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Can Anyone Help
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im really upset, i trane really hard but since my diagnoses my life has spiraled to what i feel out of control. in february i was hit by a car while out running, aprill my father died,may had diagnoses of celiac and milk intolerance and to top it off the depression had come back, my diet is all up the shubang and im not getting the carbs for my running, i really struggle at the mo, ive been running for a while but the last 2 months espaecailly have been hard, i was in the gym the other day and my friend there said how one of the other girls was doing so well and was really putting in the effort and getting up those hills, it was then she said " you got competion there" my blood went cold! i felt awfull, this girl didnt realize how what she said effected m and she didnt say it nastily it was off the cuff, the girl who is doing well is nice too but i really feel agrieved as she hasnt been training long and has only just a couple of months been running so it was shock to me how she has " " baeten me in the running game"" im not jelouse ( yes i am) and im pleased for the gril who is doing well, i really am but was gutted that i cant be competative anymore, I TRY i really do but its upsetting to me how im struglling and it seems like people are overtakeing me with thier levels of fitness and im stuck in this rut of F *****G celiac, i know im feeling the freen eyed monster and i hate myself for it as these girls are my mates, im such a B***H , im ranting, anyone please help, tips anyone? or just tell me the honest truth, i think i need it. thanx for listening.

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Taz,

It sounds like you've been through a LOT in the last few months. Some of these things take time to get over, and you need to give yourself time to heal.

If you have allowed yourself time to grieve after your loss, then that is awesome.

As far as the running and training, you may need more time to heal from the emotional scars than the physical. If you want to go back to the gym, then go, exercise, get back into training. Do not expect to be able to run as far or as fast right off the bat.

You WILL recover. We all do. We are here to hear you vent and offer advice. But it will take some time. Do not let others advancements get in the way of your recovery from both the celiac and the accident.

And if all else fails, the old addage may apply here "That which doesn not kill you only makes you stronger"

I hope you feeel better soon, but you should also draw on the strength of those around you who you can counton for support.

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It's okay to be mad, the fact that you are continuing

your training tells me that you're determined and that's

good for you physically and mentally. And while

perhaps I haven't gone through anything near what you did,

I was in a nasty car wreck 3 months before my national

soccer cup that I compete in (just last week in fact).

So yes, it does suck to watch everyone advance while

you're in pt and can't do much. Not only could I not

train - I hang out with those women they're all my friends!

It was already bad enough that I was the "bubble child"

with food allergies and celiac!

For me, balancing my totally limited diet was really hard -

for fast carbs all I can eat are rice noodles, potatos, quinoa.

For protein (the absolute most difficult thing) I eat

shelled hemp seed, drink hemp protein, and make my

own veggie protein burgers with sunflower and pumpkin

seeds, quinoa, flaxseed meal and add some hemp protein

to them (can't taste it if you season it right). I eat tons

of veggies which are also carbs.

When I was still crashing and burning - I got my iron checked

and guess what - anemic - so I take a liquid iron supplement which

has helped. I also use a sublingual b-complex since I don't eat

meat (you need b-12 from somewhere). Prior to my workouts

I usually drink an energy drink (along with tylenol and my inhaler B)

so I don't fall apart) I make sure that I am hydrated too.

It took me over a year to come back from the attack of celiac -

and I'm still not quite there yet from the auto mishap, so give

yourself some time and flexibility but don't give up!

You will get there just put your frustrations into finding

the foods, supplements and routine that works for you.

Hope this monologue helps some!

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MmHmm, that little green monster is rearing his ugly head. It takes time to recover from physical injuries, more time to recover from emotional injuries. Celiac causes all kinds of problems, one of them being that your entire body is trying to heal. Keep on keeping on, one day you will suddenly realize how easy it is again. Look at this as a test of whether or not you really want to run again.

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Sorry, I really do understand how frustrating it is. I've been an athlete all my life and for the past 10 years I've had health problems and just can't seem to keep up the same level. And it's not just because I'm getting older. For me, the key is to just keep on going and do the best that I can and try not to compare myself with other people. But I know that's easier said than done. Good for you to keep it up and not quit! Maybe not a lot of words of wisdom, but I just want to give you a little support and encouragement.

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thankyou for not judgeing me harshly, the green monster has a big hold of me i think and i hate that. thanx also for the advice, i have to let you know tho that the accident wasnt serious i was back running 2 weeks after but it hit me mentally rather than phisically. i will try to get a hold of this and work through the emeoinal stuff and work on my diet to get enough of thr right carbs. thankyou all for letting me vent and be so understanding.

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    • I had quite a few of the medical problems that you have before I figured out that gluten was the problem. I can’t do basic math or writing when I eat gluten also I get depressed, irritable, low energy, etc. The best route to go is to do an elimination diet and monitor how certain foods affect you. I eliminated MSG (Monosodium Glutamate), Nitrite, and oat based on the reactions that I get once I consume them. You must be disciplined on a gluten free diet, there is not such a thing as –It is just one cookie! If you can manage to go 100% gluten-free for three weeks and you see those problems going away, you will have a good idea if that is the cause of your problems. The blood test I did after being gluten-free for two years came back negative so the doctor just make me feel that I was crazy and making things up. I have a stool test done which came back with elevated igA also a gene test indicating I have two genes that code for gluten sensitivity. My lactose intolerance went away too, eating a lot of cheese now. Rash in arms? gone, Brown spots in teeth? Gone, Intestinal noises? Gone, Lack of bladder control? Gone, Constipation? Gone, and a lot others.   
    • Oh you're most welcome!  Another thing --- no steroids, oral or injected for 2 months prior to a dh biopsy. Lay off any topical steroid creams for 2 weeks prior. Really, stand your ground with them. It would also be great if you can get a friend or family member to go with you in case they take the biopsy from somewhere that you can't see such as the back of your neck. Your friend/family member can watch to make sure they don't take it directly ON a lesion. Do you have a primary care doc? You can also go to that doc & ask for a full celiac panel PLUS an eTG or TG3. 60% of people with dh test negative on the celiac blood panel but maybe you're one of the 40% who will test positive. It's worth a shot.
    • Thank you so much for responding, it's so hard to go on this journey of questions and Drs. I really appreciate the time you took to respond. God bless you 💖
    • Do you have copies of your blood test results? Can you post them? Don't forget to list the reference ranges. Is the TTG the only celiac test they did?  Do you have a copy of your pathology report? Get it if you don't. How many biopsies did they take & from what areas? Were you eating gluten right up until the biopsy?
    • I got them on the back side of my knees too. All the literature points out knees & elbows but doesn't mention the "behind the knee" portion of your leg. I eventually got them ON the knees itself but that was one of the last places to present. I also got them on the inside bend of my arm instead of the elbow and just like the knees, it eventually presented on my elbows. Not to be forgotten; the literature also states it can present anywhere on the body. If you found those links I've posted about how a dh biopsy is done correctly then print them out & take them with you to SHOW them. Any derm should be able to follow the directions or they should turn in their license.  As to them saying herpes, well duhhhhhhhhhhhhhhhhhhhh, dh does have a herpes like presentation. That's why they call it dermatitis herpetiformis! Remember, they work for YOU, not the other way around. Insist. Make sure you're still eating gluten. Let us know how it goes. The best of luck to you!
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