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Enterolab Testing
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I've been gluten-free for over 3 months now. The only testing I had was blood tests that proved Celiac. I've never done the biopsy. Now I've heard that the blood tests may not be the most reliable way to detect Celiac and that Enterolab is better. My question is: Is it possible to get accurate results using Enterlob even though I've been gluten-free for 3 months already? I REALLY don't want to go back on gluten just for a test. Thanks!

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Yes, you can do the testing at Enterolab while you are gluten-free. They recommend you stay on whatever diet you are currently on. They do NOT want you to go back on gluten for testing. You can e-mail Dr. Fine and ask him which test(s) he would recommend, since you have been gluten-free for three months, and on the questionaire that you fill out when you send the test kit back it will ask you if you have been on a gluten-free diet and for how long.

I did go back on gluten for testing and it was awful. I was on gluten for two months and my biopsy was still negative! I was sicker than I had ever been and would not recommend it to anyone. It took me months to heal from the damage and I had trouble digesting anything for at least a month and then only digestive enzymes helped. I am very thankful for Enterolab.

God bless,

Mariann

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My anti-endomysial antibody and transglutaminase blood tests were negative but I tested strong positive for gliadin antibodies. My Enterolab results are:

Gluten Sensitivity Stool Test

Fecal Antigliadin IgA 38 Units (Normal Range <10 Units)

Stool Test for Autoimmune Reaction to Tissue Transglutaminase

Fecal Antitissue Transglutaminase IgA 33 Units (Normal Range <10

Units)

Stool Test for Small Intestinal Malabsorption

Microscopic Fecal Fat Score: 287 Units (Normal Range < 300

Units)

I guess I'm curious what other peoples' results have been but if I am to trust the Enterolab results I should be on a gluten-free diet. My GI doc, however, doesn't want me to go gluten-free until they get the endoscopic biopsies but I have to wait until she gets back from vacation in three weeks. How have other people tested?

TIA,

Jason

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    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
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