Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Need Advice
0

9 posts in this topic

Hi Everyone..I am new to this site and was diagnosed with celiac disease (the worst case my gastroenterologist has ever seen) in November 2003. Have been gluten free since January 2004 and am not sure what I am doing wrong. I always had the constipation problem, I eat a lot of beans and vegetables and nothing seems to work. The problem has actually gotten worse since being gluten-free. I have tried laxatives and stool softners and they don't work either. I had a colonoscopy the same time as the endoscopy (which determined the celiac disease) and the colonoscopy was normal. Anybody else out there with this problem. Also severe lower back pain the last three weeks. HELP! Thanks, Christine

0

Share this post


Link to post
Share on other sites


Ads by Google:

You might try going on a low residue diet for a couple of weeks to give your intestines a break. Google the term for more advice, but the basic idea is that you eat little or NO fiber (or complex carbs) so that your body is absorbing ALL of what you eat, and not having to clear out the waste that can't be digested. I don't suggest this for a long term solution AT ALL (though there are a handful of medical conditions where it's warranted), and probably wouldn't do it more than two weeks AT MOST, but it helped me.

I would also highly encourage you to talk to your doctor about this further incase there is a physiologic problem that needs to be addressed.

0

Share this post


Link to post
Share on other sites

Hey there,

I know the problem - have been living with it for way too long... Over the years I've found a few specific foods that I can eat that basically manage to, er, clear the system out after its been blocked up for a few days. Certain types of yogurt are great - I find Onken in particular works like a treat. If I can't get my hands on that, then cranberry juice does the trick. Another thing, drink loads of water. And someone on this board gave me a great tip a few months back that is useful: if you are constipated, try massaging your 'lower left quadrant' I think they referred to it as. Basically I can feel that my left side is solid and my right side isn't if I massage hard enough. I find that a good twenty minutes or so of massaging at night and in the morning stuff seems to be sorting itself out.

Hope some of the above helps you out - when you've been on the diet longer I guess you'll strike lucky as I have and find certain foods that seem to work for you. Hang on in there...

Take care,

Jasa

0

Share this post


Link to post
Share on other sites

I have to massage all of my stomach, but it does help me. I start at the groin on the right side, massage up to the ribs, across, then down the left. I keep repeating for 15-20 minutes, every night. When I'm really constipated, I feel the blockage, and it hurts. If you take antihistamines for allergies, it could very well be the cause, or at least a contributor.

0

Share this post


Link to post
Share on other sites

I've found that dried apricots can be very moving. Try five a day.

0

Share this post


Link to post
Share on other sites




I've had my problems too and forgot about masaging the stomache. My massage therapist showed me that. Is there something else like eggs maybe that's causing it? Hugs, Carol B (who just got her test results from enterolabs. Positive for gluten sensitivity, milk casein allergy and I have the gene)

0

Share this post


Link to post
Share on other sites

Christine: Constipation was one of my main celiac symptoms (besides pain, bloating and gas), so I've dealt with that one over the years. Are you taking calcium or iron supplements (which also influenced my constipation)? I started taking magnesium supplements for regularity several years ago. That mineral helps with muscle contractions. In Europe doctors often recommend magnesium and Vitamin C for constipation. If you're getting plenty of vegetable/fruit fiber and liquid, you might just need magnesium to help the intestinal muscle contractions and absorb more water into the stool. I second the suggestion about drinking lots (2-4 liters per day) of water. There are also a few great gluten-free high fiber cereals which helped me. Ener-G Foods Rice Bran cereal (19 grams of soluable fiber per serving) can be cooked as a hot cereal. I add a little Quinoa flakes, which makes the mixture look/feel like cooked oatmeal. Also Nu-World Amaranth makes a great cold cereal from Amaranth which is low carb, high fiber (9-10 grams of fiber per serving) and low calorie. It looks like Cheerios and comes in peach, original and strawberry flavors. I have also successfully used dried plums (OK prunes), but who hasn't?? ;) I can empathize with your struggle. So many celiacs have diarrhea as their main symptom, so gluten-free breads and cereals are SO low in fiber. I've really searched for higher fiber cereals and tried to increase my fiber consumption with cereals, fruits, vegies and water. Good Luck! :)

0

Share this post


Link to post
Share on other sites

Hi everyone! I am new to this board (in terms of posting), been checking out the site over the past few months and finally joined in!

