Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Any Celiacs From Gainesville, Florida?
0

22 posts in this topic

There used to be a Gainesville celiac group, but it is apparently defunct. I'm a UF graduate student, so I'm thinking about starting one through UF (if there are a bunch of students) or just in Gainesville itself.

Let me know if anyone's interested -- I want to get a sense of how many people there might be before I take this on (otherwise, it's not a productive procrastination tool for me as I should be writing my dissertation).

0

Share this post


Link to post
Share on other sites


Ads by Google:

I'm in Orlando... kind of far :(

0

Share this post


Link to post
Share on other sites

I am a student at SFCC, is that good enough?

I have been looking for a local support group and have been unsuccessful so far, so I would be interested in starting one, or at least attending.

Let me know.

0

Share this post


Link to post
Share on other sites

SFCC is definitely close enough -- and there's one other UF graduate student celiac on this listserv as well! I'm not in a great position for the next few weeks to get something started (turning in a major draft to my advisor soon), but perhaps sometime in September we could set something up?

0

Share this post


Link to post
Share on other sites

I live in Sout Florida. :( far from Gainesville

*South*

0

Share this post


Link to post
Share on other sites




I'm surprised they dont' have a group there. I go there to see DH's family every year and I'd always ask local groups where I should eat in their town. We almost always go to Hops and some place called Ashleys which is sort of a dive but I've been to neither since my dx. I think you can get help starting a group from www.csa.org (not sure of address). Best of luck to you!

0

Share this post


Link to post
Share on other sites

hi!

i'm very interested in getting together... you guys still up for it?

0

Share this post


Link to post
Share on other sites

I live in south florida. martin county. maybe in a couple of years I might be a gator though.

0

Share this post


Link to post
Share on other sites

Florida is much to big of a state. everybody lives everywhere!! I just went on vacation and we drove from Ma to Connecticut and I was like, such a short ride to a completely different state!! We also had to drive through Rhode Island. You could drive for hours and never get out of Florida at the end of the day, depending on where you start from. boring, flat, swampland. That's where we live. Go FLORI-DUH. (I discovered from my cousins thats how they pronounce Florida in California.) Nice, huh? :lol:

0

Share this post


Link to post
Share on other sites

hey,

I am currently a student at UF and was wondering about a support group. If you did start one, I would be more than interested! Let me know your progress!

Thanks!

0

Share this post


Link to post
Share on other sites

Hey, I'm a UF law student and I'd be interested in starting an SG-sponsored Celiac/gluten-free awareness group here at the university with you guys. Send me an e-mail if you are interested, or look me up on facebook.

-Grant Johnson

0

Share this post


Link to post
Share on other sites

Hi,

I am a PhD student in psychology at UF. I was diagnosed with a pretty severe case of Celiac Disease in 2002 and still struggle to maintain a healthy weight. Besides the weight issue, I am finally feeling that I am able to stick to a 100% gluten free diet and exercise four times a week, which makes me feel very healthy. I also struggle with the skin condition associated with Celiac Disease when I am very ill and that has been pretty devastating. I would love to join a support group in Gainesville if one has been started. If not, I would also be willing to start a group.

Katie

p.s. try Pamela's pecan shortbread and chocolate chunk cookies...they are phenomenal!!

0

Share this post


Link to post
Share on other sites

Hi, Gainesville Celiacs!

Let's get together!! For our first meeting, we could go to dinner somewhere.... Outback? Carrabbas? or just meet at Starbucks or Maude's or somewhere and toss around ideas. I tried to find out about a group here when I was diagnosed Aug 2005, but the "contact person" said she was too busy. So then I went to Jacksonville for months after that to their support group, but it fell apart too! :( I would love to get together, please, please, please, let's do it! :D

0

Share this post


Link to post
Share on other sites

i don't have much time to work on getting a group together, but i would also love to attend a meeting. i live in gainesville as well.

0

Share this post


Link to post
Share on other sites

Hello! My name is Carolanne...and I've lived in Florida for over 20 years. I am a Celiac, and I've been Wheat-Free for 20 years, and Gluten-Free for over 3 years. I'm trying to locate people who live Gluten Free here in Florida...and it's not been easy. Most of the links I've found have been disconnected or discontinued...and I'm having a devil of time finding people to connect to. I'd really like to find others who are interested in getting together...and I understand that I am not alone. I've read several posts from people looking for help, Doctors, restaurants, support groups, meetups and such here in Florida.

