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Question On Blood Test Results And Cheating
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I went the a new doctor a couple weeks ago. My IGG, IGA and TTG are now all negative, supposedly because of my strict gluten free diet. The thing is, I have cheated on a fairly regular basis, either purposely or on accident. In fact, I went a whole week at the end of April eating whatever I wanted (after a visit to a very bad GI). I had a biopsy last September which was positive at that time but the new doctor commented that she would have preferred to see it.

So my question is, is it now possible that I do not have celiac and the diagonosis was wrong? I do feel sick sometimes after ingesting gluten, but was not sick before the diagonosis. My mom was diagonosed and therefore I had the blood test. I was however extremely sick and hospitalized when I was pregnant about 6 months before the blood work. Could I be causing damage anyway, with bloodwork being OK?

Very confused and any feedback would be appreciated. <_<

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You could absolutely be causing damage without having a positive blood test result. You don't get antibodies in the blood stream until you've done enough damamge to the intestines that the antibodies can pass through. And some people react more strongly than others, doing damage without having a lot of symptoms. A biopsy is the classic method of diagnosis, and I'm unaware of any false positives on a biopsy. I would say you are celiac, and to reduce your risk of complications, should stop cheating. ;-) (But you knew I'd say that. ;-) )

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I've always sort of questioned this myself, wondering about a possible false positive of celiac disease. My blood and biopsy were both positive, but I have many health problems that do not relate to celiac disease and have often wondered if it was in fact another disease. You can't have a false positive biopsy, either your villi are damaged or they aren't, however, I imagine there are conditions we as non-doctors are not familiar with, that could cause your villi to be damaged like that. If your Mother has celiac disease, though, and you did test positive as well, then I'd guess you do have this disease.

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I'm not sure that false positives exist for blood tests either - not when taken as a whole panel. Gliandin is the protein in wheat, and if you're forming anti-gliandin antibodies, the only thing you could be reacting to is gliandin, the protein in wheat. ;-)

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It takes months for the blood to raise and lower enough to be shown in a blood test. I really don't think you can have a false posotive in any sort of way. Also if you feel better on the diet then you most likely have it.

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I have had digestive problems since early childhood, am now approaching age 76. I have been diagnosed with ibs, lactose intolerance, Nerd-Gerd (Nerd is a form of Gerd that does not cause serious damage to the esophagus, or at least hasn't yet). I had my gallbladder removed in Feb, Continue to have same burning up and down digestive tract esophagus to rectum as before. Burning pain centers in upper abdomen under my right center rib cage. I have alternating problems with constipation and diarrhea. Had alot of constipation as a chld and teenager. Use of enemas, medications to start bowel action and stop it. Now I am having stools with the diarrhea episodes that start with little tiny hard bits of stool and progress to large amounts of "squiggles", stooles that make me think they come directly from my smallintestine. The burning mentioned above does go towared my right shoulder . I have had the blood tests for celiac which were taken at my local clinic and sent to Mayos for evaluation. All the results came back negative, in fact very low on the scale. Could give you the exact numbers, but forgot to put the paper back in my purse before coming to the library. My doctor thinks that Mayos probably won't consider doing a biopsy with such low numbers . I think the gliadin

was 2 out of 25. I told him I plan to go on a celiac diet anyway and he suggested I see the clinic dietician. I saw her yesterday and got a third celiac diet list I think that is from Minnesota's State health association. I also have the Celiac Diet list from this board and one from an Elaine on USA Sillyaks. We agreed that I would start with the Minnesota diet list which is somewhat more liberal than the other two and proceed from there if I don''t feel better , that is go to the stricter diets. The dietician's last comment was that it would be nice to have a diagnosis before going on one of the stricter diets /. I am continuing to eat some wheat products daily, bought a loaf of rye bread which is something I almost never eat otherwise. My digestion definitely doesn't like it. I wonder if the time of day, or the amount of gluten I ate at the meal just preceding the blood tests could have influenced them? I hate to continue eating gluten for the length of time it seems to take to be seen at Mayos and I guess I would like a diagnosis. I have been eating 2-3 slices of wheat bread a day, spaghetti, oatmeal, whole wheat macaroni. I rarely bake or make desserts . This evening the burning is extending across my whole upper ab under my right ribs. Perhaps I am just allergic to wheat and don't actually have celiac? The above messages bring this thought to mind. Thanks for input. Maybe I just have to write a letter to the gastro people at Mayos. I have seen several Drs there before but they always have said "ibs" . I guess this could also be something connected with post gallbladder problems/. there were no stones in the gallbladder, but apparently it was not functioning properly. Was enlarged with thick bile . I wonder why I have thick bile and if it is continuing to be thick enough to block the tubes so it can't flowinto the small intestine like it's supposed to. My stools are brown, though on the dark brown side. Any ideas would be appreciated.

strack2004

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I understood that this can be like cancer in remission. Only this will always come back!

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    • Thanks.  This is very helpful.  Our first post diagnosis grocery store trip took several hours, just trying to read labels to make sure everything is safe.   Our son loves bread and this going to be the hardest part. 
    • i would agree with most of your assessment but overall the popular chefs are very aware. Ed Kenny at Town did have  gluten-free options on the menu.  Mavro's will fix something special given advance notice but its expensive.  excellent but very expensive.  Alan Wong is very aware and will have his staff prepare something as well.  We did find many options at both Oahu  whole foods -- mostly  with tofu. the only thing  there is to be aware of cross contamination with things  next to it.  they make a great gluten-free southwestern tofo dish which is great but not if its sitting next to anything with gluten. Its not whole foods but people use the smae  spoons and tongs i found more at   down to earth in peal city than by  University ave  
    • Hi,  I'm in KOna but my kaiser doctor just retired  who was pretty good about it. I dont know of a specialist here  but most of hte kaiser docs wil test you if thats when you need to talk to them about. good luck  
    • Yes.  And wouldn't it have been nice if your doctor had tested you for Celiac disease before you went gluten free? Then you would know if your issues are Celiac or not.  That would help you know how careful you need to be, what other illnesses and problems to look for, whether you might be passing a genetic disease on to your children, if you should look for another cause of your symptoms, etc  
    • I would be very careful in giving this kind of advice, she is in an advanced stage. I was there and one additional symptom that I was getting was a strong urge to commit suicide so eating gluten for three months might not be the way to go for some people. If a gluten free diet stop the problems them gluten is the problem or a least part of it. I eliminated MSG from my diet because I notice that the common denominator for some products that affected my well being was MSG. I eliminated oats because I notice that I would get canker sores every time I ate it. Wheat is what affect my brain the most, irritability gets uncontrollable, my mental capacity greatly diminish, rash in my arms appear, can't sleep,etc. Barley makes my stomach groan, and constipated. Will try testing how Rye affect me some later time. 
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