Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

When Can I Eat Dairy/lactose/casein
0

9 posts in this topic

Since being diagnosed in February, I've been limiting my dairy/lactose....I am not lactose intolerent, so I have not been strictly adhering to a 100% lactose-free diet :) . Rather, I've tried to limit my lactose intake. For example, earlier in the diet, I had a big bowl of straberry icecream (made by Haagen Dazs, so I know it was gluten-free)...and I got sick that night. Therefore, I started eating a soy icecream, which tastes okay. I don't avoid all dairy, but avoid large quantities of dairy whenever I can. I don't dare to eat a whole bowl of icecream to find out if I'm okay with dairy now -- I still have symptoms...in case that is a sign of whether or not dairy is okay -- I know all Celiacs are different, but how long did you or would you recommend staying off dairy/lactose? Thanks.

-celiac3270

0

Share this post


Link to post
Share on other sites


Ads by Google:

If you're not caseine sensitive, you might try using 'lactaid' supplements when you consume dairy and/or lactaid milk instead of regular milk. I learned I was lactose intolerant about 10 years ago and have used "lactaid" sucessfully every since. ;) I sure wish someone would have suggested gluten intolerance back then. :o 'Sorry I couldn't answer your original question about how long to avoid lactose ... I just started avoiding gluten 9 weeks ago. :huh:

BURDEE

0

Share this post


Link to post
Share on other sites

celiac3270,

I have been gluten-free since Nov.,03 and lactose -free for 5 months.

Since I relly started to notice a difference in my physical problems, ie,

have lost 10lbs and am almost totally pain free, I thought I would

try dairy again, so I had some Yoplait yogurt yesterday and began experiencing

"brain fog", which is enough to say..no way, not again. I haven't been

tested so I can't tell what part of dairy is bothering me. Perhaps I will

later on down the line, I haven't tried the Lactaid because i'm feeling so

well that I don't want any more challenges. I found that I can live without

milk, I use soy or goat's milk and can eat small amts of hard cheese, mostly

Cheddar. Hope this helps and I hope you are feeling better. :D

0

Share this post


Link to post
Share on other sites

Good to know....I've been lactose-limited for almost 5 months, as well....I haven't avoided dairy altogether, but, like I said in my post, avoided large quantities.....thank you for sharing your experiences with it...I guess I'll be avoiding it longer than I initially expected to....thanks again.

As for my symptoms.....still there. I had another episode of cramping and vomiting.....ten times less severe, but still there....as long as they're less harsh, though, I can deal with this for now.

-celiac3270

0

Share this post


Link to post
Share on other sites

celiac3270:

My son (who is 10) just saw his GI yesterday and we asked the very same question. He was DX the same time as you, but has additional immune-system problems. Anyhow, his doc still wants him off dairy (we were soooo bummed). It isn't just an issue of healing; premature exposure to dairy can -- sometimes -- set off an actual allergy to milk (casein or lactose) that you didn't previously have. Or that's my understanding of what she said. A summer without ice cream. Ick! :) We're going to buy stock in Philly Swirl !

Joanna (and Patrick)

0

Share this post


Link to post
Share on other sites




celiac3270:

My son (who is 10) just saw his GI yesterday and we asked the very same question. He was DX the same time as you, but has additional immune-system problems. Anyhow, his doc still wants him off dairy (we were soooo bummed). It isn't just an issue of healing; premature exposure to dairy can -- sometimes -- set off an actual allergy to milk (casein or lactose) that you didn't previously have. Or that's my understanding of what she said. A summer without ice cream. Ick!  We're going to buy stock in Philly Swirl !

Joanna (and Patrick)

Yikes! Thank you for the warnings.....is it bad for me to be consuming any dairy? Like I said, I eliminated bulk amounts of obvious dairy...like creamcheese. Is it bad to have some dairy in my diet?

-celiac3270

0

Share this post


Link to post
Share on other sites

If you're casein intolerant, or allergic, then yes, any dairy would be a bad idea. If you're just lactose intolerant, then probably not, even if you don't use lactaid. (It varies by person.) It depends on the root cause... (I'm having trouble figuring out dairy too, but haven't worked real hard at it... eliminating all casein will be tough for me! ;-) )

0

Share this post


Link to post
Share on other sites

oh, okay...I'm not allergic...thanks.

-celiac3270

0

Share this post


Link to post
Share on other sites

After being 6 months diary free, my lactalbumine went negative, my caseine IgA dropped half down and caseine IgG remained almost the same as before. So, perhaps one year diary free and my antibodies will be ok. Just to give you an idea. I'll have another bloodwork next week, so I'll see more then.

MARK

gluten-free/CF since September 03

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,092
    • Total Posts
      920,314
  • Topics

  • Posts

    • WOW.  That looks eerily familiar.  Last December the temporary provider here at my local (rural) clinic gave me doxycycline to experiment with, but it was a mere ten milligrams.  Lol, no wonder it didn't help!  I'm glad you're feeling better.
    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,123
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined