Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Protein Powder Workout Shakes
0

19 posts in this topic

Does anyone know of a gluten-free (and hopefully MSG free) protein powder supplement or meal replacement? I called a few manufacturers and they assured me there was no gluten but I still get a little reaction. Getting back into working out I tried so far "Muscle Milk" by CytoSport, and now "IsoPure" by Nature's Best. I realize that ideally I should be cooking up wild salmon or other meat but that's not always convenient. I don't see a problem with whey or soy protein right now but then again I'm new at this.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Dan, I am reading a book called 'The whole Soy story', and apparently, soy protein will turn to glutamate (or something like that, I am too lazy right now to go and check). Anyway, if you use soy protein, you get glutamate, that I remember, because I was quite flabberghasted by that.

I've given up finding protein bars. You may want to buy a jerky gun and make yourself some meat jerky, that would be much better for you than any protein bars!

0

Share this post


Link to post
Share on other sites

Thank you for your reply Ursula, I appreciate that. For me that is extremely valuable information because a lot of my symptoms are neurological in nature as you can see in my signature. I've been trying to find out where the three killers are "glutamate, cysteine, aspartate" since I read that "Excitotoxins" by Blaylock. I'm sorry to hear that soy is so bad though too. I'll have to get a hold of that book you mentioned.

So I guess whey protein is ok? Robb Wolf mentioned that there is often cross contamination in milk products but he didn't say much about it.

0

Share this post


Link to post
Share on other sites
Thank you for your reply Ursula, I appreciate that. For me that is extremely valuable information because a lot of my symptoms are neurological in nature as you can see in my signature. I've been trying to find out where the three killers are "glutamate, cysteine, aspartate" since I read that "Excitotoxins" by Blaylock. I'm sorry to hear that soy is so bad though too. I'll have to get a hold of that book you mentioned.

So I guess whey protein is ok? Robb Wolf mentioned that there is often cross contamination in milk products but he didn't say much about it.

Dan-

Celiacs tend to cross react with dairy. Its autoimmune/food sensitivity stuff not lactose intolerance. Most of these things fall under "Frankenfood" IMO. It makes snacking and fast food problematic at times but that is emblematic of our lifestyles: no time to feed ourselves properly. You might try a plain egg white protein from bioplex but it tastes awful! I'd stick with real foods!

0

Share this post


Link to post
Share on other sites

protein options:

  1. beef jerky, pretty easy to make and keeps for months though it takes prep work (please don't use a jerky gun for this - cut the meat and dry it in your oven, but don't use a gun to "squirt it out", just cut the meat into strips!)
  2. gluten-free protein bars - search the forums for the posts that list a number of them, and there are a number (since I can't have dairy, I tend to go with ruth's flax bars when I want the most protein)
  3. hemp seeds and flax seeds - in yogurt, on salads, in smoothies, etc.
  4. protein powders - go straight powder and add fruit/veggies, instead of buying an "all in one" mix for a healthier, less-chemical ridden, option. since I can't have dairy and minimize soy, I go with either rice protein power (MLO or one at Whole Foods), Peaceful Planet's amaranth/quinoa/millet one, or Hemp Protein powder (expensive, but balanced), other options are pure whey, or soy, or egg (and if you check the ingredients, you shouldn't have much trouble verifying gluten-free status)
  5. hard boiled eggs - they'll stay good in the fridge for 4-5 days, and all you have to do is stick a bunch of eggs in a pot, turn it on, don't let it get quite to boiling (180F is perfect), turn it off, then take the eggs out 30 minutes later), you can cook a dozen at a time!
  6. make extra chicken and kept leftovers around to grab out of the fridge!

