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I Want To Be The First Celiac To.....


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#1 Guest_BERNESES_*

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Posted 20 July 2006 - 04:02 PM

OK- so I NEED something to get me going again after everything that's gone on the last 3 months (quick version: had gall bladder out, took PhD exam, 36 year old husband had stroke, and now I have C Diff). I need something to look forward to, to strive for..... no, finishing my PhD is all well and good, but something more than that. That's like my career.

So, I was thinking I wanted to do something to raise Celiac awareness and money for Celiac research and be the first person with Celiac's to..... and that's where I get stuck. I want it to be something challenging, that I have to train for, but not too extreme. Don't want to be the first person with Celiac's to climb Mt Everest (too easy :P ). Something that I can raise money for and traon for between now and June 2007 because I could do it over next summer.

So, of course I've come up with silly ideas like:

1. First Celiac to try every gluten free beer in the world :P (OOH YEAH!!!!!!)
2. First Celiac to swim her way cross country (not literally- but drive from state to state and swim in at least one river/ocean/lake in every state (check out www.swimmingholes.org)
3. First Celiac to eat a pizza without keeling over (not worth it)

But I'm having trouble thinking of ideas that aren't too outrageous (like surfing on every continent which I would KILL to do but I have a hard time believing anyone would give me money to do this. Too fun!)

Marathon running is out (no back).

Someone biked across the US last summer to raise Celiac awareness so that's already been done.

Lets see- I like to swim, surf, ski, photograph, travel, walk, hike,

Looking for inspiration

Funny and outrageous ideas totally welcome!!!!
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#2 DingoGirl

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Posted 20 July 2006 - 04:10 PM

excellent Bev, and may I say that you certainly have more energy/strength than I did during my siege with c. diff!! :)

I will ponder these things. I am really wanting to "raise awareness" (such an over-used term) about Celiac....my shrink was pleased to hear about the brain issues today and what I've learned. He is a gentle and thoughtful man and was most interested. He said that in this country, Celiac is like an "orphan" disease - not popular. He said that Brad Pitt needs to get it, or somebody like that. :D BTW I told my shrink that I wouldn't be needing him as much any more, and he was so pleased. I am off almost all meds and feeling great - --

But back to topic - - I'm starting to write letters to pertinent people, getting the word out. BUT....something more dramatic must be done!

What about Kilamanjaro....even Martha Stewart did that.... ;) YOu would love it - - so would I, in better shape...

hmmmmm....pondering this one......
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#3 penguin

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Posted 20 July 2006 - 04:11 PM

I'm not as "in to" the whole excercise thing. I'm no help there.

I want to be the first sillyak with a show on the Food Network :)
Like a gluten-free Paula Deen...
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#4 eleep

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Posted 20 July 2006 - 04:21 PM

Well -- there's always my own personal goal:

I want the be the first celiac to thru-hike the Appalachian Trail. Somehow I don't think I'd be the first, but it might be good to be the first group of celiacs to do so!

I don't know whether anyone would give us money for that or not -- seems too selfish, somehow!
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#5 jennyj

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Posted 20 July 2006 - 04:56 PM

I'm not as "in to" the whole excercise thing. I'm no help there.

I want to be the first sillyak with a show on the Food Network :)
Like a gluten-free Paula Deen...


Horray for you!!!!!! I'd watch :lol:
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#6 tarnalberry

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Posted 20 July 2006 - 05:31 PM

First celiac to photograph celiacs having lovely meals in all the restaurants around the country that cater to celiacs. You could not only get funding from celiac associations and research centers, but also restaurant chains if you can come up with a plan for getting some media attention (or, for that matter, you might get the media to pay for some of it).

(If backpacking was on the list, I'd say the first celiac to backpack the PCT (pacific crest trail - runs from canada to mexico). You could probably get sponsors from some food vendors. I picked up a bunch of Gluten Free Pantry food just for backpacking.)
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#7 Guest_BERNESES_*

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Posted 20 July 2006 - 05:42 PM

Well -- there's always my own personal goal:

I want the be the first celiac to thru-hike the Appalachian Trail. Somehow I don't think I'd be the first, but it might be good to be the first group of celiacs to do so!

I don't know whether anyone would give us money for that or not -- seems too selfish, somehow!


That's a cool idea!!!!!!! I bet people would donate money for that. A group would be really cool but I don't think I can commit to the six month trek. :( We should keep that one in the "things to ponder" file.

It DEFINITELY does not have to be exercise related....My husband just came back from a Red Sox game and I thought it would be cool to do something like travel to every baseball stadium in the US and sing the Star Spangled banner ('cept I can't sing worth s*&t but I could spend the 9 months taking voice lessons :P ) or get every stadium in the country to carry gluten free beer (yeah- that now that's selfish!).

Kilimanjaro is a cool idea. Which one did Climb for a Cure do? Somewhere in So America. I would LOVE that. Or maybe keep it US and do Whitney which is the highest peak in the continental US. Denali- no.

But I'm thinking FUN too, Penguin (It's so weird to call you that- you're Chelsea) !

