Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Question On Blood Test Results And Cheating
0

7 posts in this topic

I went the a new doctor a couple weeks ago. My IGG, IGA and TTG are now all negative, supposedly because of my strict gluten free diet. The thing is, I have cheated on a fairly regular basis, either purposely or on accident. In fact, I went a whole week at the end of April eating whatever I wanted (after a visit to a very bad GI). I had a biopsy last September which was positive at that time but the new doctor commented that she would have preferred to see it.

So my question is, is it now possible that I do not have celiac and the diagonosis was wrong? I do feel sick sometimes after ingesting gluten, but was not sick before the diagonosis. My mom was diagonosed and therefore I had the blood test. I was however extremely sick and hospitalized when I was pregnant about 6 months before the blood work. Could I be causing damage anyway, with bloodwork being OK?

Very confused and any feedback would be appreciated. <_<

0

Share this post


Link to post
Share on other sites


Ads by Google:

You could absolutely be causing damage without having a positive blood test result. You don't get antibodies in the blood stream until you've done enough damamge to the intestines that the antibodies can pass through. And some people react more strongly than others, doing damage without having a lot of symptoms. A biopsy is the classic method of diagnosis, and I'm unaware of any false positives on a biopsy. I would say you are celiac, and to reduce your risk of complications, should stop cheating. ;-) (But you knew I'd say that. ;-) )

0

Share this post


Link to post
Share on other sites

I've always sort of questioned this myself, wondering about a possible false positive of celiac disease. My blood and biopsy were both positive, but I have many health problems that do not relate to celiac disease and have often wondered if it was in fact another disease. You can't have a false positive biopsy, either your villi are damaged or they aren't, however, I imagine there are conditions we as non-doctors are not familiar with, that could cause your villi to be damaged like that. If your Mother has celiac disease, though, and you did test positive as well, then I'd guess you do have this disease.

0

Share this post


Link to post
Share on other sites

I'm not sure that false positives exist for blood tests either - not when taken as a whole panel. Gliandin is the protein in wheat, and if you're forming anti-gliandin antibodies, the only thing you could be reacting to is gliandin, the protein in wheat. ;-)

0

Share this post


Link to post
Share on other sites

It takes months for the blood to raise and lower enough to be shown in a blood test. I really don't think you can have a false posotive in any sort of way. Also if you feel better on the diet then you most likely have it.

0

Share this post


Link to post
Share on other sites




I have had digestive problems since early childhood, am now approaching age 76. I have been diagnosed with ibs, lactose intolerance, Nerd-Gerd (Nerd is a form of Gerd that does not cause serious damage to the esophagus, or at least hasn't yet). I had my gallbladder removed in Feb, Continue to have same burning up and down digestive tract esophagus to rectum as before. Burning pain centers in upper abdomen under my right center rib cage. I have alternating problems with constipation and diarrhea. Had alot of constipation as a chld and teenager. Use of enemas, medications to start bowel action and stop it. Now I am having stools with the diarrhea episodes that start with little tiny hard bits of stool and progress to large amounts of "squiggles", stooles that make me think they come directly from my smallintestine. The burning mentioned above does go towared my right shoulder . I have had the blood tests for celiac which were taken at my local clinic and sent to Mayos for evaluation. All the results came back negative, in fact very low on the scale. Could give you the exact numbers, but forgot to put the paper back in my purse before coming to the library. My doctor thinks that Mayos probably won't consider doing a biopsy with such low numbers . I think the gliadin

