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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Trying To Figure This Out/getting Sick
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What is making me sick? Is sour cream gluten-free? I can not get into the web page for foster farms and the label says modified food starch. Could this be the culprit? I have been eating homemade guacamole. This is frustrating!

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I couldn't find Foster Farms Sour Cream on any of my gluten-free lists, but that does not mean it is a problem. You would probably have to call the company, if you can't get through on their website. The number should be on the package.

Could you be having a problem with dairy, in general. It can cause some pretty bad reactions to people who are intolerant of it. For me the reaction is a horribly painful stomachache, gas, cramping, diarrhea, and extreme urgency with BM's. It feels different for me than a gluten accident, and I do not get the fatigue I get with gluten, or the DH rash.

God bless,

Mariann

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I went to the Foster Farms Website, and it was a bit confusing. I did eventually find the Customer Service information though. for anyone who wants to get a hold of them and find out the gluten-free status of their products this info might be helpful.

Foster Farms Dairy

cs@fosterdairyfarms.com

Customer Hotline 1-800-588-2334

Consumer Services 1-800-273-2226

No point in me checking, we can't have any dairy products... <_<

God bless,

Mariann

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Thanks Mariann. I did email them and I will post their response. I could be lactose intolerant. Hum, can't the doctor test me for this? My intestines are still really sensitive and I did have some home made ice cream as well. I do know that eggs make me ill. Back to chicken and rice again.

My gut feels like something is fermenting in there, with cramps and steatorrhea (sorry to be so gross), weight loss. It is an obvious reaction to something, just what? Does this sound like a problem with lactose?

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One little bit of gluten can make you feel ill for quite a long time. My son-in-law made the artichoke dip for Sunday and rather than use the ingredients my daughter had laid out for him (like Hellman's mayo) he decided to use the Kraft light that was already opened. Well, that's not safe for us (their regular is tho') and I still feel awful! Burping, expelling gas, heatburn, stomach pains. It's been waking me up at night and just now at work they heard me clear across the hall! I never know when it's coming and it just happens! I expect by the weekend it may stop but in the meantime I feel rotten! So, it may have been your sour cream (I use Daisy, it's pure) or something else that got slipped to you. It's hard to avoid everything! I have to eat out twice at lunch this week and am worried sick about that! So, hang in there! It will get better.

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I was just in the store and the Kraft Lite mayo looks safe for us. Kraft says it will clearly list gluten and there was no wheat or barley anywhere in sight. HOWEVER, if the jar was already open somebody might have already contaminated it making a sandwich.

richard

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He also added 2 types of cheese, artichokes and sour cream. He used Daisy Sour Cream so that's okay. All the lists I have say Kraft Mayo- regular only is gluten free but you have a great point about cross contamination! I bet there were tons of bread crumbs in there. I have never personally read the label of any Kraft Mayo as I'm a Hellman's fan. Who knows? It's so complicated. I still can't find a gluten free Chili Sauce and I have so many good recipes that calls for it. Guess I could substitute Heinz Kicked Up Catsup. Anyhow, thanks again about reminding me of cross contamination. We're going to lunch there in a few weeks so I will definitely bring that up!

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Well Foster farms emailed me and said their sour cream is gluten free. Hum, maybe I need to cut out dairy for awhile anyway.

I have found I need my own butter stick, I went to use some and there were bread crumbs on it. Oh well, if I go dairy free and get some fake butter stuff no one in the house will touch it anyway!

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Speaking of fake butter stuff, Smartbeat is gluten free. I like their squeeze stuff.It's only 5 calories! Of course as I don't eat bread, I just use it on potatoes and veggies. The only bread I eat is the Buthanese Red Rice and it lasts me months. I'd rather have my sandwich on a Lundberg wild rice cake spead with cream cheese and topped with meat, tomatoes & cheese. Anyhow, they suggest easing up on the dairy when you first go gluten free. I didn't but limited myself to cheese only. Good luck!

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I went dairy free for the first year I was on the diet and then they eased it back into my diet and here I am today sitting at the computer eating string cheese and a glass of milk. If you go off it for a while it willl help your intestines heal easier.

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
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      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
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      I have not. I'll talk to my doctor about it
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