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Vce - Video Capsule Endoscopy
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Has anyone had this procedure? Just curious. I am most likely having it done this month to try to find out why I am still malabsorbing after being on a strick gluten free diet for 1 year. It would be cool to talk with someone who has had success with it. It is a very new procedure.

http://www.ccjm.org/PDFFILES/Ali504.pdf

Lisa

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Wow, Lisa, just curious, where are you having this done? It's so new, I didn't think too many places did it. My brother-in-law had it done in NYC and said it was a pretty cool experience, not a big deal. Good luck, I hope it goes smoothly and they can figure out what the problem is.

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You might check out this IBS forum, here is a thread about this procedure from a recipient's perspective, she posted from the day she swallowed the pill until the test was completed;

http://www.ibsgroup.org/cgi-local/ubbcgi/u...c;f=16;t=001765

And here's another discussion about it;

http://www.ibsgroup.org/ubb/ultimatebb.php...c;f=28;t=000500

Good luck!

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My husband's GI dr does them and so does our peds GI dr, but only for basic screening type colonoscopies though. They do them as initial type screening to see if any further investigating needs to be done. I don't see how they could really be of much use in an endocopy proceedure, because you can't really tell anything by just looking without actually taking biopsies right ?

Our peds GI dr also does the vitual colonoscopies as initial type screening when there is a family history of colon cancer/colon polyps like my husband's family has.

Lorraine

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Cool. Thank you for all of the replies. I am having it done at Stanford and I will check out the links that you sent. I have already had two biopsy and a VCE takes about 8,000 pictures over the course of 8 hours or so. The doctors are hoping that it will provide more answers to my malabsorption. Thanks, Lisa

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By the way, Lisa, my brother-in-law got a video of it! Why don't you have us all over for some gluten-free snacks and we'll watch it with you? I'll bring the popcorn & gluten-free beer!

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I don't see how they could really be of much use in an endocopy proceedure, because you can't really tell anything by just looking without actually taking biopsies right ?

Hello!

My consultant could tell from looking during the biopsy that I didnt have ceoliac. I think sometimes it can be totally obvious one way or another - but in most cases they need to check with the biopsies.

he still did the biopsies to make sure obviosly (I didnt go through all that for him to guess!!!!)

I saw an endoscopy on the telly (city hospital, London) where he was a definate ceoliac and the dr could tell for sure, just needed the biopsy to confirm - which it did.

I have no idea how they can tell...just looked like pink wobbly stuff to me :rolleyes:

Fascinating to hear about the new procedure, would love to know how you get on.

Cheers, Nicky

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I was going to have this done at Johns Hopkins as a follow up after being gluten-free for 6 months, but I was still not feeling well, and the Dr. said no. He told me a capsule endo. was just not good enough to collect the information he would need on a patient with Celiac. I guess every drs. opinion is different!

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Hey all, thanks for all of your replies. I have had 2 biopsies - both confirming Celiacs - but since I am still malabosrbing - they need more information. There is still inflamation, and somewhat flattened villi. Basically, they are hoping with the VCE that they will be able to RULE out other possible diseases such as Chrons, etc., while also finding out more about the malabsoption. I am willing to do anything to bypass having 3 - 4 inron infusions per year (1 gram divided over 8 does * every 4 months!)

Lisa

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    • Hi Laurabella, Yes, you could have celiac disease!  It is important to keep eating gluten until all testing is completed, including an endoscopy with biopsy samples if the doctor recommends it.  The doctors usually do want the endoscopy.  The biopsy samples of the small intestine lining (4 to 6 samples) are checked for microscopic damage that indicates celiac disease.  Gall bladder problems can happen with celiac disease.  Your pain could also be from intestinal damage in any part of the small intestine. Some things you could try while you are waiting for your tests to be completed are stopping all dairy, and taking peppermint tea for gas in the stomach.  Celiac disease damage makes it hard to digest dairy sugar (lactose) and that can cause bloating and pain.  Constipation and diahrea are also possible fun symptoms. Welcome to the forum!
    • Hi Beachgrl, We have had members with microscopic colitis before, usually in addition to celiac disease.  Have you been tested for celiac disease?  The reason I ask is, it is much better to be tested for celiac before starting the gluten-free diet.  The primary tests for celiac are to detect antibodies to gliaden in the bloodstream.  Those antibodies start to decline when a person stops eating gluten, so the tests become useless. There is no reason a person can't have more than one digestive system disease.  So it is smart to be tested for celiac disease if you can get the testing arranged.  Any change in symptoms after stopping gluten is an indicator that gluten is causing a reaction of some kind.  It could be celiac, or it could be non-celiac gluten intolerance, (NCGI).  There aren't any reliable tests for NCGI yet. Welcome to the forum!
    • I have microscopic colitis. Having a bad flare of D.  On Budesonide for first time for this. It's helping some- only on it a week. Do you think gluten free would help even if tested negative a few years ago?  Was gluten free yesterday and no BM changes. Even had cramps this AM that wasn't really having before. Thank you!!
    • Do you want to tell us the name of it ans where it is located.  maybe someone else will be looking for a restaurant there. Also, it is very helpful if you go to Find me Gluten Free and review it.
    • Hi. Im currently under consultants at my hospital,  and have just been for a blood test to test for celiacs. My symptoms are.... Low weight (8stone and 5ft6tall) Joint pain,particularly my hips and lower back  Severe pain in my gall bladder area which happens spontaneously... Especially after eating foods containing gluten.  When i have foods with wheat in i pain in my  right side just under my bottom rib, i become a bit spaced out and cant focus on anything. Also get diahorrea aswell. I recently contracted C-Diff and was in hospital for 4 days very poorly. Im 29years old (female) and the doctors r trying to work out what is wrong with me. I have always struggled to gain weight,  even after having 2 children i am still only 8stone. I was just wondering if u think i could have celiacs?  The pain in my side has been on and off for 7years! And the last 3years its been severe. And it definitely comes on as soon as i have gluten/wheat.   
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