Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


Photo
- - - - -

Comcast Big Wig Has Celiac


  • Please log in to reply

21 replies to this topic

#1 floridanative

 
floridanative

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,199 posts
 

Posted 13 July 2006 - 10:47 AM

Some lady from www.celiaccentral.org spoke to our suport group on Sat. and said the Comcast CEO or CFO (or something like that) was dx'd with Celiac. He is promoting charity event to raise awareness/money for research so he has Fortune and Money magazines doing articles about it. The Money article runs in Dec. issue and Fortune runs in the Nov. 13th issue. Comcast provides cable services all over the country. This could be big people!
  • 0
Dx'd with anemia - March 2005
Positive blood tests - Sept. 2005
Positive biopsy - Jan. 2006
Gluten free since 1-23-06

Celiac.com Sponsor:

#2 AndreaB

 
AndreaB

    November 2008

  • Advanced Members
  • PipPipPipPipPipPip
  • 6,978 posts
 

Posted 13 July 2006 - 11:09 AM

Even though he's not a celebrity...he would certainly have some pull. Thanks. :P
  • 0

Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.


#3 jenvan

 
jenvan

    Lynne took this picture! :)

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,211 posts
 

Posted 13 July 2006 - 11:30 AM

Wow, that could be great for the celiac disease community. Hmmm, guess I need to mark my calendar in advance for these ! Thanks Tiffany!
  • 0
~~~~~~~
Jen
Indianapolis, IN

gluten-free since Feb 2005
dairy-free

#4 ebrbetty

 
ebrbetty

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,036 posts
 

Posted 13 July 2006 - 11:41 AM

that could really help us
  • 0
~Betty

#5 jerseyangel

 
jerseyangel

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 20,939 posts
 

Posted 13 July 2006 - 11:43 AM

Boy, this could be huge! I hope he feels the same frustration as we do regarding the lack of awareness--he certainly has the ability to get the word out there--looks like he has already started! Looking forward to the articles--thanks, Tiffany :)
  • 0
Patti


"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

#6 Guhlia

 
Guhlia

    Ah yes.... Happy New Year to all, Red Bridge style... LOL

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,541 posts
 

Posted 13 July 2006 - 11:44 AM

Wow! This could be our big, mainstream break, huh? Thanks for posting!
  • 0
~Angie~

Gluten free since May 2004

#7 floridanative

 
floridanative

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,199 posts
 

Posted 13 July 2006 - 11:55 AM

Well my guess is this guy is frustrated because apparently he was sick for years and years and he was recently diagnosed, maybe less than a year ago. I'm going to try and find his name because I didn't write it down Saturday and the lady mentioned it a couple of times. Anyway, I really do think this could be great for all of us.

Okay - the guy is Ed Snider and he's the Chairman of Comcast. On the site above (old site called www.celiacawareness.com) there is a link about the Money/Fortune mag. articles and their issue dates. Time Warner is involved as well. Maybe they own Comcast...not sure about that. Yes - this is a very good thing. :D
  • 0
Dx'd with anemia - March 2005
Positive blood tests - Sept. 2005
Positive biopsy - Jan. 2006
Gluten free since 1-23-06

#8 penguin

 
penguin

    Chelsea

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,245 posts
 

Posted 13 July 2006 - 12:02 PM

His name is Ed Snider.

And he won the 2005 William Penn award, whatever that is.
  • 0
Alright, don't worry even if things end up a bit too heavy
We'll all float on, alright
Well we'll float on good news is on the way...

#9 DingoGirl

 
DingoGirl

    my babies ♥

  • Advanced Members
  • PipPipPipPipPipPip
  • 5,645 posts
 

Posted 13 July 2006 - 12:13 PM

We've got to get him on our board.....you know, in all his free time.....

Oh Iwrote an email to Oprah today about Celiac and how aghast I am that she has not addressed it....wonder how many of us have emailed her??
  • 0
SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

#10 tarnalberry

 
tarnalberry

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,542 posts
 

Posted 13 July 2006 - 02:07 PM

