Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Westcester Dentist?


Guest Sibewill

Recommended Posts

Guest Sibewill

Would anyone know a dentist in Westchester NY who has worked with celiacs?

thanks in advance, (this tooth is killing me!)

Will

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Why do you need a Celiac-aware dentist? I just had a filling and I read somewhere, prior to going to the dentist, about Novocain being gluten-free :). In addition, nearly all toothpastes (all?) are gluten-free, and if you want to, I'm sure your dentist would let you bring your own gluten-free toothpaste. If you say this because a dentist who deals with celiacs might know more about tooth issues that accompany celiac disease, then....well, I don't really have an answer....sorry.

-celiac3270

Link to comment
Share on other sites
Guest Sibewill

Thanks. I had been concerned about perhaps the cleansing agents or something would not be good for me. Its a relief to hear that I have equal odds with most dentists. I am going to the first one I find that will accept a new patient for Monday. I guess I'm a little over-the-top paranoid these days but I was doing so well until I got sick for days recently and still can't figure out what-from.

Anyway, thank you again for clearing that up.

-Will

Link to comment
Share on other sites
celiac3270 Collaborator
I guess I'm a little over-the-top paranoid these days but I was doing so well until I got sick for days recently and still can't figure out what-from.

I think we're all paranoid about this....or at least, I am, too......but in my case because I want to feel better. I'll just try to stay healthy and if I don't get better for a long time, I'll start keeping a really meticulous record of what I eat so I can analyze what foods are giving me issues. For now, I think and hope that I'm still sick from those symptoms that can continue for a year into the diet -- I've only been on the diet for 5 months....wow, I'm rambling and not even about teeth.

Anyway....toothpaste would be gluten-free (but you could bring your own, like I said)....Novocain is gluten-free...lol.....but I see your point...there're so many things that they stick in your mouth that are questionable....I mean, how do you if gauze is gluten-free or those plastic trays that they put the fluoride in?....crazy. I think ultimately there isn't much we can do about it....when my mom asked about some product at my dentist's office, she got handed a bottle so she could "read the ingredients".....with all the flavorings there was no way to tell........unfortunately, a dentist who is celiac-aware still wouldn't be as conscientious to all those potential gluten sources..............but it's a good idea of there was one.......unfortunately, I think it would be hard to find a celiac-aware dentist on the entire east coast, let alone Westchester...........sorry.

-celiac3270

Link to comment
Share on other sites
lovegrov Collaborator

Avoid mint-flavored anything and have them use plain pumice for cleaning and you should be fine.

richard

Link to comment
Share on other sites
judy04 Rookie

Hi,

I have some experience with Dental products because every

time I went to the dentist I came back home with "brain fog",

which lasted all day. I found some dental ptoducts that are gluten

free from the Clan Thompson web site. I took a list of the

gluten free products to my dentist(who knew nothing about

Celiac) but his new assistant did because her son has the

disease. Luckily they were able to use the right products

and I no longer suffer the "brain fog".

Link to comment
Share on other sites
celiac3270 Collaborator
Avoid mint-flavored anything and have them use plain pumice for cleaning and you should be fine.

Will do....just out of interest, why?....do mint-flavored things usually contain gluten?

-celiac3270

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

I don't know why but sometimes the carrier for the flavor is wheat. I've heard this about a particular mint-flavored floss (sorry, don't remember brand) and the manufacturer of the cleaning agents he uses told him not to use the mint-flavored. Ditto with the mint-flavored topical numbing agent.

That doesn't mean we have to avoid mint. I chew several brands of mint gum and eat Peppermint Patties. All the mint-flavored toothpastes I've ever checked have been gluten-free. Most mint is gluten-free, but for some reasons the products I named are not.

Not having the numbing agent means the injection hurts a little more, but that's better than a woman I know who is so allergic to the "caines" that she has all her dental work done without being numbed. Including a root canal.

richard

Link to comment
Share on other sites
bigapplekathleen Contributor

I have a great dentist in stamford, CT, if you need one here. (EMail me for his name.) He is now very celiac aware (because of me). I put him in touch with the dentist who is doing the celiac studies for the Celiac Disease Center.

