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Vce - Video Capsule Endoscopy
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Has anyone had this procedure? Just curious. I am most likely having it done this month to try to find out why I am still malabsorbing after being on a strick gluten free diet for 1 year. It would be cool to talk with someone who has had success with it. It is a very new procedure.

http://www.ccjm.org/PDFFILES/Ali504.pdf

Lisa

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Wow, Lisa, just curious, where are you having this done? It's so new, I didn't think too many places did it. My brother-in-law had it done in NYC and said it was a pretty cool experience, not a big deal. Good luck, I hope it goes smoothly and they can figure out what the problem is.

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You might check out this IBS forum, here is a thread about this procedure from a recipient's perspective, she posted from the day she swallowed the pill until the test was completed;

http://www.ibsgroup.org/cgi-local/ubbcgi/u...c;f=16;t=001765

And here's another discussion about it;

http://www.ibsgroup.org/ubb/ultimatebb.php...c;f=28;t=000500

Good luck!

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My husband's GI dr does them and so does our peds GI dr, but only for basic screening type colonoscopies though. They do them as initial type screening to see if any further investigating needs to be done. I don't see how they could really be of much use in an endocopy proceedure, because you can't really tell anything by just looking without actually taking biopsies right ?

Our peds GI dr also does the vitual colonoscopies as initial type screening when there is a family history of colon cancer/colon polyps like my husband's family has.

Lorraine

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Cool. Thank you for all of the replies. I am having it done at Stanford and I will check out the links that you sent. I have already had two biopsy and a VCE takes about 8,000 pictures over the course of 8 hours or so. The doctors are hoping that it will provide more answers to my malabsorption. Thanks, Lisa

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By the way, Lisa, my brother-in-law got a video of it! Why don't you have us all over for some gluten-free snacks and we'll watch it with you? I'll bring the popcorn & gluten-free beer!

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I don't see how they could really be of much use in an endocopy proceedure, because you can't really tell anything by just looking without actually taking biopsies right ?

Hello!

My consultant could tell from looking during the biopsy that I didnt have ceoliac. I think sometimes it can be totally obvious one way or another - but in most cases they need to check with the biopsies.

he still did the biopsies to make sure obviosly (I didnt go through all that for him to guess!!!!)

I saw an endoscopy on the telly (city hospital, London) where he was a definate ceoliac and the dr could tell for sure, just needed the biopsy to confirm - which it did.

I have no idea how they can tell...just looked like pink wobbly stuff to me :rolleyes:

Fascinating to hear about the new procedure, would love to know how you get on.

Cheers, Nicky

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I was going to have this done at Johns Hopkins as a follow up after being gluten-free for 6 months, but I was still not feeling well, and the Dr. said no. He told me a capsule endo. was just not good enough to collect the information he would need on a patient with Celiac. I guess every drs. opinion is different!

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Hey all, thanks for all of your replies. I have had 2 biopsies - both confirming Celiacs - but since I am still malabosrbing - they need more information. There is still inflamation, and somewhat flattened villi. Basically, they are hoping with the VCE that they will be able to RULE out other possible diseases such as Chrons, etc., while also finding out more about the malabsoption. I am willing to do anything to bypass having 3 - 4 inron infusions per year (1 gram divided over 8 does * every 4 months!)

Lisa

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    • Your body has been used to ingesting and has been coping with the gluten in its systems.  DON'T PANIC because your body is doing it for you.   Seriously now, the medical field has a technological term defining when a system is used to working a certain way/routine.  When that is either disrupted or changed, it could take a while for the body adjust to a different way of doing things.  Another factor in the increase in symptoms could possibly be that your body is starting to "clean house".  It's trying to get rid of the amounts of gluten hiding out in all its nooks and crannies.  It is going to be a long term process.  It's like cleaning out a vacuum hose or other household item that is just caked with gunk.  The first cleaning gets rid of a large portion of the gunk and ick.  The subsequent cleanings gets rid of more and more ick but in lesser amounts. I thought I was going to go crazy those first few months, but things are a lot better now. (I am about 10 months gluten free).  I still have moments of brain fog and even episodes, but my body is getting closer (and more used to)  to having a cleaner "household item".  I know it's tough at first with the increased onslaught of symptoms, but hang in there.   You may want to keep a journal of all that you ingest or come into contact with for a time to track anything that could exacerbate symptoms.  (For me, my episodes are chemically triggered as well.)  If for some reason a few months down the road, you still have large amounts of symptoms it would be a good idea to visit your GP again just in case there something else that is going on.  
    • I would love some help! After 20ish years of being misdiagnosed with IBS, I was diagnosed with celiac disease (positive blood test for tTG IgA and positive duodenal biopsy) ~ 6 weeks ago. Of course I've gone completely gluten free, and I've been crazy paranoid careful not to ingest any gluten. I've also completely avoided all oats (even certified gluten free) and cut out lactose (due to transient lactose intolerance... because I don't have villi) . But now I feel WAY WORSE. I've had abdominal pain every single day, which ranges from mild aching to severe 10/10 laying on the floor crying and vomiting pain. I understand that it takes a long time to get better, but why would I get so much worse? My best guess is SIBO, but I can't imagine that it could cause such extreme symptoms, can it?  So my question to you fine folks is: did this happen to anyone else? Have you gotten sicker after you changed your diet? Is this normal?  For arguments sake, lets assume that I did not ingest any gluten to cause these symptoms... Thank you for your help!
    • Thanks very much Cyclinglady. Yes, it is Kaiser. I doctor said the GI think it is unlikely to be celiac deisease (he did not say how he came to this conclusion), but he would be happy to do an upper endoscopy for me. I did some look up online, this procedure should be low risk. Still feel a little hesitate while reading the potential risks :(.
    • I would suggest you test your daughter through a doctor. The Enterolab tests are not recognized as accurate or reliable by the medical profession. See this link from the Chicago Celiac Disease Center: http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/
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