Inconclusive Test Results?
Posted 16 January 2004 - 05:37 PM
Posted 16 January 2004 - 06:13 PM
Posted 18 January 2004 - 10:59 PM
As many of you probably experienced, you go through quite a few doctors before
they can figure anything out. One doctor I have been going to for 15 years had never even heard of celiac disease before and asked if I could fax him all the information I had at home to him!!! I did it right away so no other patient of his would have to go through the ignorance of another doctor.
I was actually diagnosed about a year and a half ago, recently took another test,
to find out if my gluten level has decreased and the office actually misplaced the test for a whole week. I consider this normal, kinda sad don't ya think.
Anyway, my level went down, but not as much as I had hoped. I am even more diligent about my diet and have learned greater things on this site than anywhere else.
You have to remain positive and think about you while sorting out the diet, the change in lifestyle, i.e. going out, to tell or not to tell, getting over the depression, etc. In the end, the payoff is how much greater you will feel after you make the changes and get on with your life.
It is also fun to know how much more you know than the doctors and they wasted thousands of dollars and years of their lives and didn't learn about something so common in Europe that all newborns are tested for celiac disease.
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