He uses a special technique to clean my teeth (like a laser thing) - no pumice, no polish.

I used to get very ill every time I went to the dentist. Now I am fine.

He even researched every ingredient before he had to do a crown last winter. I made it through that process without getting ill.

You are right about floss. I had heard that Oral-B mint floss contained gluten. I switched to Tom's of Maine, which is gluten-free.

best wishes,

kathleen

Link to comment
Share on other sites
celiac3270 Collaborator

Thank you, Kathleen....some good information. My grandparents live in Stamford, CT!...I don't think I'll end up changing dentists, but it wouldn't be too inconvenient....after all, you only see the dentist every six months and I go see my grandparents at least that frequently so I wouldn't even have to make a special trip.... :)

Thanks for the floss brand....the dentist kept telling me to floss, but, of course, I wasn't going to chance the gluten....and I didn't care enough to call the company (lol).......good to know which brands are gluten-free.

Richard, I think that although I didn't have a reaction, I was poisoned at my last visit. First off, he used floss...I knew immediately that he shouldn't have, but he just did it really quickly.... :( second, there was something mint in there.....I think it was something he put in my mouth before he gave me the shot :( third, I didn't get sick from it, which is good :D , although it is bad that my intestines were possibly damaged.

I'm not going to let this happen again.....Next time I'm gonna take charge!.....lay out the no-floss rules, etc. and make sure he listens. Thanks for all the info.

-celiac3270

Link to comment
Share on other sites
judy04 Rookie

Hi celiac3270,

I agree with Kathleen about educating our Dentists and Doctors

about Celiac because they obviously know very little and

they see patients first and if they knew maybe the kids

and adults could be diagnosed before 11 years of suffering.

I would hate to have a child suffer the way I did with

tooth pain, enamel defects, I had to have my teeth capped

as a teenager.My dentist knew nothing about Celiac, had

recently retired from the Air Force. At least he knows now.

My M.D. is very easy going and doesn't mind if I pass

along info, he ususally says "I didn't know that."

I've worked with doctors all my life and i know some

would resent advice,even a nurse's, but those are few and

far between.

I like the idea that Demidge had about leaving fliers

at supermarkets, places of employment, doctors offices,etc.

This is something I am thinking about. We have to get the

message out to stop the suffering and to advance the idea

of gluten-free restaurants and more mainstream foods available.

Another thing that upsets me is reading that people don't

have health insurance to get tested, but that is a whole

other topic, sorry to be ranting tonight...

Link to comment
Share on other sites
dkmb Newbie

Has anyone heard that if the gloves dentists use are powdered, it is possible that the powder contains gluten? I seem to have read it somewhere, but am unable to find the source.

I agree about educating medical professionals etc. about celiac disease. My granddaughter who is 6 has had caps on her front teeth for over 2 years. This happened before she was diagnosed with celiac disease. The dentist never mentioned checking out the cause behind the fact that the enamel was coming off the teeth.

DK

Link to comment
Share on other sites
celiac3270 Collaborator

A good point.....I always thought about that when I used those gloves while dissecting brains and eyes in science....yuck....not humans, though :D .

Anyway, my dentist doesn't use those gloves....I don't know if it would've been bad, but he doesn't use them......so in my case, it doesn't really matter, I guess.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,505
    • Most Online (within 30 mins)
      7,748

