Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

My Psychologist Is Interested In Celiac Connection


Nantzie

Recommended Posts

rinne Apprentice
{{{{{HUGS}}}}}} and thank you everyone for posting your stories. Thank God for this forum, for celiac becoming more known about, and for everyone here who makes this forum such a wonderful, comforting and welcoming place to be.

I have found it incredibly helpful to hear each person's story Nancy, this is a wonderful thread, thank you to everyone.

All I can do is pray for him, love him sooo much, try to get my life together at 45, take the best care I can of my other son and husband. The ache is always there, though. I hope as I heal, maybe he will see it and become convinced. It seems like an elusive dream to feel happy & healthy and to have a happy & healthy family sometimes. Sorry, I am having a bad day.

Robin, your story brought me to tears, I am so sorry that you have suffered in this way and continue to.

When I was a very young woman I gave up custody of my son to my ex-husband, I was incapable of raising him and very afraid that I was, as my mother had told me repeatedly, "just like your father". My father was alcoholic, violent and abusive. To say that I hated myself for what I did in abandoning my child cannot express the years of grief and shame I felt not to mention how broken my heart was. I know that the decision gave him a better life than I could have and I know he would have lost one parent anyways but that doesn't lessen the sorrow. Through his growing up years we had visits and for the most part those were O.K. but by the time he was 21 his anger at me was overwhelming for him. He let me know then what he thought of me and we did not have any contact for just over ten years but in the past year we have begun to talk again, I realize now that I am being given another chance and I am grateful.

I rarely speak of this to those I do not know well. It has been my experience that what I did is so horrifying to people, to mothers particularly, that I have been repeatedly judged for it. I recall an Oprah show, which was at least 15 years after I gave up my son, on non-custodial mothers and the audience for the most part was incredibly hostile.

I feel that what we can do for those we love and have hurt is to heal and to become the loving people that we most deeply want to be. Robin, I hope your son will see the changes in you and come around. 21 does seem to be the age when the world is most clearly black and white and judgments are easy to make.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 80
  • Created
  • Last Reply
DingoGirl Enthusiast
This thread is so unbelievably moving and I don't know where to begin, I was to the brink of suicide so many times I cannot count. I would have D, joint pain, brain fog, severe headaches for a week, then like the sun shining through clouds, I would have a couple of good days and wonder -What the heck was THAT?-Then, it all would begin again like a vicious merry-go-round of blackness. My marriage suffered and my relationship with my children, especially with my oldest son, suffered. He barely speaks to me now. The pain of that is almost unbearable sometimes. I am convinced he has celiac along with type 1 diabetes, but he has the same rages and irrational behavior that plagued me, and barely even checks his blood sugars let alone try to go gluten free. He prefers to think I was a miserable mom for sending him to live with my former husband, his dad, when he was a teen, but really I was at the point of losing my mind completely at the same time he was having teenage angst. He is 21 and angry and lashing out and I see what is happening to him (and see so much of myself) and am powerless to do a thing. He considered me a lazy, hypochondriac, nut-case even now and quite frankly, I don't blame him. All I can do is pray for him, love him sooo much, try to get my life together at 45, take the best care I can of my other son and husband. The ache is always there, though. I hope as I heal, maybe he will see it and become convinced. It seems like an elusive dream to feel happy & healthy and to have a happy & healthy family sometimes. Sorry, I am having a bad day. Many thanks to you all, I honestly don't know what I would have done if I hadn't stumbled on to this forum. When I think of how I was six months ago-ready to die and writing my own obit-no kidding--it makes me very humble and thankful to God.

ROBBIN - dear soul - - this could have been written by me. Am going to PM you....

Link to comment
Share on other sites
  • 2 weeks later...
eLaurie Rookie
I hope as I heal, maybe he will see it and become convinced.

Robin, this is part of my prayer for you and your son. That you will heal gluten-free, that your relationship will heal, and that he will be inspired by you to better care for himself.

