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Lymph Nodes


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20 replies to this topic

#1 ali786

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Posted 25 July 2006 - 04:44 PM

How many of you with celiac or gluten intolerance have or had swollen lymph nodes and where in your body were they found...I know you are out there people...........
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#2 Mia H

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Posted 25 July 2006 - 05:10 PM

When my symptoms of chronic fatigue showed up about 15 years ago I had enlarged lymph nodes in my neck, they even took a very painful biopsy which was negative. THey were enlarged and tender for years then slowly diminished.

After I quit gluten and casein 2 months ago they hurt again for a couple of weeks as my body worked to clear the toxins from my body. I used to be swollen and puffy and hung over feeling every morning, stiff like an old lady. Its slowly improving.

also the lymph nodes under my arms hurt too (breast tenderness), I assumed it was the same deal
Mia
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#3 jaimek

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Posted 26 July 2006 - 04:34 AM

I actually had a couple of swollen lymph nodes. Had two in the groin area (one of which was removed and biopsied). I also used to get them under my arm too. Haven't had them since going gluten free (3 years now). Think there is a correlation? I never even thought about that!
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gluten-free since 2/6/04

#4 kabowman

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Posted 26 July 2006 - 04:49 AM

I always had swollen glands/lymph nodes in my neck, painful, for days at a time which were not associated with being sick - doesn't happen now that my diet has been fixed.
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-Kate
gluten-free since July 2004

Other Intolerances:
Strawberries and Banannas (2007)
Nitrates (April 2006)
Yeast (which includes all vinegar so no condiments) (Oct. 2004)
Peanuts (Nov. 2004)
Soy (Oct. 2004)
Almonds (Sept. 2004)
Corn (Sept. 2004)
Lactose/Casein (1999)

#5 ravenwoodglass

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Posted 26 July 2006 - 05:12 AM

How many of you with celiac or gluten intolerance have or had swollen lymph nodes and where in your body were they found...I know you are out there people...........


I did, neck and groin mostly. They were swollen for years and doctors attributed it to my 'picker's acne' their misdiagnosis for my DH.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#6 ali786

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Posted 26 July 2006 - 05:22 AM

I did, neck and groin mostly. They were swollen for years and doctors attributed it to my 'picker's acne' their misdiagnosis for my DH.



Vow so far noone has swollen lymph nodes on the back!!! I don't know if they are swollen lymph nodes in my back or what...I may have some swollen lymph nodes in my neck but no where as big as they are in my lower back.
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#7 damnceliacdisease

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Posted 08 December 2008 - 05:47 AM

Hi just diagnosed with celiac disease as a result of my initial complaint which was swollen lymph nodes in both the clavical and underarm (axial) regions on the left hand side. Tested postive for mono but swollen glands still there after 8 months. Blood tests apart from mono came back normal. Now into 3rd week of gluten free diet so will see if theres any improvement after going gluten free. Had CT and nothing untoward seen. Had scopes in both ways and nothing back on possibility of intestinal lymphoma which is a good sign as intestinal lymphoma doesnt seem to have a good prognosis in terms of survival. Will update post in a while as to how gluten free diet goes in relation to swollen lymph nodes.
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#8 SaraKat

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Posted 17 August 2010 - 11:30 AM

Pain in my left armpit was one of the reasons I kept going back to the Dr. Finally they did an U/S and it showed one enlarged node at 1.5cm. They told me to wait to see if it went down, 3 months later I had another U/S and there were 2 enlarged- 2.1cm and 1.8cm. At that point I was referred to an oncologist and had a CT Scan and XRAY. They had fatty centers and she "didn't think" they were malignant so she wanted to wait 2 more months to redo the U/S. The pain was so bad I had them retested a month later and the largest one they could find was 7mm. So, they went down, but I still have the pain. WEIRD. This was 3 months ago.

Fast forward to last week- I went to a rheum for left sided rib pain I was having (ongoing) and she did a blood test and it was positive for celiac. So, I wonder if those enlarged nodes were related.
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Positive TTG IGA blood test 8/13/10
Endoscopy confirmed 8/31/10
Started gluten-free diet 9/1/10

#9 Minervalakeny

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Posted 01 March 2012 - 04:55 AM

I have never been diagnosed,,either by biopsy of the upper small intestine NOR blood work that I have celiac disease BUT
wheat product make me sick so I have given them up. But now I find out that some fillers have wheat so I am going to be more Careful.

ALSO, I HAVE SWOLLEN LYMPH NODES in the messentric area of bowel. I also have small bowel thickening in the ILEUM. I will go for another colonoscopy soon so he can ck up into the ILEUM. I am concerned that I may have T-Cell lymphoma.. Does anyone know about
this...

