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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity

Celiac With Siblings

4 posts in this topic

My next oldest sister has IBS symptoms similar to my own, younger brother gets terrible migraines, and my oldest sister can't gain weight plus I just found out from my mother that my oldest sister was taken of wheat when she was an infant because she had a bad reaction to it, but then the reaction went away so they put her back on it again. Add to this the fact that her daughter has seizures and they don't know why! I think all my siblings should get checked for Celiac since I had positive blood tests and the new diet seems to be showing some improvement, but my siblings all seem to want to stick their heads in the sand and say, "Not me, I can't have that!"

Now I might be wrong, but isn't gluten intolerance always a lifelong condition? Why would the doctors suggest putting my sister back on wheat again? Just because the Diarrhea went away doesn't mean she isn't still sensitive, right? Maybe that was the state of medical knowledge back then, this would have been oh, 35-40 years ago.

So anyway, I wish that I could convince them to get a blood test or something, but I think the prospect of facing a lifestyle change like that is too much for them to face. I guess when their symptoms get severe enough maybe they'll get checked out! But I was wondering, I know that Celiac is a genetic thing but does anybody know the odds for a sibling of a Celiac to be a Celiac? Maybe hard numbers will help convince them to get checked out! :unsure:


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Off the top of my head the odds of any first-degree relative having it are 1 in 33, but it becomes much, much more likely if a relative has symptoms. Both of my siblings got tested (negative) but then they had seen how suddenly I had gotten deathly ill. My father, with no obvious symptoms at all, was positive.



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My Daughter was confirmed via endoscopy with celiac in March. I begged my brother to have his daughter tested because she also had the same symtoms. I BEGGED my brother. I BEGGED my brother. My Niece was also confirmed in May with Celiac. I have came to the conclusion that you can only do what you can do as my mom and dad refuse to be tested. I come from a big family and my sisters do not want to have anything to do with even the thought of having Celiac. So I have came to the conclusion that life is to short to worry about anybody else as their health depends on their own decisions.



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My brother was diagnosed about 45 years ago and was told he would "outgrow" celiac back then. I was told many years ago that I would have to watch for it in myself and my children but so little was known back then it took 4 years and Child Protective Service investigating my mother as they thought she was not feeding him, before they found a doctor who made the Celiac connection. None of us siblings were tested then and after many years of wondering I have finally decided to be tested myself. I can say that what took so long was the thought of never eating bread or pizza again- I thought the face of celiac was my brother and I couldn't have what he had. I am overweight the pictures of him as a child looked like something from a third world country. A little knowledge I found after researching the Hashimoto's that I had made me realize that I most likely didn't have IBS or a very 'sensitive' stomach after all.

I have been gluten-free for a month now and feel great- unfortunately I will have to go back to be tested but no matter what I am sure I have found my answer. I haven't had a migraine, stomach ache, ect. in a few weeks now. I just wish my brother or my mother were alive to talk this over with, my father doesnt' remember it all but he and my husband really think I should be tested so that I will not be tempted to say well just this little bit won't hurt.



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      2012, prior to negative biopsy = Tissue Transglutaminase Ab IgA ---24.0 ---- <20.0 RU/mL = normal
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