    Afton Horvath
    Newest Member
    Afton Horvath
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • powerofpositivethinking
      I haven't been on this forum for a long time, but it was absolutely wonderful during the diagnostic process!  My path for celiac disease diagnosis was the following: -Had normal IgA level, and my only serology positive test was the DGP IgG -Deficiencies in both Vitamins D and K that did not increase at first despite massive supplementation -Diagnosis of fat malabsorption both total and neutral -Diagnosis of severe exocrine pancreatic insufficiency (EPI) -Testing was completed to rule out causes of EPI, and the only one not ruled out was celiac. -Both traditional endoscopy and pill capsule endoscopy yielded negative results for biopsy confirmation, but my GI doctor said that both procedures simply could have missed the damaged spots. -EPI and fat malabsorption resolved after taking Creon for 6 months since my EPI was caused by celiac -23 and Me said I don't have either of the two prominent genes for celiac disease   Remember that you might not have 'textbook' symptoms, but you still may have celiac disease.   Also, I am SO incredibly grateful for this site for all the learning it has allowed me to do. I have a senior dog, and these last few weeks with her were very scary! After two hospital stays, she finally received an IBD diagnosis after having gastroenteritis and pancreatitis. I know that celiac disease is not IBD, however, through reading this site, I learned more about it. I was relieved when I found out she had IBD and not cancer this past Wednesday. I know IBD can be managed thanks to what I've learned here!  So celiac.com, not only did you help me, but you helped my pup too! Thank you ❤️  
    • SuzanneL
      It was tTG IGG that was flagged high. I'm not sure about the other stuff. I'm still eating my normal stuff. 
    • cristiana
      Thank you for your post, @Nedast, and welcome to the forum. It is interesting to read of your experiences. Although I've not had TMJ, from time to time I have had a bit of mild pain in my jaw, sharp stabbing pains and tingling in my face which appears to have been caused by issues with my trigeminal nerve.  I read that sometimes a damaged trigeminal nerve in coeliacs can heal after adopting a gluten free diet.  I try to keep out of cold winds or wear a scarf over my face when it is cold and windy, those conditions tend to be my 'trigger' but I do think that staying clear of gluten has helped.  Also, sleeping with a rolled up towel under my neck is a tip I picked up online, again, that seems to bring benefits. Thank you again for your input - living with this sort of pain can be very hard, so it is good to be able to share advice.
    • Julie Riordan
      I am going to France in two weeks and then to Portugal in May   Thanks for your reply 
    • Nedast
      I made an account just to reply to this topic. My story resembles yours in so many ways that it is truly amazing. I also suddenly became lactose intolerant, went a little under 10 years attributing all my symtoms to different body parts, never thinking it was something systemic until much later. I had the same mental problems - anxiety, depression, fatigue, etc. In fact, the only real difference in our story is that I was never formally diagnosed. When I discovered that my myriad symtoms, that had been continuous and worsening for years, all rapidly subsided upon cessation of consuming gluten, I immediately took it upon myself to cut gluten out of my diet completely. I live in America, and had lost my health insurance within the year prior to my discovery, so I could not get tested, and I will never willingly or knowingly consume gluten again, which I would have to do in order to get tested now that I have insurance again. But that is not the point of this reply. I also had extreme TMJ pain that began within months of getting my wisdom teeth out at - you guessed it - 17 years old. I was in and out of doctors for my various symptoms for about 5 years before I gave up, but during that time I had also kept getting reffered to different kinds of doctors that had their own, different solutions to my TMJ issue, an issue which I only recently discovered was related to my other symptoms. I began with physical therapy, and the physical therapist eventually broke down at me after many months, raising her voice at me and saying that there was nothing she could do for me. After that saga, I saw a plastic surgeon at the request of my GP, who he knew personally. This palstic surgeon began using botox injections to stop my spasming jaw muscles, and he managed to get it covered by my insurace in 2011, which was harder to do back then. This helped the pain tremendously, but did not solve the underlying problem, and I had to get repeat injections every three months. After a couple of years, this began to lose effectiveness, and I needed treatments more often than my insurance would cover. The surgeon did a scan on the joint and saw slight damage to the tissues. He then got approved by insurance to do a small surgery on the massseter (jaw) muscle - making an incision, and then splicing tissue into the muscle to stop the spasming. It worked amazingly, but about three months later it had stopped working. I was on the verge of seeing the top oral surgeon in our city, but instead of operating on me, he referred me to a unique group of dentists who focus on the TMJ and its biomechanical relationship to teeth occlusion (i.e. how the teeth fit together). This is what your dentist did, and what he did to you was boderline if not outright malpractice. There is a dental field that specializes in doing this kind of dental work, and it takes many years of extra schooling (and a lot of money invested into education) to be