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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

College-how To Survive
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10 posts in this topic

I have been doing a little research into University and College Dining programs. I emailed one of the largest companies that provide food services for colleges. I thought I would share the response that I got back from them. I also have a ton of info posted on my site if any of you are interested let me know. It's free ;) I hope this helps some of you who are either in college or who are thinking of going in the near future.

-Jessica

Subject :  RE: Dietary Question

 

Jessica,

Our mission at Sodexho is

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Jessica,

Thanks so much for posting this! I go to the University of Pittsburgh, which uses Sudexho, and my personal experience has been that they follow through with what they said in your letter--they are very willing to try to accomodate the dietary needs of Celiacs.

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I'm very glad to hear that they are following through :)

-Jessica

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I have another five years before I have to deal with this, but I'd be interested to read about it.....and learn how others deal with college long before I have to......I didn't see this info. when I last checked your site, but is there a specific location on the site where you posted it (files, message board)?

In addition, I'd love to hear how people deal with celiac disease in situatations such as boarding school and college.....as I said, I don't NEED to know, but I'm interested to hear what people (especially those who dislike cooking :D do).

-celiac3270

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I know this isn't very incoraging but when my sister went on the diet in the middle of the year they said that almost everything in the dining halls have HVP which is horrible for celaics so she basically stopped eating in the dorms and cooked for herself

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The college that I'm attending has cooking dorms and then non cooking dorms, which was lucky for me. My freshman year I opted to stay in the cooking dorms which is basically regular apartments (kitchens, own bathroom, 2 bedrooms) in a dorm setting, so I was able to cook my own food and not worry about going on campus to the cafeteria. This year I decided to move off campus and once again am cooking all my own food. Obviously this type of set-up isn't available to everyone, but from my own stand point, I find that if it's possible to be in an environment where I am the one cooking my food and not counting on someone else to make my food gluten-free, then it's a lot simplier. Just my opinion :)

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celiac3270-

Some info in the links and some in the files.

-Jessica :rolleyes:

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I wasn't gluten-free in college (and don't think I had "activated my genes" yet), but did a fair amount of my own cooking. While my dorm had a small kitchen, sometimes that wasn't very convenient, so I saved up my money and bought a FarberWare electric skillet, and cooked on a coffee table outside. (It's got a stand and all that, so it's safe to cook on a wood coffee table.) You can make a lot of things with an electric skillet and a rice cooker. ;-) They are a bit pricey, but my mother-in-law has had hers for... at least 10 years (and I think that might have gone on to my brother-in-law for further use). (The adapter, that provides power to the skillet may fail sooner, but FarberWare has oodles of them and will send you a new one.)

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Okay, I'll check both sections, thank you....

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I too use an electric skillet (Rivel electric skillet) to cook most of my things, especially since I've designated it as something I only use, in order to eliminate potential cross contamination. I got mine for about 17 or 20 dollars, which really isn't that bad at all. So yeah, I definitely suggest an electric skillet to anyone who decides to do their own cooking in college. I even managed to cook rice in the skillet, after cooking chicken, so that I could have chicken and rice. And since almost all skillets are non stick now adays, that makes clean up so much easier.

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    • Weird Reaction
      Hi Richard Glad you are feeling better!   Sorry - DX is an abbreviation for diagnosis.   Thanks so much  for the info about MSG, broccoli and IBS.  Like you say, there is v. little bad press about broccoli. My aunt, who is a farmer's wife, put forward another theory that it might not have been the broccoli itself but rather some insecticide a farmer sprayed on it.   I just can't bring myself to try organic broccoli however...  Thankfully cauliflower is fine.  I just can't figure it out as I thought they were the in the same vegetable family?  So maybe it is MSG. Regarding anemia, there can be a link with iron anemia and anxiety. http://www.livestrong.com/article/471225-iron-anxiety/ And I was definitely breathless before my diagnosis; I remember finding myself  walking up a hill behind a  huge crowd of friends on a church walk, and many of them were at least 20 years older than me, and wondering why I was in last place! My B12 levels were very low at DX and I found B12 supplements helped enormously with anxiety.   I remember drinking Berroca and feeling so much better within hours of drinking it, on more than one occasion, before even understanding the link. I have just been told however that I can't take any more iron because my hemoglobin is on the high side.  It is a good thing my doctor was monitoring my supplementation as I gather too much iron can be dangerous.  Have you been told to supplement by your doctor?  If you are supplementing make sure you get your levels monitored. All the very best - and welcome to the forum!    
    • Weird Reaction
      Thank  you Flowerqueen and Cristiana for your replies. I'm actually feeling much better today. I got my appetite back yesterday lunchtime (a few hours after I typed the original post) and managed to keep in/hold down some chicken and lettuce!!! I also had a "fat" coffee (as I call it) before work with MCT Oil and butter (your probably going "yuk" right now but it's really nice...really haha) and started feeling a bit better after that. The nausea went away almost immediately after that although just the thought of having all that fat nearly made me sick but I just wanted to get back to normal asap. I usually have a lot of fat in my diet anyway which is normal for me so the coffee choice isn't unusual. Plus it was also the third day which was when I started feeling better after the first time. I didn't eat til lunchtime and I was good and hungry by then so I knew I was coming out of it. That nausea and trembling feeling is something I don't want ever again. I think after the workout and tearing down muscle tissue (which is a form of stress) and then not being able to hold the nutrients in for repair affected my nervous system. My theory only but to me it makes sense. Although Vitargo also comes in flavors I always get the Natural / Unflavored one so the barley is the only ingredient. As for there being something wrong with that particular batch, well, you be on to something there. Also I'm not knocking the product because as I said, I have used it before and it did exactly what it was supposed to do. But, I will never have it again. Cristiana, my last blood test revealed I had slight anaemia which really surprised me with the amount of red meat I've eaten during my life and the anxiety thing is also new as I'm usually a happy, positive person. Life is good but after this recent reaction I think it is an indirect cause of the glutening. I'm also surprised at how sensitive I've become to it and how quickly. Also what is DX? I also follow a FODMAP eating plan (I can give you more info if you haven't heard of it) which also eliminates certain foods. It's a plan directed mostly at IBS but is well worth looking into if you are suffering any gut health, digestion issues or any ailment you may have which you can't get to the bottom of. Broccoli was one of the foods which I have cut back on and I've eaten HUGE amounts of broccoli so it is a superfood for some but apparently not for others. (I even think I read somewhere it has MSG naturally in it) It's hard to find any bad articles on broccoli so this also really surprised me. It also answered a few other questions I had. Many, many thanks again to you both for your replies. It actually settled me just reading them. I'm glad I found these forums so I don't think i'll be a stranger around here for long.   Richard
    • Confused
      Okay, I get that you are not going to follow the advice from some stranger on the internet, but please read the links that I gave you.  Your doctor is not following the standard level of care.  I am dead serious.  I have Kaiser.  My own GP doesn't have a clue about celiac disease, but my Kaiser GI does.  Please, I urge you to get properly diagnosed.  All celiac testing requires you to be on a gluten diet.  If you go gluten free even for two weeks (it will take time to get the referral and appointment), it will mess up the tests.  Your GI will put you back on a gluten diet (called a gluten challenge) for 8 to 12 weeks.    Chances are (almost 100%) you will feel more miserable!  That will just delay your diagnosis.   Symptoms not bad you say?  I had pretty severe anemia, but no tummy issues.  Two months after my diagnosis, I fractured my back DOING NOTHING!  Yep, I have osteoporosis from undiagnosed celiac disease and I am an athlete!   Please take this seriously!    
    • Silent Celiac or Non-digestive symptoms
      Oh, you might learn how to tell if you had been glutened.  I just had anemia as my main symptom.  I did not have any tummy issues at all.  I was in shock when my doctor even suggested testing me for celiac disease!   Glutenings can vary as we are all different.  For some it is just a few days, others a few weeks and others months (that would be me).  My last official glutening as supported by follow-up antibody testing lasted for three months.  Guess what?  I had vomiting, abdominal pain, the works!  Funny how celiac disease can change and evolve over time.   Welcome to the forum!  Have some patience and learn all that you can.  The good news is that you can feel better and no medications are required!  
    • Confused
      Thank you for the information. I've been not sure if I should eat gluten or not right now. Dr. said I should watch what I eat when I emailed him the question. My symptoms aren't very bad (I understand that doesn't matter for celiac disease), so I can definitley tolerate the food. But I have been starving myself the last few days due to not knowing what the heck is going on. Thanks again.
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