God bless, dear sister,

Laurie

Link to comment
Share on other sites
ravenwoodglass Mentor

Something happened yesterday that brought me to tears and I thought I should share. My DH and I have lived seperately for 15 years now. I have always blamed myself for the split, the mental effects of gluten had me frankly 'nuts' for years and living with me was like living with a time bomb. My DH was always placid and seemed to not be bothered by anything. The years of guilt for tearing my family apart during the time I was on seizure drugs and antidepressants was incredible. We were talking yesterday, my DH has now been gluten-free for a few months. I had noticed he was more alert and that his mental functioning had improved but as he had been resistant toward the thought that gluten was causing a mental problem "It's just the way I am" I had not talked to him about the changes I saw. He said yesterday that now that his gluten fog has finally lifted he realizes that his withdrawl had just as much to do with our difficulties as my mood swings did. He never realized how severely depressed he was until he wasn't anymore. He was in such a fog that if I didn't call to remind him to feed the kids when he had them at his house he wouldn't even think about it. I thought for a long time that he just didn't care about anyone other than himself, not the case at all. My whole family is just starting to realize the extent that gluten impacted us all, and with that understanding has come a level of forgiveness that I never thought would be possible. Not just for others but for ourselves as well. I am hoping that this occurs for other families as well. Who would have ever thought that a family rife with mental illness would recover their health and sanity just by avoiding a food.

Link to comment
Share on other sites
jerseyangel Proficient

Ravenwood, That is amazing news. I wasn't aware that you and you husband lived apart. What a shame that all this time you were both so deeply under the influence of gluten. That makes me sad. I lived with the same kind of fog that must have seemed, on the surface, to look like indifference. I hope that now your family will come to a place of healing. Thanks for sharing that--it does go to show how profoundly gluten can affect our lives.

Link to comment
Share on other sites
rinne Apprentice

Ravenwoodglass, thank you for sharing that. How wonderful to come to a place where forgiveness and compassion are present not just for others but for ourselves.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.



  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,061
    • Most Online (within 30 mins)
      7,748

    Stephanie Thompson
    Newest Member
    Stephanie Thompson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Zackery Brian
      I'm sorry to hear about the challenges you've been facing with your health. Dealing with celiac disease and multiple food sensitivities can indeed be overwhelming. Here are a few thoughts and suggestions based on your experience and the replies you've received: Confirming Diagnosis: It's great that your gastroenterologist confirmed your celiac disease diagnosis through additional tests. Understanding the specifics of your condition can help tailor your approach to managing it more effectively. Food Sensitivity Testing: While blood tests for food sensitivities can provide some insights, they may not always be completely accurate. As mentioned by others, false positives are common, and individual responses to specific foods can vary. Discussing your test results and symptoms with a healthcare professional knowledgeable about celiac disease and food sensitivities can help clarify your situation. Research and Education: Exploring conditions like Mast Cell Activation Syndrome (MCAS) and histamine intolerance could shed further light on your symptoms and provide additional avenues for managing your health. Gathering information from reliable sources and discussing your findings with your healthcare team can help you make informed decisions about your care. Dietary Management: Managing celiac disease and multiple food sensitivities can be challenging, but finding a balance that works for you is crucial. Working with a dietitian who specializes in celiac disease and food intolerances can help you develop a personalized dietary plan that meets your nutritional needs while minimizing symptoms. Stress Management: Chronic pain and health issues can take a toll on mental and emotional well-being. Finding healthy coping strategies to manage stress, such as mindfulness, relaxation techniques, or engaging in activities you enjoy, may help improve your overall quality of life. Remember, you're not alone in your journey, and seeking support from healthcare professionals, support groups, or online communities can provide valuable encouragement and guidance.
    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
    • Moodiefoodie
      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
    • knitty kitty
      @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And   Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6814863/ And The gut microbiome-joint connection: implications in osteoarthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6903327/ Sounds like it's time to change the diet to change the microbiome.
    • knitty kitty
      @Shireen32,  Take some deep breaths.  Your labs are fine!  Your tTg IgA is so low!  Well done!  Your endomysial IgA is fine.  There's not a level on the endomysial test.  It's just "yes or no" for if you have celiac disease.   No, it's too early to call it refractory. What are you eating?  Please tell us more than meat and veg. Do you consume dairy? Do you consume processed gluten free foods?   Are you taking any prescription medications, herbal supplements, vitamins and minerals?  
×
×
  • Create New...