0

Share this post


Link to post
Share on other sites




protein options:
  1. beef jerky, pretty easy to make and keeps for months though it takes prep work (please don't use a jerky gun for this - cut the meat and dry it in your oven, but don't use a gun to "squirt it out", just cut the meat into strips!)
  2. gluten-free protein bars - search the forums for the posts that list a number of them, and there are a number (since I can't have dairy, I tend to go with ruth's flax bars when I want the most protein)
  3. hemp seeds and flax seeds - in yogurt, on salads, in smoothies, etc.
  4. protein powders - go straight powder and add fruit/veggies, instead of buying an "all in one" mix for a healthier, less-chemical ridden, option. since I can't have dairy and minimize soy, I go with either rice protein power (MLO or one at Whole Foods), Peaceful Planet's amaranth/quinoa/millet one, or Hemp Protein powder (expensive, but balanced), other options are pure whey, or soy, or egg (and if you check the ingredients, you shouldn't have much trouble verifying gluten-free status)
  5. hard boiled eggs - they'll stay good in the fridge for 4-5 days, and all you have to do is stick a bunch of eggs in a pot, turn it on, don't let it get quite to boiling (180F is perfect), turn it off, then take the eggs out 30 minutes later), you can cook a dozen at a time!
  6. make extra chicken and kept leftovers around to grab out of the fridge!

GenSoy Vanilla Protein Powder is yummy & gluten free!

Enjoy

0

Share this post


Link to post
Share on other sites
protein options:
  1. beef jerky, pretty easy to make and keeps for months though it takes prep work (please don't use a jerky gun for this - cut the meat and dry it in your oven, but don't use a gun to "squirt it out", just cut the meat into strips!)
  2. gluten-free protein bars - search the forums for the posts that list a number of them, and there are a number (since I can't have dairy, I tend to go with ruth's flax bars when I want the most protein)
  3. hemp seeds and flax seeds - in yogurt, on salads, in smoothies, etc.
  4. protein powders - go straight powder and add fruit/veggies, instead of buying an "all in one" mix for a healthier, less-chemical ridden, option. since I can't have dairy and minimize soy, I go with either rice protein power (MLO or one at Whole Foods), Peaceful Planet's amaranth/quinoa/millet one, or Hemp Protein powder (expensive, but balanced), other options are pure whey, or soy, or egg (and if you check the ingredients, you shouldn't have much trouble verifying gluten-free status)
  5. hard boiled eggs - they'll stay good in the fridge for 4-5 days, and all you have to do is stick a bunch of eggs in a pot, turn it on, don't let it get quite to boiling (180F is perfect), turn it off, then take the eggs out 30 minutes later), you can cook a dozen at a time!
  6. make extra chicken and kept leftovers around to grab out of the fridge!

Tiffany, Would you mind sharing how to make jerky? I'd like to try to make some. Thanks, LindaLee

0

Share this post


Link to post
Share on other sites

I've posted the recipe on my recipe thread:

As Promised, A Few Recipes

0

Share this post


Link to post
Share on other sites
I've posted the recipe on my recipe thread:

As Promised, A Few Recipes

Tiffany, whoops, I posted to the other site. Thanks for the recipe and I was wondering if you think it would be good without the liquid smoke. I tried it before and didn't care much for the taste but if you think it makes the jerky, I'll get some more . All the recipes sound great!!! LindaLee

0

Share this post


Link to post
Share on other sites

Hey all, thank you for your posts. Sorry I took so long to respond.

protein options:
  1. beef jerky, pretty easy to make and keeps for months though it takes prep work (please don't use a jerky gun for this - cut the meat and dry it in your oven, but don't use a gun to "squirt it out", just cut the meat into strips!)
  2. gluten-free protein bars - search the forums for the posts that list a number of them, and there are a number (since I can't have dairy, I tend to go with ruth's flax bars when I want the most protein)
  3. hemp seeds and flax seeds - in yogurt, on salads, in smoothies, etc.
  4. protein powders - go straight powder and add fruit/veggies, instead of buying an "all in one" mix for a healthier, less-chemical ridden, option. since I can't have dairy and minimize soy, I go with either rice protein power (MLO or one at Whole Foods), Peaceful Planet's amaranth/quinoa/millet one, or Hemp Protein powder (expensive, but balanced), other options are pure whey, or soy, or egg (and if you check the ingredients, you shouldn't have much trouble verifying gluten-free status)
  5. hard boiled eggs - they'll stay good in the fridge for 4-5 days, and all you have to do is stick a bunch of eggs in a pot, turn it on, don't let it get quite to boiling (180F is perfect), turn it off, then take the eggs out 30 minutes later), you can cook a dozen at a time!
  6. make extra chicken and kept leftovers around to grab out of the fridge!