Keep the ideas coming. It could even be a group thing. Even more fun!!!!!!!!!!!!!!!!


First celiac to photograph celiacs having lovely meals in all the restaurants around the country that cater to celiacs. You could not only get funding from celiac associations and research centers, but also restaurant chains if you can come up with a plan for getting some media attention (or, for that matter, you might get the media to pay for some of it).


OMG- what a great idea. Like one restaurant in every state. Ooohhh... I like that!!!!!!!!!!!! Instead of fast Food Nation it could be Safe Food Nation. Restaurants would be all over that! It would be good publicity. Actually, it wuld be cool to have restaurants submit the ultimate gluten-free dinner and start a website where people vote which restaurant I go to in every city (I could hit all the state capitals). That would be cool. Local specialties gluten free.

Or get Morgan Spurlock to come live with me for 30 days and eat gluten-free. His show 30 days is awesome. But I want it to be fun too!!!!!!!!!!!!!!!
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#8 eleep

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Posted 20 July 2006 - 05:52 PM

If nothing else, I think I'm eventually going to start a celiac.com trekking group now that all the hikers are coming out of the woodwork.

Is there something that could be sold? I'm remembering selling gummi bears in high school to pay for my exchange-student trip to Germany. Could we sell baskets filled with Larabars and Immodium?
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Erica

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Posted 20 July 2006 - 05:57 PM

Is there something that could be sold? I'm remembering selling gummi bears in high school to pay for my exchange-student trip to Germany. Could we sell baskets filled with Larabars and Immodium?


LMAO!!!!!!!!!!!!!!!!!!!!!
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#10 jerseyangel

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Posted 20 July 2006 - 06:35 PM

Or get Morgan Spurlock to come live with me for 30 days and eat gluten-free. His show 30 days is awesome. But I want it to be fun too!!!!!!!!!!!!!!!

I love this one!!!!! :D
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#11 Guest_Robbin_*

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Posted 20 July 2006 - 07:30 PM

If nothing else, I think I'm eventually going to start a celiac.com trekking group now that all the hikers are coming out of the woodwork.

Is there something that could be sold? I'm remembering selling gummi bears in high school to pay for my exchange-student trip to Germany. Could we sell baskets filled with Larabars and Immodium?

Erica-you are too funny! I have a goal to at least do two states of the great Appalachian Trail in my lifetime. I think it will take me another year to get to a good place health-wise, but I will sure give it my best. The photograph idea is a great one. I would be interested in a book like that with the names of the places and their menus and pictures of celiacs eating and relaxing at the dining tables!
Love the Morgan Spurlock idea!!
Chelsea, I love that idea. I have dreamed of a show like that :) !
Bev, How about a documentary like "The life of a celiac" showing the frustration of meal planning, restaurant problems, doctor problems, finding decent bathrooms on the road in an emergency, etc. :D Not Morgan Spurlock, but you as the guide.
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#12 frenchiemama

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Posted 20 July 2006 - 10:34 PM

How about organizing an "eat in" or an "eating for awareness" campaign? People could post all of the safe restaurants in their area, and on a chosen day everyone would go out to eat with their families wearing T-shirts with some kind of logo or slogan on them. Or maybe pick certain restaurants and everyone in the area would descend en mass to eat dinner. If nothing else, it would be visible and maybe some kind of fundraising could be done selling t-shirts. I don't know. Is that silly?

Or better yet, try to enlist the help of one of the celiac friendly chains like Outback or PF Changs. Then on the chosen day everyone would go to one of those specific restaurants. It might be a good visual reminder of how many people are impacted by this disease if 25 celiacs all show up for dinner at once.
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#13 2Boys4Me

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Posted 20 July 2006 - 10:43 PM

Or better yet, try to enlist the help of one of the celiac friendly chains like Outback or PF Changs. Then on the chosen day everyone would go to one of those specific restaurants. It might be a good visual reminder of how many people are impacted by this disease if 25 celiacs all show up for dinner at once.

Plus the families that eat with them. Let's face it, when one person in the family has Celiac, it changes everyone's diet to a certain extent. We only buy gluten-free cereal now. Where 4 people used to eat Kellogg's now it's zero. The end result has to be to encourage more people to get on board with being celiac friendly or at least aware that bread=flour=wheat=even if it's "white" bread.
Know what I mean?
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#14 eleep

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Posted 21 July 2006 - 04:18 AM

There could be some kind of riff on the Bake-off or Bakesale theme.
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Erica

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#15 Turtle

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Posted 21 July 2006 - 04:20 AM

Hey!
Great thoughts and ideas. I've been thinking about doing a bike ride (& get some of my friends to help too) to earn $$ for research (once i'm more trained, i'm only up to 15 miles right now). We'll see....that's kinda my overall yearly goal (besides losing some of this stupid gluten-free weight gain agh!)
BUT, i'm also a BIG hiker and I love the App Trail idea. Maybe that could be a group thing....and for those who can't or don't want to do the entire trail maybe just do the portion of the trail in your area, or closest to you or whatever part you want to do, etc.
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