GlutenFreeInFlorida-subscribe@yahoogroups.com

I've created a Yahoo Group in the hopes of connecting with other people here in the Sunshine State...and to help others connect as well. I'd like to know if anyone is interested in something that will enable you to contact others in your own local area. I'd like to make more information available to people who are living Gluten-Free in Florida.

0

Share this post


Link to post
Share on other sites
There used to be a Gainesville celiac group, but it is apparently defunct. I'm a UF graduate student, so I'm thinking about starting one through UF (if there are a bunch of students) or just in Gainesville itself.

Let me know if anyone's interested -- I want to get a sense of how many people there might be before I take this on (otherwise, it's not a productive procrastination tool for me as I should be writing my dissertation).

Hi there. My name is Michele. I believe I suffer from either an intolerance or sensitivity towards gluten. I live in G-ville as well. I attended SFCC several years ago, then I moved to go to a diff college (nothing personal towards UF) then I moved back. Anyhow, I am interested in getting together.

I was also hoping to find some info on a G-ville doc to test whether there's truth to my personal gluten theory, but I

0

Share this post


Link to post
Share on other sites

Michele,

I live in Gainesville also. Through diet elimination I have determined I have gluten intolerance. I searched through the Shands directory and all the doctors in Gainesville hoping to find one that was familiar with Celiacs; I did not. I ended up going to Digestive Disease Associates of America. Since it was at least 3 months until the next doctor was available, I ended up seeing an ARNP. She seemed to have an understanding of Celiacs. I have not been eating gluten for 1.5 years, so she will not do a blood test on me until I eaten gluten for 20 days. The thought of eating gluten for that amount of time makes me what to cry, so I am not sure if I will be returning. I wish I knew of a great doctor in Gainesville, but I can't say that I do. Nevertheless, I hope this information helps. Below is the link for Digestive Disease Associates. The website has the address, phone number, and a brief biography of all the doctors. Let me know if I can do anything else to help.

http://www.ddadocs.com/

Best,

Andrea

0

Share this post


Link to post
Share on other sites

I went to Digestive Disease and that is where I got my diagnosis. I just told them my symptoms and a PA ordered a bunch of blood tests, Celiac among them. They were not too helpful with the diet (I got the standard handout ordering me not to eat any gums and no vinegar -- so that was confusing for a while) but I am grateful to have been diagnosed so quickly. I can't remember the PA's name (Patricia, maybe?), but my Dr. is Leibach and I liked him all right.

Good luck!

As for the support group, I'm definitely open to getting together. I feel like a broken record when I say that ;) because I keep saying it but nothing ever happens! Andrea, Michele and Shelly -- if you want to get coffee sometime or something, let me know! :)

0

Share this post


Link to post
Share on other sites

Hi Michele,

I know these posts are old, but in case you never found anyone (or for any other new people from Gainesville) I figured I'd post. I went to Dr. Dean Kramer. He's located near North Florida Hospital, and while he did want to diagnose me with IBS, he did agree to do the bloodwork for gluten for me when I asked him to. I haven't been back to him because he cost way too much with my bad insurance, but he did send me a letter stating my bloodwork results were postive for celiac and I've been gluten free for a few weeks now.

Also, did anything ever happen with a support group or meeting up? I'm interested, and I need help! :)

0

Share this post


Link to post
Share on other sites

I was also wondering if a group ever got started up because I would definitely be interested in joining. I was diagnosed not too long ago. I'm a grad student at UF so I would be interested in one on campus or off.

Hi Michele,

I know these posts are old, but in case you never found anyone (or for any other new people from Gainesville) I figured I'd post. I went to Dr. Dean Kramer. He's located near North Florida Hospital, and while he did want to diagnose me with IBS, he did agree to do the bloodwork for gluten for me when I asked him to. I haven't been back to him because he cost way too much with my bad insurance, but he did send me a letter stating my bloodwork results were postive for celiac and I've been gluten free for a few weeks now.

Also, did anything ever happen with a support group or meeting up? I'm interested, and I need help! :)

0

Share this post


Link to post
Share on other sites

Hello, I was just diagnosed and am in Gainesville. Would love to learn resources, pool local knowledge - did this group get off the ground? Any interest in getting one together, if not?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,348
    • Total Posts
      917,421
  • Topics

  • Posts

    • Testing After Celiac Disease if IgA deficient
      If you have Celiac Disease, and you are IgA deficient, what do they check on your labs to make sure you are not being "glutened"?
    • Weird Reaction
      Hi again Richie, A lot of coeliacs have a problem with coffee, maybe you do too. It could explain the shakes you describe. I am sensitive to coffee, and haven't touched caffeine since last summer. (The detox lasted for 10 days and it wasn't pleasant, so if you ever give it up, do it gradually).  Sometimes when you're intolerant to something, when you have it, it makes you feel 'better' but it doesn't last and usually end up worse, it's like a drug - and in the case of caffeine it is. I also take a daily probiotic (gluten free and dairy free etc)., which is good for healing the gut.
    • Weird Reaction
      Cristiana and Flowerqueen, I haven't been officially diagnosed as Celiac but I had a DNA test in March 2015 which revealed I had the Celiac gene on both sides so it was advised that I have a test to see if I did have it. I didn't but I went off gluten immediately and haven't "knowingly" eaten it since. Before the DNA test I didn't have the nausea and trembling type feelings that I do now but I occasionally got the shortness of breath which I used to put down to being a smoker. (I quit almost 16 years ago) Anyway, this morning I woke with the nausea feeling, the trembling, loss of appetite, feeling of doom again but it happens so intermittently. I do have some unavoidable stress in my life all of a sudden so maybe it's all connected some how. But on the plus side my bowel movements have returned to normal and I go often especially after waking and having coffee. (Oh, and Cristiana don't worry about tmi with me. You would have to try pretty hard to offend me and nobody has done it yet. haha) I always think the worse to. The internet and Google are great but information overload becomes a real possibility creating some frightening scenarios. It's just interesting that the coffee with the MCT Oil (Brain Octane is the actual name) and butter makes me start feeling better and the nausea, trembling, anxiety seem to be extinguished by it but coffee with low fat milk doesn't although I do get more energy from it. I did read somewhere that MCT Oil was good for gut health though and if I had to describe it it would be like it just smooths over all the bad stuff with a nice soft lining.  It was recommended in my DNA test that I have more fats in my diet and low processed foods but I occasionally have gluten-free biscuits, gluten-free ice-cream (my true weakness) and gluten-free weet-bix. I've checked most of these items ingredients and they are pretty good. There is a lot of gluten free rubbish out there though which I completely avoid. Thanks GFinDC for your reply. I was going to speak to my Naturopath when I see her about Immune Health. My plan usually involves the Liver Tonic I mentioned above and heavy on the L-Glutamine which, apparently, is supposed to be excellent for gastrointestinal health but I'm not going to supplement with anything just yet until I get my blood work done and see if it reveals any deficiencies. I'm suspecting Iron though. Because I've had recent tests all coming back good I'm thinking a possible scenario would be a die-off effect I've heard of where all the bad bacteria have been killed off but your body can't rid itself of them quick enough so you actually feel or get worse before you get better. That's where the detox strategy comes in and I'm assuming replacing them with Good Bacteria via Probiotics. Again, this is what I have read in the past but it does seem to make sense in some cases. I do feel better in having found these forums though.  
    • Daughter with celiac- need test result help
      You are doing well.  We didn't have a "normal" tTG for 6 years and were also very strict.  Kiddo was dx with hypothyroid as well and tTG fell a lot after getting on meds for that but still didn't normalize.  Finally cam down within the last 6 months (this after a trip to THE Celiac Dr. several years ago).  I wish we had done a DGP much earlier and I had pushed for that sooner.  I would start there and see what happens.     Sounds like you're doing everything right though. Sometimes it just takes time. 
    • Will my doctor test me? So many symptoms...
      Remember that you have to be eating a normal gluten diet for the testing so don't cut back & don't stop eating it. Make sure they do the full, current celiac panel: Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA   
      Also can be termed this way: Endomysial Antibody IgA
      Tissue Transglutaminase IgA 
      GLIADIN IgG
      GLIADIN IgA
      Total Serum IgA 
      Deamidated Gliadin Peptide (DGP) IgA and IgG
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,483
    • Most Online
      1,763

    Newest Member
    Amanda912
    Joined