able to modify teeth occusion in this manner. Just based on the way you describe your dentist doing this, I can tell he was not qualified to do this to you. Dentists who are qualified and engage in this practice take many measurments of your head, mouth, teeth, etc., they take laboratory molds of your teeth, and they then make a complete, life-size model of your skull and teeth to help them guide their work on you. They then have a lab construct, and give you what is called a "bite splint." It looks and feels like a retainer, but its function is entirely different. This is essentially a literal splint for the TMJ that situates on the teeth. The splint is progressively modified once or twice per week, over several months, in order to slowly move the joint to its correct position. The muscles spasm less, stress is taken off the joint, as the joint slowly moves back into its proper position. The pain reduces each month, each week, sometimes even each day you go in for a visit. The joint has to be moved in this manner with the splint BEFORE the modification to the teeth begins. They then add to your tooth structure with small bits of composite, to keep the joint in its proper place after it has been sucessfully repositioned. Subtracting from your teeth, by grinding down bits of your natural tooth structure, is done very conservatively, if they have to do it at all. This process worked for me - after six months, my face, jaw, neck all felt normal, and I had no more pain - a feeling I had not had in a long time. It also made my face look better. I had not realized the true extent that the spasming muscles and the joint derangement had effected the shape of my face. The pain began to return after a few months, but nowhere near where it had been before. This immense reduction in pain lasted for a little over two years. The treatment still ultimately failed, but it is not their fault, and it is still the treatment that has given me the most relief to this day. Later on, I even went about three years with very, very good pain reduction, before the joint severely destabilized again. This field of dentistry is the last line treatment for TMJ issues before oral surgery on the TMJ. There aren't as many denists around who practice this anymore, and the practice is currently shrinking due to dentists opting for less espensive, additional educations in things like professional whitening, which have a broader marketability. Getting this treatment is also very expensive if not covered by insurance (in America at least). My first time was covered by insurance, second time was not, though the dentist took pity on me due to the nature of my case and charged like a quarter of usual pricing. Most cases seen by these dentists are complete successes, and the patient never has to come back again. But occasionally they get a case that is not a success, and I was one of those cases. A little over a year ago, I began seeing the second dentist who keeps my TMJ stable in this manner. The first dentist retired, and then died sadly. A shame too, because he was a truly amazing, knowledgable guy who really wanted to help people. The new dentist began to get suspicious when my joint failed to stay stable after I was finished with the bite splint and his modifications, so he did another scan on me. This is ten years after the first scan (remember, I said the surgeon saw "slight" damage to the tissue on the first scan). This new scan revealed that I now no longer have cartilage in the joint, on both sides - complete degeneration of the soft tissues and some damage to the bone. The dentist sat me down and had a talk with me after these results came in, and said that when he sees damage like this in cases like mine, that the damage to the joint is most likely autoimmune, and that, in his experinece, it is usually autoimmune. He has sent patients with cases like mine to Mayo Clinic. He said he will continue to see me as long as the treatment continues to offer me relief, but also said that I will probably have to see a dentist for this type of treatment for the rest of my life. He is not currently recommending surgery due to my young age and the fact that the treatment he provides manages my symptoms pretty well. I still see this dentist today, and probably will see this kind of dental specialist for the rest of my life, since they have helped with this issue the most. I did not inform him that I am 100% sure that I have celiac disease (due to my complete symptom remission upon gluten cessation). I didn't inform him because I thought it would be inappropriate due to not having a formal diagnosis. I was disappointed, because I had believed I had caught it BEFORE it had done permanent damage to my body. I had never suspected that my TMJ issues may be related to my other symptoms, and that the damage would end up complete and permanent. Luckily, I caught it about 6 months after my other joints started hurting, and they stopped hurting right after I went gluten free, and haven't hurt since. I of course did the necessary research after the results of the second scan, and found out that the TMJ is the most commonly involved joint in autoimmune disease of the intestines, and if mutliple joints are effected, it is usually the first one effected. This makes complete sense, since the TMJ is the most closely related joint to the intestines, and literally controls the opening that allows food passage into your intestines. I am here to tell you, that if anyone says there is no potential relationship between TMJ issues and celiac disease, they are absolutely wrong. Just google TMJ and Celiac disease, and read the scientific articles you find. Research on issues regarding the TMJ is relatively sparse, but you will find the association you're looking for validated.
×
×
  • Create New...