much the opposite of helpful. (https://www.sciencedaily.com/releases/2002/01/020115074441.htm) If the medication they were going to prescribe is an antibiotic, you might want to reconsider. If you have H. pylori, an antibiotic is the only sure way to get rid of it. If you don't get rid of the bacteria, the B12 deficiency will worsen.  
    • 9 year Old going through testing
      Yes, ATTITUDE, in all caps, and i am in the field of health care...!
    • TTg IAG > 100 but also Hasimoto's
      Thanks for pointing all that out Gemini! I look forward to finally getting off gluten for good to see how much everything changes.  I never thought about the absorption of my synthroid with all my other issues.  I just see my primary dr. for all my thyroid, perhaps I will ask for a referral to an endo dr for further evaluation and treatment.  Thanks for all the information! 
    • Gluten And Vertigo
      Christiana, I just felt to look at the site. I thought I had clicked to get email alerts. But, actually my email has been 'fritzing' sort of.  Thank you for your note. It is important for my diagnosis. I was diagnosed with chondritis of the collar bone a few months before the fall that resulted in the immobile right arm. The osteo surgeon gave me a cortosol shot that helped a lot. That MRI showed a rotator cuff tear nearly 2/3 thru the strip of tissue that connects the muscle tissue to the bone and makes the shoulder 'rotate' in place.  That was almost a year ago now. I have been learning to be very very mindful about how I use that arm, when I reach, carefully, how I rest it and sleep position. Interesting that I did see a search answer that said ' they are saying now that there could be a connection btn rotator cuff tear and inflammed collar bone. My primary doctor also said I could have an inflammed chest wall that resulted in the chondritis. I remembered that word from a child's diagnosis years ago. That was in his knees and was treated by this same osteo surgeon, by casting the legs over summer holiday, which ended in healed x-rays. That was osteo chondritis desicans. He said then, 'if it is horses, we would have to shoot them.'  I tried to get a blood test three weeks ago for the same antibody we were treating that child with thru his then pediatritian, for rheumatoid antibodies/ recurring strep throat. I had gotten a 'sort of' diagnosis, or agreement from that primary care doctor, allowing me to get the recommended antibiotics (one of the few treatments that it is allowed, because of the need to keep the hearing). But, his new nurse did not relay the request properly. I hate doctor office politics. I hope this newbie is not going to mess with this doctor's little family as well. Last month when researching Meniere's one of the things listed about it was that autoimmune disease is connected to it also. I was hurt before the falls and the inflammation and the collar bone chondritis and the rotator cuff tear. I was very very concerned about it setting off some kind of autoimmune inflammation reaction or worse that can happen when tissue cells are being repaired rapidly and it felt like lots of toxins were being cleansed and processed over a period of many months. The only similar feeling I have ever experienced was when I had a 'deep tissue massage' to release and cleanse a cortisol 'hump' I had after a prolonged period of high family stress situation. Right now, my primary (an O.D. , or osteopath) is working with me. There are two ENTs in this area he offered for Meniere's and has given me Physical Therapy at his complex for Balance Therapy. It is great that that therapist has a MIL that is also dealing with Meniere's and getting exercises from a major hospital complex in the city. I was able to give her some celiac's diagnosis information. Sounded like her MIL and her son were likely to be candidates.  I did not know what the definition was of the term 'vestibular' as in vestibular migraine, another connection to Meniere's. I just typed www.bing.com and then typed 'definition of vestibular.' That had information about the connections btn hearing and sitting positions. I will look up costochondritis. Thank you, again. Best wishes, Anne
    • What Are Your Brands & Flavors Of Gluten Free Ice Cream ?
      I don't worry about the same facility, but I check if it is on the same lines. I think it is usually a good idea to find out if things are made on shared lines. And if they are made on the same line as gluten-containing products how good is the cleaning in between? Chocolate is a good example of this. For example, I contacted a company whose chocolate I used to eat before being diagnosed and they outright told me they are not good about cleaning on shared lines and it is not safe for allergies or celiac. I have had this response from other companies as well (especially when it comes to chocolate sadly). I think this is why Godiva is not safe. Its just a good idea to check.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,514
    • Most Online
      1,763

    Newest Member
    Katster02
    Joined