Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

The Doctor Just Called This Moring. Lots Of ?s
0

4 posts in this topic

I'm new here and confused! My just turned 7 year old son tested positve on his first blood test two weeks ago. The results from the second test when they tested for more antibodies came back today negative. I'm not real clear on what this all means!

Here's some background info. When Luke was 1 he was on antibiotics for a year. Even in utero I knew he was a very, very active child! We refuse to have him tested for ADD because we don't want that on his record. And we homeschool anyway so we won't give him the drugs. For the past 6 months or so he has been complaining of a tummy ache. And it keeps getting worse. And that his bones hurt. I started journaling things and it always happens after meals. We already know he is sensitive to dairy, red dye #40 and white refined sugar. He is tall for his age and very, very, very skinny! The doctor did not want to test him because he is 50% for weight and she insisted that Celiacs are always below the charts and not even on them. And he's too old to be tested! I insisted and she finally gave in. I could hear the shock in her voice when she called me with the positive results!

Anyway, now we have the first test as positive and then he tested negative for the next 2 antibodies. This doctor is not our regular doctor and she didn't explain things well at all. I KNOW there is something not right with my son. She suggested doing a gluten elimination test with him and see if he improves. Can he be gluten or wheat sensitive and not Celiac? If I make him gluten free should we see results relatively soon? I welcome any advice you have!!!

Anne

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hey Anne,

It would be helpful to know which antibody tests came back positive and which did not and exaclty what the numbers were to better answer your question.

It is possible to have a gluten sensitivity with out having Celiac disease.

Isn't it a pain how the doctors are unwilling to test for this unless they see those 'classic' symptoms?

My little two year old is finally going in for an endoscopy next week, he has been having trouble since last June.. when I took him to the GI he was totaly dismissive until we reintroduced gluten and he had a reaction.. so we have had to have him on gluten for the last 2 months..

My oldest sounds just like yours! He is 8, skinny as can be and ADD.. I also homeschool. I am waiting till this test on the 2 year old and then we will get the other ones tested..

A great book for you to get is

Kids with Celiac Disease by Danna Korn. It explains alot and has been helpful to me.

Again knowing what tests came back as what wil help us answer those other questions.

0

Share this post


Link to post
Share on other sites

Thanks for the reply! I called the office to ask what was positive and what was negative. The nurse said the anti-gludin antibodies were postive and the anti-endomezial antibodies were negative. They couldn't remember the other negative and the tests weren't at that office. Sorry about butchering the spelling!!!!

Annie

0

Share this post


Link to post
Share on other sites

Annie, my new little grandson was diagnosed at about 2 months with gluten sensitivity and allergies to milk and dairy, through Enterolab. It was so painful to see him suffering each time he drank his formula. By 6 months (and off all gluten, milk and dairy) he was at the 90th %ile for height and the 75th%ile for weight. He thrives, as long as no one accidentally gives him forbidden foods. I'll be hoping that your little ones thrive too. Welda

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,649
    • Total Posts
      918,467
  • Topics

  • Posts

    • Biopsy confirmed?
      Sorry  To give you more info I had the endoscopy because I was diagnosed last year with Barretts Esophagus and gastritis. I've been on medication since but still had issues so they went back in to check how everything was going and to make sure the Barretts hadn't turned into anything nasty. I had a celiac blood test in 2014 ( negative) and the endoscopy in 2015 didn't show lymphocytes in the duodenum well that's if he biopsied that. I also had a colonoscopy with this years endo and all of that came back fine - I thought if I was celiac that would be affected also? As far as I know the biopsy only showed lymphocytes (white blood cells?) in the duodenum no damage to the villi but he used many big words that I didn't understand so he could have said more. With the blood test all I know is that I had a blood test for Celiac - I didn't know there were different tests for it. I'm a complete newbie with all this stuff so I just don't get what questions to ask him.  I'm so impatient I just want to know. I have a big family, a husband that is FIFO and I'm a stresser. 
    • Help interpreting biopsy results after gluten-free for 7 months
      Hi there, Just got my follow up biopsy results after being dx with celiac 7 months ago (dx with blood test + biopsy). Could anyone help interpret these new results as the doc wasn't much help... Basically he said good news is it looks like gut has healed up due to gluten-free diet. Bad news is that he has no explanation as to why I still have all of my symptoms.  Any help interpreting the attached results would be greatly appreciated. Thank you
    • Celiac.com: Signs and Symptoms of Celiac Disease
      By now, you've likely heard about people going gluten-free, ridding their diets of foods such as pastas, breads, cereals, and processed foods that ... View the full article
    • Biopsy confirmed?
      Right, usually they do an endoscopy after a positive blood antibody test.  The biopsy confirms the antibody results.  Doing them in the reverse order doesn't hurt anything though.  Sometimes people "fail" the antibody tests but still have gut damage.  Not everybody makes the same antibodies or in the same quantities.  Anyway, you should make sure they are doing the complete celiac antibody panel, not just a ttg test. And don't worry if the celiac tests are positive for gliaden antibodies.  Going gluten-free is an adjustment to your diet. Quite a few people around here have managed to adjust successfully.  It takes some effort, but anything worthwhile does they say.
    • Celiac Night Vision
      I don't have scotomas but you might find more help on a forum dedicated to vision issues.  Here are a couple I found.  the last link is a Yahoo search for "eye forum"  There may be others found if you try a search on Google. http://www.medhelp.org/forums/Eye-Care/show/90 http://www.healthboards.com/boards/eye-vision/ https://search.yahoo.com/yhs/search?p=eye+forum&ei=UTF-8&hspart=mozilla&hsimp=yhs-003
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      60,741
    • Most Online
      1,763

    Newest Member
    Roemill
    Joined