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Lip Swelling?
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11 posts in this topic

I got glutened a few days ago by an Amy's frozen dinner. I have heard of a bunch of cross-contamination issues lately. I got D almost immediately, along with brain fog, headaches, skin issues, etc. I also had the feeling that my tongue was too big for my mouth, which was something I was getting right before I went gluten-free. That went away after half a day though.

But the new thing is that now I've got a weird swelling on my lips. It's not the whole thing. It's kind of in the middle, but off to one side. It's not on the outside edge, but where my lips close together in the middle-ish. It feels almost like a burned sensation. I was thinking at first I was getting a cold sore or a canker sore, but there's not a sore developing at all. They aren't chapped or cracked. There's nothing that would indicate a bug bite or anything like that. Just kind of a swollen spot on top and bottom.

The only thing I've found on a websearch that seems related at all is food allergies. I haven't had allergy testing done yet, so I'm not sure if I have some sort of allergic reaction going on or what. But it would seem logical to me that if it were an allergic reaction it would be my whole lips, and not just the 20% I'm feeling.

I don't wear makeup very often (the last time maybe a week ago at this point), so I know it's not that. I don't even wear lip balm.

Anyway... I know I'm overdescribing this, but was just wondering if anyone had this as a result of being glutened or something like that.

Nancy

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Nantzie--I think I get what you describe when I eat something I'm intolerant to (not just gluten). The other day, I had a reaction from cornstarch. I had D for the rest of the afternoon, and now I have a tender spot on my lip--upper lip where it meets the skin on the left side. If I press it, it hurts, but there is nothing on the surface at all. They always last a few days, and go away. It does feel like either a breakout, or a cold sore starting, but nothing ever comes of it. Curious that someone else gets this.

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I'm allergic to lots of foods. Sometimes it does show up as a swollen spot on my lip - not the whole lip, just off to one side. It does subside on its own, but is annoying until it does.

Annette

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I get this too. Always the bottom lip and always in the same spot. Weird, huh ? <_<

At first I thought I was allergic / sensitive to salt because it was happening every time I ate salt.

Then I am thought it is only when I OD on salt. I love salt on my watermelon. But, that's not the case either.

On a lighter note, now everytime I see someone with large lips I wonder if they have food allergies :P

Marcia

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It's nice to know it's not just me. It seemed so odd that I wasn't sure I'd get any responses. Good to know it should be gone in a couple days.

Nancy

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This never happened to me before...today! It was either the Bumble Bar (which I believe to be the case), or some lip stuff I put on at the co-op. The reason I guess Bumble Bar is it didn't happen until I ate it. I used to eat them all the time, but I don't eat sugar anymore, and that has lots of honey and other stuff....and peanuts, which I also don't eat anymore. Still waiting for my food allergy panel to come back...wonder what it might be.......

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Yup - this happens to me ALL the time! It is always because I ate/used something I am allergic to. I have had it happen from makeup, Pizza Hut Pizza Sauce (a long time ago), and various other things. It is always on my bottom lip and always on the same side for me too!

My lip will actually swell up a bit too. Just this bump on the inside and a bit on the top/outside area. It is soooo uncomfortable and annoying but yes, does go away after a few days.

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I gave up gluten 2 months ago and about 1 month ago I developed a spot on my top lip that seems like a burn too. I'm so glad to have this board so that I know I'm not going crazy with all these strange things!

Since giving up gluten it also seems like my lips have shrunk (or are slightly swollen). I now feel like I have buck teeth a little. Like my lips won't close all the way when I relax them.

This is a strange disease :lol:

Mia

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Oh my gosh, I have dealt with the same annoying swelling on my lip off and on for years noIw. I've always wondered what it was from, I do bite my lips as a nervous habit, I always thought it was from that. I recently discovered that I am gluten intolerant and have an appointment scheduled for Celiac testing, as I've been having some major GI issues lately (bloating, and acid reflux so bad that sometimes it makes me want to throw up, along with eosinophilic esophogitis.) It's great to see that other people have the same lip reaction that I do, I never would have suspected gluten. interesting. and now I can hopefully prevent it, if it is caused by gluten.

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Dude! The same thing JUST happened to me. I ate the Amy's frozen broccoli cheddar bowl with extra fresh broccoli from whole foods and my lip swelled up like a balloon! I was about to go to the ER till I found this post! I was freaking out!. Now it's back to normal like 10 minutes later? I've never been diagnosed with celiac, but have had frequent D for so long I was trying this diet cause a friend told me to and it's working wonderfully. And I feel great and have no D.

Is this something in the Amy's frozen dinner, or something related to celiac? Ive had this happen before after eatting Amy's dinners but not as severe and its never happne ever till i went gluten free. This is weird. Any doctors reading this?

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My son has had this twice.  The second time we went to the ER and they kept him there overnight.  It did not respond to the standard treatment for allergy.  Finally they decided it wouldn't get any worse since it hadn't yet.  It got better slowly during the next day.  They mentioned hereditary angioedema and we had him tested for it but it was negative.  He got an idiopathic angioedema diagnosis.  In other words she didn't know the cause.  Could it be connected to celiac disease?  Both times it happened during a glutening.

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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