[Ursa Major]

Hi Autumn, and welcome to this board. Well, at this point I am 'only' about 70 pounds overweight (after losing 20). Before I went on the gluten-free diet, my weight was steadily going up, no matter what I tried, and I would soon have been where you are now.

Somebody explained it very well a while ago. She said that for some people, their body goes into starvation mode due to not getting the nutrients they need, and holds onto anything possibly and turning it into fat. That's why some people with celiac disease will gain instead of losing weight while still being malnourished.

I even gained weight last summer, when I had chronic watery diarrhea for six months, with everything going through me within twenty minutes after eating! It's really weird.

[penguin]

I'm a classic case except for the weight issue, also. I'm about 50 lbs overweight right now (I gained 20lbs in a month when I went back on gluten for further testing).

It's like our bodies can grab the calories out of food, but nothing else. It's really frustrating.

[Shalia]

AutumnE, on Jul 24 2006, 06:40 PM, said:

Well as my sig says I have not been tested but I have had loads of symptoms for years that stopped when I followed the diet. Classic symptoms except being overweight.

I have read a few people have not had damage to villi and was wanting to do a post to see if you are morbidly obese and still have damage. I figured some things must work properly with absorption since I am over 150 lbs overweight. At least I'm hoping its that way for me since it seems like Im accidentally getting glutened here and there. Thanks for any responses

It sounds like me. *happy dance* OK, not fair to be happy, but my husband thinks I'm on crack thinking that Celiac could be my answer to all my problems, since the pages say "weight loss" and I'm not skinny by any means. And doctors think I'm crazy. *sigh* But I've had D after nearly every meal for years, I'm constantly exhausted but can't sleep, problems with tingling in both arms and right leg, easy bruising, sores in mouth, constantly STARVING, diagnosed w/ fibro, I've had severe anxiety and mood swings (to the point of hospitalization six times) could keep adding here but my point is made, and I'm feeling instantly better on a gluten-free diet. (OK, to be fair it took about three days for the hangover to go away, but after that I felt better.) I've only been gluten-free for a week, and I'm already not starving to death and down 10 lbs.

And yet people think I'm nuts. Go figure.

I'm looking SO FORWARD to having enough money to afford Enterolab, then I can validate myself to him!! ACK!

Shalia - who still has 70 more lbs. to lose, but is hopeful now that she's not starving to death all the time.

[plantime]

Yep, I was 95 pounds overweight when I was biopsy diagnosed. Now I am 78 pounds over, and struggling to lose it.

[plantime]

Here is a link to one of the many threads we have going:

http://www.glutenfre...showtopic=16859

It is my favorite, probably because I started it!!

[mylady4]

How many here have not had a positive biopsy but a positive blood test? My blood test was 29.6 before going off gluten and 12.3 after. That was all the proof my doctor needed, plus I was feeling better. When I had the biopsy it did not show any damage. I think that was because I was never a big gluten eater (been loosing wieght through hard work for two years) and I did not have it long enough to get damages (thank goodness). I just found out from my primary that my intestines were enflamed and small ulcers on them (that caused her to do test for Whipples disease, no results yet). The GI did not tell me any of this though and for that I am a bit miffed.

I think that they need to get rid of the characteristic of weight loss. I certiantly did not have it. Just the opposite. I agree with the statement that some people's body goes into starvation mode. I think that is what mine has done. I was running and lifting weights everyday and nothing. By the amount of exercise I was doing I should have been loosing 2-3 pounds a week but nothing. I am just hoping that once everything gets straightened out I can finish loosing. The wait is going to drive me nuts though.

Nicole

[wacky~jackie]

AutumnE, on Jul 24 2006, 08:40 PM, said:

Well as my sig says I have not been tested but I have had loads of symptoms for years that stopped when I followed the diet. Classic symptoms except being overweight.

I have read a few people have not had damage to villi and was wanting to do a post to see if you are morbidly obese and still have damage. I figured some things must work properly with absorption since I am over 150 lbs overweight. At least I'm hoping its that way for me since it seems like Im accidentally getting glutened here and there. Thanks for any responses

I highly recommend this article from the newsletter. It's what made me decide to be tested.

http://www.celiac.com/cgi-bin/webc.cgi/st_...347&p_catid

[tiffjake]

AutumnE, on Aug 14 2006, 06:54 PM, said:

Thanks everyone with suppourt it means alot to me and the info to read. Im slowly adapting. I'll have to respond on that diet thread I need all the suppourt I can get.

Hey AutemnE! I just saw your thread. I, too, am an overweight celiac. I am about 270. I have almost always been overweight. I lost some really quickly after going gluten-free, but gained it back (damn gluten-free brownies and cookies!). I am doing weight watchers now, and I really like it! It keeps me in check, and I still enjoy my gluten-free goodies! I am also joining the gym on Sept 1 (waiting to join for a FULL month, since the rate is NOT pro-rated!) Just one more person to add to you celiac and overweight list!