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Vce - Video Capsule Endoscopy
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Has anyone had this procedure? Just curious. I am most likely having it done this month to try to find out why I am still malabsorbing after being on a strick gluten free diet for 1 year. It would be cool to talk with someone who has had success with it. It is a very new procedure.

http://www.ccjm.org/PDFFILES/Ali504.pdf

Lisa

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Wow, Lisa, just curious, where are you having this done? It's so new, I didn't think too many places did it. My brother-in-law had it done in NYC and said it was a pretty cool experience, not a big deal. Good luck, I hope it goes smoothly and they can figure out what the problem is.

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You might check out this IBS forum, here is a thread about this procedure from a recipient's perspective, she posted from the day she swallowed the pill until the test was completed;

http://www.ibsgroup.org/cgi-local/ubbcgi/u...c;f=16;t=001765

And here's another discussion about it;

http://www.ibsgroup.org/ubb/ultimatebb.php...c;f=28;t=000500

Good luck!

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My husband's GI dr does them and so does our peds GI dr, but only for basic screening type colonoscopies though. They do them as initial type screening to see if any further investigating needs to be done. I don't see how they could really be of much use in an endocopy proceedure, because you can't really tell anything by just looking without actually taking biopsies right ?

Our peds GI dr also does the vitual colonoscopies as initial type screening when there is a family history of colon cancer/colon polyps like my husband's family has.

Lorraine

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Cool. Thank you for all of the replies. I am having it done at Stanford and I will check out the links that you sent. I have already had two biopsy and a VCE takes about 8,000 pictures over the course of 8 hours or so. The doctors are hoping that it will provide more answers to my malabsorption. Thanks, Lisa

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By the way, Lisa, my brother-in-law got a video of it! Why don't you have us all over for some gluten-free snacks and we'll watch it with you? I'll bring the popcorn & gluten-free beer!

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I don't see how they could really be of much use in an endocopy proceedure, because you can't really tell anything by just looking without actually taking biopsies right ?

Hello!

My consultant could tell from looking during the biopsy that I didnt have ceoliac. I think sometimes it can be totally obvious one way or another - but in most cases they need to check with the biopsies.

he still did the biopsies to make sure obviosly (I didnt go through all that for him to guess!!!!)

I saw an endoscopy on the telly (city hospital, London) where he was a definate ceoliac and the dr could tell for sure, just needed the biopsy to confirm - which it did.

I have no idea how they can tell...just looked like pink wobbly stuff to me :rolleyes:

Fascinating to hear about the new procedure, would love to know how you get on.

Cheers, Nicky

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I was going to have this done at Johns Hopkins as a follow up after being gluten-free for 6 months, but I was still not feeling well, and the Dr. said no. He told me a capsule endo. was just not good enough to collect the information he would need on a patient with Celiac. I guess every drs. opinion is different!

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Hey all, thanks for all of your replies. I have had 2 biopsies - both confirming Celiacs - but since I am still malabosrbing - they need more information. There is still inflamation, and somewhat flattened villi. Basically, they are hoping with the VCE that they will be able to RULE out other possible diseases such as Chrons, etc., while also finding out more about the malabsoption. I am willing to do anything to bypass having 3 - 4 inron infusions per year (1 gram divided over 8 does * every 4 months!)

Lisa

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
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