Both the cancer docs say do the colonoscopy, do a PET SCAN and then small bowel study.
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#10 frieze

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Posted 01 March 2012 - 09:16 AM

Vow so far noone has swollen lymph nodes on the back!!! I don't know if they are swollen lymph nodes in my back or what...I may have some swollen lymph nodes in my neck but no where as big as they are in my lower back.

No lymph nodes on your low back, perhaps fatty tumor, inclusion cyst....
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#11 Ninja

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Posted 01 March 2012 - 10:07 AM

This is really interesting! I've always had swollen lymph nodes (with illness and without) had no idea that there could be a correlation!
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Gluten Free 2/12 
Oat Sensitive 9/12

 

Let the soul speak with the silent articulation of a face

~Rumi
 

 


#12 UKGail

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Posted 01 March 2012 - 10:43 AM

"When my symptoms of chronic fatigue showed up about 15 years ago I had enlarged lymph nodes in my neck, they even took a very painful biopsy which was negative. THey were enlarged and tender for years then slowly diminished.

After I quit gluten and casein 2 months ago they hurt again for a couple of weeks as my body worked to clear the toxins from my body. I used to be swollen and puffy and hung over feeling every morning, stiff like an old lady. Its slowly improving."

I could have written the above post. After 6 months gluten-free, they still ache somewhat, but they have gone down in size. They start to ache more if I get a whiff or trace of gluten.
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#13 trayne91

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Posted 11 May 2012 - 06:14 PM

Just reading post. Realized I forgot to write that symptom down when giving gi my list. Did a search on the forum and here I am. I am still waiting for biopsies to come back, but I also get on on the edge of my face by my chin that flares up and is sore from time to time. I also recently had one flare up there, my armpit, inside of elbow, and top of wrist. I went to dr. And had blood work done and ct scan that came back normal, besides noticing fatty liver. Yes, I get them, too.
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Tracy

Gluten-free 5/14/12. Elevated TTG IGA 4/12
Positive biopsy (flat folds and elevated Intraepithelial lymphocytes) 5/9/12
Results delivered 5/14/12
Migraines, swelling, bloating, asthma, tingling in legs, anxiety, fatigue, etc...
Low Vitamin D 17. Three years of 1000 IUs of D3 a day, now up to 36 (30 normal)
Hysterectomy 1/2010
WPW Syndrome - Diagnosed at 17. Ablation 9/2006


#14 peaches987

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Posted 11 May 2012 - 10:36 PM

Prior to getting diagnosed with celiac or even understanding what it was, I had an infetion where I was prescribed two rounds of a really strong antibiotic. All told, I was on this stuff for nearly 30 days, per the doctor's orders, it did work to get rid of my infection, but I quickly realized I had a secondary problem. Halfway through the second round of medication (pills), I started having swollen lymphn nodes. not just one or two, like, ten of them. Around my ears, on the back of my head, on the upper part of my neck, I had more lumps than a rhinoceres. And I kept calling the dr saying, are you sure I'm not allergic to this stuff because seriously, my head is COVERED with swollen lymph nodes? My infection's getting better but what the heck is happening to me??

To this day, I'm convinced the antibiotics (which had this massive warning label about being very hard on the stomach) were what pushed my celiac (which I didn't even know I had) into 'red alert' so to speak. I think that the antibiotic drug course made my intestines so bad they caused my lymph nodes to go crazy. I went back to the doctor in the midst of this. Dr examined the ten or so swollen nodes on my head and became concerned something was horribly wrong with me. I was then informed that after my antibiotic course was done, I should be scheduled for bloodwork immediately. None of them believed what I kept insisting, that the antibiotics--while helping me---were also oddly making me sick!!

Well the antibiotic course finished. My lymph nodes returned to normal as SOON as I was off the meds, and my bloodwork came back with severe anemia. And THAT was what made the doctor realize I had celiac.

So I can't say that celiac is the only cause for swollen lymph nodes, but I'm convinced it was the reason why the ones on my head went so crazy.
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#15 Blenderly

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Posted 23 February 2013 - 12:13 PM

I get swollen painful lymph nodes, in my underarms, as does a friend of mine, who also suffer with Celiac.  I have noticed they only seem to swell up when I have either vinegar, or grain alcohols.  But, I don't seem to have that symptom from other glutening incidents.  Was wondering if anyone out there has had that experience?  If it has something to do with distilled grains?  I tried to do some research about it as to why, but didn't come up with anything?  If I have anything containing vinegar I get the typical gluten symptoms, rash, nausea, dizziness, headache, stomach pain, fatigue, etc..etc.....but then also this?!  Anybody else?


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