was 2 out of 25. I told him I plan to go on a celiac diet anyway and he suggested I see the clinic dietician. I saw her yesterday and got a third celiac diet list I think that is from Minnesota's State health association. I also have the Celiac Diet list from this board and one from an Elaine on USA Sillyaks. We agreed that I would start with the Minnesota diet list which is somewhat more liberal than the other two and proceed from there if I don''t feel better , that is go to the stricter diets. The dietician's last comment was that it would be nice to have a diagnosis before going on one of the stricter diets /. I am continuing to eat some wheat products daily, bought a loaf of rye bread which is something I almost never eat otherwise. My digestion definitely doesn't like it. I wonder if the time of day, or the amount of gluten I ate at the meal just preceding the blood tests could have influenced them? I hate to continue eating gluten for the length of time it seems to take to be seen at Mayos and I guess I would like a diagnosis. I have been eating 2-3 slices of wheat bread a day, spaghetti, oatmeal, whole wheat macaroni. I rarely bake or make desserts . This evening the burning is extending across my whole upper ab under my right ribs. Perhaps I am just allergic to wheat and don't actually have celiac? The above messages bring this thought to mind. Thanks for input. Maybe I just have to write a letter to the gastro people at Mayos. I have seen several Drs there before but they always have said "ibs" . I guess this could also be something connected with post gallbladder problems/. there were no stones in the gallbladder, but apparently it was not functioning properly. Was enlarged with thick bile . I wonder why I have thick bile and if it is continuing to be thick enough to block the tubes so it can't flowinto the small intestine like it's supposed to. My stools are brown, though on the dark brown side. Any ideas would be appreciated.

strack2004

0

Share this post


Link to post
Share on other sites

I understood that this can be like cancer in remission. Only this will always come back!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,346
    • Total Posts
      917,410
  • Topics

  • Posts

    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
    • Will my doctor test me? So many symptoms...
      Hi! I was hoping some of you might be able to tell me if my symptoms seem like good reason to be tested for celiac disease... I actually asked my doctor to test me (years ago) and she told me she would not test me because the test is expensive... However, I am now desperate to figure out how to manage my health issues and am willing to find a doctor that WILL test me if my symptoms seem to point to celiac...Here they are:
      I have been diagnosed with all of the following over the last 12 years (I am 22 years old, and have always been a healthy weight/slightly underweight, and quite active):
      Irritable Bowel Syndrome Fibromyalgia Anorexia (started when I was 10, I have been mostly recovered since I was 14) Depression Anxiety Panic Attacks Horrible mood swings (from suicidal to totally fine in a matter of minutes)
        Chronic constipation and bloating Acne   HOWEVER, no one in my family has been diagnosed with celiac....am I wrong to think I have it??
    • Weird Reaction
      Yes, I was surprised about the MSG in broccoli as well. I just had a quick look now as I couldn't remember where I had read it but some mushrooms have it to. A Google search will bring up a few things. I always just thought MSG was an artificial food enhancer!! Insecticides are still a big possibility though. Why do you not want to try organic? We buy organic when we can and fruits and veges that are in season are usually the best and cheapest.  Thank you for the link, Cristiana. Very helpful. I have an appointment with my Naturopath in a couple of weeks and going to have a blood test done before that. She is excellent. Very knowledgeable and loves her work. Until then I'm not taking any supplements. I generally eat pretty well anyway so we'll see what she says. In the past I have used B12 injections (aka Neo Cytamen) which I found much better and safer than taken orally and very cheap. The energy boost was very noticeable. I didn't know it helped with anxiety though. She has also had me on Magnesium, Probiotics and Vitamin D3 and I also make my own Liver Tonic (Milk Thistle, Dandelion Root Powder, L-Glutamine, Taurine and Choline Bitartrate) which I use from time to time for a quick detox. Too much of anything can be bad but I think iron can be not real good in large amounts. Deficiencies can be related to gut health and/or competing for absorbtion with something else you may be taking I found. I'm no expert though but just a few things I've picked up during research. My normal GP told me to just eat some more red meat but I want to speak to my Naturopath first before supplementing. Her knowledge on nutrition is a bit more up-to-date.  I was just sitting there at lunch today after feeling great all morning and had a "weird feeling" come over me. Just a not quite right feeling. Very hard to describe and nausea seems to have returned to. It's funny that as I get older any little thing I get I seem to think it's life threatening even though all the tests I get back say I'm in good health. I guess that's part of that dread and doom and gloom feeling I mentioned earlier. Wish that would go away.  
    • Gluten and panic attacks
      There are great gluten-free pizza crusts out there, as well as good dairy free cheese. I find the key is to add good toppings, e.g. meats, carmelized onions, other veggies, white anchovies. Life goes on. Congrats. Hope the good feelings keep up. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,482
    • Most Online
      1,763

    Newest Member
    Jiifigment
    Joined