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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Does This Sound Like Dh?
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9 posts in this topic

I have not been diagnosed with celiac disease; I am trying to diagnose myself (and my daughter) before I pay for the blood work (which I will do).

I have these red round patches on my skin. They started this year. They are mostly on my abodmen; but I also have a few of them on my legs. I would say it is mild. Sometimes they itch; sometimes they do not. They get very dry and scaly.

Pictures of DH on the internet look like my skin, but I do not have the intense itching that I've read about. Could this possibly be a mild case of DH or does DH always have intense itching?

Thanks!

Jennifer M.

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Almost immediately after I went on a gluten-free diet, I started getting these nickel sized red areas on my stomach and thighs. They don't itch.

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This doesn't sound much like the DH I had. First, the stomach is not a common place to get DH. Second, everybody I know who has DH says it itches like crazy -- I once heard iot described as the equivalent of something like playing poison ivy and then rolling in a wool blanket filled with red ants. That's about right. My DH never got dry and flaky; instead I would develop blisters filled with clear fluid. And I assume my DH was rather mild because I was able to control it with minimal doeses of dapsone.

richard

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The dry, scaly patches might be psoriasis. DH is more blistery, and for most people the blisters pop and ooze. I have both. I only get the DH when I have a gluten accident, but I've had problems with psoriasis on my elbow, ankle, and scalp for years. I would ask the doctor about it if I were you.

God bless,

Mariann

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I had DH extremely bad on my arms from about the time I was 6 until I was maybe 11 or 12. The itching was unbareable and in the mornings I would usually wake up with blood all over my arms from scratching them so much. My doctor thought it was psorisis *since I wasn't diagnosed yet with Celiac* and so he would perscribe medicine for it that would just make it burn and itch even more. To say the least....it's not a fun thing to have, but I still to this day have no idea why it dissappeared when it did, since I was still consuming gluten.

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DH can actually come and go. My father had it for years and years. Then it just went away for several years, only to return. This was all before we knew the DH-celiac disease connection.

richard

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Oh thank heavens I found this place. I have finally found the answer to my problems big time. I have a twin sister with Celiac Sprue, but she does not have the skin problems that I have. I also have SLE, Systemic Lupus. I have a positive ANA for Lupus big time. I have a very servere itchy blistery rash on my hands and feet big time. The blisters break and ooze big time. I have to been running to my doctor constantly, because man I can not work with this problem at all. He put me on all kinds of medications to clear this up and nothing at all has worked. My twin sister saw my hands this weekend and told me straight up that I am glutan sensitive. I decided to listen to her and I immediately made another doctors appointment for yesterday and addressed this with him and he looked shocked and said, "That is it, why didn't I think of that"? He immediately ordered blood work and told me to get on a glutan free diet immediately. I can not drink milk or eat eggs what so ever without becomming immediately and acutely sick. Well what do you think? Sorry if this is rambling, but I am so glad to have found this site.

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DH is typically on elbows and knees, but I get the blisters on my hands when I feed our pet rabbits. Their food has wheat in it and sometimes I forget to wash my hands after I handle it. I have also gotten the blisters from contact with types of grass on my legs and feet. I am on a gluten-free diet so I don't get the other breakouts at all. Good Luck!

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I have a similar 'does this sound like dh' question.

I'm on gluten to prep for a biopsy next month (was gluten-free for 8 months and all my symptoms cleared up, have positive blood so other than the biopsy, everything else points to celiac).

I don't think I've ever had dh before but I do get both ecxzema and psoraisis. This week is very stressful for me and I'm noticing I feel much more sick after the gluten this week. I've broken out into a 'rash'. It started on my back and back of neck and now it's mostly on my arms (forearms, shoulder joints and hands) and the tops of my knees). The spots aren't 'symmetrical' other than I have them in the same areas on both sides and they look more like big pink welts, some with a water blister top, than dark red sores as I've seen on the internet (I don't scratch).

They seem itchier after eating.

I've gotten a new set of spots every day this week and the initial ones aren't healing.

Sound like dh? or hives from the stress?

thanks.

jen

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