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Desperate With Burning Skin
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I am getting a little desperate. I have everyday periods of time when my skin is burning mostly my face and upper body. I am extremely heat intolerant. I have an irritable/sore throat and soreness under both arms. This has been going on for 3 1/2 months. The drs. here (I live in the Netherlands) cannot tell me what is wrong. I was diagnosed with IBS 12 years ago. I never had nor do I have a problem with diarrhea. I am occasionally constipated and frequently have gas and bloating.

The drs here can't tell me what is wrong. The ideas so far are: Its a nervous condition, I have a food allergy, I have leaky gut syndrome but no one is offering tests or solutions.

Have any of you had burning skin and heat intolerance as a symptom of your gluten intolerance.

Any ideas would be greatly appreciated

Larry

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Hi Larry and welcome to this board. Well, I've had burning skin, but it wasn't only from the celiac disease, I have other food intolerances, too.

You don't have to have diarrhea to have celiac disease, though. IBS is one of those garbage diagnosis the doctor gives you when he doesn't have a clue what's wrong with you, and is too lazy to figure it out. There is a reason for your bowel to be irritated. Leaky gut syndrome is also caused by something, and celiac disease always results in leaky gut!

Why don't you try going gluten-free and see if it helps? It could very well help your intestinal problems. But you might have other intolerances as well.

I would start with eliminating the gluten and dairy, and then go from there.

With me, the salicylates were the culprit when it came to the burning skin, and the sore throat was caused by lectins (gluten is one of them). The soreness under your arms could be swollen lymph nodes (which I had as well).

Follow the links in my signature to find out more.

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Rosacea can also cause a burning , scalded look & feel to the skin.I know before going gluten-free my rosacea felt & looked like I had been scalded.And anything could stir this demon up for me! Having just a normal conversation one minute , then bang my upper torso was on fire......

mamaw

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I get burning on my face, shoulders, and upper back. I dont know if I get it from gluten ingestion....for me its mainly from MSG and Sulfites. It also causes IBS symptoms, tissue swelling in my upper body and a bunch of other symptoms. Alot of aching in my shoulders and my whole upper body. The burning happens on my tongue too. Not fun at all. Oh yeah...I get the aching under my arms too....its swollen lymph nodes.

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Thanks to everyone for your input. Ursula, thanks for the info and the links. It is 29 degrees C here (84 F) and I am so heat intolerant. I feel as if I am burning up. Does anyone also have such extreme heat intolerance as a result of gluten or other intolerances? In the past I have always loved summer and enjoyed the heat.

Larry

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I used to be more heat intolerant like that. It seems better for me now though. High humidity and heat still get to me, but moving from Houston helped with the humidity issues.

When I was pregnant with my last baby I developed a rash similar to the one you are describing. It covered my ear, side of my face, neck, shoulders and upper arm. I couldn't stand to have anything touching it and this was in the late fall in Wisconsin. I was wearing a strappy tank top and no coat at 5-6 months pregnant because it hurt so badly to have anything touch.

Derm and my rhuem couldn't figure it out. It eventually went away after spending aboout $100 on various creams and ointments. None of whihc helped all that much. Ice packs proabably helped more, except then it was soooooo dry. I used a spray on cream (Eucerin) and kept myself slathered up with that.

Sorry i can't help anymore than that. Mine only lasted about 4 weeks. Good luck, I hope it goes away soon

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I am getting a little desperate. I have everyday periods of time when my skin is burning mostly my face and upper body. I am extremely heat intolerant. I have an irritable/sore throat and soreness under both arms. This has been going on for 3 1/2 months. The drs. here (I live in the Netherlands) cannot tell me what is wrong. I was diagnosed with IBS 12 years ago. I never had nor do I have a problem with diarrhea. I am occasionally constipated and frequently have gas and bloating.

The drs here can't tell me what is wrong. The ideas so far are: Its a nervous condition, I have a food allergy, I have leaky gut syndrome but no one is offering tests or solutions.

Have any of you had burning skin and heat intolerance as a symptom of your gluten intolerance.

Any ideas would be greatly appreciated

Larry

Hi Larry,

The skin burning was my primary symptom of Celiacs! It burned for me, just as for you, on my head, face and scalp mostly. The pain was unbearable. I once went to the emergency room for the agony (my first and only trip) because I knew that type of pain meant something very serious. I think presenting with burning rather than itching skin is why diagnosis took so long. Had I presented with hives or itching that might have been more in line with a traditional food allergy. My GP offered only to give me anti-depressants and did not express any curiosity about why my hair was falling out and my whole body sometimes felt like it was on fire, why I had so many gastric symptoms and why, at the time, I was bleeding rectally. Even when I scratched an itch, my skin felt like it was sunburned.

