Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Afraid To Go To Sleep

samking72

Recommended Posts

samking72 Rookie
samking72
Posted

Last night is not the first time that this has happened...

I was so afraid to go to sleep last night because everytime I was almost asleep I would wake up gasping for air. After that it was like I had to tell my brain to breathe. My heart rate was getting faster and faster everytime I woke up. This has happened 4 times in the 6 weeks. Could it be stress related? Anxiety attack? Has anyone ever had this happen? I really thought I was going to die, no joke. I finally just shut down and obviously i made it through the night but this is making me really nervous that it has happened so many times in such a small window of time. Any ideas?

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Sarah8793 Enthusiast
Sarah8793
Posted
Last night is not the first time that this has happened...

I was so afraid to go to sleep last night because everytime I was almost asleep I would wake up gasping for air. After that it was like I had to tell my brain to breathe. My heart rate was getting faster and faster everytime I woke up. This has happened 4 times in the 6 weeks. Could it be stress related? Anxiety attack? Has anyone ever had this happen? I really thought I was going to die, no joke. I finally just shut down and obviously i made it through the night but this is making me really nervous that it has happened so many times in such a small window of time. Any ideas?

This has happened to me. And I was afraid to go back to sleep also. I was afraid I would stop breathing and never wake up. The only thing I have found connected to this is eating something with MSG in it or gluten. Since eliminating these it hasn't happened for awhile.

Sarah

Link to comment
Share on other sites
MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

You should definitely go see your doctor.

Link to comment
Share on other sites
Nancym Enthusiast
Nancym
Posted

It sounds like sleep apnea, which can be deadly. Go see your doctor and insist on getting evaluated.

Link to comment
Share on other sites
taz sharratt Enthusiast
taz sharratt
Posted
Last night is not the first time that this has happened...

I was so afraid to go to sleep last night because everytime I was almost asleep I would wake up gasping for air. After that it was like I had to tell my brain to breathe. My heart rate was getting faster and faster everytime I woke up. This has happened 4 times in the 6 weeks. Could it be stress related? Anxiety attack? Has anyone ever had this happen? I really thought I was going to die, no joke. I finally just shut down and obviously i made it through the night but this is making me really nervous that it has happened so many times in such a small window of time. Any ideas?

thats really frightening, you cant go without sleep you should go see your doctor.

Link to comment
Share on other sites
plantime Contributor
plantime
Posted

I have that happen to me now and then. A sleep study determined that I have mild sleep apnea. As long as I do not sleep on my back, I am fine.

Link to comment
Share on other sites
GFBetsy Rookie
GFBetsy
Posted

This happened to my DH while taking anti-depressants . .. could that be a contributing factor?

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lorka150 Collaborator
lorka150
Posted

i went through this forever until i went gluten-free. they did test after test and found nothing. i was horrified. i went to sleep clinics, but because they 'wake' you when you're there, it didn't happen because it happened when i awoke on my on.

they disappeared after i went gluten-free. i understand your fear. honestly, it was the scariest thing in the world.

are you newly gluten-free?

Link to comment
Share on other sites
Lister Rising Star
Lister
Posted

i had the same thing for a while, but it would happen right before i fell asleep preventing me from going to sleep, over and over until i would just fall alseep.

i do belive mine where axiety related you should look into it, it seems to be worse on glutened days

Link to comment
Share on other sites
Carriefaith Enthusiast
Carriefaith
Posted
Last night is not the first time that this has happened...

I was so afraid to go to sleep last night because everytime I was almost asleep I would wake up gasping for air. After that it was like I had to tell my brain to breathe. My heart rate was getting faster and faster everytime I woke up. This has happened 4 times in the 6 weeks. Could it be stress related? Anxiety attack? Has anyone ever had this happen? I really thought I was going to die, no joke. I finally just shut down and obviously i made it through the night but this is making me really nervous that it has happened so many times in such a small window of time. Any ideas?

You should go to your doctor for sure. Maybe you have an allergy? Those symptoms are similar to my food allergy symptoms. I get heart palpitations, heart pain, fast heart rate, trouble breathing, a feeling like my throat will close over, and hives or a rash.
Link to comment
Share on other sites
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

-

Link to comment
Share on other sites
Guest SusieQ
Guest SusieQ
Posted

As we age, and/or when we gain weight, the tissues in the throat can collapse somehow and stop our breathing. That is called sleep apnea.

I was exhausted for years. Thought it was part of my dx. of fibromyalgia. I think that dx. actually was gluten intolerance and sleep apnea now.

A person can wake up hundreds of times a night apparently, just awake enough to take a breath and go back to sleep. However, it interferes with sleep enough so that one doesn't get in to deep sleep and so you never wake up feeling rested.

Get the doc. to order a sleep study for you. If it comes up positive, then you would need a machine for breathing. Air rushes in and it keeps the throat from closing up. I'm very comfortable with mine. Didn't take me long to start feeling better with the machine.

It is really important to get it diagnosed and treated because it can affect ones health in so many ways. It can contribute to heart disease and contribute to high blood pressure to start with. Along with causing automobile accidents from falling asleep at the wheel.

Also, it is, in and of itself dangerous. It can happen that a person just doesn't wake up enough to get that breath, but I don't think it is common, but it does happen.

I'm losing weight since going gluten free and hope to get to where I don't need the machine anymore. Of course, I just plain feel so much better with being able to get some sleep during the night. Not entirely rested now, but lots better.

I hope this helps.

Link to comment
Share on other sites
samking72 Rookie
samking72
  • Author
Posted

Thanks everyone! I'll be going to a sleep clinic for tests very soon. Hopefully that will determine what's wrong. I'm pretty sure it's stress, but we'll see :)

Link to comment
Share on other sites
  • 1 month later...
Guest ~jules~
Guest ~jules~
Posted

When we were kids my brother did that in his sleep all the time, I'd smack him or nudge him to wake up. His wife says he's still doing it, and it scares her to death. I have no clue what it is though sorry.....

Link to comment
Share on other sites
GFBetsy Rookie
GFBetsy
Posted
When we were kids my brother did that in his sleep all the time, I'd smack him or nudge him to wake up. His wife says he's still doing it, and it scares her to death. I have no clue what it is though sorry.....

jules -

Talk to your sis-in-law about apnea. Childhood apnea is rarer than adults having it, but it does happen. I've also heard that lots of people who are later diagnosed with sleeping disorders were first diagnosed with ADD or ADHD. (Inability to sleep well leads to inability to concentrate.) So if he has trouble concentrating, that might be another sign that he's having sleep problems. Anyway, if I were you I'd try to talk my brother into going to a sleep clinic. My husband is going later this month because I'm tired of smacking and nudging him to wake up. Besides, I know that once I'm asleep no one wakes him up when he stops breathing. And that scares me.

Link to comment
Share on other sites
  • 1 month later...
ECBorgUSA Newbie
ECBorgUSA
Posted
Last night is not the first time that this has happened...

I was so afraid to go to sleep last night because everytime I was almost asleep I would wake up gasping for air. After that it was like I had to tell my brain to breathe. My heart rate was getting faster and faster everytime I woke up. This has happened 4 times in the 6 weeks. Could it be stress related? Anxiety attack? Has anyone ever had this happen? I really thought I was going to die, no joke. I finally just shut down and obviously i made it through the night but this is making me really nervous that it has happened so many times in such a small window of time. Any ideas?

Samking.

I have experienced the "gasping for air" scenario before bedtime after eating candy with modified food starch on an empty stomach. Bad experience. If you are gluten intolerant eating any food with a large amount of any ingredient like modified food starch with gluten in it on an empty stomach could produce the same "gasping for air" experience.

EricB

Link to comment
Share on other sites
  • 1 month later...
zachsmom Enthusiast
zachsmom
Posted

Okay moy mom did this for years and it ruinins your heart.. no kidding ... This damages your heart over time. So please get it checked if its gluten related... it possibly will stop ... I would have heart palputaions when I ate too much sugar. But my mom never had this checked and she is now dying from it.. SHe has to loose weight and just can not do it .. so its worsened and now she will most likely die of this. ( horrible horrible feelings about his ) but please get it checked to rule the things out.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,094
    • Most Online (within 30 mins)
      7,748
    Tracym
    Newest Member
    Tracym
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Waiting for urgent referral.

      By trents · Posted

      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      50 YO Male Recently Diagnosed with Celiac Disease

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Waiting for urgent referral.

      By cristiana · Posted

      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      Celiac Dietician

      By Denise I · Posted

      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      14 year old with Celiac & EOE still suffering...

      By Posterboy · Posted

      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...