Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Anyone Had Trouble With Spouse Supporting?


aprilh

Recommended Posts

aprilh Apprentice

Has anyone had trouble convincing their spouse that they needed to be gluten free?

Mine gives me such a hard time! I feel like I need the test results to prove myself! Still waiting on those blood test.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

My husband has been very supportive of the diet changes we needed to make. He is the only one without active gluten intolerance although he has two genes that predispose to celiac. We got tested through enterolab (www.enterolab.com) so that's how we know.

Link to comment
Share on other sites
Nantzie Collaborator

Mine was horrible. Horrible, horrible, horrible. Back in October, right after I found out about celiac as even a possibility for me, he called me a hypochondriac and said that I wanted to be sick so I could manipulate people into doing everything for me. Said that I needed a psychiatrist, not a blood test. It was really bad. I almost left him over that. I've got kids though, and I don't believe in divorce. But I don't believe in being treated like sh*t for the rest of my life MUCH more than I don't believe in divorce. I also knew he had no idea what it was like to be sick for most of your life, and just trying one thing after another to find some answers. So I quietly decided to give him six months to get his act together and then I'd leave the b*stard, um... I mean, re-evaluate the situation. <_<

Fast forward to Valentine's Day. He couldn't remember what chocolates were gluten-free, so he went to the gluten-free section of the grocery store by his work and got me a bunch of Pamela's and Gluten-Free Pantry baking mixes and some flowers. By that point, I had been gluten-free for about a month and a half.

Now, when he's cooking, he'll either call me from the store to make sure something he's looking at is gluten-free, or he'll have me check the labels when he gets home. He doesn't use my Gluten-Free ONLY items like my toaster. A couple of months ago he grabbed a handful of croutons I had made from some gluten-free bread, and then just stopped in his tracks, wide-eyed and said "I have gluten fingers." And started apologizing. :lol:

Really, all I did was quietly stick to my guns and went gluten-free anyway. The improvement I had in chronic health problems that I had had since I was a teenager, as well as feeling so much better all the time, and being happy, really spoke for themselves. I didn't have to say anything to change his mind. It just changed.

Hope your husband goes through the same transformation. For some reason, the people who have, or may have, celiac or gluten intolerance are THRILLED to have some answers. But it's ridiculously common for the people around the person; husband, other family, friends, co-workers, to just go all-out freaking nuts about it. It's the strangest thing. But very common.

Nancy

Link to comment
Share on other sites
tarnalberry Community Regular

No, I haven't had that problem. I'm sorry that you're not being respected by your spouse on your decison; it may be worth talking about why you're not getting the respect for your decision - since it is your decision, whether the other person believes in it or not.

Link to comment
Share on other sites
aprilh Apprentice
Mine was horrible. Horrible, horrible, horrible. Back in October, right after I found out about celiac as even a possibility for me, he called me a hypochondriac and said that I wanted to be sick so I could manipulate people into doing everything for me. Said that I needed a psychiatrist, not a blood test. It was really bad. I almost left him over that. I've got kids though, and I don't believe in divorce. But I don't believe in being treated like sh*t for the rest of my life MUCH more than I don't believe in divorce. I also knew he had no idea what it was like to be sick for most of your life, and just trying one thing after another to find some answers. So I quietly decided to give him six months to get his act together and then I'd leave the b*stard, um... I mean, re-evaluate the situation. <_<

Fast forward to Valentine's Day. He couldn't remember what chocolates were gluten-free, so he went to the gluten-free section of the grocery store by his work and got me a bunch of Pamela's and Gluten-Free Pantry baking mixes and some flowers. By that point, I had been gluten-free for about a month and a half.

Now, when he's cooking, he'll either call me from the store to make sure something he's looking at is gluten-free, or he'll have me check the labels when he gets home. He doesn't use my Gluten-Free ONLY items like my toaster. A couple of months ago he grabbed a handful of croutons I had made from some gluten-free bread, and then just stopped in his tracks, wide-eyed and said "I have gluten fingers." And started apologizing. :lol:

Really, all I did was quietly stick to my guns and went gluten-free anyway. The improvement I had in chronic health problems that I had had since I was a teenager, as well as feeling so much better all the time, and being happy, really spoke for themselves. I didn't have to say anything to change his mind. It just changed.