I have been gluten/casein/dairy/soy free for a few days now and the symptoms are moderating. With my naturopath's permission, I am taking an allergen free supplement to help heal my intestines and give my hair some vitamins!

Please keep heart! I am so glad you reached out! I believe my symptoms will slowly subside once my healing has some real traction.

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I have had burning skin for over a year now. It started out on my feet and progressed to my legs and then all over. I have discoid lupus so the doctor thought it turned systemic in my skin. I have red cheeks as well. I started to notice when i would eat i would burn. So,now i have cut out the gluten, for three weeks. It feels a little better, but still there.

I can't tolerate heat or the sun either.I think it may be a combo of my lupus and celiac. I go back to the doc on the 5th of Dec.

Can they test you for celiac?

When he first did my blood work, my glycoprotien was elevated. If you look that up they talk about the gluten and celiac.

I am sick of feeling this way!!

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I had an incident like you are describing with burning skin from using an herbal supplement with kelp.

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Hi, Larry...sorry you're having so many problems.

I can't help with the skin burning part of your question, as I've never experienced that, but the heat intolerance could be a sign of Grave's disease, which is an over-active thyroid. (It's an autoimmune disease like celiac, rheumatoid arthritis, MS, asthma, and many others.) It can be detected by a blood test, so maybe you'd want to do that to rule it out.

Regardless, I hope you find some help!

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    • Yes!  With dairy, celiacs can often have a temorary lactose intolerance due to damaged intestinal villi (where the enzymes normally are released to digest lactose).  Of course you could be naturally lactose intolerant based on race or age.  It is best to stick to a whole foods diet while you are healing.  Really, is ice cream or potato chips going to provide you with nutritional value?  Stick with naturally gluten free foods like meat, fish, fats,  veggies (even those with carbs like sweet potatoes or winter squash) and fruit.  Avoid that processed junk as you may react to the additives right now.  Later, you can add back in dairy (test) and other foods you miss and crave.   Good luck!  
    • Take a deep breath and calm down!    The incidence of cancer with Celiac Disease is rare.......it can happen but the vast majority of people never have that experience.  You may have somewhat enlarged lymph nodes due to inflammation from undiagnosed Celiac but that will all calm down and go away once you get going on the diet.  Believe me, there are many of us that have things happen during the diagnosis and early recovery period and everything turned out just fine.  There is an elevated risk for some cancers with Celiac but that risk goes back to that of the general population after a couple of years on the gluten-free diet. I cannot remember the exact time frame but it is somewhere between 2-4 years, I think.  So many of us went years without a diagnosis and when it was all figured out, we have gone on to be healthy with little complications.  Really...do  not worry about this.  Concentrate on learning all the ins and outs of this disease and how to live gluten free happily.  We are here to help you and guess what? The diet is not as bad as some make it out to be. Many things can be made gluten free and are every bit as good as their gluten counterparts. The diet may not be convenient but it is not hard. I would not lie to you!   
    • Well....one common symptom that most celiacs have when they are diagnosed (or undiagnosed) is anxiety.  So, there is a risk of cancers, but science has demonstrated that that risk goes down on a gluten free diet (if you have celiac disease).  In goes down to the same risk as those without celiac disease.   I kind of was a basket case.  I drive my family a bit crazy because I was anxious.  I felt a bit stupid too.  I guess I had a little brain fog going on too.  All that resolved after I healed. Welcome to the fourum.  Read our Newbie 101 thread under "Coping" (pinned at the top of the page) and learn about hidden sources of gluten and cross contamination.  I think most of us do not worry about cancer. We mourn the freedom to eat anything anywhere!   I did not have swollen lymph nodes, but I am sure others have and they did not have cancer.  Hopefully, they will chime in and set your mind at ease.  If not, you can search for "lymph nodes" at the top of the page (little magnifying glass).  There are lots of members with the same issue!  
    • I was recently diagnosed as having celiac and to be honest the part I'm having the most trouble with isn't the change in food or lifestyle. I'm really upset about what I've read about the risk of cancer increasing with celiac disease. I think this is playing into my fears because I currently have lymph nodes all over my body-my Doctor says they are not considered swollen or concerning, but I don't usually feel nodes. The lymph nodes and horrible diarrhea for the last 3 weeks were what got me into the the doctor for lab work. My blood work came great so I'm wondering if anyone else experienced lymph nodes reacting when they found out they were celiac? Also how do you deal with anxiety surrounding the increased risk of cancer? Thanks!
    • Wow I'm gonna be a skinny Minnie in no time rather than a bloated and confused Thankyou I'll try look at these images 4 days gluten free
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