Thank you Tiffany, that's very helpful:). I'll have to check out those protein bars, and do myself a favor and prepare some stuff to stock the fridge. That detail on the HB eggs is good because I could never cook them to where the shell comes of easily.

Robb,

I can see that I do have a little bit of reaction with milk products which, like you said, is common with celiacs. You're right, I would be wise to cut it out of my diet but I'll probably use it for the time being for convenience and because I just bought some. I admit I'm a bit hessitant to try cooking up meat everyday like I did two years ago (because Albertson's meat is bad too often). Also, I ate some "premium" canned salmon a week ago and I had a huge reaction for 1 1/2 days. Not good. But I guess I'll have to learn to use less milk stuff.

0

Share this post


Link to post
Share on other sites

Folks,

RE: Related dairy sensitivity

At my appointment a few weeks ago, doc said the gluten causes the villi to matt down. The digestive actors for dairy are at the tips of the villi, so they are not out where they need to be to do their job.

- Henry

0

Share this post


Link to post
Share on other sites
Folks,

RE: Related dairy sensitivity

At my appointment a few weeks ago, doc said the gluten causes the villi to matt down. The digestive actors for dairy are at the tips of the villi, so they are not out where they need to be to do their job.

- Henry

So he was saying to stay off dairy until the villi heals?

0

Share this post


Link to post
Share on other sites

When I was diagnosed, my doctor told me to begin a gluten-free, dairy free diet. (I had already been dairy free for some time, though).

0

Share this post


Link to post
Share on other sites
So he was saying to stay off dairy until the villi heals?

The reason is that lactase, the enzyme that breaks down the lactose milk sugar, is produced at the tips of the villi. When the villi are damaged, they cannot produce lactase. Once they have regenerated, they can produce the enzyme again. So, yes, once you heal, if you produce enough lactase naturally, you can go back on dairy, if you're not also casein intolerant.

0

Share this post


Link to post
Share on other sites
The reason is that lactase, the enzyme that breaks down the lactose milk sugar, is produced at the tips of the villi. When the villi are damaged, they cannot produce lactase. Once they have regenerated, they can produce the enzyme again. So, yes, once you heal, if you produce enough lactase naturally, you can go back on dairy, if you're not also casein intolerant.

my specailist told me the same thing, im lactose intolerant too so hopefully it wont be too long before i can have mik again.

0

Share this post


Link to post
Share on other sites

Its not just the lactose. We grain feed our dairy herds and this concentrates many of the lectins found in corn, rice and wheat into the dairy. Many, many celiacs continue to express abnormal villi when on a seemingly gluten free diet because of items like protien powders, yogurt, keifer etc. If you can find a grassfed dairy source this coudl be a viable alternative but it is exceptionaly hard to find. Please not that "organic" dairy is NOT grassfed! They are simply feeding these cows organic grains. Here is a link to a newsletter from Prof. Loren Cordain that explains the role of lectins in autoimmunity and the EGF recoptor:

http://www.thepaleodiet.com/newsletter/new...rVol2Issue1.pdf

I know these are staple, convenient tasty foods but if you are still not feeling as good as you would like I'd really use some caution with how you incorperate them into your diet. Even Quinoa, which is botanicaly not even a grain, has a protien fraction that can be an irritant in celiacs:

http://www.ncbi.nlm.nih.gov/entrez/query.f...l=pubmed_docsum

0

Share this post


Link to post
Share on other sites
Hey all, thank you for your posts. Sorry I took so long to respond.

Thank you Tiffany, that's very helpful:). I'll have to check out those protein bars, and do myself a favor and prepare some stuff to stock the fridge. That detail on the HB eggs is good because I could never cook them to where the shell comes of easily.

Robb,

I can see that I do have a little bit of reaction with milk products which, like you said, is common with celiacs. You're right, I would be wise to cut it out of my diet but I'll probably use it for the time being for convenience and because I just bought some. I admit I'm a bit hessitant to try cooking up meat everyday like I did two years ago (because Albertson's meat is bad too often). Also, I ate some "premium" canned salmon a week ago and I had a huge reaction for 1 1/2 days. Not good. But I guess I'll have to learn to use less milk stuff.

The premium salmon wasn't Kirkland was it? LLee

0

Share this post


Link to post
Share on other sites

eh... hardboiled egg shells never come off that easily. I find it a bit easier when they're properly cooled, and I take some time, then rinse them under water to get the little bits off. it's an inexact science, and usually not always pretty, but it gets even less pretty once I pop them in my mouth! ;-)

0

Share this post


Link to post
Share on other sites
Its not just the lactose. We grain feed our dairy herds and this concentrates many of the lectins found in corn, rice and wheat into the dairy. Many, many celiacs continue to express abnormal villi when on a seemingly gluten free diet because of items like protien powders, yogurt, keifer etc. If you can find a grassfed dairy source this coudl be a viable alternative but it is exceptionaly hard to find. Please not that "organic" dairy is NOT grassfed! They are simply feeding these cows organic grains. Here is a link to a newsletter from Prof. Loren Cordain that explains the role of lectins in autoimmunity and the EGF recoptor:

http://www.thepaleodiet.com/newsletter/new...rVol2Issue1.pdf

I know these are staple, convenient tasty foods but if you are still not feeling as good as you would like I'd really use some caution with how you incorperate them into your diet. Even Quinoa, which is botanicaly not even a grain, has a protien fraction that can be an irritant in celiacs:

http://www.ncbi.nlm.nih.gov/entrez/query.f...l=pubmed_docsum

Thanks again Robb, I read the article where it talked about lectins. Lately, I've been so focused on avoiding glutamic acid that I forgot about the lectins. Do know if the lectins can damage the BBB or spinal column?

I just read the amino acid profile of milk (I'm not sure denatured or raw) but the main aa was glutamic acid! ARGHH! Is there a protein source that doesn't have glutamate (or what is the one with the least)? I've googled amino acid profiles for eggs, fish, but can't find good info.

I'll try to find a source for grass fed cow milk. I think I came across one yesterday in fact, but it was a powder supplement. Eating cheese (Mozzarella by Precious) gets me fairly bad reactions. Is this because cheese is basically concentrated milk protein with the above amino acids and/or lectins?

Another thing, I read that produce farmers now spray a growth enhancer called Auxigro on "ORGANIC" produce and contains 30% MSG.

http://truthinlabeling.org/IVhistoryOfUse.html

Is there no way to avoid glutamic acid?

The premium salmon wasn't Kirkland was it? LLee

I used up the can and threw it out so I can't tell you for sure who made it, but if I had to guess, it was probably "Bumble Bee".

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,588
    • Total Posts
      918,276
  • Topics

