List For The Newly Diagnosed

#31 Mary Contrary

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51 posts

Posted 15 October 2006 - 06:17 PM

This is a great thread and a fantastic forum with lots of good people...I noticed so far everybody has a pretty good sense of humor as well...
I need to check on my thyroid meds and blood pressure pills I rather imagine, good advice, so many things to be aware of, coming here is going to help immensely...

Hypothyroidism since 2001
Negative Blood work celiacs
Negative biopsies for celiacs
Microscopic/lymphocytic colitis confirmed through biopsies..Dec 2006

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#32 vampella

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144 posts

Posted 18 October 2006 - 03:50 PM

Thanks for the info everyone....I now have a question that I am panicing about.

I made Emmah rice crispy squares the other day with nature's path organic crispy rice gluten-free cereal and mashmellow and vanilla. After reading a tread about preschool snacks and some said watch marshmellows I ran to the marshmellow to read it. *MODIFIED CORN STARCH* is this safe did I accidently give Emmah gluten without knowing? OMG There are so many thing to learn. I knew alot going in but there is a HUGE amount I still don't know. I hope someone answers about the modified corn starch if not it's ok. I have an appointment with the dietician (sp) tomorrow afternoon. Geez, now I feel so bad.

Char

Char

Emmah 4 years- Celiac , gluten-free October 2006

Leigh-Ann 7 Years- Gluten lite

Gary- possible celiac

#33 breann6

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115 posts

Posted 18 October 2006 - 07:44 PM

Thank you so much for making this list! this is super helpful for me as a super newbie!

thanks!

#34 Ginny

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9 posts

Posted 26 October 2006 - 04:51 PM

Thanks so much for all of this information. There is so much to learn for us newbies! Does anyone know if MAC make-up products are okay? I am addicted to their lipstick, and I really hope I don't have to give it up!
Ginny

Gluten-free 10/24/06
positive biopsy
positive IGA
Diagnosed Celiac Sprue 10/06

#35 debmidge

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2,566 posts

Posted 27 October 2006 - 01:40 AM

We also were told by Crest over the phone that their Pro Rinse may not be gluten-free.

Husband has Celiac Disease and
Husband misdiagnosed for 27 yrs -
The misdiagnosis was:  IBS or  colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups  in northern NJ  which constantly advertises  themselves as
being the "best."  This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all  fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage,  soy.
Needs to gain back at least  25 lbs. of the 40 lbs pounds he lost  - lost  a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

#36 Ozwizard182

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4 posts

Posted 04 March 2010 - 05:29 AM

Yes, I think reitterating number 1 is important - I am one of those people who has to have things done her way and done NOW, but I've come to realize after (trying to) be gluten-free for a month now, with no improvement, that this is a very slow learning process. I jsut now realized I've been using lipstick with wheat in it every day, not realizing I was poisoning myself more!

I have determined that it took me about 5 years to get diagnosed, so it will probably take about half that time for me to really figure out all the sources of gluten in my life

After your diagnosis; then after ditching the lipstick! how soon did you see results? What were your symptoms and what finally got you to the doctor?
Thank you.

#37 gluten-freedom

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12 posts

Posted 10 March 2010 - 01:58 PM

2. Sit down and make a list of all the things you CAN eat.

This is a great idea!

To it, I would add this tip that has helped me:
I typed up, in very fun fonts, a wide variety of snacks that I can have. It says "Want a Snack?" at the top, and then it has three columns below: Sweet, Savory, and Filling. Then I listed a bunch of gluten-free snacks in each column. This helps me a lot when I have an attack of the munchies!

It helps me not to feel restricted or limited, because I have in front of me a sizeable list of yummy goodies.

~H.C.
diagnosed microscopic colitis; neg. celiac blood test '02
gene test and Enterolabs test, "diagnosed" with celiac by Naturopath dr. '07
gluten-free and a-bunch-of-other-stuff-free '07-'08
no symptom change. off gluten-free diet '08
diagnosed celiac from prior test results by medical dr. '10
gluten-freedom for life! '10

#38 AlysounRI

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257 posts

Posted 11 March 2010 - 07:27 AM

I made Emmah rice crispy squares the other day with nature's path organic crispy rice gluten-free cereal and mashmellow and vanilla. After reading a tread about preschool snacks and some said watch marshmellows I ran to the marshmellow to read it. *MODIFIED CORN STARCH* is this safe did I accidently give Emmah gluten without knowing? OMG

Char:

Don't panic.
As I have understood (and someone who knows differently please correct me ...), it's anything that says "Modified FOOD starch that you have to avoid. That is very much wheat ... unless it specifies corn in which case it will say "Modified food starch (Corn)" or as your label read "Modfied corn starch"

Look on packages of jelly beans. They all have modified food starch in them. But if when I looked on the label of a box of candy valentine hearts (the one with the sayings on them) they read "Modified food starch corn" so I bought a package. They were sickly sweet and pretty gross but I knew that I could eat them as I am not sensitive to corn. Of course the corn was probably corn syrup which is not good for you but they didn't make me sick.

If I just spouted wrong info please let me know.
And correct it here.

Otherwise, I hope that's a good and clear answer for you, Char.
Happy marshmallowing

~Allison

Long history of IBS, and stomach/intestinal problems. Low on iron for all of my life.
Low on energy, with aches and pains in my joints and in my whole body for as long as I can remember.
Mostly lactose intolerant for all of my life (except for yoghurt)
Diagnosed in 2003 by naturapath as wheat intolerant. Tried it then fell of the wagon. In Feb. 2010 tried going gluten-free.
Went back to the poison in March, 2010.
Tested negative for celiac in April, 2010 (based on negative biopsy and normal tTG test). IgA tested 30-40 percent higher than normal.
Not going to fight the diagnosis because I refuse to go back to the poison. Happily gluten-free for health reasons as of April 2010, and not looking back.

#39 psawyer

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6,519 posts

Posted 07 June 2011 - 08:08 AM

As I have understood (and someone who knows differently please correct me ...), it's anything that says "Modified FOOD starch that you have to avoid. That is very much wheat ... unless it specifies corn in which case it will say "Modified food starch (Corn)" or as your label read "Modfied corn starch"

While it once was true that "modified food starch" was possibly (but very rarely) wheat, it is no longer true.

For years now, in both Canada and the US, if it is wheat that must be clearly disclosed either in the ingredients list, or in a "Contains: Wheat" notice following the ingredients.

MFS is usually tapioca or corn.

This topic was started in 2006--some information may be out of date.

Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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