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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Sooo Frusterating!
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6 posts in this topic

hey everyone....

I was diagnosed Celiac just under a year ago after becoming deathly ill... When I first went Gluten-free I added more dairy to my diet to try and gain weight, but I seemed to get even more sick... After a few months, I read about casein and tried to go casein free... So much has improved, but I just seem to always slip and make stupid mistakes that take me out of life for at least a few days.. On top of all the stress I have been going through with my body and this diet, I found out my girlfriend was cheating on me, and I cought her putting glutened seasonings in my food when she would cook so that I would get sick and not go find out what she was up to... On top of that, all this time I have been eating things that say dairy free, and lactose free, but they still have casein! Two nights ago I had some friends over and, for the first time in about a year, had some vodka... I know that alot of vodkas are gluten free, but I found that sky is not gluten free and now i'm realllly sick... I am soo frusterated with our condition and I am having such a hard time with it.. Along with all the other stress that I'v been under... I'm 25 and just feel like i'm never going to get a grip on this and live my life without sickness... I'm sick and tired of being sick and tired...

I have a quiestion.. I read that casein intolerance causes the same immune reaction as celiac, often triggering the nervous system.. The article I read stated that it causes the same igg iga reaction... Does anyone know if this is true, and if so, how do they determine celiac from casein intolerance?

Sorry, but i just have to vent today.. I try and talk to people, but no one understands what I have been going through...

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Wow...that's horrible....first off, your problems with dairy/casein/lactose, second your problems with your girlfriend, and third, the fact that rather than just try to cover it up, she actually tried to poison you! I don't really know anything about this casein thing...I've been staying dairy/lactose/casein limited...but not concerned to have some dairy slip in...just concerned with large amounts of it.

It's hard to find wheat-free/gluten-free/dairy-free/casein-free/lactose-free foods, but I've found one...and it's soy free....and it's the most delicious, realistic-tasting brownie I've ever had.....Foods By George makes this brownie....it's terrific because it is a friendly food for nearly everyone....and delicious. Technically, I only need to stay away from gluten, so I don't also have to be soy-free, dairy free, etc....but I eat it anyway, because although it's really good for those with lots of allergies or intollerances, the manufacturers didn't sacrifice taste in making it.

Are you lactose intollerant or just staying lactose/casein/dairy free to help your intestines in the healing process? If you aren't....then once you're back onto dairy and the like, try Foods By George's corn muffins....also amazingly realistic...but only wheat/gluten-free, so not good for those who need to watch dairy, as well.

Mainly, this post was to provide condolences for someone who is obviously going through a rough time. I consider it difficult to endure all the aspects of a Celiac and the gluten-free diet...and I'm a 13-year-old who doesn't need to worry about anyone sabotaging me (and actually have everyone around me on my side), and also a 13-year-old that doesn't need to deal with relationships besides those with family or basic friends....I, and most of us, have no idea.....good luck getting through all this.

-celiac3270

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Hey celiac3270:

You may be 'only 13' but you are WISE beyond your years. The encouraging posts you write to people on this message board who are struggling with 'symptoms' and frustrations of sticking to the gluten-free diet make me wonder if you should consider becoming a counsellor/therapist. ;) You're a natural! :) Maybe all your experience with celiac disease has made you very empathetic to others who are still struggling or maybe you have a great supportive network of friends and family. Whatever the source of your inspiring, supportive posts, keep them coming! :D

BURDEE

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Hey celiac3270:

You may be 'only 13' but you are WISE beyond your years. The encouraging posts you write to people on this message board who are struggling with 'symptoms' and frustrations of sticking to the gluten-free diet make me wonder if you should consider becoming a counsellor/therapist.  You're a natural!  Maybe all your experience with celiac disease has made you very empathetic to others who are still struggling or maybe you have a great supportive network of friends and family. Whatever the source of your inspiring, supportive posts, keep them coming! 

BURDEE

Thanks...I try to be helpful to others and appreciate your compliments :) . I think experience and a great family has helped me....I'll try to keep helping....

-celiac3270

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Hey Delta... man, that's harsh. Sorry to hear your girlfriend did that to you... but I can tell you for sure, anyone who does something like that to anyone... making you sick intentionally in order to cheat on you... that's LOWER THAN LOW!

ANYONE like that is not worth your time of day.

I know what you mean about getting down, and I come on the board to vent too because not a lot of people w/o celiac really understand. Anyways, just wanted to give you a word of encouragement. Hang in there, vent whenever you have to, and just keep on doing your best. I know what its like. I'm 20 and so around your age, so I do know the challenges. Good luck and I hope things get better for you.

Newbie

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Hey Delta, I, too, got very sick trying Vodka. If you want a drink now and them try Bacardi Rum. When my husband and I want a drink now, we have that and it doesn't seem to bother me at all. Believe me I know how difficult it is to stay gluten free, I"ve been that way (almost) for three years), but it really is worth it. As for the girlfriend, dump her and go on with your life. I'll just bet there are plenty of women out there who would jump at the chance of a good relationship with a Celiac. My husband stays gluten free with me for 2 1/2 years and we've been together since 1956. Just look for a kind girl who can adapt to reality and don't look back. Your mistakes will become fewer and fewer and you will feel better after a couple of years. I wish you the best luck. Shirley in San Diego

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    • Weird Reaction
      Hi Cristiana, You are quite right, there could be something wrong with the batch. I have often wondered this myself when I've had symptoms. A lot of manufacturers recall products when they find contamination issues, I often wonder though, how many products 'sneak' under the radar and no-one knows for sure; it could be the reason why so many of us wonder what we did to get 'glutened'. 
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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
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