  • Posts

    • Last posted 2013 - Improving health
      I am glad you are feeling so much better!  Your posting will encourage others.  Thank you!
    • Last posted 2013 - Improving health
      When I first started this journey, roughly 11 yrs ago with symptoms, I had no clue. Eventually, having no luck with doctors (hypochondriac or psychosomatic), I googled my symptoms over and over looking for something... ANYTHING... that would give me a clue. Among other issues, my insides would not move, I was turning gray, felt like death, and had a persistent cough. I can't remember who but someone had posted on the forum and I found some of my symptoms. Eureka, I immediately began a gluten-free diet to see if it made any difference. Of course that was a journey, not realizing what products contained gluten. Long story shorter – first I went gluten-free, symptoms began to reappear, then it was soy (first organic was okay, then not), symptoms reappeared, took out corn, symptoms reappeared, then it was all grains. So the last couple of years I have been grain-free plus no sulphates. Actually, truth be told, my Celiac pharmacist gave me the recipe for health. I asked her if she liked a certain product. She answered, “I don't know, I have never tried it.” I asked her what she did use. She replied, “Nothing out of a box, a bag, or a bottle.” And that has pretty much been my life for the last couple of years. There is the odd product I try but it always has an after effect and I have to way the consequences against the enjoyment of it. I am one of those who react to 1 crumb in the butter, flour dust in the air, sulphates in anything, sometimes things that don't even seem like they would be a problem, like avocados and blueberries when I am contaminated. January 2016 I began this recitation. It is now May 5th, 2016 - Here I am 4 months later and I feel like screaming to anyone who will listen, “Things are improving!! My gut is healing!!” So what happened?? Someone suggested digestive enzymes. My insides were so compromised that I couldn't eat much besides fruit, veggies, and meat; all plain, all without being touched by people other than me. I could barely stand salt at times when I was compromised. Haven't been to a restaurant in years since I am not in a city that would have one to cater or understand this much of a problem. I started digestive enzymes but I read the label wrong and started with 5 first thing in the morning. Whatever... I began to notice improvements in what I could eat. Not anything different but just that I could eat without feeling ill or having my gut shut down. I stayed on those for a month and a half.. then I picked up a parasite from someone living in a very unclean apartment and visiting there and helping to clean. Well, that was a huge battle. I had to eat to discourage parasites. But in the process my insides began to heal dramatically. I was eating blackberries, drinking garlic keefir (which I couldn't have done 5 mths ago and gave me the first clue my insides had improved substantially), drinking oil of oregano or peppermint oil drops in a glasses of water, eating cabbage and green roughage. Drinking water with apple cider vinegar in it and Aloe Vera juice. After a couple of weeks my insides were a whole different story. I had a feeling of wellness that I hadn't had for years! I FELT like trying to eat something different. So I decided to try Gluten-free Rice Chex. Haven't had them in years.... and I am so happy! I can eat them!! (Not to say they are healthy, cause they are processed crap) but I didn't get sick and that was the amazing part. So now I am beginning to try a few things that would have set me back previously, I have made my own crème brulee because I have always been able to eat eggs. But the sugar was causing problems, but now it's okay. The issue I have now is that I want to try things too fast so I am having to exercise restraint. So here is it – parasites are very common, everyone has them however whether they cause problems depends on your immune system. Does it not makes sense that they would cause leaky gut? An over abundance in the gut would destroy gut tissue and take nutrients from a person and possibly put holes in the gut leading to food reactions? Digestive enzymes help to destroy the protective coating around parasites. Foods that discourage them or kill them are blackberries, garlic, cabbage, oil of oregano, peppermint oil, aloe vera juice, Braggs apple cider vinegar and more (google to find). I found medication didn't do anything so I turned to all the other. So this is how it is today. I don't suggest it is the answer to anyone else's problems but when I found this site, hidden in the posts was the beginning of the answers for me.  I may still be gluten, soy, corn intolerant but I am feeling so good now and I just thought I would tell someone.  I just wanted to share. Thanks for reading.
    • Endoscopy in 9 days after being low-gluten for a year. What to eat?
      Not to mention my hips and knees are killing me and I have really bad calf pains and horrible bloating after just 3 days of glutening. I don't think I could live like this for a whole week.
    • Endoscopy in 9 days after being low-gluten for a year. What to eat?
      I saw my gi today and he said to not worry about eating gluten. I have abdominal pain in the small intestine area and referred pain in my back, indicating pretty bad damage. So I'll just go without the gluten and do the genetic testing if needed.
    • Vagus Nerve Attack
      Hello All: I came across this series of posts from as Google search on "Wheat Vagus Nerve". I find all of your replies very interesting and would like to add mine for those searching for information but with differing symptoms. I have struggled with the vagus nerve impact to breathing as Maria mentioned in the original post, but only an impact to breathing and nothing else.  But my symptoms were brought on not only by wheat, but also by other ingredients such as dark chocolate, probiotics, caprylic acid, mustard, fluoride in toothpaste/mouthwash just to name a few.  I found when I sat down my breathing would return to normal, but as soon I got up, the impact would return. The impact to breathing would come 4-6 hours after ingestion and last for about the same amount of time.  At times I could not even take ten steps without having to stop, not being able to breath even moderately.  The symptoms now are decreasing in severity but not in duration. My doctor checked my blood for celiac and results were negative. A number of chest x-rays to rule out COPD.  I am waiting on an appoint with an allergy specialist in a few weeks to see what they have to say.  Needless to say, it is difficult to maintain a healthy weight. Thanks for your posts, and I hope my contribution is of benefit to others also.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,683
    • Most Online
      1,763

    Newest Member
    Rainbow60
    Joined