Hope your husband goes through the same transformation. For some reason, the people who have, or may have, celiac or gluten intolerance are THRILLED to have some answers. But it's ridiculously common for the people around the person; husband, other family, friends, co-workers, to just go all-out freaking nuts about it. It's the strangest thing. But very common.

Nancy

Its a very strange thing. I think I have had so much happen and so many unexplainable symptoms, that family start to think I am a hypochondriac. I have searched so hard for a while and finally found the solution. I know what happens to my body but friends and family and Dr.'s always say its "stress related". Well it is freakin' stressful to have wierd things happen to your body and not know what it is.

It is very wierd! Anyway, I think he will come around. Are you so sensitive that you don't share toasters? I just didn't know that that could cross contaminate. Does it depend on the sensitivity level of the individual?

Link to comment
Share on other sites
queenofhearts Explorer

Toasters are notorious for c.c. because they are so hard to clean-- impossible really. But I share a toaster oven with my gluten-eating family, which is safer since crumbs drop to the bottom, & you can remove the rack & clean it. The thing is, you don't really know how sensitive you are until you are really healed, because the baseline damage can hide the reaction. So it's a good idea to play it super-safe until you find out.

Leah

Link to comment
Share on other sites
revceliac Newbie

My spouse came around fairly quickly when she saw how much pain I was in. She also works for a lady who is a celiac and was the one who convinced me to try going gluten free after the dr's kept telling me it was IBS. The family members that I struggled with were siblings and parents who kept trying to diagnose my problem as stress. I work too much. I do too much. For as much as I kept telling them what was going on they didn't listen. Now that I have been diagnosed since the end of April of this year, my siblings (who have had related problems ) are beginning to think they need to get tested. I think we have finally turned the corner.

At the big family get together in June, I appreciated how much my family and my in-laws spent preparing gluten-free meals.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ianm Apprentice

My EX-wife just didn't get it at all and that is why she is now my EX-wife. No big deal, turned out for the better anyway. Everyone else has been quite supportive even if they don't fully understand it.

Link to comment
Share on other sites
gfp Enthusiast

Many people have problems with close family and friends who have afterall seen you eating gluten over a long time.

We have discussed many reasons for this but people just have a hard time accepting it.

In addition since many of the symptoms are unpleasant we tend to mask them until we finally find out why.

Once we find out why we tend to be more vocal and your is a recurring theme... and most come to be supportive.

Link to comment
Share on other sites
gdobson Explorer

My husband was skeptical when it came to my "environmental" allergies. I had been getting shots for years. He thought it was a sign of weakness. So when I had to change my diet he just let me thinking it was some silly woman thing. But then he saw the huge change in me. Then I fell off the wagon (only once in 5 years mind you) but I ate some sugar cookies - it was like I wanted to test it myself or something. But then he saw a huge change in me again when I fell apart from it. Now he wouldn't see me eat anything even questionable.

But then a little over a year ago, we had to face that our son might have the same problem. I had suggested over the previous year, and he constantly said no. Our son was just too strong for that, - I think was he train of thought. But then we had no choice. Lane wasn't growing. He was getting worse and worse. And once again, my husband saw the change in our son after we changed his diet. And he thanked me.

And he never doubts it, not even for a moment...now the rest of my family is another story.

Link to comment
Share on other sites
Guest cassidy

My husband has had a very hard time with this. My blood test was negative. My mom figured out that this was what was wrong with her about a year ago. Six months ago, she told me she thought I had it too. Since my blood test was negative, my husband wasn't convinced. He wanted a doctor to diagnose me. So, after being gluten-free a month I went to my doctor and told him how much better I felt gluten-free and that I could tell when I glutened myself and he agreed that I had celiac. That made my husband feel better.

He has had challenges with other aspects as well. He doesn't like it that we can't just go out to dinner at any restaurant without planning ahead. I will go with his family and just not eat, but it is uncomfortable.

He still offers me bites of his pasta or other food that is completely obviously full of gluten. He has cc-ed many bowls of green beans and other things that I wanted to eat. He is getting better. If I remind him that I will want to eat something also, he will use a clean spoon.

He still leaves sandwich crumbs on the counter. So, I wipe everything down before I make food for me.

He is getting better but each time a new situation comes up it is challenging.

Good luck.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    2. - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    3. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    4. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    5. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748

    Suzi374
    Newest Member
    Suzi374
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...