We've got to get him on our board.....you know, in all his free time.....


Ha! He can probably afford his own, dedicated chef, and train that chef to cook gluten-free for him! **whistfully dreams** :-P (He should still try the mariposa biscotti, though. :-D)
  • 0
Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA

#11 marciab

 
marciab

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 747 posts
 

Posted 13 July 2006 - 02:58 PM

Yeah, I was thinking that he probably has his own chef too. BUT, he must go out sometime. Possibly the next time he goes to Trump's for dinner, he'll teach Donald about Celiac.

This could be very good for us... :D
  • 0
Jan 1990 - Dx CFS/ME/FM (URI's, Ataxia, myoclonus, orthostatic hypotension, insomnia, brain fog, swollen lymph nodes, sore throat... ) Completely Disabled (housebound and bedridden at times)

2004 - Digestive pain all the time.

May 2004 - Hiatal hernia, erosive gastritis, gastroparesis (endoscopy)
August 2004 - Colon polyps, diverticulitus, internal hemorrhoids (colonoscopy)

No relief from Nexium, Prilosec, Protonix, Zelnorm, Miralax, Imodium, Lomotil ...
July 2005 - GP recommended WFDFSFEFCF + vegan (Also, anything that hurts free)
Immediately stopped needing naps and digestive pain reduced.

Sept 2005 - GFDFCFSFEF + chemical free - Immediately stopped feeling jittery / buzzing and digestive issues were much better.

June 2006 - Dx B12 and iron deficient. Started B12 injections and using cast iron pan.

August 2006 - MYOCLONUS GONE. (off Klonopin)
September 2006 - ATAXIA, INSOMNIA and Feeling like the floor was moving under my feet gone.

June 19, 2007 - Positive DQ2, Dx Celiac

October 2007 - Sleeping like a baby, waking up with energy, but still having fatigue/stamina issues

Nov 2007 - Started Paleo diet for chronic hypoglycemia

April 2008 - GTT normal. I'm no longer hypoglycemic. Started Low oxalate diet for kidney stones.

May 1, 2008 - Began salt loading for OI/NMH - noticed immediately muscle weakness was gone. I was sodium deficient but my labs don't reflect it. Still working on OI and PEM.

#12 debmidge

 
debmidge

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,566 posts
 

Posted 13 July 2006 - 03:20 PM

Maybe Comcast can run some public info commercials about celiac for free......
  • 0
Husband has Celiac Disease and
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006
It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

#13 Guest_Robbin_*

 
Guest_Robbin_*
  • Guests
 

Posted 13 July 2006 - 07:53 PM

:) Money talks, so maybe the message will get heard and the medical community will wake up when they get a whiff of green ;) . It is outrageous how long some people have to suffer before they get a dx, and how many die undx? I hope you are out there Mr. Snider and join us!!!
  • 0

#14 gfp

 
gfp

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,311 posts
 

Posted 14 July 2006 - 01:09 AM

His name is Ed Snider.

And he won the 2005 William Penn award, whatever that is.

William Penn was by all accounts a pretty stand-up guy. (if not a button down guy)
Voltaire wrote about him in his "Letter's concerning the English" and his tolerance and treaty's with the native populations were legendary.

http://en.wikipedia....ki/William_Penn

Ha! He can probably afford his own, dedicated chef

He can but that doesn't mean he will. He is also experienced in changing and forging legislation ....
  • 0
Fere libenter homines id quod volunt credunt. (JC, De Bello Gallico Liber III/XVIII)

#15 Rikki Tikki

 
Rikki Tikki

    Tavi

  • Advanced Members
  • PipPipPipPipPipPip
  • 871 posts
 

Posted 14 July 2006 - 05:22 AM

Hi Dingogirl:
I don't know what's up with Oprah, we went on a letter writing campaign last year and she never responded. It's beyond my understanding why someone has not picked up on this and done a show. They could help so many people. Anyway, let us know if you hear anything
  • 0
Nostaglia is a file that removes the rough edges from the good old days!!!!

" 15 years of it's stress!"
"blood work show's a disease called celiac,
but it can't be that because it's rare!"
Diagnosed via blood and biopsy 2003


Not a medical professional just a silly celiac
offering support, my
experience and advice




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: