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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Any Celiacs From Gainesville, Florida? - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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Any Celiacs From Gainesville, Florida? Thinking of starting a support group Rate Topic: -----

#1 User is offline   eleep 

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Posted 27 July 2006 - 12:07 PM

There used to be a Gainesville celiac group, but it is apparently defunct. I'm a UF graduate student, so I'm thinking about starting one through UF (if there are a bunch of students) or just in Gainesville itself.

Let me know if anyone's interested -- I want to get a sense of how many people there might be before I take this on (otherwise, it's not a productive procrastination tool for me as I should be writing my dissertation).
Erica

Inconclusive blood test results
Positive Enterolab results
Positive dietary results
gluten-free since 2/10/06
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#2 User is offline   samking72 

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Posted 27 July 2006 - 12:35 PM

I'm in Orlando... kind of far :(
Celiac - 06/06
Lactose Intolerant - 05/06
Tendonitis in wrists, elbows, and shoulder
Arthritis in knees
Anemia
Possible Sleep apnea (waiting on test)
Falling apart :)


Town Maintenance; Construction Worker; Horse Trainer and Trail Guide of Rachelville
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#3 User is offline   Jace006 

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Posted 21 August 2006 - 12:54 PM

I am a student at SFCC, is that good enough?

I have been looking for a local support group and have been unsuccessful so far, so I would be interested in starting one, or at least attending.

Let me know.
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#4 User is offline   eleep 

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Posted 21 August 2006 - 01:12 PM

SFCC is definitely close enough -- and there's one other UF graduate student celiac on this listserv as well! I'm not in a great position for the next few weeks to get something started (turning in a major draft to my advisor soon), but perhaps sometime in September we could set something up?
Erica

Inconclusive blood test results
Positive Enterolab results
Positive dietary results
gluten-free since 2/10/06
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#5 User is offline   beaglemania 

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Posted 21 August 2006 - 01:20 PM

I live in Sout Florida. :( far from Gainesville

*South*
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#6 User is offline   floridanative 

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Posted 21 August 2006 - 01:45 PM

I'm surprised they dont' have a group there. I go there to see DH's family every year and I'd always ask local groups where I should eat in their town. We almost always go to Hops and some place called Ashleys which is sort of a dive but I've been to neither since my dx. I think you can get help starting a group from www.csa.org (not sure of address). Best of luck to you!
Dx'd with anemia - March 2005
Positive blood tests - Sept. 2005
Positive biopsy - Jan. 2006
Gluten free since 1-23-06
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#7 User is offline   laurelfla 

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Posted 25 July 2007 - 12:53 PM

hi!
i'm very interested in getting together... you guys still up for it?
diagnosed 8/05 through positive bloodwork & biopsy
gluten-free since then!

"Those who are willing to be vulnerable move among mysteries." Theodore Roethke
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#8 User is offline   beaglemania 

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Posted 25 July 2007 - 04:33 PM

I live in south florida. martin county. maybe in a couple of years I might be a gator though.
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#9 User is offline   beaglemania 

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Posted 25 July 2007 - 04:37 PM

Florida is much to big of a state. everybody lives everywhere!! I just went on vacation and we drove from Ma to Connecticut and I was like, such a short ride to a completely different state!! We also had to drive through Rhode Island. You could drive for hours and never get out of Florida at the end of the day, depending on where you start from. boring, flat, swampland. That's where we live. Go FLORI-DUH. (I discovered from my cousins thats how they pronounce Florida in California.) Nice, huh? :lol:
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#10 User is offline   lj333 

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Posted 26 August 2007 - 04:23 PM

hey,

I am currently a student at UF and was wondering about a support group. If you did start one, I would be more than interested! Let me know your progress!

Thanks!
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#11 User is offline   grantj 

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Posted 09 January 2008 - 06:48 AM

Hey, I'm a UF law student and I'd be interested in starting an SG-sponsored Celiac/gluten-free awareness group here at the university with you guys. Send me an e-mail if you are interested, or look me up on facebook.

-Grant Johnson
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#12 User is offline   katie d 

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Posted 22 February 2008 - 07:23 PM

Hi,

I am a PhD student in psychology at UF. I was diagnosed with a pretty severe case of Celiac Disease in 2002 and still struggle to maintain a healthy weight. Besides the weight issue, I am finally feeling that I am able to stick to a 100% gluten free diet and exercise four times a week, which makes me feel very healthy. I also struggle with the skin condition associated with Celiac Disease when I am very ill and that has been pretty devastating. I would love to join a support group in Gainesville if one has been started. If not, I would also be willing to start a group.

Katie

p.s. try Pamela's pecan shortbread and chocolate chunk cookies...they are phenomenal!!
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#13 User is offline   laurelfla 

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Posted 22 April 2008 - 05:31 AM

Hi, Gainesville Celiacs!
Let's get together!! For our first meeting, we could go to dinner somewhere.... Outback? Carrabbas? or just meet at Starbucks or Maude's or somewhere and toss around ideas. I tried to find out about a group here when I was diagnosed Aug 2005, but the "contact person" said she was too busy. So then I went to Jacksonville for months after that to their support group, but it fell apart too! :( I would love to get together, please, please, please, let's do it! :D
diagnosed 8/05 through positive bloodwork & biopsy
gluten-free since then!

"Those who are willing to be vulnerable move among mysteries." Theodore Roethke
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#14 User is offline   MJS 

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Posted 06 May 2008 - 05:03 PM

i don't have much time to work on getting a group together, but i would also love to attend a meeting. i live in gainesville as well.
Maya - diagnosed June 2006
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#15 User is offline   CarolAnne 

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Posted 21 May 2008 - 08:52 AM

Hello! My name is Carolanne...and I've lived in Florida for over 20 years. I am a Celiac, and I've been Wheat-Free for 20 years, and Gluten-Free for over 3 years. I'm trying to locate people who live Gluten Free here in Florida...and it's not been easy. Most of the links I've found have been disconnected or discontinued...and I'm having a devil of time finding people to connect to. I'd really like to find others who are interested in getting together...and I understand that I am not alone. I've read several posts from people looking for help, Doctors, restaurants, support groups, meetups and such here in Florida.

GlutenFreeInFlorida-subscribe@yahoogroups.com

I've created a Yahoo Group in the hopes of connecting with other people here in the Sunshine State...and to help others connect as well. I'd like to know if anyone is interested in something that will enable you to contact others in your own local area. I'd like to make more information available to people who are living Gluten-Free in Florida.
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