I am a Licensed Massage Therapist and when I read this post I wanted to make sure that anyone who applies self abdominal massage is doing it in the correct direction as Dessa describes - clockwise, as this is the normal flow of your intestines.

Going in a counter clockwise direction can only move the blockage backwards, defeating the purpose!

0

Share this post


Link to post
Share on other sites

I also wanted to mention that aloe vera juice is good for constipation as well as coconut. Both of those are great in smoothies. Hugs, Carol B (thanks for the reminder of massage direction)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,691
    • Total Posts
      921,764
  • Topics

  • Posts

    • Are you vegan or vegetarian?   I am concerned about your lack of protein and fats in your diet.  These diets can work when you are also gluten free, but as a celiac you can be malnourished.  It is hard to heal when you are slowly starving yourself.   No offense, but some newly diagnosed celiacs end up with food disorders.  Perhaps working with a dietician can help.   What actually are your blood glucose levels?  Did you know that just as Hashimoto's is common with celiacs, so is type 1 diabetes?   Ask your doctor for antibodies testing for Type 1 diabetes (TD1), if your blood glucose levels are not in the normal  range.  You can develop TD1 (LADA) at anytime.   For adults there is a "honeymoon" period which can last for up to five years.  Be on the watch for other AI issues (besides TD1) too.   It is so important to monitor your health after a celiac disease diagnosis!  
    • He was not IGA deficient.  I'm still hoping we can convince the base GI to approve his referral.   Thanks for that thread about TTG Igg.  That's exactly what I was wondering. 
    • Star Anise Foods  rice paper and spring rolls are gluten free they have brown and white rice versions. I have not had issues with these in the past when I used to use them. Should be able to find them on amazon.
    • Hi strawberrymoon, If you are having a blood sugar problem, that can cause nerve damage and tingling.  Nerve damage is often associated with diabetes.  You can ask your doctor to check your A1C level to get an idea how it has been doing. It would probably help your glucose levels to stick with a paleo style diet, avoiding most carbs.  Carbs and meats have a different affect on blood glucose.  Carbs tend to spike blood glucose while meats even it out. There are a lot of negative changes that can happen with high blood glucose.  It is wise to try and get it under control ASAP.  My brother has lost most of his vision in one eye now from high blood glucose.  And he has the tingling symptoms you described.  The tingling can progress to pain in time.  My brother chose to ignore his diabetes and is paying the price for it.  He is doing better at it now but the damage is done. Yes, B-12 deficiency can cause those kind of nerve symptoms.  But if you have high blood sugar that is the more common cause.   Diabetes is not a rare condition.
    • I have been living in Ho Chi Minh City, Vietnam, for two years, and finding gluten-free food is proving more difficult than I thought, even if I am cooking my own food. Wheat flour, called "bot mi" in Vietnamese, seems to creep into a lot of stuff nowadays. What's more, manufacturers do not feel it is important to list bot mi in the ingredients on a food's packaging unless it is a principle ingredient in the food. In other words, soy sauces or wraps with just a tiny bit of wheat flour added to add a touch of thickness or pliability are not guaranteed to list the ingredient. For some genetic reason, Vietnamese people are not nearly as susceptible to food allergies as Westerners - it probably has something to do with exposure to less hygenic foodstuffs having built up an immunity over hundreds of years - so it is not really considered important to split hairs in that department over here. Anyway, I love rice paper but have often gotten glutened by it when I have it. Can any celiac who could tell if a product had gluten by more than just the ingredient list on the back let me know a definitively gluten-free rice paper brand? I know that very few rice paper brands actually list wheat flour in the ingredients, but I don't 100% trust the ingredients list for products made by Vietnamese companies. Call me paranoid. By the way, I have a neurological condition that irreversably breaks down my immune system when I ingest gluten, so I don't want to experiment with trial by fire here.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,695
    • Most Online
      3,093

    Newest Member
    ToniaC
    Joined