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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Vce - Video Capsule Endoscopy
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9 posts in this topic

Has anyone had this procedure? Just curious. I am most likely having it done this month to try to find out why I am still malabsorbing after being on a strick gluten free diet for 1 year. It would be cool to talk with someone who has had success with it. It is a very new procedure.

http://www.ccjm.org/PDFFILES/Ali504.pdf

Lisa

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Wow, Lisa, just curious, where are you having this done? It's so new, I didn't think too many places did it. My brother-in-law had it done in NYC and said it was a pretty cool experience, not a big deal. Good luck, I hope it goes smoothly and they can figure out what the problem is.

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You might check out this IBS forum, here is a thread about this procedure from a recipient's perspective, she posted from the day she swallowed the pill until the test was completed;

http://www.ibsgroup.org/cgi-local/ubbcgi/u...c;f=16;t=001765

And here's another discussion about it;

http://www.ibsgroup.org/ubb/ultimatebb.php...c;f=28;t=000500

Good luck!

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My husband's GI dr does them and so does our peds GI dr, but only for basic screening type colonoscopies though. They do them as initial type screening to see if any further investigating needs to be done. I don't see how they could really be of much use in an endocopy proceedure, because you can't really tell anything by just looking without actually taking biopsies right ?

Our peds GI dr also does the vitual colonoscopies as initial type screening when there is a family history of colon cancer/colon polyps like my husband's family has.

Lorraine

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Cool. Thank you for all of the replies. I am having it done at Stanford and I will check out the links that you sent. I have already had two biopsy and a VCE takes about 8,000 pictures over the course of 8 hours or so. The doctors are hoping that it will provide more answers to my malabsorption. Thanks, Lisa

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By the way, Lisa, my brother-in-law got a video of it! Why don't you have us all over for some gluten-free snacks and we'll watch it with you? I'll bring the popcorn & gluten-free beer!

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I don't see how they could really be of much use in an endocopy proceedure, because you can't really tell anything by just looking without actually taking biopsies right ?

Hello!

My consultant could tell from looking during the biopsy that I didnt have ceoliac. I think sometimes it can be totally obvious one way or another - but in most cases they need to check with the biopsies.

he still did the biopsies to make sure obviosly (I didnt go through all that for him to guess!!!!)

I saw an endoscopy on the telly (city hospital, London) where he was a definate ceoliac and the dr could tell for sure, just needed the biopsy to confirm - which it did.

I have no idea how they can tell...just looked like pink wobbly stuff to me :rolleyes:

Fascinating to hear about the new procedure, would love to know how you get on.

Cheers, Nicky

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I was going to have this done at Johns Hopkins as a follow up after being gluten-free for 6 months, but I was still not feeling well, and the Dr. said no. He told me a capsule endo. was just not good enough to collect the information he would need on a patient with Celiac. I guess every drs. opinion is different!

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Hey all, thanks for all of your replies. I have had 2 biopsies - both confirming Celiacs - but since I am still malabosrbing - they need more information. There is still inflamation, and somewhat flattened villi. Basically, they are hoping with the VCE that they will be able to RULE out other possible diseases such as Chrons, etc., while also finding out more about the malabsoption. I am willing to do anything to bypass having 3 - 4 inron infusions per year (1 gram divided over 8 does * every 4 months!)

Lisa

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